"What can be done about an autistic child (high functioning) who does things repeatedly like rocking back and forth, spinning and flipping objects, making strange vocal noises over and over again? This constant non-stop behavior can be so annoying (and embarrassing) at times."
Most of our "leisure activities" are nothing more than self-stimulation behaviors that have become highly ritualized over time and made socially acceptable. There is nothing intrinsically valuable or reasonable about leisure pursuits such as bungee jumping, playing cards, dancing, playing video games, listening to music, smoking, etc.
People participate in these different activities because they find them to be pleasurable and because the activities alter their physical state. Each activity provides us with a particular type of sensory input.
There is not necessarily a great difference in so-called self-stimulation behaviors in children with autism spectrum disorders and some of these activities, beyond the fact that some are more socially acceptable and "normal" in appearance than others.
Most parents find that their child with ASD or High-Functioning Autism is more likely to participate in self-stimulatory behaviors when he or she is idle or stressed. Interacting with your child in some way may break up the self-stimulation. If the behavior appears in response to stress, finding ways to help him relax (e.g., massage, being wrapped up in a quilt, etc.) may reduce the amount of time spent in the behavior you find inappropriate or harmful. If your child is left alone; however, it is likely he/she will re-engage in this activity as soon as the opportunity presents itself.
Some behaviors may present problems because they are considered socially inappropriate. These behaviors can be used as a way to explore the child's preferred sensory channels for receiving information from the world. With this information, parents may identify preferred sensory experiences around which they can develop more "mainstream" leisure activities that their children will also come to view as "leisure" (e.g., if the youngster enjoys the visual sensation of lights, find age-appropriate toys that can be motivating to him).
Take time to observe the types of self-stimulation that your child participates in - and when this behavior occurs. Watch him or her and make notes about what you see and when you see it. Then try to see if there is any pattern to these behaviors that would give you insight to the type or types of stimulation he/she prefers and the purpose it serves.
At the same time, note what types of activities your youngster finds aversive. When you have a good understanding about his or her preferences, begin to brainstorm ways that you can offer other stimulatory activities, modify or expand on the preferred self-stimulation.
Look at children of the same age, and try to find toys or activities that may make the self-stimulatory behavior appear more "normal." Sometimes your child's favorite self-stimulation activity can be modified or expanded in a way that will make it more socially acceptable.
As one mother with Asperger's herself states, "I totally agree, it can be annoying, even embarrassing at times, but they cant help themselves. Its part of the acceptance we as parents have to do. Ive even had to go to counseling myself. My child's father was so ashamed that he left. If u really love ur child, u have to just deal with it minute by minute & second by second. I personally am blessed to have 2 adult children that are always willing to watch my son for a few hours to give me a break. Ill be praying for all the other aspergers parents out there cuz we understand all too well what that missing puzzle piece means."
Resources for parents of children and teens on the autism spectrum:
"Can high functioning autism be inherited? Our son was recently diagnosed, and now I am wondering if my husband has it too ...their behaviors are very similar."
There is strong evidence that ASD Level 1 or High-Functioning Autism (HFA) is, at least in part, an inherited condition. If one twin develops the disorder, there is a 60% likelihood that the other will develop it as well.
Younger kids born into families with an older child on the autism spectrum have a 5-6% likelihood of also having the disorder.
Even though the incidence of HFA is higher among related family members, no specific gene has been linked to its development. Also, there is currently no way to test for the genetic predisposition towards the disorder.
HFA is a neurobiological disorder in which known areas of the brain are affected in ways scientists do not yet completely understand. The disorder is considered to be inherited in a complex fashion (e.g., more complicated than disorders such as color-blindness or Huntington’s disease).
Researchers are getting closer to finding a genetic basis behind autism spectrum disorders. Rett’s syndrome is an autistic disorder for which the exact genetic cause is believed to have been found. In Aspergers and HFA, studies suggest problems in several chromosomal (genetic) regions, including areas on the chromosomes 2q, 7q and 15q.
While the 7q region is considered the most promising area of study, research studies involving this chromosome in the disorder have failed to observe its linkage to this region.
