How To Improve Your Aspergers Child's Self-Image

 "Any tips on how to help my newly diagnosed daughter (high functioning autistic) to improve her self esteem. She thinks she's 'stupid' ...she thinks she's 'ugly' ...she thinks nobody likes her... I don't know where she's coming up with these negative evaluations of herself, but it breaks my heart. We are all a bit anxious since we got the news about this disorder. But how can I help my daughter have a better perspective of her true self and her strengths?"

Click here for the answer...

More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

The Difference Between Aspergers and PDD-NOS

Question

My 7-year-old son has been diagnosed with ADHD. The pediatrician also thinks that he may have Aspergers or Pervasive developmental disorder not otherwise specified. After researching the two diagnoses, I see that they are very similar. What type of testing can I have done to determine what kind of help my son needs?

Answer

Like Autism and Aspergers, Pervasive developmental disorder not otherwise specified (PDD-NOS) is one of the five subtypes of the Autism Spectrum Disorders. Children diagnosed with PDD-NOS will have less social impairment than a youngster with Autism or Aspergers.

The Autism Spectrum Disorders are:

1. Pervasive developmental disorder not otherwise specified
2. Autism
3. Asperger syndrome
4. Rett syndrome
5. Childhood disintegrative disorder

To confuse matters, there is a division among therapists on the use of the term Pervasive Developmental Disorder (PDD), which is the same thing as Autism Spectrum Disorder (ASD). Many use the term PDD as a short way of saying PDD-NOS. Others use the general category label of PDD because they are hesitant to diagnose very young kids with a specific type of PDD (e.g., Autism). Both approaches contribute to confusion about the term, because the term PDD actually refers to a category of disorders and is not a diagnostic label.

PDD is not itself a diagnosis, while PDD-NOS is. To further complicate the issue, PDD-NOS can also be referred to as “atypical personality development,” “atypical PDD,” or “atypical Autism.”

Some clinicians use PDD-NOS as a "temporary" diagnosis for youngsters under the age of 5, when for whatever reason there is a reluctance to diagnose Autism. There are several justifications for this. Very young kids have limited social interaction and communication skills to begin with, thus it can be tricky to diagnose milder cases of Autism in a toddler. The unspoken assumption is that by the age of 5, unusual behaviors will either resolve or develop into diagnosable Autism.

Because of the "NOS" (i.e., not otherwise specified), it is hard to describe what PDD-NOS is, other than its being an Autism Spectrum Disorder (ASD). Some children diagnosed with PDD-NOS are close to having Aspergers, but do not quite fit the profile. Others have near full-blown Autism, but without some of its symptoms. The field of psychology is considering creating several subclasses within PDD-NOS.

To confirm the diagnosis, continue to consult with your doctor and get a referral to either a neurologist or child and adolescent psychiatrist to figure out exactly what is going on with your child. Once you have a definitive answer, you can then check for resources in your local area. Each U.S. state has different resources tied-in with the local schools. Your doctor should be able to point you in the right direction. If not, the local school district should have some referrals for you.

The Aspergers Comprehensive Handbook

Children on the Autism Spectrum and Auditory Processing Disorder

Auditory Processing Disorder (APD) is an umbrella term for a variety of disorders that affect the way the brain processes auditory information. It is not a sensory or inner ear hearing impairment. Kids with APD usually have normal peripheral hearing ability. However, they cannot process the information they hear in the same way as others do, which leads to difficulties in recognizing and interpreting sounds, especially the sounds composing speech.

Click here for the full article...

Aspergers Teens and Driving a Car

"My daughter is 18 and has Aspergers. Hers is particularly with anti-social behavior and thoughts. My entire family is ridiculing me for not forcing her to get her drivers license, but she is scared and doesn't want to. Should I force her to? Am I wrong?" 

Click here for my response...

Talking To Aspergers and HFA Children About Puberty

"Our son with high-functioning autism (age 12) has never really had the 'official' discussion about what to expect in puberty. We may have waited too long at this point, but in any case, how can we approach this topic in a way that a person with his challenges can understand (he takes most things very literally by the way - and is a bit immature for his age)?"

Click here for the answer...

Auditory Integration Training: Help for Sensory Problems

Auditory Integration Training (AIT) was used in the early 1990s as a treatment for autism. It has also been promoted as a treatment for ADHD, depression, and a wide variety of other disorders. It typically involves 20 half-hour sessions over 10 days listening to specially filtered and modulated music. The American Academy of Pediatrics and three other professional organizations consider AIT to be an experimental procedure.

