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What the Future Holds for Your Teenager on the Autism Spectrum

"I would like to know what to expect from a high functioning autistic child in the teenage years. My son was diagnosed 2 years ago. I know they say that they can suffer from this and that, but what is the long-term goal, what can we expect, what not to expect?"

Young people with ASD level 1 or High-Functioning Autism (HFA) often have a difficult time between the ages of 13 and 19. They may be socially excluded and face rejection by their peers if they act differently from others. They want to be accepted and liked, but often don’t know how to behave and communicate appropriately. School is demanding and they long for friends. The goal for your HFA son is to make it through the teen years with the following:
  • his self-esteem intact
  • at least a friend or two
  • knowledge that his family loves him
  • a high school diploma
 
There are some teens that manage to navigate these years successfully because they don’t care about peer pressure and focus on a special interest of their own (e.g., chess or computers). So, encouraging your son to develop a special interest may help him at this time of life. A special interest may encourage friendships with other teens that have the same interest as well, making it easier to talk to and make friends with others.
 
==> Parenting System that Significantly Reduces Defiant Behavior in Teens with High-Functioning Autism

A big problem for HFA teens is that often they don’t care about fads, clothing, celebrities, and teen communication devices (e.g., cell phones or Facebook). Your son’s interests may be more appropriate for younger children. Boys may be rejected if they are not interested in sports. Some of these issues can be resolved, though.

Help your son become aware of teen fads and how to talk about sports, celebrities, rituals, and school events. Encourage him to leave text messages for and arrange social engagements with peers. Perhaps he could join school clubs, especially those that focus on his special interest. Explain to your teen that he does not have to tell everyone that he has the disorder. He may enjoy talking with other HFA teens in internet chat rooms.

Your son may ignore personal hygiene and wear clothes and a haircut that are not in style. Find a same sex friend who will help him choose appropriate clothes to wear. Monitor your teen’s hygiene and create reminder notes or charts for him about daily bathing, tooth brushing, etc. Reward him for good hygiene, if that’s what it takes!

“Special needs” teens are sometimes not very well-informed about sex and dating. Boys may be very naïve or too forward with girls. Hormones cause rampant emotions, which HFA teens can’t handle. If they get angry, they may physically attack others or have a “melt down.”

You must teach your teen about sex. Provide books for him to read. Choose books that aren’t overly “clinical.” Be specific and detailed about safe sex. Never be judgmental or punish him when he confides in you; instead, counsel him. Boys need to be told that masturbating should take place only at home, in private. Teens on the autism spectrum often respond to “rules” by obeying them. Establish some rules for your son (e.g., “We have a rule in our house that teenagers should not have sex because they are too young to handle the emotions and problems that may occur”).

Some HFA teens develop problems with drugs and alcohol because they are eager to do what other teens do. They are not able to determine a “good” crowd from a “bad” crowd. Other teens may take advantage of your son’s eagerness to be liked and convince him to buy and/or take alcohol or drugs. You must always know where your son is, who he is with, what he is supposed to be doing, and the characters of the other teens he hangs around. Emphasize that drugs and alcohol are illegal. Teens on the spectrum are “rule-oriented,” so this may help your son avoid problems.

HFA teens may have school problems because of the difficulty in dealing with more than one teacher. Each classroom is a different environment, which may be confusing. Some teachers may be hostile. Some assignments may be overwhelming. Keep in close touch with your son’s teachers. A placement into Special Education may be necessary when a teen on the spectrum enters middle school. Some tens on the spectrum need special classes even though they didn’t before.

Make sure your son has a “safe place” at school where he can share emotions with a teacher, nurse, guidance counselor, or psychologist. If your son experiences harassment and/or rejection at school and the staff does not help, a special education placement or a therapeutic boarding school can give professionals a chance to assist your teen academically and socially.

Suicide may become a possibility for a few teens with autism. If you have any worries about this, get help immediately from a psychologist or psychiatrist.
 
==> Parenting System that Significantly Reduces Defiant Behavior in Teens with High-Functioning Autism

Use reasoning and negotiation with your son, instead of orders. If possible, give him two choices rather than telling him what he must do in a situation. He will have more control over his life and feel less resentment. He will be less likely to listen to you (like all teens!) at this age and may exhibit anger and impatience. He may hate school and resist everything you want him to do. Depression is common. If these problems occur, your son may need counseling.

Most autistic teens learn to drive successfully because they obey the rules! Have your son carry a cell phone and a card that explains the disorder. Teach him to call you in a crisis and to give the card to any police officer who stops him. Role play with him so he knows what to do and say if stopped by an officer.

