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Aspergers Symptoms Across The Life-Span

Question

Do the symptoms of Aspergers differ according to the age of the person affected by the disorder? In other words, does a young child have a different set of issues compared to a teen or an adult?

Answer

Although there are many possible symptoms related to Aspergers (high functioning autism) across the life-span, the main symptom is usually “severe trouble with social situations” regardless of the age of the individual. An Aspie may have mild to severe symptoms or have a few or many symptoms. Because of the wide variety of symptoms, no two Aspies are alike. Parents often first notice the symptoms of Aspergers when their youngster starts preschool/school and begins to interact with other students.

Symptoms during childhood include the following:

• Appears to lack empathy
• Avoids eye contact or stare at others
• Dislikes any changes in routines
• Does not pick up on social cues and may lack inborn social skills (e.g., being able to read others' body language, start or maintain a conversation, taking turns talking, etc.)
• Handwriting is often poor
• Has a formal style of speaking that is advanced for his or her age (e.g., may use the word "beckon" instead of "call" or the word "return" instead of "come back")
• Has delayed motor development (e.g., late in learning to use a fork or spoon, ride a bike, catch a ball, etc.)
• Has heightened sensitivity and becomes over-stimulated by loud noises, lights, strong tastes, certain textures, etc.
• Has unusual facial expression or posture
• Internal thoughts are often verbalized
• Is overly interested in parts of a whole or in unusual activities (e.g., designing houses, drawing highly detailed scenes, studying astronomy, etc.)
• Is preoccupied with only one or few interests, which he or she may be very knowledgeable about
• Is unable to recognize subtle differences in speech tone, pitch, and accent that alter the meaning of others’ speech
• May have an awkward walk
• May not understand a joke or may take a sarcastic comment literally
• May show an unusual interest in certain topics (e.g., snakes, names of stars, dinosaurs, etc.)
• One-sided conversations are common
• Speech may be flat and difficult to understand because it lacks tone, pitch, and accent
• Talks a lot, usually about a favorite subject

Many kids with Aspergers also have coexisting conditions and may have symptoms of these conditions also. They include:

• Social anxiety disorder
• Obsessive-compulsive disorder
• Nonverbal learning disorder
• Depression
• Attention deficit hyperactivity disorder
• Anxiety disorder

A youngster with one or two of these symptoms does not necessarily have Aspergers. To be diagnosed, he/she must have a combination of these symptoms and severe trouble with social situations.

Preschool—

There is no single, uniform presenting picture of Aspergers in the first 3-4 years. Some children may have early language delays with rapid "catch-up" between the ages of 3and 5 years. Some of these children may have no evidence of early developmental delay (with the possible exception of motor clumsiness).

Although Aspergers children may relate quite normally with the family setting, problems are often seen when they enter a preschool setting. These may include:

• a tendency to avoid spontaneous social interactions
• a tendency to be perseverative or repetitive when conversing
• appearing to be "in one's own world"
• difficulty regulating social/emotional responses involving anger, aggression, or excessive anxiety
• difficulty with transitions
• hyperactivity
• odd verbal responses
• preference for a set routine
• problems sustaining simple conversations
• showing very weak skills in interactions
• the tendency to over-focus on particular objects or subjects

Elementary School—

• Academic progress in the early grades is an area of relative strength (e.g., rote reading is usually good; calculation skills may be strong)
• An Aspergers child will frequently enter kindergarten without having been adequately diagnosed
• Behavioral concerns (e.g., hyperactivity, inattention, aggression, outbursts, etc.) were likely observed in the preschool years
• Concern over "immature" social skills and peer interactions usually exists
• Special education may be suggested, but most Aspergers kids enter a more mainstream setting
• Teachers are often struck by the child's "obsessive" areas of interest, which often intrude in the classroom setting
• The child may already be viewed as being somewhat unusual
• They are likely to show weak friend-making and friend-keeping skills
• They may show particular interest in one or a few children around them, but usually the depth of their interactions will be relatively superficial
• Writing skills are often weak

The course for an Aspie through elementary school can vary considerably from child to child. Overall problems can range from mild/easily managed to severe/intractable depending on certain factors (e.g., the child's intelligence level, appropriateness of management at school, parenting at home, temperamental style of the child, the presence or absence of complicating factors like hyperactivity/attentional problems, anxiety, learning problems, etc.).

Symptoms during adolescence include the following:

• Most childhood symptoms persist through adolescence
• Even though Aspie teenagers can begin to learn those social skills they lacked in childhood, communication often remains difficult
• Aspergers teens will often have intense social anxiety because they are often unable to read social cues and go with the "flow" of things
• Aspie teens want friends, but often feel shy or intimidated when approaching their peers
• Difficulties associated with this disorder can cause teens with Aspergers to become withdrawn and socially isolated and to have depression or anxiety
• It is hard for teens with Aspergers to relate with other people
• Most are very honest, sometimes to the point of rudeness
• One-sided conversations are very common
• Their preference for rules and honesty may lead them to excel in the classroom and as citizens
• They are focused and goal-drive
• They are typically uninterested in following social norms, fads, or conventional thinking, allowing creative thinking and the pursuit of original interests and goals
• They have difficulty "reading" others' behavior
• They may be immature for their age
• They may be naive and too trusting, which can lead to teasing and bullying
• They may feel "different" from others
• They may find it frustrating and emotionally draining to try to fit in
• They mostly talk a lot about their favorite interests
• They often excel because of being very detail-oriented
• They often prefer routines and do not like change
• Though they may not have many friends because of extreme social anxiety, it is possible for them to have close relationships with others throughout their lives