AIT aims to address the sensory problems such as hearing distortions and hyperacusis (i.e., oversensitive hearing), which are said to cause discomfort and confusion in children suffering from learning disabilities, including autism spectrum disorders. These hypersensitivities are believed to interfere with a youngster’s attention, comprehension, and ability to learn.

The training typically involves the youngster attending two 30-minute sessions per day, separated by a minimum of three hours, for ten consecutive working days. The youngster listens via headphones to a program of specially filtered and modulated music with wide frequency range. The program is modified for each youngster with certain frequencies of sound filtered using an electronic device, which randomly switches between low- and high-pass filtering for random durations between 1/4 and 2 seconds. The filtering device also varies the sound's intensity, creating a modulated effect. The volume is set as loud as possible without causing discomfort. If the listener has shown unusual sensitivities to certain frequencies, these may be filtered out additionally.

Although no AIT device has been approved for marketing as a medical device by the FDA, devices used only to aid education are not subject to FDA regulation.

Most AIT practitioners are speech-language pathologists or audiologists and occupational therapist. Other practitioners include psychologists, physicians, social workers, and teachers.

Parents who are seeking interventions for their Aspergers (high functioning autistic) youngster should explore the many options currently available and evaluate each one. Factors to evaluate include:

• cost and accessibility
• the benefit versus the risk
• the effectiveness of the intervention
• the timing of the program relative to other interventions that are being done
• whether it is appropriate for their particular youngster

There are some immediately recognized advantages to Auditory Integration Training:

• it can be provided as young as 3 years of age
• it only requires 10 days, with two 30 minute listening sessions each day
• the main pre-requisite skill is that the listener must accept the head-phones

Many Aspergers kids receiving special education services often have an undiagnosed problem with the way they hear and process information, thus learning and behavior may be affected by problems (e.g., hearing distortions, hypersensitive hearing, lack of coordination, processing delays, etc.),which interfere with efficient processing of sound signals.

AIT stimulates the auditory system with unique sounds that stimulate the auditory system to reduce or eliminate the problems within this system. AIT is a method of retraining the way the sounds are processed. When the Aspergers child can process sounds properly, he/she can maintain a state of alert readiness, concentration, and effective comprehension.

The auditory system is responsible for many jobs other than hearing. For example, the auditory system:

• assists in the control of eye movements
• assists in the control of the hand and fingers when writing
• contains the control center for all sensory processing
• controls balance
• controls motor planning and coordination
• enables people to use language
• help us sing on key

Thus, it makes sense that when the auditory system is not functioning effectively, many diverse problems may appear, including:

• delays in speech and language development
• difficulty with reading skills
• difficulty with vision skills
• poor balance and motor coordination skills
• poor concentration
• poor fine motor skills
• problems with sensory processing

When the auditory system is retrained, the benefits may extend well beyond just the ability to listen better. Moms and dads often report improvement in their Aspergers youngster’s ability to ride a bike, catch a ball, pronounce words, and modulate speech volume.

Other reported benefits include the following:

• children are able to attend and concentrate on the important things
• hearing sensitivity is often reduced (as a result, the child no longer needs to cover his ears or avoid crowds and noisy events)
• many children are calmer
• many children begin to color, draw and write with more skill
• many moms and dads and professionals report that the youngster’s educational progress accelerates
• many show a higher level of self-confidence
• most children begin to show increased interest in socialization
• occupational, speech/language and physical therapists comment that IEP goals are mastered much more quickly
• some Autistic kids may begin to speak for the first time
• some demonstrate less anxiety and irritability
• some quickly learn to tie their shoes or button clothes
• the need to constantly regulate sensory experiences decreases (e.g., covering the ears, wearing noise-protection headsets)
• those who have been speaking may expand to much more complex use of language

The Aspergers Comprehensive Handbook

The "Virtual School" Option for Children on the Autism Spectrum

"I spent two years fighting with our local public school system to get my son OT, SLP, and appropriate modifications and resource for his diagnosed disability. After so many meetings with county level Special Ed administrators who refused almost every resource until advocates were involved, we decided to quit fighting the school and just fight for our son. K12 is a public school and my son has an IEP and a case manager. We continue to have meetings with a committee that sign off on modifications. My son's case manager works with me to give me the support I need to make sure the modifications are appropriate and in my son's academic best interests. Before you shake your head at the crazy home school mom, understand that I am a certified teacher who taught in public school before becoming a mother. As a teacher I can tell you my son is receiving a great education that does not force him conform or endure ridicule for his differences. My question is, what is your opinion of online schools?"

An online school (also called virtual school or cyber-school) describes an institution that teaches courses entirely or primarily through online methods. Though there are thousands of commercial and non-accredited courses available online, the term "online school" is generally reserved for accredited schools that teach a full-time (or nearly full-time) course of instruction designed to lead to a degree.