Some teenagers on the autism spectrum do well in summer jobs in an area of special interest or with little contact with the public. Occupational therapy will help your son get ready for adulthood. Special programs are available that teach job and living skills. This will reduce his dependency on you. And above all, ask for help from professionals when you or your son need it.



==> Has your child on the autism spectrum been experiencing a lot of sadness lately? If so, here are a bunch of suggestions to assist in the matter...


Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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Here’s what other parents have had to say:

• Anonymous said… All of this is happening with my 15-year-old HFA. It can be heartbreaking for the parent. I just take it day by day.
• Anonymous said… Great article
• Anonymous said… Great article! My HFA is 39 & married now but that article was spot on with ways to help them through it.
• Anonymous said… I have a 16-year-old son that has not been diagnosed yet, but it is very obvious to us he is an HFA. Personally, I am very happy he is not interested in the 'teen fads", makes life much easier in my opinion. He could use a few friends though.
• Anonymous said… I will be homeschooling my son next year. I knew this would start happening. Just glad I have the option to homeschool:)
• Anonymous said… Nice article. My son who is now 17 has faced some of those issues and through counseling has been able to overcome many difficulties. He had a much rougher time in the early teens. Now he is more comfortable in his own skin. He doesn't necessarily follow trends in clothes, has let his hair grow. Still needs reminders with hygiene every now and then, but I believe he is on the road to independence. I want my son to have as beat normal life as possible, I don't want his condition to limit his potentials and who he will be. He can achieve greatness because he is a good kid. He gives me a hard time, but what teenager doesn't. I take it as a phase and guide him in all I can. His school has been very supportive and his peers accept him for who he is. Even when people snicker about him, he pays them no mind. I do like the advice about the HFA card in the wallet. He is learning how to drive and this is a good idea for when he will be driving by hi self and gets stopped by the police. Thanks for sharing this article.
• Anonymous said… Thank you for the article. My son turns 13 this year, I am sure I will be putting this info to good use.
•    Anonymous said... My son Liam is now 14. The best thing I did was have a behavior specialist come to the house once a week, which insurance covers, to help with things throughout the years like facial recognition, conversation with others, even just sitting in his chair and not crawling under the table when he got upset. He grew, matured, and learned, slower than the other kids yes, but still slow and steady learned to manage his behaviors. Now that he is a teenager he decided to do virtual school at home because the business of school, hallways, and other kids faired to distracting for him. He is doing great. Good grades, on a bowling team, has a few friends. Best thing you can do is join you child in something if they are not noise sensitive. It gives them a sense of belonging to a team. Liam started when he was 7 and is still on the team. He does his own laundry, vaccums his room, manages his schedule, takes care of his cat. Can't wait till he can get a job. So proud of him. So to answer your question an hour later lol you have lots of great stuff to look forward to if you get the right help. Also the behavior specialist made me feel like I had someone on my side and I wasn't alone. Relieved some of the stress.
•    Anonymous said... My daughter uses a note book to communicate with teachers, when she feels she can't talk or ask something. She has a brilliant sen support net work at school too and I have one main person who communicates everything to me. Her mood swings can change so quickly that each day is different, just make sure you keep talking to each other x
•    Anonymous said... I found Social Thinking books for teens excellent resource for your teen and you to read (very appealing to teens for how to on social stuff while insightful for parents) An advocate for you and student at school is huge. I truly enjoy communicating with my son and his perspective. Reason, logic, and showing you respect his viewpoint, but he must do the same. Clear, consistent logic. Plus if you want to hear about your teen's day tell them about yours, a chance to walk him through social situations at school.
•    Anonymous said... expect nothing, take each day as it comes and keep clear communication with him as much as possible, try to get him to tell you his feelings and opinions on things so you'll have an idea of how he's perceiving the world, make sure school are on board and check with him which teachers he trusts the most, these are the ones you need the most contact with so you can be part of the same team in helping him, as for hormones, expect the same as you'd expect from any teen. 

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Tantrums in Public: Tip for Parents of Kids on the Autism Spectrum

"Any tips for avoiding temper tantrums when my 5-year-old (high functioning) son and I are out shopping?"

All parents have experienced the temper tantrum in the grocery store or the restaurant. While young people with High-Functioning Autism and may have tantrums that seem larger than life at times, they are still tantrums.

Here are some tips for parents:
1. Prior to going on outings, it is important that your child is prepared for what is going to take place. So explain the trip's agenda in depth.

2. You may want to have your child engage in some physical activity and play prior to the trip so that he is calm (and slightly worn-out) for the outing.

3. You also want to establish what the expectations are for his behavior during the outing. You will need to keep in mind his age and level of understanding when giving expectations.

