The Mark Hutten Show: Episode 1

Does My Child Have Asperger's or Childhood Disintegrative Disorder?

“We believe our son has Asperger’s Syndrome and we want to have him tested. What are the symptoms we should be looking for and who should we go to for testing? Also, is it possible that his current symptoms may be reflective of something other than Asperger's, like CDD?"

Ideally, you would take your son to a child and adolescent psychiatrist who specializes in autism spectrum disorders. But these doctors are hard to find. Alternatively, you can have your son’s pediatrician make a referral to a specialist.

Symptoms of Asperger’s and High-Functioning Autism vary from one youngster to the next, but in general, they fall into three areas:

1. Communication difficulties
2. Repetitive and stereotyped behaviors
3. Social impairment

Kids with Asperger’s do not follow typical patterns when developing social and communication skills. Moms and dads are usually the first to notice unusual behaviors in their youngster. Often, certain behaviors become more noticeable when comparing kids of the same age.

In some cases, toddlers with Asperger’s may seem different very early in their development. Even before their first birthday, some babies become overly-focused on certain objects, rarely make eye contact, and fail to engage in typical back-and-forth play and babbling with their mom or dad. Other kids may develop normally until the second or even third year of life, but then start to lose interest in others and become silent, withdrawn, or indifferent to social signals. Loss or reversal of normal development is called regression and occurs in some kids with Asperger’s.

1. Communication Issues—

By the first birthday, typical toddlers can say one or two words, turn when they hear their name, and point when they want a toy. When offered something they do not want, toddlers make it clear with words, gestures, or facial expressions that the answer is "no." For kids with Asperger’s, reaching such milestones may not be so straightforward. For example, some kids with Asperger’s and High-Functioning Autism may:

• Coo and babble in the first year of life, but then stop doing so
• Develop language at a delayed pace
• Fail or be slow to develop gestures (e.g., pointing and showing things to others)
• Fail or be slow to respond to their name or other verbal attempts to gain their attention
• Learn to communicate using pictures or their own sign language
• Repeat words or phrases that they hear, a condition called echolalia
• Speak only in single words or repeat certain phrases over and over, seeming unable to combine words into meaningful sentences
• Use words that seem odd, out of place, or have a special meaning known only to those familiar with the youngster's way of communicating

Even kids with Asperger’s who have relatively good language skills often have difficulties with the back and forth of conversations (e.g., because they find it difficult to understand and react to social cues, kids with Asperger’s often talk at length about a favorite subject, but they won't allow anyone else a chance to respond or notice when others react indifferently).

Kids with Asperger’s who have not yet developed meaningful gestures or language may simply scream or grab or otherwise act-out until they are taught better ways to express their needs. As these kids grow up, they can become aware of their difficulty in understanding others and in being understood. This awareness may cause them to become anxious or depressed.

2. Repetitive and Stereotyped Behaviors—

Kids with Asperger’s often have repetitive motions or unusual behaviors. These behaviors may be extreme and very noticeable, or they can be mild and discreet (e.g., some kids may repeatedly flap their arms or walk in specific patterns, while others may subtly move their fingers by their eyes in what looks to be a gesture). These repetitive actions are sometimes called "stereotypy" or "stereotyped behaviors."

Kids with Asperger’s also tend to have overly focused interests. They may become fascinated with moving objects or parts of objects (e.g., wheels on a moving car). They might spend a long time lining up toys in a certain way, rather than playing with them. They may also become very upset if someone accidentally moves one of the toys. Repetitive behavior can also take the form of a persistent, intense preoccupation (e.g., they might be obsessed with learning all about vacuum cleaners, train schedules, or lighthouses). Kids with Asperger’s often have great interest in numbers, symbols, or science topics.

While kids with Asperger’s often do best with routine in their daily activities and surroundings, inflexibility may often be extreme and cause serious difficulties. They may insist on eating the same exact meals every day or taking the same exact route to school. A slight change in a specific routine can be extremely upsetting. Some kids may even have emotional outbursts, especially when feeling angry or frustrated or when placed in a new or stimulating environment.

No two kids express exactly the same types and severity of symptoms. In fact, many typically developing kids occasionally display some of the behaviors common to kids with Asperger’s. However, if you notice your youngster has several Asperger’s-related symptoms, have your youngster screened and evaluated by a health professional experienced with this disorder.

3. Social Impairment—

Most kids with Asperger’s have trouble engaging in everyday social interactions. Some kids with Asperger’s may:

• Do not readily seek to share their enjoyment of toys or activities by pointing or showing things to others
• Make little eye contact
• Respond unusually when others show anger, distress, or affection
• Tend to look and listen less to people in their environment or fail to respond to other people

Recent research suggests that kids with Asperger’s do not respond to emotional cues in human social interactions because they may not pay attention to the social cues that others typically notice. One study found that kids with Asperger’s focus on the mouth of the person speaking to them instead of on the eyes, which is where kids with typical development tend to focus. A related study showed that kids with Asperger’s appear to be drawn to repetitive movements linked to a sound, such as hand-clapping during a game of pat-a-cake. More research is needed to confirm these findings, but such studies suggest that kids with Asperger’s may misread or not notice subtle social cues (e.g., a smile, a wink, a grimace, etc.) that could help them understand social relationships and interactions. For these kids, a question such as, "Can you hold on for just a minute?" always means the same thing, whether the speaker is joking, asking a real question, or issuing a firm request. Without the ability to interpret another person's tone of voice as well as gestures, facial expressions, and other nonverbal communications, kids with Asperger’s may not properly respond.