Virtual public and private schools serving every grade level including graduate programs may elect to pursue accreditation through various regional and national organizations. Accredited schools must meet rigorous standards as defined by the issuing organization and are designed to insure that children are receiving the highest quality instruction and education.

All or a majority of the student services are conducted via Internet technology. The online school differs from the traditional school through the physical media that links administrators, educators, and children. Online schools are an alliance of public distance learning schools. Many states in the United States have their own online school often with a student population numbering in the thousands.

There are many different online school instructional and enrollment models. Instructional models range from (a) fully independent self-paced courses to (b) semester-based, virtual-teacher facilitated courses. Class sizes range widely with anywhere from 25 children to as many as 200 children in each class section. Children keep in contact with educators and collaborate with other children through web communication tools provided in the course delivery platforms like Blackboard or Desire2Learn or Moodle.

In some cases children communicate by phone with instructors. To help with communication many online schools have implemented their own system programs to help build courses and maintain student profiles. There are also many books and training manuals to aid in the development of such schools and courses.

Online schools may be free if the state pays for the courses, otherwise, there will be a course fee to be paid for by the student or parent(s). If an online school is chartered through a public supporting school district, there would be no cost associated for a student to attend the school or receive the materials/supplies needed to complete the schooling.

If the school requires a financial fee from the student or mother/father, materials do add up. Most courses will provide electronic materials free of cost, but others require some shopping on the children part. Textbooks are not required but can be used as an aid for coursework.

Many materials are provided free of cost. Some schools provide programs, usually for web design classes. Some popular materials include Adobe Systems products, Jasc products, and products from Macromedia. Other schools may use Corel products as a cheaper alternative. These products are usually free. Student usually receives the full version of the selected program, with a limited license, usually 1 year or so. These programs are important to the success of online schools, and help them to improve each year.

Many schools will also provide a brand new computer for all children in need of one. Generally, these computers run using the Microsoft operating system, but depending on lesson needs and coursework the school may also use Linux based computers or Apple Macs. Some online schools provide a free lap top for use throughout the school year.

Online schools may also provide children with a wide variety of materials that include, but are not limited to just a laptop computer. Some Online schools in the United States may also provide children with the following materials free of charge: Textbooks, Study Guides, Course Guides, Art Supplies (markers, crayons, construction paper, etc.), Science Kits, a Calculator, an All-in-One Printer, a Laptop Case, a Laptop Charger, a Head Set that is equipped with a microphone, a Bamboo Tablet and a wireless router.

Advantages of Online Education—

1. Advocates of virtual learning believe that online schools hold advantages (e.g., not being required to attend and travel to face-to-face classes and the integration digital media into the curricula).

2. Despite federal and state laws that traditional schools are supposed to abide by, many school districts fail to perform timely IEPs. Often times, school officials want to blame moms and dads or suggest that the Aspergers (AS) or High-Functioning Autistic (HFA) child is manipulating, rather than recognizing the challenges the child faces and adapting their curriculum or environment to help him/her. The student and his/her family would not have to face such a dilemma with an online school scenario.

3. In traditional schools, many school districts refuse to require mandatory training for special education/special needs students. Anecdotal evidence suggests that school districts and teachers are not well-equipped or trained to deal with AS and HFA students or other special needs students. Many districts don’t have mandatory training, and there seems to be little - or no - motivation to obtain that training independently. Despite federal and state laws, many school districts still use restrictive and punitive measures to deal with students on the autism spectrum. In an online school scenario, the program could be completely oriented to the needs of the student.

4. Online schooling is much more economically feasible. The costs to conduct an online school is substantially less because there is no need for school buildings, full time staff, etc. The money could be more efficiently used in programming the online education experience and could reach more children with special needs. Lower income students could be provided computers, supplies, and Internet access, which would still be less expensive than building ownership, taxes and maintenance and staffing.

5. Online schools are a great equalizer. No matter what their social, economic, religious, ethnic or physical or mental differences, virtual education gives all children the same opportunity to reach their full potential.

6. Online schools give a student the opportunity to stay in school when traditional brick and mortar schools will no longer accept them. Some reasons for this could be extensive absences due to medical reasons, teen pregnancy, or for other reasons that the school system may deem distracting to the school body.

7. Many online schools include online study groups in which children interact with each other online. Children are able to meet in these groups using Elluminate, Wimba or other means. This type of “socialization method” is a much better “fit” for the student on the spectrum.

8. The bullying of AS and HFA students has become endemic in schools. But, despite so-called “zero tolerance” policies, school districts seem to look the other way or not fully enforce the policies. Fortunately, there are few bullies in an online school setting (although “cyber-bullying” does occur, it is much easier to get stopped due to email addresses and IP addresses that moderators can track to locate and confront the “online bully”).

9. Traditional (offline) schools have difficulty keeping pace with the student’s education needs due to financial strain. Schools are paid for with tax money. The taxes are supposed to cover the physical buildings, maintenance, teacher salaries, supplies, and everything else that goes into education. Each year, there tends to be a request for more tax money to increase these expenditures. In addition, for AS and HFA students, there are additional expenditures for special services (e.g., occupational therapy, teaching aides, sensory rooms, etc.).

As the diagnosis of ASDs has gotten better, the incidence these disorders has skyrocketed to 1 in 100 (a recent study suggests that the incidence may be as high as 1 in 38). Again, this will only increase the demand for funding. With online schools, costs are greatly reduced, and as a result, the resources can be used to “fine-tune” the program with the student’s special needs in mind.

10. In an online school setting, the student can:

• advance to higher levels of courses
• earn 8 credits a year (32) credits over 4 years
• enjoy and focus on elective courses during the day and focus on academic courses in the evening and/or on the weekends
• graduate early
• learn innovative technology, time management, and personal learning style
• plan learning around his/her favorite activities, work schedule, or other responsibilities
• receive one-on-one tutoring and personal attention from teachers
• recover lost credits or earn extra credits
• take the course at home, school, during a trip, or anywhere he/she choose to do so

Disadvantages to Online Education—

1. Unlike traditional education delivery methods, children at online schools do not directly interact with teachers. Hence, virtual education is considered by many to be equivalent to a directed-learning program. Because children do not interact with their teachers or peers face-to-face, "lack of socialization" is often quoted as a disadvantage by detractors. Recent anecdotal evidence indicates that, while socialization may be different, it is not necessarily lacking. It is also recommended that children enrolled in online schools be involved in social activities outside school, much like home-schooled children.

2. Another perceived disadvantage to distance learning is the added challenge of staying focused while in the home environment – and many children report that staying on task is the most difficult aspect of learning online.

3. Critics argue that for online education to be taken seriously, online programs must adhere to generally accepted educational standards. One way that online schools are proving their effectiveness is the implementation of the same standardized testing that brick and mortar schools require of their children. To reduce this criticism, The International Association for K-12 Online Learning (iNACOL) has developed a set of standards. Some believe that this is an important first step in monitoring online programs, but while every provider of education must be accredited, the quality of accreditation varies significantly.

==> Teaching Social Skills and Emotion Management

 
COMMENTS:

•    Anonymous said…  I live in a smaller town in Arizona & I am struggling with my son at school. I am still fighting for him, fighting against staff & trying to get him help. I've been doing this since he was in 2 1/2 years old, he's now 9.... I'm exhausted. I wish we had these resources here.
•    Anonymous said… Aww this sound like a school of Heaven-/ ❤️
•    Anonymous said… Demand a Functional Behavior Analysis & a Behavior Intervention Plan. It'll give him rights & protection.
•    Anonymous said… Every teacher has to take a special education program to meet their teaching course criteria. My son's 4th grade teacher took the offered [optional] additional training course when she got him in her class but dropped it because it was vague and inadequate for the amount of time it took from her day. She used one on one actual experience dealing with him, my input and her own independent research to adjust her teaching strategy. She did a wonderful job. So when a teacher says they have special needs training, make sure they are not referring to the general study they took to become a teacher. Most special ed teachers are great because they are specifically trained in many spectrum disorders. My son is high functioning so he is/was in regular or co-taught classes. Thankfully 90 percent of his teachers have been great.
•    Anonymous said… First, it is correct that general education teachers only have to take 1-2 semesters of special education courses. And even then it's such a broad overview of the history & laws, its basically useless aside from ticking a box on a list of requirements. Next, please do not assume that all teachers are stupid or ignorant or don't care. There will be some, of course. It is our jobs as parents to advocate for our students. Ever since my daughter was small, I went in to meet her teachers early, I explained her diagnosis, reinforcers that work, things that tend to set her off, etc. I communicate frequently with her teachers. Kids never give the whole story so if something happens I want the teacher's side too. If you think your child's modifications & accommodations aren't being met, call an IEP meeting, ask for data, ask them to provide proof that they're being used & if they are & aren't effective, they need to be changed. Which brings me to this, ATTEND THE IEP MEETINGS!!! You have no idea how many of my students (with significant intellectual disabilities) have parents who never attend the IEP Meetings, don't read the goals or accommodations, etc. If it's inconvenient, reschedule. If it's way over your head, get an advocate (many are free). If you need time to process, table the meeting, take the paperwork home & process before you sign. Finally, not all parents are able to enroll their students in an online program. Many students with IEPs come from single parent homes. I for one am not going to let my 11 year old sit home ostensibly doing her schoolwork while I'm at work. It's just not always feasible. Furthermore, kids with Aspergers tend to be antisocial anyway. Allowing them to leave the school environment & hold up at home is not the healthiest idea.
•    Anonymous said… I spent two years fighting with our local public school system to get my son OT, SLP, and appropriate modifications and resource for his diagnosed disability. After so many meetings with county level Special Ed administrators who refused almost every resource until advocates were involved, we decided to quit fighting the school and just fight for our son. K12 is a public school and my son has an IEP and a case manager. We continue to have meetings with a committee that sign off on modifications. My son's case manager works with me to give me the support I need to make sure the modifications are appropriate and in my son's academic best interests. Before you shake your head at the crazy home school mom, understand that I am a certified teacher who taught in public school before becoming a mother. As a teacher I can tell you my son is receiving a great education that does not force him conform or endure ridicule for his differences.
•    Anonymous said… I would love to try this but my 7th grade son has terrible executive functioning skills and I fear he would do nothing in an online school unless I stood like a hawk directing his every move. I guess it really depends on the intrinsic motivation of the child.
•    Anonymous said… It's not 100%, but is the 1st school ever that he has wanted to go to. He is also now enrolled in a Welding program at our local Career Institute.
•    Anonymous said… K12 won't allow enrollment if your child has missed more than 6 months public school. They told me my son was disqualified from enrollment until he went back to public school and earned at least six months of grades in a semester. He hates the school he was in and refuses to go back. So what now - guess just a GED then. Feel like the system has failed us!
•    Anonymous said… Many of these schools have no training to work with our kids and when things go wrong the children are punished and moms take the blame. It reaches far past ignorance for these people to disagree with your child's diagnosis.
•    Anonymous said… My little boy is five years old, has Aspergers, and was suspended at the beginning of his Kindergarten school year. He acted out due to his disability. My son has anxiety now. I fought hard and they expunged the suspension from his record. As mothers we are being bullied by people who are hiding the fact that they are not trained to work with our kids. It needs to stop.
•    Anonymous said… My son is five years old. He has Aspergers. These people are beyond ignorant. Ashley, I hope that things improve for your son.
•    Anonymous said… Nothing wrong with a GED or TASK diploma. Your child can still go on to trade school or college.
•    Anonymous said… Putting my son in K12 was the best thing we ever could have done for him. Brick and mortar schools spend their money keeping kids out of Special Ed services so parents will have to pay to fight the system or just give up out of exhaustion. Now I make needed modifications with easily attained approval from his case manager. No fight, no advocate costs, and no mean kids alone with my son.
•    Anonymous said… Switched my son to an online school in 8th grade. Although this particular school wasn't the best for him, it was the best situation for him. A few years later, we found the best of both worlds. An alternative school in our school district that requires 5 hrs of classroom instruction per week. All classes are online. So... he controls when he feels like going to class. If he wakes up and it's just not a good day, he works from home. Unlike when he went to a "regular" school, he actually gets up on his own and goes to school every day for usually 5 hours. It has been a wonderful program for him.
•    Anonymous said… That's totally accurate!
•    Anonymous said… The admin of our school is so wrong-headed that DS14 fled from the school last spring. The admin would not listen to me, did not follow the IEP, and was heartless. The SPED teacher threw DS14 under the bus o keep her job.
•    Anonymous said… The schools here In NY did so much damage to my son , he is now a mess and cant fit in anywhere ,even alternative schools .His anxiety is through the roof ,from all the bs they have put him through ... For an example .. in 3rd grade his teacher told him to skip school ,she needs a break from him "!@ And I could go on and on about it . The entire special ed dept has to be revamped with people who know about Apsergers and issues that come with it ... too many kids are being so damaged by these districts . They dont even listen to diagnosis's either ... i was told they disagreed with the diagnosis of Aspergers for my son ! I should have gotten a lawyer!
•    Anonymous said… There are many roads to one place and like us parents, teachers need to be flexible and work with the two or three kids in their class that need some extra time and support. Teaching means teaching all the kids, to the best of their ability and some need further "breaking it down" or "modifications" of busy work and especially "home"work, which has never been proven, ever.
•    Anonymous said… This is so true!!! The teachers are trying to tell me that Asperges don't exist..and he is getting bullied and the school personal are blaming him
•    Anonymous said… Wow! That would be perfect for my daughter! Where is this?

Post your comment below…