4. Don't overload him with rules, but be consistent.
 
==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

5. Monitor your child's behavior on the outing. If you sense that he is becoming overwhelmed, intervene at that point. Tantrums are not only embarrassing for you, but for your child as well. They don't want to behave this way, so if you can help them avoid it, you should.

6. If you are going to be gone for an extended period of time, prepare for it. Bring with you activities or things that your child enjoys to keep him occupied. If he doesn't function well during long outings, then start with brief periods of time.

Go on an outing for 5-10 minutes, and if all goes well, reinforce that behavior. Then gradually increase that time period. However, if the outing is not for his benefit, don't ask him to engage in an activity for extended periods of time. Don't expect him to sit quietly for hours while you shop (it's unfair to any child).

7. When a tantrum occurs, leave! Just do it -- and do it NOW!!! Try not to create more tension by making a big deal of it. Simply stop shopping and remove him from the area. This may mean leaving for a few minutes until his behavior becomes calm, or returning home and planning your outing for another day. Tell him what was inappropriate, and why you are leaving, but try not to continue the discussion about his behavior once you are home. It's over!




 
Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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Here's what other parents have had to say:

•    Anonymous said... Don't take him shopping. I had no idea what my aspergers toddler was going through until he was old enough to tell me. The lights, the colors and displays, the crowds, the noise... It is too much for them to handle. And it is too much to expect them to.

•    Anonymous said... i have found short trips to the store work best. Also, bring along a toy or something that your child finds comforting. if too much noise is the problem, try headphones to drown out the noise. Hope this helps!

•    Anonymous said... I try to explain what we are doing before we enter. I tell him he can pick out one thing, I usually let him push the cart if its the grocery store. This works about 80% of the time. If theres someone home I give him the option to stay home, if he wants to come we agree he will behave or not be invited again

•    Anonymous said... Tough love: Just pick him up and carry him out to the car leaving everything behind. Keep talking to him in a calm voice that you will not accept this behaviour in public and you are going home now. You may need to say it loud enough for others around you to hear as well so they keep their noses out of your business. I had to do this only 3 times and my child never had another tantrum in public again. I understand that every child is different and I don't know the extent of involvement with your child but if this method helps anyone else out there, go for it. The first time I had to do this I was annoyed because I had to leave everything. So the other times he pulled this, I was just out to give him an opportunity to 'shop' and it was no hardship if I had to leave a store.

•    Anonymous said... Two people threatened to call CPS on me because I "was clearly a bad parent who couldn't discipline my child correctly" they have no understanding of how a child who is so vocal can be autistic. We're usually trying to do our shopping in one or two big trips on weekends when I can leave ds home with dad or he shops instead. Otherwise, very short trips work best.

•    Anonymous said...just try and stay calm and ignore others around you,my son would do cartwheels down the aisles in supermarkets and run and skid on his knees not easy.

•    Anonymous said... The normal, check for all the sensitivities, go when it is not crowded, ear plugs, sunglasses (lights can be horrible), gum or chewy. But number one thing - don't give in. Mean what you say and say what you mean - every time. I was prepared to leave the store at a drop of the hat or stand in line with a screaming child and angry customers. I have thick skin and a well adjusted 16 year old. Once I prepacked the car for a trip a day in advance just to say "I won't take a trip with kids that back talk and are unhelpful I am sick of warning blah blah blah... we are not going." Finally after a lot of promising and begging we left the next day (on the real date). They have never forgotten and both know I mean what i say.

•    Anonymous said... child once had a meltdown getting into the car at a grocery store. I was very firm with him...someone came by me and accused me of "abusing my child" and wanted to call the cops and Child protective services on me because "no child would be screaming in their child's presence. Other people came by and supported me..sigh. This was a couple of years ago. When my child was a toddler, another person wanted to do the same and we were out of town. Who are these people that think they know better than us parents of aspies.

Please post your comment below…

Sibling Relationship Problems: Tips for Parents of Kids on the Autism Spectrum

"Any tips for helping my two older children (who do not have high functioning autism) to have a little more compassion for their younger brother who does? I try to help everyone get along, but it is wearing me out. Playing peace-maker is definitely my toughest job at present. Help!"
 
Click here for the answer...

Help for Sleep Problems in Children on the Autism Spectrum

"I need suggestions on how to help my child fall asleep and stay asleep! It takes him a long time to settle down, and even when he finally gets to sleep, it's not long before he wakes up and we start the whole process all over again."

Studies find that approximately 73% of young people on the autism spectrum experience sleep problems, and these problems tend to last longer in this group than they do for kids without the disorder. For example, kids on the spectrum are more likely to be sluggish and disoriented after waking.