For reasons doctors do not completely understand, there are far more boys "diagnosed" than girls (although there may be as many girls with the disorder as boys, males get diagnosed with the disorder more often).
Scientists have evaluated whether or not HFA represents an X-linked genetic disorder (i.e., one passed down generally from a mother to a son). Unfortunately, there have been cases of father to son transmission of the condition, which means that the disease can't be X-linked.
In at least one case, two parents with HFA had a child that also had the disorder, but did not have a severe case of the disorder, nor did the child have autism. In another case, identical twins both had HFA, but this is not always the case.
While some scientists support the idea that at least a portion of the disorder isn’t genetic at all, there have been no specific findings associating it with any environmental conditions (e.g., pregnancy complications).
Resources for parents of children and teens on the autism spectrum:
More articles for parents of children and teens on the autism spectrum:
Social rejection has devastating effects in many areas of functioning.
Because the ASD child tends to internalize how others treat him,
rejection damages self-esteem and often causes anxiety and depression.
As the child feels worse about himself and becomes more anxious and
depressed – he performs worse, socially and intellectually.
Meltdowns are not a pretty sight. They are somewhat like overblown
temper tantrums, but unlike tantrums, meltdowns can last anywhere from
ten minutes to over an hour. When it starts, the Asperger's or HFA child
is totally out-of-control. When it ends, both you and your child are
totally exhausted. But... don’t breathe a sigh of relief yet. At the
least provocation, for the remainder of that day -- and sometimes into
the next - the meltdown can return in full force.
Although Aspergers [high-functioning autism] is at the milder end of the
autism spectrum, the challenges parents face when disciplining a
teenager on the spectrum are more difficult than they would be with an
average teen. Complicated by defiant behavior, the teen is at risk for
even greater difficulties on multiple levels – unless the parents’
disciplinary techniques are tailored to their child's special needs.
Your older teenager or young “adult child” isn’t sure what to do, and
he is asking you for money every few days. How do you cut the purse
strings and teach him to be independent? Parents of teens with ASD face
many problems that other parents do not. Time is running out for
teaching their adolescent how to become an independent adult. As one
mother put it, "There's so little time, yet so much left to do." Click here to read the full article…
Two traits often found in kids with High-Functioning Autism are
“mind-blindness” (i.e., the inability to predict the beliefs and
intentions of others) and “alexithymia” (i.e., the inability to
identify and interpret emotional signals in others). These two traits
reduce the youngster’s ability to empathize with peers. As a result, he
or she may be perceived by adults and other children as selfish,
insensitive and uncaring. Click here to read the full article...
Become an expert in helping your child cope with his or her
“out-of-control” emotions, inability to make and keep friends, stress,
anger, thinking errors, and resistance to change.
A child with High-Functioning Autism (HFA) can have
difficulty in school because, since he fits in so well, many adults
may miss the fact that he has a diagnosis. When these children display
symptoms of their disorder, they may be seen as defiant or disruptive.
"Is it fair to say that some people unfairly stereotype children and teenagers who have an autism spectrum disorder? It seems to me that society views this population as "trouble-makers" or mentally handicapped - and even dangerous (e.g., they get blamed for some school shootings), which is just plain ignorant in my opinion. What's your opinion please?"
Young people with ASD level 1 or High-Functioning Autism (HFA) are often viewed largely in negative terms by some. And to make matters worse, this inaccurate stereotyping often leads to inappropriate interventions, which can lead to long-term damage.
Here are some examples of stereotyping. A child with ASD:
Can't do things that require social interaction, especially with strangers
Dislikes establishing eye contact
Dislikes using the telephone, preferring email or person-to-person instead
In social situations with a lot of noise and conversations, has trouble hearing and easily gets disoriented
Is easily depressed
Is not very good at small talk, especially intimate bantering
Often assumes that any comments or remarks require a response
Often does not care what other people think
Often fails to read other peoples' standard body language
Often feels rejected if an important project or idea gets a mixed or lukewarm response
Often makes others very angry because of the way he or she interacts
Often responds angrily to frustrating situations
Often says things in conversation that are inappropriate, divergent, or tactless
Talks forever, without pause, about favorite topics
Usually keeps silent and does not interact if faced with a question or topic that is difficult to answer
Do some children and teens with ASD have some of these characteristics to varying degrees from time to time? Yes.
Do all of these young people have all of these characteristics all the time? No.
It has been well documented that those on the autism spectrum are vulnerable individuals who will face certain difficulties. These are often highlighted by people who see only the negatives rather than the positives such differences could represent. This lack of positive awareness, combined with an inconsistency of knowledge, can lead to inaccurate stereotyping and resultant interventions that are far more harmful than helpful.
The reality is that a children with ASD are unique individuals who have a lot of skills and abilities. Yet, they are often deemed incapable of learning; thus, an ability to achieve much in life may be overlooked.
All too often, the focus continues to be on forcing them to fit into damaging, inflexible environments, which not only prohibits them from reaching their full potential, but also contributes to long-term mental health problems that could otherwise be avoided.
Having an autism spectrum disorder can be worrying and upsetting for all those concerned, but there will be areas in which these "special needs" kids will excel compared to the general population. For example:
A sensitivity to sound could lead to working in sound recording or music.
With a sensitivity to the taste and texture of food and drink, people with ASD could become great gastronomes and food critics.
A sensitivity to visual information can be useful in photography, drawing and visualization used by architects and artists.
These individuals are generally free from sexism or racism.
They can be very sensitive to the plight of disadvantaged people around the world.
They can use their sensitivity and wider differences to help others who are in the same position as themselves, or act as arbiters and mediators in dispute situations.
They have proved themselves to be great innovators and inventors – not only of products, but also of ideas concerning literacy and story-telling.
They often speak out frankly and honestly; they are sincere truth-tellers who will tend to follow the rules of the job.
Many are intelligent and have high IQs. They may, for example, have an excellent memory for facts and figures, or a good memory for past situations.
Many possess powers of deduction that, when coupled with an attention to detail, could be useful in criminal investigations.
People with ASD tend to make very loyal friends.
Little research has been conducted into “gifted” individuals, although those who are described as such often show the same qualities seen in people on the spectrum. Individuals with high IQs question the world which surrounds them. They are usually single-minded and can throw themselves into their work for long, intense periods. These are all aspects associated with the "disorder."
In short, the way these young people think should be regarded as a positive attribute, which the rest of society can learn from. When their differences are embraced, the positives definitely can outweigh the negatives. The goal should not be about “normality,” but encompassing acceptance, love, and communication.
Resources for parents of children and teens on the autism spectrum:
"What would be the most important teaching strategy to use with my students who are on the high functioning end of the autism spectrum?"
The short answer is: capitalize on the child's natural visual-thinking skills...
Children with Aspergers (AS) and High-Functioning Autism (HFA) often think differently than other children. They often have what is known as 'visual thinking'. While many of us think in words or abstractly, kids on the autism spectrum think in pictures and films playing in their head.
They have a difficult time seeing a generic representation of, say, a cat, and instead recall exact images of cats they have seen. Some researchers believe that the way AS and HFA people think is a good way of compensating for losses in 'language thinking'. This is what often makes these kids good at building things and seeing the end product of something before it is done.
Using this visual thinking to an advantage can help parents and teachers educate Aspergers students better. Teaching them through videos, pictures and other visual aids can help them learn while getting around the areas they have trouble with.
One AS student stated, “I think totally in pictures. It is like playing different DVDs in a DVD player in my imagination.” Many AS and HFA children and teens can manipulate the pictures in their imagination, which helps them to learn different things. To access spoken information, they can be taught to replay a “video image” of the person talking to them. In some cases, this represents a slower way of thinking, but it generally gets the job done.
Visual thinking often puts people with AS and HFA in jobs that involve architecture or design. Not only is their visual learning superior, but their learning memory is more intact than other ways of remembering things.
Many individuals on the spectrum can create elaborate visual images of things as complex as computer programs and musical pieces, and then can fill in the rest of their knowledge around that. The thinking is often non-sequential so that pieces of knowledge are filled in like jigsaw puzzle pieces in no particular order.
When parents and teachers catch on to this method of thinking, it becomes easier to see the strengths the "special needs" student has -- and it becomes easier to find ways of using the visual imagery to teach concepts.