Middle School—

• As the Aspergers youngster moves into middle school, the most difficult areas continue to be those related to socialization and behavioral adjustment
• Academic performance can continue strong, particularly in those areas of particular interest
• Aspergers children may be left out, misunderstood, teased and bullied because Middle School comes with pressures for conformity and intolerance for differences
• Attentional and organizational difficulties may be present
• Because Aspies are frequently managed in mainstream educational settings, and because their specific developmental problems may be more easily overlooked, they are often misunderstood at this age by teachers and peers
• Learning difficulties are frequent
• Pressure may build up in the Aspie with little clue until he over-reacts in a dramatically inappropriate manner
• Some degree of depression is not uncommon as a complicating feature
• Teachers often have less opportunity to get to know the child well, and as a result, problems with behavior or work/study habits may be misattributed to emotional/motivational/behavioral problems
• The child may get into escalating conflicts or power struggles with teachers and other students who may not be familiar with the Aspie’s developmental style of interacting, which can lead to more serious behavioral flare-ups
• Their behavior may become increasingly problematic in the form of outbursts of noncooperation
• There will be ongoing subtle tendencies to misinterpret information, particularly abstract or figurative/idiomatic language
• Wanting to make friends and fit in, but unable to, they may withdraw even more

High School—

• Many of these Aspergers students will have developed considerable coping skills, "social graces," and general ability to "fit in" more comfortably by this age, thus easing their way
• Peer tolerance for individual variations and eccentricity often increases to some extent
• Some Aspergers students may pass socially as "nerds," a group which they actually resemble in many ways and which may overlap with Aspergers
• The Aspie teen may form friendships with other students who share his interests (e.g., via computer or math clubs, science fairs, Star Trek clubs, etc.)

Symptoms in adulthood include:

• Aspergers syndrome is a lifelong condition, although it tends to stabilize over time, and improvements are often seen
• Aspie adults usually obtain a better understanding of their own strengths and weaknesses
• Attention to detail and focused interests increases chances of university and career success
• They have average or above-average intelligence
• They have difficulty with high-level language skills (e.g., reasoning, problem solving, being too literal, etc.)
• They have an extreme focus on a particular interest or hobby
• They sometimes have an inability to see another person's point of view
• They often lack of emotional control, particularly with anger, depression, and anxiety.
• They may lack of empathy
• Many are fascinated with technology, thus a common career choice is engineering
• Many marry and have children
• They may have problems engaging in "small talk"
• They often experience strict adherence to routines, which can lead to anxiety when something unexpected happens
• They are able to learn social skills and how to read others' social cues with help from family and friends

Children with Aspergers usually grow up to be independently functioning adults in terms of employment, marriage, and family, etc. Aspergers does not preclude the potential for a "normal" adult life.

Aspergers students are able to successfully complete college and eventually find and maintain employment. Aspie adults often gravitate to a job or profession that relates to their own areas of special interest, sometimes becoming the most proficient employee in the department. However, in most cases, they will continue to demonstrate, at least to some extent, subtle differences in social interactions.

Many Aspie adults find their way to psychiatrists and other mental health providers where the true, developmental nature of their problems may go unrecognized or misdiagnosed (30-50% of all adults with Aspergers are never evaluated or correctly diagnosed).

Many adults with Aspergers have been able to utilize their skills, often with support from loved ones, to achieve a high level of function, personally and professionally – and some represent a unique resource for society, having the single mindedness and consuming interest to advance our knowledge in various areas of science, math, etc.

Their rigidity of style and idiosyncratic perspective on the world can make interactions difficult, both in and out of the family. There is a risk for mood problems (e.g., depression, anxiety). They are often viewed by others as eccentric, and they can be challenged by the social and emotional demands of marriage (although many do marry).  


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Does My Husband Have ASD Too? An Informal Quiz to Find Out

Question

My 15-year-old son was diagnosed with ASD [level 1] at the age of 12. I have heard that this disorder is highly genetic and have thought for many years now that my husband, John, also has ASD. When I first met John, I thought he was just a little “weird” and was hurt by his lack of concern for my feelings. Although I love him dearly, he is somewhat of a “heartless freak” (he has told me that I am an “overemotional troublemaker”). Is there a way for me to know for sure whether or not he has autism short of suggesting an assessment by a professional? He denies having a lot of the same characteristics as our son and has adamantly refused to get a formal diagnosis. It's important for me to know one way or the other so I can adjust my expectations accordingly.

Answer

Although not a replacement for a professional diagnosis, the following questionnaire will give you some insight into whether or not your spouse has this disorder. If you answer ‘yes’ to most of the following questions, then it is likely that you’re looking at true ASD:

1. Are their eyes extra sensitive to strong light and glare?
2. Are their views different from their peer group?
3. Are they bothered by clothes tags or light touch?
4. Are they easily distracted?
5. Are they easily offended by criticism, correction and direction?
6. Are they hypo- or hypersensitive to physical pain, or even enjoy some types of pain?
7. Are they impatient and have low frustration tolerance?
8. Are they naturally so honest and sincere themselves that they assume everyone should be?
9. Are they often surprised what people's motives are?
10. Are they or have they been hyperactive?

11. Are they poor at interpreting facial expressions?
12. Are they poor at returning social courtesies and gestures?
13. Are they prone to getting depression?
14. Are they sensitive to changes in humidity and air pressure?
15. Are they sometimes afraid in safe situations?
16. Are they somewhat of a daydreamer, often lost in their own thoughts?
17. Are they unsure when it is their turn to speak when talking on the phone?
18. Are they unsure when they are expected to offer an apology?
19. As a child, was their play more directed towards, for example, sorting, building, investigating or taking things apart than towards social games with other kids?
20. As a teenager, were they usually unaware of social rules & boundaries unless they were clearly spelled out?


21. Before doing something or going somewhere, do they need to have a picture in their mind of what's going to happen so as to be able to prepare themselves mentally first?
22. Do they often misunderstand other’s motives?
23. Do people comment on their unusual mannerisms and habits?
24. Do people often tell them that they keep going on and on about the same thing?
25. Do people sometimes think they are smiling at the wrong time?
26. Do people think they are aloof and distant?
27. Do recently heard tunes or rhythms tend to stick and replay repeatedly in their head?
28. Do their feelings cycle regularly between hopelessness and extremely high confidence?
29. Do they avoid meeting new people?
30. Do they avoid talking face to face with someone they don't know very well?


31. Do they avoid team sports?
32. Do they become frustrated if an activity that is important to them gets interrupted?
33. Do they bite their lip, cheek or tongue (e.g., when thinking, when anxious or nervous)?
34. Do they dislike being touched or hugged unless they're prepared or have asked for it?
35. Do they dislike it when people drop by to visit when uninvited?
36. Do they dislike it when people stamp their foot on the floor?
37. Do they dislike shaking hands with strangers?
38. Do they dislike when people walk behind them?
39. Do they dislike working while being observed?
40. Do they drop things when their attention is on other things?


41. Do they enjoy mimicking animal sounds?
42. Do they enjoy watching a spinning or blinking object?
43. Do they ever walk on their toes?
44. Do they expect other people to know their thoughts, experiences and opinions without having to tell them?
45. Do they feel an urge to correct people with accurate facts, numbers, spelling, grammar etc., when others get something wrong?
46. Do they feel an urge to peel flakes off themselves and/or others?
47. Do they fiddle with things?
48. Do they find it difficult to describe their feelings?
49. Do they find it difficult to do more than one thing at once?
50. Do they find it difficult to estimate the age of people?


51. Do they find it difficult to figure out how to behave in various situations?
52. Do they find it difficult to take messages on the telephone and pass them on correctly?
53. Do they find it difficult to take notes during lectures?
54. Do they find it disturbing or upsetting when others show up either later or sooner than agreed?
55. Do they find it easier to understand and communicate with odd & unusual people than with ordinary people?
56. Do they find it hard to be emotionally close to other people?
57. Do they find it hard to pick up on non-verbal cues of others?
58. Do they find it hard to recognize phone numbers when said in a different way?
59. Do they find it unnatural to wave or say 'hi' when they meet people?
60. Do they find it very hard to learn things that they are not interested in?


61. Do they find the norms of hygiene too strict?
62. Do they find themselves ill at ease in romantic situations?
63. Do they forget they are in a social situation when something gets their attention?
64. Do they get confused by several verbal instructions at the same time?
65. Do they get frustrated if they can't sit in their favorite seat?
66. Do they get very tired after socializing, and need to regenerate alone?
67. Do they hate gossip?
68. Do they have a fascination for slowly flowing water?
69. Do they have a monotonous voice?
70. Do they have a tendency to become stuck when asked questions in social situation?


71. Do they have an alternative view of what is attractive in the opposite sex?
72. Do they have an avid perseverance in gathering and filing information on a topic of interest?
73. Do they have atypical or irregular sleeping patterns that deviate from the 24-hour cycle?
74. Do they have certain routines which they need to follow?
75. Do they have difficulties filtering out background noise when talking to someone?
76. Do they have difficulties imitating & timing the movements of others, e.g., when learning new dance steps or in gym class?
77. Do they have difficulties judging distances, height, depth or speed?
78. Do they have difficulties with activities requiring manual precision, e.g., sewing, tying shoe-laces, fastening buttons or handling small objects?
79. Do they have difficulty accepting criticism, correction, and direction?
80. Do they have difficulty describing & summarizing things for example events, conversations or something they've read?