Laboratory research has begun to describe the unique physiological presentation associated with sleep problems in these children, including disruptions in the sleep stage most associated with cognitive functioning (i.e. REM or Rapid Eye Movement sleep). In addition to physiological differences, some of the sleep difficulties in this population may be related to anxiety.

The impact of poor sleep is unequivocal. Poor sleep negatively impacts mood and exacerbates selective attention problems commonly found in kids with Aspergers and High-Functioning Autism, as well as impairing other aspects of cognitive function.

There is no one panacea to manage sleep problems for these children. However, there are many interventions that are likely to be helpful. In general, moms and dads need to understand and be prepared for resistance to change that these “special needs” kids often show. Parents should also be prepared for problems to get worse before they get better as kids often initially challenge - but then gradually become accustomed to - new routines.

A good place to start an intervention targeted at improving sleep is changing lifestyle behaviors and environmental conditions that can influence sleep/wake patterns. These include exercise, napping, diet, and aspects of the bedroom and sleep routine.

Many children with ASD level 1, or High-Functioning Autism, have problems sleeping through the night or getting to sleep due in large part to sensory issues. Sensory dysfunction is typically an issue for kids on the autism spectrum. Many moms and dads are forced to try medications, or natural supplements (e.g., melatonin) to try to regulate sleep patterns. These may be beneficial.

Using sensory integration therapy can also be helpful so that the youngster can learn to regulate his or her activity level. The idea behind sensory integration therapy is that it is possible to "rewire" the brain of the child with sensory processing difficulties. Practitioners of sensory integration therapy are usually occupational therapists. Their focus is on the following systems:
  • proprioceptive (i.e., helping the child work on his ability to manage his body more appropriately; for example, to run and jump when it's time to run and jump, to sit and focus when it's time to sit and focus, etc.)
  • tactile (i.e., normalizing the child’s reactions to touch)
  • vestibular (i.e., helping the child to become better aware of his body in space)

A trained sensory integration therapist evaluates the child for sensory defensiveness, hypersensitivity, and sensory cravings, using several different scoring techniques. Some of the standard tests include:
  • The PEERAMID for ages 6-14 years
  • The Bruininks Osteretsky Test of Motor Proficiency for ages 5-15 years
  • Sensory Integration and Praxis Tests (SIPT) for kids between the ages of 4 to 8 years, 11 months
  • The Test of Sensory Integration for kids between the ages 3 to 5 years (TSI)

Depending upon the needs of your youngster, the therapist may use various techniques such as:
  • brushing and joint compression
  • deep pressure therapy, which may include squeezing, rolling, etc.
  • gross motor play such as wall climbing, balance beam, etc.
  • jumping on a mini or full-sized trampoline 
  • playing with a toy that vibrates, is squeezable, etc. 
  • swinging

Sensory integration therapists also may develop a sensory "diet," which may include a variety motor activities (e.g., spinning, bouncing, swinging, squeezing balls or silly putty, etc.), as well as therapist-provided interventions such as brushing and compressing arms and legs. The idea is that this "diet" will be provided throughout the day, whether by trained therapists, by the child’s teacher, or by the child’s parent. 

* Additional information on this topic can be found here:  Settling and Waking Problems



 
Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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Here's what other parents have had to say:

•    Anonymous said... A friend of mine uses melatonin, for her son and has done for few years now. They use a low dose and only on school nights, never in holidays or fri or sat night. tThis is a godsend for them as he was only sleeping a couple of hours a night.

•    Anonymous said... A good routine, dont rush them and my best friend Melatonin. Its been shown that asd kids produce much less melatonin than their peers. Hideously expensive here in the uk and hard to get in the uk prescription only £200+ for a months supply but over the counter in the usa for $15 three months worth. Go figure.

•    Anonymous said... Chamomile tea, warm bath, aromatherapy, benadryl......any combination of the above.

•    Anonymous said... I have a routine. Often I will lie down with her for1-5 mins which we agree on beforehand and we have a music box which seems to soothe her. Took a long time to get this routine. Initially I was just glad to get her out of my bed now its much easier

•    Anonymous said... melatonin has been a life-saver for us! Talk with your dr. but there's usually no issues whatsoever. My aspie/severe SPD kiddo was the same way...up and down all night long. We started him on 3 mgs and that would help him drift off but he kept waking all night still. So we upped to dose to 6 mgs and that has worked awesome! Finally we can ALL get some rest!!

•    Anonymous said... Melatonin no side effects, safe. We noticed a huge difference in daytime behavior right away as well, a good nights rest is amazing.

•    Anonymous said... My aspie takes medications. He struggled with sleeping for awhile, but now with meds he sleeps better and is less irritable.

•    Anonymous said... My son will sit in the bathroom until he is calmed down enough to go to sleep. Sometimes it's an hour.