“I have a 16 y.o. teen with high functioning autism who seems to be down in the dumps a lot lately. He has stated he knows he is ‘different’ than his friends and classmates, and may be feeling a sense of shame about that (IDK?). How can I help him to not feel so alienated from his peer group?”
Regardless of the individual developmental route, most young people with High-Functioning Autism (HFA) and Asperger’s (AS) start realizing that they are not quite like others at some point during their adolescence. Around that age, they have a higher level of interest in others, but don’t have the skills to connect in socially-accepted ways. Also, they’re at the age where they have a higher level of insight into their difficulties with social interaction.
Signs that your HFA or AS teen is feeling depressed about his dilemma include:
Withdrawing himself from the rest of the family
Refusing to participate in group activities
Putting himself down (e.g., saying he is ‘stupid’)
Not being able to fall asleep
Waking up in the middle of the night and having difficulty falling back to sleep
Making remarks such as he hates life, he hates you, nobody loves him, or wishing he was dead
Losing interest in activities he usually enjoys
Eating less or more than usual
Complaining that he is tired all the time and wanting to take naps during the day
Blaming himself unfairly for anything that goes wrong
Becoming irritable and angry with the drop of a hat so that parents start walking on egg shells
Appearing sad for most of the time
Once the HFA or AS teenager realizes that he has significant difficulties effectively engaging in social relationships as compared to his peers, he needs deal with this loss, just like dealing with any other loss. Understanding the thoughts, feelings and behavior of your son is the necessary first step in helping him and being there for him. Considering this coping process in a few stages may make your job easier:
Denial
Anger
Depression
Acceptance
Adaptation
Most commonly, the teen will not go through these stages one after another, but rather display a larger or smaller aspect of each at any given time. This is a painful process for not only the teen, but for parents as well. Moms and dads may find themselves compelled to forget the whole thing and act as if nothing is happening (we are all tempted to avoid pain – and denial is an excellent pain-killer).
The good news is, as much as the denial is contagious, seeing his parents dealing with the pain calmly and matter-of-factly will encourage the teen to talk about his anger and frustration. This will in turn help him get closer to acceptance and adaptation.
You don’t have to bring up the fact that your teen feels alienated from the peer group, but when he does, give him a good listening ear and be patient.
When your teen starts to bemoan his circumstances, don’t try to change the subject (unless he does so).
Sometimes you have to be very political trying to sell an idea to any teenager. The mere fact that the idea is coming from you, his parent, may make him refuse it. Let the idea come from a family friend, teacher, or a neighbor he trusts. Give him time to think about it. He may come back to the suggestion when he feels he is ready.
Offer the option of counseling, because sometimes it is easier to talk to a stranger; however, try not to push the idea directly, even if you feel that your teenager clearly needs professional help.
Most teenagers with HFA and AS excel in one or two subjects. They tend to accumulate a lot of information on the subject and love to talk about it over and over. Unfortunately, family members eventually end up losing interest and start getting bored with the same topic over and over again. Rather than avoiding the subject, try finding out new ways to engage your teen in the subject. Structure the topic in a different way. Find a way to challenge him. Be creative and let sky be the limit! Your interest will make him feel better about himself, and realizing his mastery on the subject will boost his self-esteem.
Help your HFA or AS teen to resolve his sense of loss by turning the issue upside down. In other words, rather than clinging to depression and despair, help him to find his identity in his disorder. Help him get in touch with other young people on the spectrum. Encourage him to educate his peers about the disorder at school. Your “special needs” teenager could also set up a web site, chat room, and even write a book about it. Encouraging your teen to focus on the strengths associated with the disorder, and providing him means to this end and removing the obstacles in front of him may turn out to be the best anti-depressant treatment ever.
Don’t try to minimize his difficulties – but also don’t let him exaggerate, providing gentle “reality testing.”
All of this may seem remote and you may not know where to start. Consider the following tips:
Leave brochures, leaflets and other information about teen groups around to catch the attention of your teenager.
Invite your friends and acquaintances to your house and encourage them to bring their adolescents (e.g., for a pizza party and movie).
Get in touch with the organizations like the Autism Society of America or Asperger Syndrome Coalition of the U.S. and contact their local chapters.