81. Do they have difficulty remembering verbal instructions?
82. Do they have extra sensitive hearing?
83. Do they have little sense for what is the right thing to do socially?
84. Do they have little sense of how much pressure to apply when doing things with their hands?
85. Do they have no interest for the current fashions?
86. Do they have one special talent which they have emphasized and worked on?
87. Do they have poor awareness or body control and a tendency to fall, stumble or bump into things?
88. Do they have problems filling out forms?
89. Do they have problems finding their way to new places?
90. Do they have problems recognizing faces?


91. Do they have problems starting or finishing projects?
92. Do they have problems with timing in conversations?
93. Do they have strong attachments to certain favorite objects?
94. Do they have trouble reading clocks?
95. Do they have trouble with authority?
96. Do they have unusual sexual preferences?
97. Do they instinctively become frightened by the sound of a motor-bike?
98. Do they make unusual facial expressions?
99. Do they misjudge how much time has passed when involved in interesting activities?
100. Do they mistake noises for voices?


101. Do they mix up digits in numbers like 95 and 59?
102. Do they need lists and schedules in order to get things done?
103. Do they need periods of contemplation?
104. Do they need to do things themselves in order to remember them?
105. Do they not really fit into the expected gender stereotypes?
106. Do they notice patterns in things all the time?
107. Do they often feel out-of-sync with others?
108. Do they often have lots of thoughts that they find hard to verbalize?
109. Do they often not know where to put their arms?
110. Do they or others think they have unconventional ways of solving problems?

111. Do they or others think they have unusual eating habits?
112. Do they pace (e.g. when thinking or anxious)?
113. Do they prefer to do things on their own even if they could use others' help or expertise?
114. Do they prefer to wear the same clothes or eat the same food many days in a row?
115. Do they repeat vocalizations made by others?
116. Do they rock back-&-forth or side-to-side (e.g., for comfort, to calm themselves, when excited or over stimulated)?
117. Do they see their own activities as more important than other people's?
118. Do they sometimes have an urge to jump over things?
119. Do they sometimes lie awake at night because of too many thoughts?
120. Do they sometimes mix up pronouns and, for example, say "they" or "we" when they mean "me" or vice versa?

121. Do they stutter when stressed?
122. Do they suddenly feel distracted by distant sounds?
123. Do they talk to themselves?
124. Do they tap their ears or press their eyes (e.g., when thinking, when stressed or distressed)?
125. Do they tend to become obsessed with a potential partner and cannot let go of him/her?
126. Do they tend to express their feelings in ways that may baffle others?
127. Do they tend to get so absorbed by their special interests that they forget or ignore everything else?
128. Do they tend to interpret things literally?
129. Do they tend to look a lot at people they like and little or not at all at people they dislike?
130. Do they tend to notice details that others do not?


131. Do they tend to say things that are considered socially inappropriate when they are tired, frustrated or when they act naturally?
132. Do they tend to shut down or have a meltdown when stressed or overwhelmed?
133. Do they tend to talk either too softly or too loudly?
134. Do they wring their hands, rub their hands together or twirl their fingers?
135. Does it feel vitally important to be left undisturbed when focusing on their special interests?
136. Has it been harder for them than for others to keep friends?
137. Has it been harder for them to make it on their own than it seems to be for most others of the same age?
138. Have others told them that they have an odd posture or gait?
139. Have they been accused of staring?
140. Have they been bullied, abused or taken advantage of?

141. Have they been fascinated about making traps?
142. Have they had long-lasting urges to take revenge?
143. Have they taken initiative only to find out it was not wanted?
144. If there is an interruption, is it difficult for them to quickly return to what they were doing before?
145. In a conversation, do they tend to focus on their own thoughts rather than on what their listener might be thinking?
146. In conversations, do they need extra time to carefully think out their reply, thus there may be a pause before they answer?
147. In conversations, do they use small sounds that others don't seem to use?
148. Is it hard for them to see why some things upset people so much?
149. Is their sense of humor different from mainstream or considered odd?
150. Is their sense of humor somewhat unconventional?

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==> Online Group Therapy for Couples Affected by Autism Spectrum Disorder

==> Cassandra Syndrome Recovery for NT Wives

==> ASD Men's MasterClass: Social-Skills Training and Emotional-Literacy Development

Self-Test: Do I Have Autism Spectrum Disorder?

Question

Our son was recently diagnosed with ASD, and now my wife and I think that I may be on the spectrum too - but we're not sure. Is there a self-test that I can take to see whether or not I have it without going to a doctor for a formal diagnosis?

Answer

If you answer “true” to most of the statements below, then you probably have ASD [level one]. However, this self-test should not be viewed as a ‘diagnostic tool’ per say.

True or False:

1. As a child, I didn’t enjoy playing games involving pretending with other children. T or F
2. Friends don’t talk to me about their problems because they find that I don’t understand them. T or F
3. Friendships and relationships are just too difficult, so I tend not to bother with them. T or F
4. I can’t figure out what another person might want to talk about. T or F
5. I can’t sense if I’m intruding, even if the other person tells me. T or F
6. I can’t tell if someone else is interested or bored with what I am saying. T or F
7. I can’t tell if someone else wants to enter a conversation. T or F
8. I can’t tell if someone is masking their true emotion. T or F
9. I can’t tune into how someone else feels. T or F
10. I can't always see why someone should have felt offended by a remark. T or F
11. I can't relax until I have done everything I had planned to do that day. T or F
12. I consciously work out the rules of social situations. T or F
13. I don’t enjoy being the center of attention at any social gathering. T or F
14. I don’t enjoy caring for other people. T or F
15. I don’t enjoy doing things spontaneously. T or F


16. I don’t enjoy meeting new people. T or F
17. I don’t enjoy social chit-chat. T or F
18. I don’t enjoy social occasions. T or F
19. I don’t know how to tell if someone listening to me is getting bored. T or F
20. I don’t like to do things on the spur of the moment. T or F
21. I don’t try to keep up with the current trends and fashions. T or F
22. I don’t usually get upset if I see people suffering on news programs. T or F
23. I don't like to take risks. T or F
24. I don't particularly enjoy reading fiction. T or F
25. I find it difficult to ‘‘read between the lines'' when someone is talking to me. T or F
26. I find it difficult to do more than one thing at once. T or F
27. I find it difficult to imagine what it would be like to be someone else. T or F
28. I find it difficult to put myself in somebody else's shoes. T or F
29. I find it difficult to work out people's intentions. T or F
30. I find it difficult to work out what someone is thinking or feeling just by looking at their face. T or F


31. I find it hard to know what to do in a social situation. T or F
32. I find it hard to make new friends. T or F
33. I find it very difficult to play games with children that involve pretending. T or F
34. I find making up stories difficult. T or F
35. I find myself drawn more strongly to things than to people. T or F
36. I find social situations difficult. T or F
37. I frequently find that I don't know how to keep a conversation going. T or F
38. I frequently get so strongly absorbed in one thing that I lose sight of other things. T or F
39. I like to be very organized in day to day life and often make lists of the chores I have to do. T or F
40. I like to collect information about categories of things (e.g. types of car, types of bird, types of train, types of plant, etc.). T or F
41. I like to plan any activities I participate in carefully. T or F
42. I notice patterns in things all the time. T or F
43. I often find it difficult to judge if something is rude or polite. T or F
44. I often notice small sounds when others do not. T or F
45. I prefer animals to humans. T or F


46. I prefer practical jokes to verbal humor. T or F
47. I prefer to do things on my own rather than with others. T or F
48. I prefer to do things the same way over and over again. T or F
49. I tend not to get emotionally involved with a friend's problems. T or F
50. I tend to find social situations confusing. T or F
51. I tend to have very strong interests which I get upset about if I can't pursue. T or F
52. I tend to have very strong opinions about morality. T or F
53. I tend to notice details that others do not. T or F
54. I try to solve my own problems rather than discussing them with others. T or F
55. I usually concentrate more on the small details rather than the whole picture. T or F
56. I usually don’t appreciate the other person's viewpoint, even if I agree with it. T or F
57. I usually notice car number plates or similar strings of information. T or F
58. I usually notice small changes in a situation, or a person's appearance. T or F
59. I usually stay emotionally detached when watching a film. T or F
60. I would be too nervous to go on a big rollercoaster. T or F


61. I would never break a law, no matter how minor. T or F
62. I would rather go to a library than a party. T or F
63. I would rather go to the museum than a theater. T or F
64. I’m able to make decisions without being influenced by people's feelings. T or F
65. I’m fascinated by dates. T or F
66. I’m fascinated by numbers. T or F
67. I’m not good at predicting how someone will feel. T or F
68. I’m not good at predicting what someone will do. T or F
69. I’m not good at social chit-chat. T or F
70. I’m not a good diplomat. T or F
71. I’m often the last to understand the point of a joke. T or F
72. I’m very blunt, which some people take to be rudeness, even though this is unintentional. T or F
73. If I say something that someone else is offended by, I think that that's their problem, not mine. T or F
74. If I see a stranger in a group, I think that it is up to them to make an effort to join in. T or F
75. If I try to imagine something, I find it very difficult to create a picture in my mind. T or F


76. If my wife asked me if I liked her dress, I would reply truthfully, even if I didn't like it. T or F
77. If someone says one thing but means another, I don’t get it. T or F
78. If there is an interruption, I can’t switch back to what I was doing very quickly. T or F
79. In a conversation, I tend to focus on my own thoughts rather than on what my listener might be thinking. T or F
80. In a social group, I can’t keep track of several different conversations at once. T or F
81. It doesn’t really upset me too much to see an animal in pain. T or F
82. It doesn't bother me too much if I’m late meeting a friend. T or F
83. It’s hard for me to see why some things upset people so much. T or F
84. It upsets me if my daily routine is disturbed. T or F
85. It’s hard for me to spot when someone in a group is feeling awkward or uncomfortable. T or F
86. New situations make me anxious. T or F
87. Other people frequently tell me that what I've said is impolite, even though I think it is polite. T or F
88. Other people often say that I’m insensitive, though I don't always see why. T or F
89. Other people tell me I’m not very good at understanding how they are feeling and what they are thinking. T or F