•    Anonymous said... Not enough light, too much light? Room to noisy, room too quiet? Hot and sweaty then gets cold when asleep? Needs something over his head Scared of spiders / monsters / shadows Lots and lots of things you can try, keep melatonin as a last resort

•    Anonymous said... our 5 yr old has same problem. In the beginning, we avoided medication. We tried aromatherapy, soothing bath + massage, classical music, etc., but nothing worked. He would sleep for 45 min., then jump to his feet in bed while screaming scared out of his mind. This would happen 2-3 times every night. After 1 yr. of minimal sleep, we had our son's Pediatric Behavioral Specialist prescribe him medication to aide in his sleep & help w/anxiety. He put him on Guanfacine 1/2 tablet at night. It also helps calm him due to severe anxiety. He's been on it for 2 yrs & it has done wonders for him. He's never had any side-effects from this medicine. Good luck in finding the best method for your child. I'll be praying for your son & your family!

•    Anonymous said... Physical activity helps, particularly yoga and gardening. As a last resort use melatonin and of course cannabidiol.

•    Anonymous said... Routine . Routine . Routine . Then he will still wake up tho about every few hours . My son is 13 . At age four we started clondine . Till he was about 7 then seroquel for a year . Off and on meletonin . It's not good for all night staying asleep . We tried trazadone also . Actually to get him to naturally stay asleep will take him getting older . My son at 13 can and will go to bed, early actually, and stay asleep with usually nothing . Ambilify in morning now and orap at night . But because he active and older its much much better . No problems with sleep at this time ! Good luck , just be patient and get help so YOU can get rest ! I'm catching up on mine during these "slow" years lol things have leveled out for now , as much as they can anyways . Never a dull moment that's for sure !

•    Anonymous said... We have used clonidine for the last 4 years. It has made a world of difference in our family. We have not noticed any negative side effects.

•    Anonymous said... We start our bedtime ritual an hour early. It includes bathroom, changing clothes, brushing teeth, etc. in the same sequence every night (the process is prompted by "ten minutes to bedtime.....5 minutes to bedtime....."). All of this is navigated/ motivated by reward. For us it is a book of his choosing and prayers from mom and dad. If he chooses to be uncooperative or takes too long playing in the bathroom sink, he is reminded he may be losing his book time. Also, we have always told him that he didn't have to go right to sleep if he is not tired, but he did have to stay in his bed and rest. He always goes to sleep within a reasonable time.

•    Anonymous said... We use a kids hypnosis cd on repeat and Relax & Sleep aid from the dollar tree. It has Melatonin in it. But I heard bad things about melatonin in larger quantities. Always research meds even the herbal ones

•    Anonymous said... Our doctor put our son on trazidone. He would fall asleep but not stay that way. I would find him up playing on his tablet or sleep walking. The meds help him stay asleep and we see such a HUGE difference in his behavior after a good sleep

•    Anonymous said... We used melatonin for almost a year but he started waking up and it became ineffective. So we brain stormed, as usual, and now we do our best to get some of his energy out. We do stretches. We put him in a long shower or bath depending on how he is feeling. I rub lavender baby oil on his legs and feet and neck. It has seemed to be more effective.

•    Anonymous said... We used to have the same issue. Still do from time to time but it's rare now. Our Dr.told.US to try melatonin . It's natural over over the counter. Found with vitamins and supplements. It helped.a lot!
 
*    The trick is finding the routine that works. We went through a lot of trial and error. After several years of melatonin, she was able to power through it and it no longer worked. We struggled for a while and then found that a sound machine, a diffuser with calming essential oil, 3mg of melatonin and rolling her tightly in her favorite blanket works. If we miss one of these components - it doesn't work.
 
Please post your comment below… 

Dreaded Shopping Trips with Your ASD Child

"Shopping is an absolute nightmare with my son (high functioning autistic). Any tips would be greatly appreciated!"

Shopping with any child can be extremely hectic and more than just a little bit difficult at times. Shopping places are filled with attention-grabbing advertisements that stimulate kids - even without the challenge of ASD level 1, or High-Functioning Autism. The last thing you want is to need to overpower a screaming youngster while trying to shop.