Likewise, it can be hard for others to understand the body language of kids with Asperger’s. Their facial expressions, movements, and gestures are often vague or do not match what they are saying. Their tone of voice may not reflect their actual feelings either. Many older kids with Asperger’s speak with an unusual tone of voice and may sound sing-song or flat and robot like.

Kids with Asperger’s also may have trouble understanding another person's point of view. For example, by school age, most kids understand that other people have different information, feelings, and goals than they have. Kids with Asperger’s may lack this understanding, leaving them unable to predict or understand other people's actions.

Related Disorders—

Rett syndrome and childhood disintegrative disorder (CDD) are two very rare forms of Autism that include a regression in development. Only 1 of every 10,000 to 22,000 girls has Rett syndrome. Even rarer, only 1 or 2 out of 100,000 kids with Asperger’s have childhood disintegrative disorder.

Unlike other forms of Autism, Rett syndrome mostly affects girls. In general, kids with Rett syndrome develop normally for 6–18 months before regression and Asperger’s-like symptoms begin to appear. Kids with Rett syndrome may also have difficulties with coordination, movement, and speech. Physical, occupational, and speech therapy can help, but no specific treatment for Rett syndrome is available yet.

Scientists have discovered that a mutation in the sequence of a single gene is linked to most cases of Rett syndrome. This discovery may help scientists find ways to slow or stop the progress of the disorder. It may also improve doctors' ability to diagnose and treat kids with Rett syndrome earlier, improving their overall quality of life.

Childhood disintegrative disorder affects very few kids, which makes it hard for researchers to learn about the disease. Symptoms of childhood disintegrative disorder may appear by age 2, but the average age of onset is between age 3 and 4. Until this time, kids with childhood disintegrative disorder usually have age-appropriate communication and social skills. The long period of normal development before regression helps to set childhood disintegrative disorder apart from Rett syndrome. Childhood disintegrative disorder may affect boys more often than girls.

Childhood disintegrative disorder is a condition in which kids develop normally until ages 2 to 4, but then demonstrate a severe loss of social, communication and other skills. Childhood disintegrative disorder is very much like Autism. Both are among the group of disorders known as pervasive developmental disorders (or autism spectrum disorders), and both involve normal development followed by significant loss of language, social, play and motor skills. However, childhood disintegrative disorder typically occurs later than Autism and involves a more dramatic loss of skills. In addition, childhood disintegrative disorder is far less common than Autism.

Kids with childhood disintegrative disorder typically show a dramatic loss of previously acquired skills in two or more of the following areas:

• Bowel or bladder control, including frequent accidents in a child who was previously toilet-trained
• Language, including a severe decline in the ability to speak and have a conversation
• Motor skills, including a dramatic decline in the ability to walk, climb, grasp objects and other movements
• Play, including a loss of interest in imaginary play and in a variety of games and activities
• Social skills, including significant difficulty relating to and interacting with others

Loss of developmental milestones may occur abruptly over the course of days to weeks or gradually over an extended period of time.

==> The Aspergers Comprehensive Handbook

Watching for Signs of Autism in Your Child

“I’ve known for some time that something is not quite right with my child, and I’m starting to wonder if he has an autism spectrum disorder. What should I look for?”

CLICK HERE for the answer...

Insomnia in Children with Aspergers & High-Functioning Autism

“What do you suggest for my 4-year-old boy who has a hard time getting to sleep at bedtime, but can’t take melatonin? He has an allergic reaction to that supplement (gives him headaches). And why does it seem that so many asperger children have trouble going to sleep – even when they are exhausted?”

Click here for the answer...

Echolalia in Children with Aspergers & High-Functioning Autism

"Our son (high functioning) will memorize a line from a movie that he really was captivated by, and repeat that line over and over all day long. Is this a trait of autism? another one our son does is constantly tell us what's happening in whatever he's watching on the TV, even if we're actually watching it ourselves! We think it's his way of processing what he see's to help him understand it."

A common symptom of Aspergers and High-Functioning Autism includes repetition of words and phrases. In many cases, these phrases are related to something the youngster has been exposed to (e.g., a movie, book, song, etc.). The youngster may continue to say the word or phrase throughout the day or even throughout the following week.

If you're the mother or father of a verbal youngster diagnosed with Aspergers or HFA, you may have heard him or her repeat bits and pieces from videos or other sources. This type of communication is called "echolalia." It's a unique form of speech, and although it's thought of as a "symptom," it can also be a great place to start working with your youngster.

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

Echolalia is literally the repetition of words and sounds the child has heard either recently or quite a while ago. Verbal kids on the autism spectrum are often "echolalic" (i.e., they do use words, and sometimes even use those words appropriately, but their word choice is based on a memorized pattern).