90. People often tell me that I’m very predictable. T or F
91. People often tell me that I keep going on and on about the same thing. T or F
92. People often tell me that I went too far in driving my point home in a discussion. T or F
93. People sometimes tell me that I have gone too far with teasing. T or F
94. Seeing people cry doesn't really upset me. T or F
95. When I talk on the phone, I'm not sure when it is my turn to speak. T or F
96. When I talk to people, I tend to talk about my experiences rather than theirs. T or F
97. When I talk, it isn't easy for others to get a word in edgeways. T or F
98. When I was a child, I enjoyed cutting up worms to see what would happen. T or F
99. When I'm reading a story, I find it difficult to work out the characters' intentions. T or F
100. When reading a story, it’s hard for me to imagine what the characters may look like. T or F


Best comment:

It was recently brought to my attention that I may have Aspergers. It was actually a woman who has it that commented to me. Ive spent my life in and out of counselling, filled a million psych tests out and been labeled with about 8 different mental illnesses, non of which rang fully true. I have struggled to 'thrive' and have a bad social and relationship track record. Im a single mother also. Im not dumb by any means and have always excelled when I want to. I was at a University level of reading and comprehension by the age of 12. I can miss a lot of classes and still pass my exams, the results always had me pegged as cheating. I think you need friends to help you cheat and that I lacked. I also dont think that having a higher IQ should be punished, its not my fault that others cant figure out things and take initive to find the answers. 

I gave up with second level education and educate myself through books and anything I can. I consistanly get told Im lying or making up stuff. A wonderful counseller I found pointed out it was my lack of eye contact and the lack of emotion used when discussing things. An example she gave was that I had the same voice and facial expression recanting a truly awful experience as I did for recanting a general experience. Needless to say that when this lady Im friends with pointed out Aspergers and I started reading into it I was not only amazed but felt like I finally 'get it' as so many things about it were bang on. 

Now, Ive been paying attention and reading more and more. I have a child. Shes now 18, almost 19. Its safe to say that if I have Aspergers there were certain behaviors in my child I would totally have missed as not normal because for me it would have seemed perfectly normal. Im not sure if shes Aspergers or not but Im betting she is. A few key differences in us are: she would never ever express her needs. She would never say she was hungry, sleepy, hot/cold etc. It would just be a melt down and I was always stuck trying to figure out what she needed. It took her 16yrs to finally be able to say "Im getting hungry and its making me cranky". She only does this about 50% of the time but thats progress. She has a bad habit of filling her clothing drawers with weird stuff. One drawer is ALWAYS full of garbage, papers and crayons..even at 18. 

She refuses to dress 'normal', and struggles in school. The hardest thing with her is the temper tantrums and violent lashing out. The biggest struggle Ive always faced with her was that temper and refusal to behave or accept consequences. When shes not raging shes a wonderful bubbly creative and sweet girl full of love and caring. Trust me, we've done all the avenues of counselling. It all failed due to lack of intelligence and commitment from professionals, to refusal from my child and my inability to stay consistant. Since my child turned 14 and started smoking pot our head butting has intesified. It has gotten so bad that police have been called, a good portion of my belongings have been destroyed and we've gotten into scraps worthy of bar brawls. Im not the best person for keeping my cool when attacked and when cornered and attacked..I refuse to be taken out. 

She finally moved out at 17 stating Im a horrible parent who doesnt understand her and I purposly enrage her by making her 'do things'. To her that is everything as shes very defiant about being told to do anything..its her way or nothing, unless of course you are a bad influence, teacher or employer. I let her leave with mixed feelings. I was so utterly thankful for the peace and quiet and yet I mourned losing my only baby to the streets. Now shes living with my mother and treating my mother the same as she treated me the last 4 yrs. My mother is now at wits end dealing with the behavioral issues. 

Ive read your article online about this program you offer for the anger melt downs. My question is...how is one potential Aspergers supposed to correct another? Is this set up so I can actually follow it and manage correcting my child? I learned to control my anger, Im very happy now sitting on the wonderful flat line of emotions. I do not like going up or down. Engaging with my child makes me frustrated and angry pretty quick and all that anger control goes out the window when it comes to her and her anger. I can manage being verbally attacked by all kinds of people and keep it under control but my girl brings it out almost instantly. 

I really try to avoid her now that Ive relished in the tranquillity of her moving out. I love my child and I desperatly want to see her succeed and over come her anger melt downs as well as regain the loving relationship we used to have before she became a teenager. How can I do this though if I cant handle being the adult and manage my own behaviors? Is your program adaptable? I would bring both of us back into counselling just to get the magic label but thats a dead horse Im afraid. Ive decided to manage this on my own. Part of helping my child is realising where I lack and how I can better present myself to eliminate any miscommunications and potenial melt downs. 

Do I need to ignore her needs till I master this on my own or is it easy enough and set up accordingly that I can walk both lines...get myself functioning better so Im not alienated as well as help her mellow out and open her ears so she can move forward. I would love any advice and would love to hear your point of vew on this matter. Its been a long long battle for myself as well as for my child. Im really quite tired of being left out in the cold for how I operate and for helping my child. Most of the close family has already turned their backs on us. That alone has defeated my child, and its driven me to more and more hermit type of behaviors. Im tired, it makes my head hurt always trying to manage everyone and their crap. 