Here are some simple tips: 
  1. If possible, shop during the off hours (calmer hours), and make your behavioral expectations clear to your child before entering the store.
  2. Know exactly what you want by keeping a list -- and know where you are going while inside the store.
  3. If your son has a favorite distracting toy or gadget, try to bring it along with you. If not, you may find an inexpensive item that he is attracted to that you could buy to distract him during the shopping experience.
  4. Don’t be afraid to have a time-out, either in the bathroom of the store or just outside the store while the store watches your items. Remember, parents of kids on the autism spectrum deal with this issue all the time, so a little noise and difficulty are to be expected.
  5. If the son is young enough, use the child seats in some stores, including those for older children as well. Buckle your son in carefully and encourage him to remain buckled throughout the ride through the store. Some children are soothed by the action of the cart, while others are over stimulated by it. Choose your “driving patterns” depending on how your son responds to it. Don’t increase the stimulation by removing the safety restraint on your son or having him walk freely throughout the store with you. It’s too easy for him to get lost or to destroy an ad display.
  6. If there are no trolleys and your son is too big to carry, then a firm hold on the hand may have to be your best option.

Shopping doesn’t have to be a nightmare if you plan accordingly.


==> Has your child on the autism spectrum been experiencing a lot of sadness lately? If so, here are a bunch of suggestions to assist in the matter...


Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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Here's what other parents have had to say:

•    Anonymous said... Don't always go with an agenda - make shopping fun sometimes.

•    Anonymous said... I was just about to say use an mp3 player! It really helps my son in supermarkets and anywhere he will have to do boring stuff where there is lots of noise. Even chapel at my daughters school. He sat there with the ear buds in for the whole service! Wish I could have too

•    Anonymous said... My daughter can find crowds and noise overstimulating when we're shopping. We find that distraction and redirection work best to get her through the shopping trip. I carry a "calming kit" in my purse with fidget toys, earplugs, and earbuds for the iPod or iPhone. If she feels too overwhelmed we can pull these things out for her and take the focus off of what is causing her discomfort. Another thing we do that she seems to like is have her help with the shopping. I ask her to help me pick out fruits and vegetables or get things for me off of shelves while I'm standing with her. This seems to take her focus off of what's going on around her and puts it on the items we're looking for. It's kind of like a game and she has fun doing it.

•    Anonymous said... My do. Has had meltdowns at stores to the point where at least once person threatened to call CPS on me because they thought I was abusing him without knowing he was aspergers.

•    Anonymous said... My hubby is the same - hates shopping and if he has to go into town, or to the gym, will come home and collapse on the bed fairly soon afterwards (regeneration time) - the kids just retreat into their computers/tablets or the TV to regenerate

•    Anonymous said... my son hates shopping, slightly better now he is a bit older so I guess there is hope that as he matures, he may be able to deal with it. But, I generally just don't take him shopping unless absolutely necessary. If I have to take him then I tell him in advance, tell him what we need to get and where we need to go and then try to stick to what you have said. If I deviate or add anything to the list - he will loose the plot.

•    Anonymous said... My son hates shopping. I try to do any shopping when he is either at school,camp or when my husband is home to watch him.

•    Anonymous said... Oh and never ever deviate from your list.

•    Anonymous said... Same here with our daughter! We got her comfortable headphones and an iPod and viola!!!! She loves it! Plus I also ask her to help find the groceries on the list and then the lowest price. She loves to help and if she gets a little overwhelmed she asks for a break to put her headphones on has been working for 2 years now. Every one is different though. She is 8 1/2 and has become very responsible with it Good luck to ya!

•    Anonymous said... They seem to do better if they have a list and are "in charge" of it. Make sure they know what they are after and where to find it. Don't linger if you don't have to, especially in a big store with lots of stimuli. My daughter absolutely hates lingering in a store when she doesn't know what she is after and can get it and go.

•    Anonymous said... try it with an aspergers husband,hee hee.

•    Anonymous said... You need to find out the problem, is it noise, crowd, visually too stimulating or maybe even smells. Once you know the trigger it is easier to find the solution, like headphones. My son has this great way of making the people disappear, however this causes problems as he runs into people A LOT. We also have issues with the car park, just getting him inside a shopping centre safely is an issue.

•    Anonymous said...I do the bulk of my grocery shopping online. I only take my boy on short trips to the shops - it's more manageable and the behaviour I'm looking for is more achievable for him.

•    Anonymous said... Use a timer and set it, your child can look at that timer and know in 20 min or how ever long you set it you will be done and when your done give him a praise or prize for doing so well in the store we use this at work and it is awesome

•    Anonymous said... I had problems with my daughter until I started letting her bring her DS games or DVD player she would curl up in a buggy and focus on whcih every she chose.

•    Anonymous said... as mine got older totaly involved them in helping me push trolley/get food off shelves,my problem is with my a/s hubby ,he is fixated on cakes and biscuits,cant get him past that isle wirth out filling whole trolley with goodies.