Attend support groups for parents and make acquaintances.
If your attempts to reconcile this issue of alienation don’t work right away, don’t get discouraged and keep trying, always letting your teen make the first move in showing an interest in processing and resolving his challenges.
For most children with High-Functioning Autism (HFA) and Asperger’s (AS), the most important parenting strategy involves the need to enhance communication and social know-how. This emphasis is not an attempt to stifle individuality and uniqueness - and does not reflect a societal pressure for conformity. Instead, it reflects the fact that most children on the autism spectrum are not “loners” by choice.
As these “special needs” children become teenagers, they often experience a sense of hopelessness, negativism, anxiety, or depression due to their increasing awareness of personal inadequacy in social situations - and repeated experiences of failure to make and/or maintain relationships. The typical limitations of insight associated with the disorder often prevent the child from engaging in spontaneous self-adjustment to social and interpersonal demands.
The practice of social skills does not mean that the HFA or AS child will eventually acquire social spontaneity and naturalness (i.e., social skills are not intuitive to children on the autism spectrum as compared to “typical” kids). However, it does better prepare the child to cope with social and interpersonal expectations, thus enhancing his or her attractiveness as a conversational partner or as a potential friend.
Here are a few suggestions intended to foster relevant skills in this important area:
1. Explicit verbal instructions on how to interpret other’s social behavior should be taught and exercised in a rote fashion, not unlike the teaching of a foreign language (i.e., all elements should be made verbally explicit and repeatedly drilled). For example, parents (and teachers) can teach the meaning of various inflections as well as tone of voice, non-literal communications (e.g., humor, figurative language, irony, sarcasm and metaphor), gaze, facial and hand gestures, eye contact, etc. The same principles should guide the training of the child’s expressive skills. Concrete situations can be practiced at home, and gradually tried out in naturally occurring situations.
2. The effort to develop the child’s skills with peers in terms of managing social situations should be a priority. For example, ending topics appropriately, feeling comfortable with a range of topics that are typically discussed by same-age peers, shifting topics, the ability to expand and elaborate on a range of different topics initiated by others, topic management, etc.
3. Encounters with unfamiliar people (e.g., making acquaintances) should be practiced until the child is made aware of the impact of his or her behavior on other people’s reactions to him/her. Strategies in the program could be: practicing in front of a mirror, listening to the recorded speech, watching a video recording of behavior, etc.
4. The child with HFA or AS should learn to recognize and use a range of different means to disagree, discuss, interact, mediate, negotiate, and persuade through verbal means. Also, it is important to help the child to develop the ability to anticipate multiple outcomes, to explain motivation, to make inferences, and to predict in order to increase the flexibility with which he or she thinks about - and uses - language with others.
5. The child on the autism spectrum should be taught to monitor his or her own speech style in terms of: adjusting depending on proximity to the speaker, context and the social situation, naturalness, number of people, background noise, rhythm, and volume. Other crucial skills that parents and teachers can teach include:
reading the body language of others
learning to cope with mistakes
learning peer group problem-solving
becoming aware of their emotions
maintaining eye contact
maintaining appropriate personal space
understanding gestures and facial expressions
resolving conflict
taking turns
learning how to begin and end conversations
determining appropriate topics for conversation
interacting with authority figures
identifying one's feelings
recognizing the feelings of others
demonstrating empathy
decoding body language and facial expressions
determining whether someone is trustworthy
making choices
self-monitoring
understanding community norms
Social interactions are very complex, and the list presented above is not exhaustive in terms of the skills that HFA and AS children may need to successfully navigate social situations. Furthermore, each child’s “social-skill profile” is different. Some of these young people may have strong foundation skills but lack appropriate interaction skills, while others may require assistance in developing more basic skills (e.g., starting a conversation).
“I'm currently studying law and was wanting to know what some of the characteristic features are that predispose to criminal offending for teens with [high-functioning] autism?”
First of all, let me be clear that there is little to no evidence that teens on the autism spectrum engage in criminal behavior any more than the general population of similar age. Second, the following characteristics may apply to some “typical” teenagers, not just those with ASD:
1. Social naivety and the misinterpretation of relationships can leave the autistic teen open to exploitation as a stooge. His or her limited emotional knowledge can lead to a childish approach to adult situations and relationships, resulting in social blunders (e.g., in the mistaking of social attraction or friendship for love).