How Clinicians Test for Aspergers

Question

I am a young adult who was diagnosed with Aspergers Syndrome while in the Mental Ward at a local hospital. This diagnosis was made by a clinical Psychiatrist without any type of "testing". Just an interview about my past and present history. I read online about Asperger Symptoms and I totally agree with his diagnosis. I have hand flapping when excited, sensitivities to sounds, trouble making eye contact, difficulty understanding people's emotions, and I have an interest mainly just in music and weather and it's hard to make friends. I'm unable to get along with people well and can't hold down a job.

I told my primary Psychiatrist about the diagnosis and she kind of blows it off and says the hospital can't make a diagnosis of Aspergers without "testing" being done. What type of testing would need to be done? The Doctor at the hospital that diagnosed me said he has many patients who have Aspergers. I do not second guess his opinion. My Psychiatrist that I see regularly seems to second guess it and says it may hurt my disability case if I don't get a second diagnosis with actual "testing" done. She also claims that Psychiatrists cannot do testing because that's the job of a Psychologist. This doesn't make any sense to me.

It seems like a waste of money for me to have to go for more opinions and "testing". What types of testing is done besides IQ tests? I would think the main thing they do would be to ask questions about my childhood and present situation which already happened with my first interview and diagnosis. Do you think not getting "testing" done (plus, what type of tests?) and/or a second opinion would hurt my disability case? I have other issues besides Aspergers such as severe OCD and Panic Disorder as well, so the disability is something that was recommended to me at the hospital from being there multiple times and not holding down jobs.

Answer

Re: What type of testing would need to be done?

For the inexperienced clinician, identifying the six defining characteristics of Aspergers can be difficult. Misdiagnoses are quite common. This is further complicated by the fact that an Aspie has many of the same features found in other disorders. These features are often misinterpreted, overlooked, under-emphasized, or overemphasized. As a result, the individual may receive many different diagnoses over time from different diagnosticians.

In order to be diagnosed with Aspergers, an individual must show at least two of these symptoms:
  • Lack of appropriate social and emotional responses to others
  • Inability to spontaneously share enjoyment, interests and achievements with other people
  • Failure to make friends
  • Marked impairment regarding nonverbal social cues (e.g., doesn't make eye contact, doesn't understand others' body language, etc.)

In addition, the individual must show at least one of these behaviors:
  • Repetition of certain mannerisms (e.g., hand flapping, hair twisting, whole body movements, etc.)
  • An obsession in the parts or mechanics of objects
  • An abnormal and intense interest in one subject
  • Adherence to a strict set of rules, routines and rituals

There are several specific diagnostic tools to identify specific symptoms. The diagnostician may do the following:

1. Begin the exam with an IQ test. Since Aspies have normal or above normal IQs, that’s a good place to start.

2. Administer an assessment of adaptive skills, which tests the person’s ability to manage complex social situations.

3. If the parent is available, administer a parent interview called the Autism Diagnostic Interview Revised. Look at current functioning and early history to get a sense of the person’s skills in social, communication and behavior domains. Most adults with true Aspergers showed symptoms throughout their childhood. If a parent is not available, ask the individual to recall his childhood (e.g., “Did you have a lot of friends?” … “What did you enjoy doing?” … “Were you picked on at school a lot by your schoolmates?” …etc.). 

4. In addition, administer the ADOS Module IV. ADOS is the Autism Diagnostic Observation Schedule, and module four is for high-functioning, verbal adults. This tool allows the diagnostician to (a) look at social and communication skills and behavior, and (b) attach a grade in each domain to determine whether the person meets the criteria for Aspergers.

Another assessment tool is called the Adult Aspergers Assessment (AAA). Properties of the AAA include (1) being electronic, data-based, and computer-scorable, (2) linking with two screening instruments (the Autism Spectrum Quotient and the Empathy Quotient), and (3) employing a more stringent set of diagnostic criteria in order to avoid false positives.

Some of the Aspergers traits that are revealed during testing are included at the bottom of this article.

Often times, an individual comes into a clinic expecting an Aspergers diagnosis, but leaves with a different diagnosis. Distinguishing between social phobias/shyness and actual impairment with Aspergers can be difficult for the inexperienced clinician. Other disorders (e.g., obsessive compulsive disorder, social anxiety) can look like Aspergers.

Re: Do you think not getting "testing" done and/or a second opinion would hurt my disability case?

Not likely. Official diagnosis is necessary if one wants to apply for Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI). A diagnosis is needed to request “reasonable accommodations” under the ADA.

In addition to those with an MD or PhD, any professional with the credentials and expertise to diagnose any other condition may also make a diagnosis of Aspergers. Such professionals may be social workers (MSW), master’s level psychologists (MA), or other mental health professionals.

Many individuals pursue neuropsychological testing with a neuropsychologist (PhD) or a psychiatrist (MD). As a result of this testing, it may be determined that the individual has Aspergers, something related to Aspergers, or something different. This will give a fairly full picture of strengths and challenges and of how one’s brain processes information.

Neuropsychological testing is not required to get an “official diagnosis”. To apply for Social Security, one must receive the diagnosis from an MD or a PhD.


* Aspergers traits typically revealed during testing:

1. apparently inflexible adherence to specific, nonfunctional routines or rituals
2. as a child, did not enjoy playing games which involved pretending with other children
3. cannot see the point of superficial social contact, niceties, or passing time with others, unless there is a clear discussion point/debate or activity
4. can't always see why someone should have felt offended by a remark
5. can't appreciate another's viewpoint if disagrees with it
6. can't easily tell if someone is interested or bored with what they are saying
7. can't keep track of conversations in social group
8. can't pick up if someone says one thing but means another
9. can't sense when intruding
10. can't tell if someone else wants to enter a conversation
11. can't work out what other person might want to talk about
12. collects information about categories of things (e.g., types of cars)
13. consciously works out the rules of social situations
14. difficulties in understanding social situations and other people's thoughts and feelings
15. difficulty with detecting whether someone is masking their true emotion
16. difficulty with tuning in to how others feel
17. does not enjoy social chit-chat
18. does not enjoy social situations
19. does not get emotionally involved with friends' problems
20. does not spot when someone in a group is feeling awkward or uncomfortable
21. doesn't know if listener is getting bored
22. doesn't particularly enjoy reading fiction
23. doesn't think it's their problem if they offend someone
24. either lack of interest in fiction (written, or drama) appropriate to developmental level or interest in fiction is restricted to its possible basis in fact (e.g., science fiction, history, technical aspects of film)
25. encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus
26. failure to develop peer relationships appropriate to developmental level
27. fascinated by dates
28. fascinated by numbers
29. finds friendships and relationships difficult so tends not to bother with them
30. finds it difficult as an adult to play games with children that involve pretending
31. finds it difficult to imagine what it would be like to be someone else
32. finds it difficult to put self in someone else's shoes
33. finds it difficult to read between the lines when talking with others
34. finds it difficult to work out characters' intentions when reading a story
35. finds it difficult to work out people's intentions
36. finds it difficult to work out what someone is thinking/feeling from facial expression
37. finds it hard to know what to do in social situations
38. finds it hard to make new friends
39. finds it hard to see why some things upset people so much
40. finds making up stories difficult
41. finds self drawn more strongly to things than people
42. finds social situations confusing
43. finds social situations difficult
44. focuses more on own thoughts rather than listener's
45. frequent tendency to say things without considering the emotional impact on the listener
46. frequently finds doesn't know how to keep a conversation going
47. friends don't talk to them about problems as not considered understanding
48. gets so strongly absorbed in one thing that loses sight of other things
49. gets upset if daily routine is disturbed
50. has been told to stop talking about a particular obsessive topic because the listener is getting annoyed
51. if sees stranger in a group, thinks it's up to them to join in
52. impairments in imagination
53. inability to recognize when the listener is interested or bored
54. inability to tell, write or generate spontaneous, unscripted or un-plagiarized fiction
55. is brutally honest to the point of offending others
56. is not concerned if late when meeting a friend
57. is not good at social chit-chat
58. is not upset by seeing people cry
59. is very blunt without being intentionally rude
60. lack of showing, bringing or pointing out objects of interest
61. lack of social or emotional reciprocity (e.g., not knowing how to comfort someone and/or lack of empathy)
62. lack of spontaneous seeking to share enjoyment, interests or achievements with other people
63. lack of varied, spontaneous make believe play appropriate to developmental level
64. makes decisions without being influenced by people's feelings
65. marked impairment in the ability to initiate or sustain a conversation with others
66. marked impairment in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction
67. no interest in communicating his/her experience to others
68. no interest in pleasing others
69. not a good diplomat
70. not good at predicting how someone will feel
71. not good at predicting what someone else will do
72. notices patterns in things all the time
73. often described as insensitive, but can't see why
74. often finds it difficult to judge if something is rude or polite
75. often notices small sounds that others do not
76. often the last to understand the point of a joke
77. often told gone too far in driving point home in discussion
78. often told has been impolite even though they think they have been polite
79. often told keeps going on and on about the same thing in conversation
80. pedantic style of speaking, or inclusion of too much detail
81. persistent preoccupation with parts of objects/systems
82. physically awkward and uncoordinated
83. prefers to do things on own rather than with others
84. prefers to do things the same way over and over again
85. qualitative impairment in social interaction
86. qualitative impairments in verbal or non-verbal communication
87. restricted repetitive and stereotyped patterns of behavior, interests, and activities
88. sometimes told has gone too far with teasing
89. stays emotionally detached when watching movies
90. stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)
91. tendency to think of issues as being black and white (e.g., in politics or morality), rather than considering multiple perspectives in a flexible way
92. tendency to turn any conversation back on to self or own topic of interest
93. tends to concentrate on talking about own experiences
94. tends to have very strong interests which gets upset about if can't pursue
95. tends to notice details that others do not
96. usually concentrates on the small details rather than the whole picture
97. usually notices car number plates or similar strings of information
98. usually notices small changes in a situation or a person's appearance
99. when talking on the phone, is not sure when it is their turn to speak
100. would rather go to a museum than the theater  

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