•    Anonymous said... My child is obsessed with electronics and touching buttons and screens, he cannot walk past an ATM machine, eftpos terminal or any type of electronic device without stopping to touch, climb on counters etc. He is 6 now and I have rewards in place and have found getting him involved with loading the trolley helps. Having a checklist he is in control of and ticks off is marvellous. He liked to "do" and giving him his own jobs takes the focus off his obsessive compulsions. I used to leave him at home when he was younger as he would climb on all the counters to touch the gadgets, I would even find him running off to the toiletsa to continually play with the hand dryer, but as he has gotten older I am finding it easier to reason with him.

•    Anonymous said... I understand & half to say even staying seatbelted in the car waz a nightmare anything that is familar not annoying for u is great to play in car or grocery store start small work with that then increase times to longer my son loves music & i make him bring a toy hope it helps

•    Anonymous said... I am new here but felt I must post on this subject, Taking my 9 year old to any place that he doesnt want to go is a nitemare. He doesnt want to leave the house unless its to get video games. He will take off in the stores so I have to hold his hands, we went to my nephews graduation and he was so upset because of the loud screamming and clapping we had to leave. It is very difficult so now I only take him on short trips to slowly try to over come this

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How to Deal with Embarrassing Sexual Behaviors in Kids on the Spectrum

"This is an embarrassing question, but what do you do about a child (autistic) who plays with his penis in public?"

First of all, I'm impressed with any parent who attempts to address problematic issues - no matter how touchy or embarrassing the topic may be. So, good for you that you were brave enough to ask this question. And you are not alone by the way. Many parents with kids on the autism spectrum have had to work through this dilemma.

Children with ASD level 1, or High-Functioning Autism, are sexual beings just as everyone else is. However, because of their inability to control all of their impulses, they may display behaviors that are inappropriate in public. This can be particularly difficult to deal with - and of course it is embarrassing for moms and dads.

This is something you will need to be direct and proactive about. There are social aspects of sexuality that will need to be dealt with. You can use social stories to teach about sexuality as well as many other things.

It is important that your son understand good touch versus bad touch. He can be vulnerable in this area, and you want him to be prepared in order to reduce his risk.

In order to be proactive, you will need to think ahead, and decide what is appropriate to teach your son at each stage of development. When talking about sexuality, use real terms. Young people on the spectrum do not pick up on social cues, so they need concrete terms about what you are talking about.

Reinforce appropriate behavior, and when inappropriate behavior occurs (e.g., masturbating in public), parents need to redirect the youngster.

Plan ahead before going into the community. Let your son know exactly what is expected of him while he is out in the community (e.g., masturbating in public is inappropriate). If he doesn't seem to comprehend, give him something else to keep his hands busy.

Set aside some time with your son to talk about sexuality. If you only respond when an incident occurs, you may be sending the wrong message. Find out what he knows about sexuality, again using direct questions.

Find out if your son has concerns or fears about sexuality. Talk about what is "normal" sexual behavior, but also let him know what is inappropriate. Try to let him know that it is okay to have sexual feelings, and it is OK to talk about them.

If you still have concerns, talk to your son's school. They may have some programs that can be helpful in teaching more about sexuality - or you can seek the advice of a professional outside of the school.

Lastly, have you child view this video:




Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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Here's what other parents have had to say:

• Anonymous said... I always stressed that it was something private, but if your child does it in public anyway, I'm not sure what to do. I could only stress to NOT punish for it. Maybe take small trips to "practice public" and reward the child for making it thru without touching himself.

• Anonymous said... I gave my son another socially acceptable habit to replace it. A spin ring worked well and he would spin it on his finger for security instead of playing with himself. He used to do it all the time and now at 12 doesn't need it must of the time.

• Anonymous said... If the child is verbal, discuss the legal perimeters and consequences....designate a place and a time that is appropriate. Ie..bedroom/bathroom. "In private" is the key lesson here, not to eliminate self stimulation.

• Anonymous said... My 9 yr old and 7 yr olds do this all the time. Mostly at home, but will quite happily sit in the lounge quietly playing with themselves. We do stop them and expl ain that they need to do that in the privacy of their bedroom, however it often takes quite sometime before the message gets through... we just carry on repeating it until it eventually gets through... still an ongoing battle. An aspie/ASD trait or just a boy thing? I dont know, but they do need to learn. All thing sexual do seem to fascinate my 9 yr old...

• Anonymous said... When I see my son with his hands on his winker in public, no I didn't misspell, I say hands in the air. Then he knows to stop and isn't embarrassed. For him it's more a security issue. He feels safer when he holds it. I've noticed if he gets scared from a loud noise, his hands go straight down there.

•    Anonymous said... My son does it all the time, he even tries to show people

•    Anonymous said... well,my son doesnt so much 'play with' but does have tendancy to 'hold himself' inappropriatly.i simply remind him[calmly + quietly] that we are in public + that's an activity for the privacy of his room.

•    Anonymous said... my 9 year old had a sort of adjustment he would do. this would include his hand going down his pants. he told me it was like an itch that had to be scratched. he had "no control like the onset of a cough". I started with telling him to do it over the pants if he must do it at all. it took a long time with MANY reminders but I think he now understands that it IS inappropriate. I do catch him sneaking an adjustment in when he believes no one can see him.

•    Anonymous said... Doctor says to remind them that those are their "privates" and that they should only touch them in PRIVATE. It helped alot!

•    Anonymous said... What do you do with an Aspergers teenage boy that has become obsessed with it?

•    Joann said...Yes my soon has this issue also, it started in kindergarten. Very shocking to me to say the least. The advice here is great. Private only and it seems to happen more when they are bored.

•    joy said... my stepson has issues with touching others.I have sought help from teacher,dr,and child and family services.What do I do now?

•    shanti said... My 9 year old son is an Aspie and he says he does it without knowing.I got him a Fidget toy.Anything stimulating that fits in his pocket.His is a squishy little bird with little feeler things on it.Got it at the Dollar Store.You have to redirect their train of thought and routine.Being that Aspies are extremely compulsive and repetitive in certain mannerisms they like a switch in self soothing.

•    Anonymous said... OH my God, my son is an ADHD child, he's only 6years now . his is a bit different he seem pleased with any open flesh around him. especially a fat woman's arm , thigh or open breast from a top. he would touch softly put his cheek around the area press with his elbow and finally he puts his genital and starts rubbing against say the thighs, and he is so happy about it. its so embarrassing, and neither does he talk nor does he seem to understand. I attempt to beat him or scare him and he will repeat this within a few minutes. I used to think maybe he saw this on the TV OR maybe saw us in that moment which I don't think he did, but this proves it all wrong because his younger brother who just turned two and is also an ADHD CHILD. Is showing same signs, whenever u give him a hug he will press u with his genitals more. is this biological do they have extra sex hormones or what.
help me please

*   newone644 said...Beating a child will never help in the long run. It is only short term results with long term damage that varies from child to child. I have this same issue with my now 8 year old High Functioning Autism/ADHD child and after carefully and clearly explaining the reasons why this had to only be done in private, we came up with the code word “dragons.” I say dragons and his hands go straight down and this child has never been spanked even a day in his life. Be sure to reward every minute you see your child catch themselves or successfully not doing it. Kids love to please and by saying a code word you make it stay positive and not turn them into thinking something is wrong or bad about themselves. That’s how bad people form in my opinion and is labeling a child.
  
*   Anonymous said...I am opposite. I have autism and am not able to even look at my private part. It's always made me uncomfortable

*   Unknown said...My 13 year old started squashing his penis with his thighs at the age of 6months, he does it most of the time; IT'S SO EMBARRASSING, he is non verbal, I'm just lost and stressed

*   Anonymous said...My issue is different…my 4 year old grandson has begun rubbing up against my pup and getting an erection…so clearly a sensory situation. His mother tells him to stop…and he does, but with no explanation, I know he will just start sneaking to satisfy his need. Just not sure what and how much to say to a 4 year old. He doesn’t speak much, but he definitely understands…any suggestions greatly appreciated.…

*   Hogan said...My son has ADHD and has been suspended for masturbating at school.

*    Anonymous said...My son is 11 and just started this issue. He is stage 3 non-verbal, with most of the sensory disorders that can come with ASD. Food, clothing, light, and the worse one is his sleep cycle. He has always had a yoga ball for play and excersize, and he even uses it for stemming. However this past week he has started humping it by laying on his back and placing it on his genitals over his diaper and a blanket. So far he's only done it in front of myself, his dad, and his grandfather (my father). He has not done it in front of his adult sister or her boyfriend, or the baby our granddaughter. Who also live with us for the moment. I have noticed it happens during down time during times he may be bored. I don't want to take his ball from him it's too important for him especially the stemming, but have to do something. He's definitely embarrassed if we see him, but also doesn't want to stop when we tell him. If his dad tells him to stop he blatantly ignores him, but if I tell him to stop he stops immediately. I've explained a few times that that's private and not to do it in front of us. But so far that's not really working, although I do know it takes repetition and time, so I will keep at it. I'm just hoping to find more information on how to deal with him doing this. Thanks for the little venting spot, and any information given further.

*    Sasha said...My son does it to but he only seems to do it when we have family friends over when it is just us (me him my husband and his 2 brothers) in the house he does not seem to do it we talked to a docter about it and the docter said just take the yoga ball away when he does it and give it back to him in 2 days we did that once and he was just so depressed so we gave it back within 4 hours of taking it and now we don't know what to do

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