2. Overriding obsessions can lead to offenses (e.g., stalking, compulsive theft). Harshly reprimanding the teen can increase anxiety - and consequently a reflective thinking of the unthinkable that increases the likelihood of repeating the offense.
3. Misinterpreting rules, particularly social ones, teens on the spectrum may find themselves unwittingly embroiled in offenses (e.g., date rape).
4. Lacking motivation to change, these young people may remain stuck in a risky pattern of behavior.
5. For those teens who have been traumatized by teasing, rejection, and bullying from their peer group, “revenge-seeking behavior” may become their method of establishing equality (i.e., to even the score).
6. The teen’s tendency to misjudge relationships and consequences can result in a risky openness (i.e., dangerous self-disclosure) and the revealing of private fantasies which, although no more shocking than any teen’s, are best not revealed.
7. Impulsivity, sometimes violent, can be a component of comorbid ADHD or of anxiety turning into panic.
8. Difficulty in judging the age of others can lead the teenager into illegal relationships and acts (e.g., sexual advances to somebody under age).
9. An innate lack of concern for the outcome can be problematic (e.g., an assault that is disproportionately intense and damaging). Young people on the spectrum often lack insight and deny responsibility, blaming someone else, which may be part of an inability to see their inappropriate behavior as others see it.
10. An innate lack of awareness of the outcome can lead the teen to embark on actions with unforeseen consequences (e.g., fire-setting may result in a building’s destruction).
Many of the traits listed above affect the teen’s ability to make logical decisions, thus limiting his or her level of responsibility. Whether the teen is identified as an “offender” (as distinct from someone who has committed an offense) depends on chance factors in his or her environment (e.g., effectiveness of his/her supervision, the recognition of ASD and the understanding of those around.
Resources for parents of children and teens on the autism spectrum:
More articles for parents of children and teens on the autism spectrum:
Social rejection has devastating effects in many areas of functioning.
Because the ASD child tends to internalize how others treat him,
rejection damages self-esteem and often causes anxiety and depression.
As the child feels worse about himself and becomes more anxious and
depressed – he performs worse, socially and intellectually.
Meltdowns are not a pretty sight. They are somewhat like overblown
temper tantrums, but unlike tantrums, meltdowns can last anywhere from
ten minutes to over an hour. When it starts, the Asperger's or HFA child
is totally out-of-control. When it ends, both you and your child are
totally exhausted. But... don’t breathe a sigh of relief yet. At the
least provocation, for the remainder of that day -- and sometimes into
the next - the meltdown can return in full force.
Although Aspergers [high-functioning autism] is at the milder end of the
autism spectrum, the challenges parents face when disciplining a
teenager on the spectrum are more difficult than they would be with an
average teen. Complicated by defiant behavior, the teen is at risk for
even greater difficulties on multiple levels – unless the parents’
disciplinary techniques are tailored to their child's special needs.
Your older teenager or young “adult child” isn’t sure what to do, and
he is asking you for money every few days. How do you cut the purse
strings and teach him to be independent? Parents of teens with ASD face
many problems that other parents do not. Time is running out for
teaching their adolescent how to become an independent adult. As one
mother put it, "There's so little time, yet so much left to do." Click here to read the full article…
Two traits often found in kids with High-Functioning Autism are
“mind-blindness” (i.e., the inability to predict the beliefs and
intentions of others) and “alexithymia” (i.e., the inability to
identify and interpret emotional signals in others). These two traits
reduce the youngster’s ability to empathize with peers. As a result, he
or she may be perceived by adults and other children as selfish,
insensitive and uncaring. Click here to read the full article...
Become an expert in helping your child cope with his or her
“out-of-control” emotions, inability to make and keep friends, stress,
anger, thinking errors, and resistance to change.
A child with High-Functioning Autism (HFA) can have
difficulty in school because, since he fits in so well, many adults
may miss the fact that he has a diagnosis. When these children display
symptoms of their disorder, they may be seen as defiant or disruptive.