Sometimes, echolalia is immediate (e.g., dad says, "Michael, do you want a sandwich?" …and Michael responds, "You want a sandwich"). Just as often, echolalia is delayed (e.g., a youngster hears a line on television such as "got milk?" …and later when he's thirsty, he may say "got milk?" in exactly the same tone and accent as the ad on television). In both of these cases, the echolalia may sound odd, but in fact it's a method the autistic youngster has developed for communicating his/her wants and needs. The fact that the child has done so means that he/she is able to do much more with the help of a speech therapist.



In some cases, echolalia is less functional, but it's usually a good starting point for speech and/or play therapy. For example, a youngster might memorize entire segments of a favorite movie and recite them over and over. The youngster's purpose in reciting may be to calm down or reduce stress, but the recitation may also indicate a real fascination for aspects of the movie.

Children on the spectrum do interact and communicate; however, they do so in different ways. They are truly more normal than abnormal. Even echolalia is a normal way to learn language. Most kids use echolalia to learn language. The majority of kids babble in a rhythmic way, which is actually mimicking the cadence of language. Later, they copy sounds, words, and eventually phrases and sentences that they hear grown-ups use in specific, repetitive contexts. Echolalia peaks at around age 30 months in “typical” kids, and then decreases.

Echolalia was once thought of as just another inappropriate behavior to eliminate in a child with Aspergers or HFA; however, researchers currently see it as a developmental phenomenon that occurs within the youngster's normal cognitive and linguistic maturation. Echolalia appears to be a "normal" step in the child's cognitive and language maturation, and is intrinsically rewarding to the youngster. The reinforcer is actually the youngster being able to match what others say.

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

Many kids on the spectrum become experts at echoing the content of what is said by others, as well as the voice, inflexion, and manner in which the words were originally spoken. The value of echolalia for the child may be that the echoed words and contextual cues become stored information for him or her to refer to later as an internal rehearsal of the event.

The presence of echolalia has actually been identified as a positive sign in children with Aspergers and HFA. The presence of echolalia is an important prognostic indicator for future language growth. It appears that echolalia provides the "raw material" for further language growth. Kids on the spectrum who are echolalic developed good phrase speech later in life whether or not they received intensive language training.



If echolalia is one of the phases of normal language development, it would appear that continued echolalia indicates that the child is "stuck" at that level of development for a time, but then seems to overcome it and develop more normal speech patterns.

Regardless of the utility of echolalia for the child, the habit can interfere with social interaction and learning. Therefore, most therapists focus on helping the child move to a more creative form of language. A child with Aspergers or HFA is more likely to use echolalia when he or she had not learned an appropriate response to a particular question or request.


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book

==> Highly Effective Research-Based Parenting Strategies for Children with Asperger's and High-Functioning Autism

==> Do you need the advice of a professional who specializes in parenting children and teens with Autism Spectrum Disorders?  Sign-up for Online Parent Coaching today.


 
==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

How To Implement a Token Economy System for Aspergers Kids

“I want to implement a Token Economy system with my 12 year old Aspie.  Can you give me detailed instructions on how to do this?”

Actually, a token (or economy) system is quite easy to set up. Here’s how:

1. Identify the behaviors for which your child can earn credits. An example of a good behavior would be if he took it upon himself to start and complete his homework without having to be asked twice to do so. Then you would award him a token.

2. Decide the "currency" used. Every time your "Aspie" (i.e., high functioning autistic child) does something positive, then he would earn a token (e.g., a sticker, points, poker chips, monopoly money, etc.). You can even offer bonus points for doing certain chores.

3. Determine the value of the currency (i.e., how many tokens your child should receive for each good behavior – and how many he should lose for each bad behavior). For example, he could earn 5 tokens for every time he takes the trash out without having to be asked twice, and he could lose 3 tokens for every time he picks on his sister. (Caution: If you subtract too many tokens, he will feel like there is no way to win in this game – and he will quit. In this case, you could subtract tokens for every third time he picks on his sister.)

4. Decide what type of privileges your child should receive for his tokens (e.g., a few extra minutes of computer time, a later bedtime, coloring book, favorite snack, etc.). Be sure to pick the rewards that he is truly interested in. Also, whenever you give your child a token, be sure to praise him and explain why he is receiving the token. In this way, he will know what behaviors to repeat in the future. Praise in itself is a reward, motivator – and it builds self-esteem. All kids like to hear how well they are doing.

5. Give the reward items a cost so that your child can turn in his tokens for the different rewards (e.g., 30 minutes extra time on the computer costs 10 tokens, going out for pizza costs 20 tokens, etc.). Also, be sure to have rewards with a higher value to motivate your child to maintain good behavior, but also have items at a lower value since they will be easier for him to obtain.

More resources for parents of children and teens with High-Functioning Autism and Asperger's:
 
==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book

==> Highly Effective Research-Based Parenting Strategies for Children with Asperger's and High-Functioning Autism

==> Do you need the advice of a professional who specializes in parenting children and teens with Autism Spectrum Disorders?  Sign-up for Online Parent Coaching today.


 
==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

What I Like About Having Aspergers

These kids will tell you why they like having Aspergers: