Homeschooling Your Aspergers Child: Free Educational Resources

Animals & Pets—
 

·         TeachKind— Kindness to animals. Videos, DVDs, lesson plans, worksheets all free to network members. About how to affect the kind treatment of all animals.

·         Bear Safety in Alaska packet— Booklet and sticker to send for, or download pdf file and print for yourself.

Arts & Crafts—

eCals - Calendars for Kids Recycling Program— Need old calendars for craft projects for your kids or want to donate some? Here's the place.

Computing—

·         Freebyte's Guide to Free Computers— Free used and recycled computers, mostly for schools, non-profit organisations and disadvantaged individuals.

·         Free Computers— Why throw away that 486 machine when its perfectly usable? Here is a very incomplete list of groups involved in reusing computer equipment.

·         Free Color Printer from Xerox— If you are running a home business, an association or large support group, a resource center or cottage school, you may qualify. You must buy all ink through them, and report on your usage.

 

Health & Safety—

 

·         Will Rogers Institute Educational Resources— Educational material on health issues for teens.

·         Safe Kids— Order free booklets about safety around electricity and natural gas.

·         NICHD/Milk Matters Clearinghouse— View, download as .pdf file, or send away for brochures about milk. Also available in Spanish.

·         FEMA Publications— Order a Disaster Public Information Catalog to find out all the materials that FEMA offers. You can call, toll-free 1-800-480-2520.

 

Homeschool-Specific—

 

Homeschool Free Stuff— This is a weekly newsletter that compiles free resources for homeschoolers from around the Internet. We include everything including free Curriculum, Lesson Plans, Resources, Interactive Online Studies, Unit Studies and more.

Internet Site Hosting—

 

·         Free Online Datebooks— Share your homeschooling plans on the web.

·         A2Z Homeschool Blogs— A free hosting service with many Wordpress templates to enjoy.

 

Math—

 

·         Wall Street Journal Classroom Edition— 30 copies may be a bit much for one homeschool family, but may be just right for an ISP or support group needing 30 copies 9 times a year at a good discounted price.

·         The Kingdom Of Ern— Free book that explains the relationship between productivity and inflation to kids. From Monetta Mutal Funds.

·         Federal Reserve Bank of San Francisco— Free curriculum about money, monetary policy, banking supervision, financial services, and more for elementary through high school students.

 

Multiple Topics—

 

·         Captioned Media Program— We are a free-lending library of open-captioned videos. We are funded by the U.S. Department of Education and administered by the National Association of the Deaf. Currently, we have around 4,000 captioned videos in our collection and are adding more each year.

·         Consumer Information Catalog— Free or nearly free booklets from the government for learning activities, college planning, parenting concerns.

·         Free Resources— A sortable database for free curriculum online and off. Sort by age, topic, and specific terms.

·         Free Teaching Aids— Resource books, that aren't free, which list lots of things that are available to homeschool parents as well as teachers.

·         Freecycle Network— Made up of many individual groups across the globe, it's a grassroots movement of people who are giving (& getting) stuff for free in their own towns. Each local group is run by a local volunteer moderator (them's good people). Membership is free.

·         Lesson Plans— Websites that have structured lesson plans. Usually these have goals and objectives and meet state standards.

·         Video Placement Worldwide— VPW offers educational materials FREE to qualified teachers, librarians, media specialists, and youth leaders throughout the United States, courtesy of some of America's leading companies and organizations.

 

Language Arts—

 

·         Stage to Screen— Turner Classic Movies (TCM) and Turner Learning, Inc., in partnership with your local cable company, are pleased to provide you with this Educator's Guide for TCM's series TCM By the Book: Stage to Screen. This guide and the series is intended to help you introduce classic film adaptations of stage plays.

·         NetLibrary— Borrow books online before you buy. Catch is, you have to return them in two weeks, the software sees to that.

·         Libraries on the Web— Directory of public libraries with web sites. Often you can put books on reserve from the website.

·         Kane/Miller Free Stuff for Children— Free sticker of "Everyone Poops," and other items of interest for children.

·         FunFelt Storyteller Sample— Please click on "Felt Sample & Info" to request a small printed felt sample or other information from someone in my FunFelt Team of local Independent Story Teller Consultants.

·         Free Spanish Lessons— Right here on A to Z Home's Cool! 13 lessons in conversational Spanish, with pictures and sound to help you learn fast! Send for CD sample of more lessons.

·         Free Curriculum and Field Trips— A sortable database for free curriculum and field trip ideas.

·         Arthur Teacher Guides— There are a number of Arthur teacher guides available both online and in print.

 

Lesson Plans—

 

·        
Youth Learn
—
Relevant, creative materials that can help you make good use of new technology. Look here for planning guides, teaching techniques, activities, projects, and more.

·        
Web-Based Projects
—
A series of web-based projects written and designed by students preparing to become teachers.

·        
Today is Fun
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The ideas here will keep kids happy and occupied for hours on end, without you having to spend money or buy more stuff. The tips are always entertaining, often educational and developmentally appropriate.

·        
Texas Instruments Activities Exchange
—
Browse by subject area or submit your own activity ideas. Learn to use TI calculators to solve real-world problems.

·        
TeachR
—
Presents a free and effective way to collect, create, organize and teach lesson plans in a fast and efficient way. Cool calendaring feature! Free registration for those who want to post lessons.

·        
Teach-nology
—
Offers teachers FREE access to lesson plans, printable worksheets, over 150,000 reviewed web sites, rubrics, educational games, teaching/ technology tips, advice from expert teachers, and more.

·        
Teacher Created Materials
—
Free monthly activities, lesson plans, and brain teasers. New each month as well as archives.

·        
Teach With Movies
—
Through movies, introduce children to major events in history, principles of science, extraordinary people, literature, drama, dance, art, character development, and ethics. Low annual subscription rate for hundreds of movies.

·        
Smithsonian Education
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Arts, Language Arts, Science and Social Studies plans.

·        
School Express
—
Free weekly units, free worksheets for online and offline study, and software to download.

·        
Scholastic Lesson Plans & Reproducibles
—
Pick a grade level pre-k through 8th grade and then a topic to locate a variety of lesson plans teaching that skill.

·        
Read Write Think
—
Access to the highest quality practices and resources in reading and language arts instruction through free, Internet-based content.

·        
Praetor Education Technology
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How to use open source software to develop free curriculum online. Free Java lessons for educators. Good math and science resources already developed.

·        
PBS Teachers Source
—
Updated monthly. Resources so you can integrate PBS shows with your unit studies.

·        
Outta Ray's Head
—
A collection of lesson plans with handouts for writing, literature, poetry, and using the library, by Ray Saitz and many contributors.

·        
Open Gateways Curriculum for Teachers
—
Training Guides and the Lesson Plans. Both are designed to teach persons interested in training teachers to fully integrate the StarOffice™ suite of productivity tools into their school curricula. Windows and Linux.

·        
NY Times Lesson Plan Archive
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The archive contains hundreds of free lesson plans for grades 6-12. You may perform a keyword search to retrieve a lesson, browse the archive by subject, or scroll down the page to view the most recently published lessons.

·        
Newton's Apple: Teacher's Guides
—
A complete collection of Teacher's Guides from season 9 through 15 is available. Mostly science lessons, though a few from other topics as well.

·        
MarcoPolo Lessons
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Check back each Monday to see the newest lessons added to the MarcoPolo content standards aligned website, or access all MarcoPolo lessons and resources in the MarcoPolo Search Engine.

·        
Life Skills for Vocational Success
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Life skills constitute a continuum of knowledge and aptitudes that are necessary for a person to function independently and to avoid interruptions of the employment experience.

·        
Lesson Tutor
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Free reproducible lesson plans, unit studies and print ready worksheets for all levels, all abilities and all subjects of Grade School and High School. Featured articles will give you general teaching and learning encouragement, references and support.

·        
Lesson Plan Page
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Far more than just a "page," this site has plans in all typical subjects, as well as holiday units, computer science, and even PE. Add your own plans to the project.

·        
Lesson Plan Center
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Let TeacherVision.com help you create innovative plans quickly with our large inventory of ideas and materials.

·        
Lesson Bank
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The Teachers.Net Lesson Bank is your opportunity to share your most precious asset - your teaching ideas and lesson plans.

·        
Learning Partners
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A Guide to Educational Activities for Families that covers a lot of topics: reading, math, science, geography, history, writing, responsible behavior, and many more. For each topic, there are activities that you can do with your children to reinforce learning. Most are simple, everyday activities.

·         Learners Online— Each week there's a new online lesson that takes learners on a thematic journey across cyberspace. Lessons are tied to current events and help learners extend their knowledge on a wide range of topics.

·         Learn.com— Online courses, some are free, some require a fee, and some require software to be purchased. Not all courses appropriate for children, but many are. Unusual right scrolling needed to see the whole page.

·         Learn NC— A program of the University of North Carolina at Chapel Hill School of Education, finds the most innovative and successful practices in K-12 education and makes them available to teachers and students.

·         Layers of Learning— Layers of learning refers to the scaffolding all people need as they learn. The more we can connect ideas together ast teachers, the more meaningful the ideas become.

·         Kitchen Table Classroom— Tips and tidbits on how to make learning fun! On this site, we offer a new tidbit each day, so come back often.

·         K to the 8th Power— Over 600 lessons which are organized into integrated and cross-curricular lessons. The integrated lessons teach a computer skill and apply it to grade level academic content.

·         iTunes U— A part of the iTunes Store featuring free lectures, language lessons, audiobooks, videos and more, that you can enjoy on your iPod, iPhone, Mac or PC. Explore over 200,000 educational audio and video files from top universities, museums and public media organizations from around the world.

·         Ideas For Homeschoolers— Marty Layne, of Victoria, BC, posts her monthly newsletter in her delightful writing style that will delight and enthral you.

·         I Love That Teaching Idea!— Worksheets, reproducibles, newsletters, books, lesson plans, ideas and more.

·         HomeSchooler Network: Lessons & Activities— Find innovative ideas for learning at home with our large inventory of resources and materials. Search by subject and your child's age.

·         Homeschool Launch— At this point there are several hundred files (forms, unit studies, lapbook templates, worksheets, etc) created and uploaded by various members of the site - with several more being added each week.

·         Homeschool Huskies and Ponies— Sets of workbooks and projects in different topics. Patches given as awards for completion.

·         Grade Level Skills Help Pages— These links are grade specific to help students practice on specific concept areas. 

·         Google for Educators— This website is one of the ways we're working to bolster that support and explore how Google and educators can work together.

·         Gateway to Educational Materials— The key to one-stop, any-stop access to high quality lesson plans, curriculum units and other education resources on the Internet!

·         Free Resources— A sortable database for free curriculum online and off. Sort by age, topic, and specific terms.

·         Free Printables— Print out unlimited copies of your favorite projects including art, deals, and greeting cards. This is the most comprehensive site offering every kind of easily-printed activity that you can simply copy on your home computer.

·         Free High School curriculum— From Apple. By providing Apple with your email address and checking the box below, you will be notified when additional curriculum materials are available.

·         Educator's Reference Desk— This collection contains more than 2000 unique lesson plans which have been written and submitted to AskERIC by teachers from all over the United States.

·         Educational Resources and Lesson Plans— Over 1000 links to lesson plans and other resources of potential use to homeschoolers. It also includes lesson plans and resources unique to this site.

·         Education World Lesson Plan Center— A resource for lesson plans and research materials.

·         EdSitement— From the National Endowment for the Humanities. Lessons and units for art and culture, literature and language arts, foreign language, and history and social studies.

·         EdHelper.com— Lesson Plans - Worksheets - Teacher's Lesson Plans - WebQuests - Primary Teacher Resources - Math Lesson Plans - Writing Lesson Plans - Reading Lesson Plans - Science Lesson Plans - Technology Lesson Plans - Social Studies Lesson Plans.

·         Easy Fun School— Making homeschooling more enjoyable for both child and parent.

·         Discovery School Lesson Plans— Find hundreds of original lesson plans, all written by teachers for teachers. Use the pull-down menus below to browse by subject, grade, or both. Also lesson plans to support Assignment Discovery and TLC Elementary School programming.

·         BrainPOP for Homeschoolers— Homework help, interactive quizzes, comic strips, and experiments.

 

Science—

·         Visit to an Ocean Planet— CR-rom. Plan a scientific cruise to the Gulf of Mexico to study whales, explore El Niño 1997, or Meet the Oceanographers.

·         The New Genetics— Explains how genes affect your health, and its companion poster, Living Laboratories, presents a captivating, full-color overview of how scientists are using model organisms for medical research. 

·         SPiE's Free CDs & Videos— Light in Action: Lasers, Cameras & Other Cool Stuff; Optics: Light at Work; and Careers in Optics.

·         Spectroscopes— From the Solar Center at Stanford University. Charges for shipping. Please allow 5-6 months for delivery.

·         Souvenirs Catalog, UC Davis School of Veterinary Medicine— Free animal posters and samples of newsletters on various veterinary topics.

·         Science Project Index— A bibliography of science experiment books for young folks. Includes their Dewey Decimal System number for library location. If you can't find the book in your library, please support A to Z by ordering your book here through Amazon.

·         National Institute on Drug Abuse Information for Parents and Teachers— These materials were developed specifically for parents & teachers. 

·         National Arbor Day Foundation Merchandise— Free educational material about trees, rainforests, etc.

·         Life of the Forest— International Paper is pleased to present our exciting "Life of the Forest" educational materials for your use as research and study sources or as teaching guides.

·         Lemelson Center Education Materials— Lemelson Center educators have developed resources for teachers, parents, and kids who want to explore the exciting world of invention.

·         Human Physiology in Space— A 396-page curriculum supplement for secondary schools available in teacher and student editions. This supplement will focus on some of the primary space life sciences investigations that were designed and carried out to examine the human body's adaptation to microgravity. NASA.

·         Free Educational Materials from the Howard Hughes Medical Institute— CD rom series of virtual labs. You can try these out online first. From the Howard Hughes Medical Institute. Most likely of interest to high school-level biology students.

·         Free Curriculum and Field Trips— A sortable database for free curriculum and field trip ideas.

·         FoldIt— A free game in which players around the world compete to design proteins. The real world benefit: Scientists will test proteins designed by the game's players to see if they make viable candidate compounds for new drugs.

·         Findings— Findings magazine showcases diverse scientists who do cutting-edge research and lead interesting lives. Each issue also contains brief research highlights, a puzzle or other activity, and online extras. Published twice yearly. Free subscription for both print and RSS feeds. Free slide kits. From the National Institute of General Medical Sciences.

·         Fantastic Flinn Freebies— You'll need to have a name for your homeschool before you apply for these science supplies.

·         Experiment of the Week List— Sign up to this free email list to get an idea for a science experiment that is fun and easy for kids to do.

·         Energenius— Learn about our energy and environmental classroom lessons. No cost! Must live in PG&E territory.

·         Animalearn Loan Program— Borrow plastic animals to dissect or learn about critter insides with software. Credit card insures against loss. You pay only return shipping.

 

Social Studies—

 

·         We the People... The Citizen and the Constitution— A free civics curriculum. If you do not succeed in qualifying for it through this offer, contact your congressional representative.

·         Osher Map Library: K-12 Educational Outreach— Loaned kits are age- and subject- specific, and explore themes through the use of full-color facsimile maps from the Osher Map Library Collections, as well as overhead transparencies, handouts, audio-tapes, slides, and a slide script.

·         Global Oneness Project: Living Library, Volume 1— Order the DVD, and we'll send it to you anywhere in the world� at no cost. 

·         Canadians and Their Government: A Resource Guide— The Government of Canada is pleased to provide access to a new resource guide to assist anyone in learning more about our system of government and its institutions. We will mail this outside of Canada.

·         California Farm Water Coalition Educator Resources— Several free products and unit studies about the use of irrigated water on California crops.

·         Building Homes of Our Own— The CD-ROM game presents a macro view of the entire home building process from site selection to final sale.

·         America's Heritage: An Adventure in Liberty— A tested lesson plan resource and supplement for Kindergarten-12th grade teachers of social studies, U. S. history, U. S. government, political science, economics, geography, speech, and/or related subjects. Download segments now, or order all on a free CD or printed binder.

·         America: The Story of US— HISTORY is offering America The Story of US on DVD to every school in the United States. School must be an accredited public, private or home school, for grades K-12 and college. In order to receive your school's DVD, your school principal (grades K-12) or Dean of Students (college) should fill out the request form below. HISTORY strictly limits one request per school. DVD requests must be made prior to July 1, 2010. DVD's will be mailed around August 2010 and free shipping is included in this offer.

 

Unit Studies—

 

·         Winter Unit Study— Find out about really cold places, about the science of cold, fun in the snow, and winter tales.

·        
Weird Richard's Lego Unit Studies
—
I firmly believe I can teach literally ANYTHING using LEGO® constructs. Think you can stump me?

·         Valentine's Day Unit Study— A jam-packed page of fun Valentine projects for you and your children. A unit study to share with your friends.

·        
Treasure Island
—
These pages offer you information on everything you could possibly want to know about Treasure Island. Find out about the author, the characters of the book, tropical islands, pirates, buried treasure and lots more! Projects built around "pirate" themes that are both learning experiences and fun!

·        
The Wilder Pageant
—
A family-oriented outdoor drama based on the life of Laura Ingalls Wilder in Walnut Grove, whose writings provided the inspiration for TV's "Little House on the Prairie."  It is a live performance weekend nights in July with all characters from the Walnut Grove area.

·        
Teach Your Children Well
—
Share creative lessons and tips for all styles of home education. Lots of discussion about unit studies.

·        
Recipe for Respect: Sensational Soups
—
Kathy Rusert has developed a unit using a soup theme as a springboard for cultural explorations by integrating math, language arts, social studies, and fine arts. KidBibs.

·        
Parent Child Education
—
With years of experience working with children of various ages and abilities, we have many innovative and fun suggestions that will empower you, the parents, with confidence, information and tools to inspire your children to work to their potential.

·        
Our Author Study of Laura Ingalls Wilder
—
I must admit...this is my favorite unit of study! I discovered the Little House books in third grade, and have read and reread the entire series many, many times.

·        
Mosaic World History
—
In an effort to make rich learning experiences easily accessible to as many as possible, Mosaic offers lesson plans, curriculum guides, and resource suggestions to everyone at no charge.

·        
Miksike Integrated Learning Environment
—
Join in with students all around the world on some project of mutual interest. Webpage templates provided for submitting your work to this site.

·        
Lesson Theme of the Week
—
There will be posted every weekend a complete lesson plan for all ages. Each lesson plan will include all subjects including an art project based around a certain subject. Yahoo Group with your suggestions welcome.

·         Kitchen Unit Studies— Sample using Toll House Cookies as a unit study.

·         Kit Kittredge: American Girl - 7/4/08— Ann Zeise reviews the movie, and offers unit studies ideas to help chidren understand the Great Depression.

·        
Kids Stuff - NC Dept of Agriculture
—
Agriculture can be a lot of fun! This is the place for kids of all ages to play around with agriculture. This area will be expanding and growing constantly. Check back often for more fun things to see and do!

·        
Homeschool Share
—
Try What you Came For Unit Studies or ones related to the FIAR unit studies program.

·        
Homeschool Helper
—
We have a collection of unit studies, worksheets and other homeschooling helps. All of our units and worksheets are free.

·        
Happy Homeschool (Used to be Funschooling Unit Study Archives)
—
Karen Caroe has been publishing her unit studies online since 1997 and has quite a collection of interest to homeschool families. You could also join the Funschool Units Discussion list.

·        
Free Coloring Sheets
—
Add illustrations to your unit studies. Hundreds of topics to choose from. From thebestkidsbooksite.com.

·         Fire Prevention Unit Study— Fire Prevention Week provides lots of opportunity to discuss fire safety with your children.

·         Explorations 4 Kids— Truly fun online learning! Make this your online learning center!

·        
Debbie's Unit Factory
—
Elementary level units both online and to order. Each unit is designed to appeal to children and includes many child-centered activities.

·        
ABC Teach
—
Some of the themes include: Coral Reef, Rain Forest, Butterfly Centers, Antarctica, Peace Circle, Spring, and Where the Sidewalk Ends Presentation.

Teaching Strategies for Aspergers Students

Many kids with Aspergers (high functioning autism) have difficulty understanding social interactions, including nonverbal gestures. They may fail to develop age-appropriate peer relationships, or be unable to share interests or show empathy. When confronted by changes in school routine, they may show visible anxiety, withdraw into silence, or burst into a fit of rage. 

Although children with Aspergers may often appear to have a large vocabulary, sometimes sounding like “little professors,” they can be very literal and have great difficulty using language in a social context. They may like school, but wish the other kids weren’t there.

Here are some important classroom accommodations for educators to consider:

1. Allow more time to complete assignments, tests, and projects.

2. Break assignments and projects down into small sections that can be completed one at a time so that the child does not feel overwhelmed with the work.

3. Create a standard way of presenting change in advance of the event. A key phrase like “Today will be different” may be helpful if used consistently. You may want to explain the changes — for example, a substitute teacher — privately as well as with the class.

4. Create a structured, predictable, and calming environment.

5. Create a unique prompt or signal that you can use with the child to redirect his attention back to the assignment whenever necessary.

6. Create fewer transitions throughout the day. For example, try to create a schedule that eliminates unnecessary movement from one location to another.

7. Enjoy and make use of your child’s verbal and intellectual skills. Fixations can be used by making their chosen subject the center of teaching and using the child’s expertise to raise peer interest and respect (i.e., have him give a report or make a model of his favorite subject to share with the class.)

8. For children with Aspergers, it may be necessary to use more visual instruction, particularly with younger students. Use pictures, images, drawings, and similar aids when discussing vocabulary words, history lessons, scientific subjects, and abstract topics.

9. Foster a climate of tolerance and understanding in the classroom. Consider assigning a peer helper to assist the child in joining group activities and socializing.

10. Have a crisis plan in place in the case of emotional outbursts that might occur due to the student's inability to cope or interact with others. This plan should be coordinated with other educators, specialists, and administration, and may include providing a supervised quiet place for the child to go if needed.

11. In some cases, cooperative learning groups will not only improve social skills but also allow the child to exhibit his abilities in certain subjects. Choose the cooperative groups carefully, and continue to monitor the behavior of the student and his peers.

12. It may be necessary to focus individual lessons around that particular child. If so, continue to work in conjunction with the special education teacher when designing these lessons.

13. Learn the usual triggers and the warning signs of a rage attack or “melt-down” and intervene early, before control is lost. Help your child learn self-calming and self-management skills. Remain calm and non-judgmental to reduce stress, remind yourself that your child “can’t” rather than “won’t” react as others do.

14. Maintain a safe environment. This means controlling other students who would be a distraction or a problem for the child with Aspergers.

15. Place the child at the front of the room, and include him in question and answer sessions within the class.

16. Prepare the student in advance for any changes in routine or other unexpected activities.

17. Provide whatever support and information you can to the parents. Kids with Aspergers Syndrome often have sleep disorders and the family may be sleep-deprived. Other parents show frustration due to the long search for a diagnosis and services. They may also face disbelieving professionals or family members who erroneously blame poor parenting for the behaviors they see.

18. Set firm expectations regardless of the assignment. In many cases, students with Aspergers may not want to do assignments that hold no interest for them. It is important to establish and maintain control within the classroom, and this should include a child with Aspergers as well.

19. Try to provide a predictable schedule. Although this is sometimes difficult to do, students with Aspergers thrive on routine.

20. Use direct teaching to increase socially acceptable behaviors, expected greetings and responses, and group interaction skills. Demonstrate the impact of words and actions on other people during real-life interactions and increase awareness of emotions, body language, etc.

21. Use positive reinforcement of good behavior whenever possible.

Students with Aspergers are very bright and eager kids who can be motivated to do well in the classroom. However, lack of social skills and obsessive behavior can make it difficult at times for them to meet the expectations of their educators. With patience and understanding, the educational experience of these kids can be a positive one.

Teaching Students with Aspergers: The "Ebooks for Educators" Series

Coping With Adult Aspergers

Aspergers (high functioning autism) is a lifelong developmental disorder and mainly manifests in the inability to successfully relate emotionally to others during everyday interactions. There exists a lack of awareness in interpreting social cues (a skill that most of us take for granted). Given that inability, it can be extremely difficult for the family and friends of an Aspergers family member to cope with many of the behavior patterns typically exhibited.

An adult's diagnosis with the disorder may occur after the diagnosis of a child or a grandchild. When this occurs, family members often then relate the behaviors of the newly-diagnosed youngster to that of the lifelong behavior patterns of a parent or spouse.

This "Ah-ha" phenomenon is often accompanied by relief on the part of family members, but with it comes grief when the realization hits home that there is little likelihood of gross changes in the Aspergers adult. For instance, the daughter whose son is diagnosed with Aspergers may then realize that her father had the same constellation of symptoms, and the reason for her father's apparent disconnectedness, coldness, and inability to empathize with her suddenly becomes crystal clear.

Coping with a family member with Aspergers can be frustrating and demoralizing, particularly with an Aspergers adult who is undiagnosed. There can be much suffering and misunderstanding by the youngster of a parent with Aspergers, and certainly psychological damage is likely. Once an effective diagnosis is made, at least there is some understanding for other family members as to why the Aspergers adult behaves the way that they do.

One of my clients had a mother-in-law who exhibited all the classic symptoms of Aspergers. Previous to the mother-in-law's diagnosis, this distressed client had suffered enormously at the hands of this woman, as had her husband and kids. She had called her "The Hologram." Her explanation was that "she looks like a normal human being, and she's smart and has a good job, but there's just nothing there." Hence the name she had dubbed her mother-in-law in order to cope with the stress that family get-togethers inevitably brought.

The term "hologram" was an unwittingly apt description of her mother-in-law. There was no intimacy, no understanding, no empathy, just a pragmatic approach to life that did not take into account the emotions of the people she dealt with. Nor was she able to adapt herself to the changing needs of different individuals or situations. The diagnosis of this woman's grandchild with Aspergers led to a realization by her own adult kids as to why their mother was the way she was. It answered a lot of questions, and gave these adult kids some closure regarding the childhood hurts they had experienced due to her inability to relate to them.

Dealing with a person with this condition can be extremely difficult at times, particularly when the person has yet to be diagnosed with the disorder. When diagnosis of the adult Aspergers occurs, it is often as a result of a child or grandchild being assessed with the disorder. It then becomes apparent to other family members that the undiagnosed adult they have struggled for so long to understand or relate to also has the disorder.

When an adult is diagnosed with Aspergers as a result of a youngster within the extended family being diagnosed, it can come as a "double whammy" to the family. This is particularly the case when a youngster and a spouse are diagnosed, since the remaining member of the family group is now in the position of dealing with two Aspergers in the one home.

Similarly, the diagnosis of a youngster may make the parent twig that mom or dad had the disorder too. This also causes intense personal suffering for the person concerned since finding out that one's parent has the disorder will open as many wounds as it will explain.

The problems in dealing with an adult with Aspergers can be numerous, and include:

• A feeling of trepidation due to the effect of this constant vigilance
• A sense of frustration that you cannot "get through" to this person
• A sense of hopelessness that the person doesn't love you
• Depression related to the knowledge that the individual won't get better
• Difficulties accepting that the partner has the condition
• Failure to understand why the person cannot relate to you in a "normal" manner
• Feeling overly responsible for the person; feeling a need to constantly explain their inappropriate behaviors and comments to others
• If the adult with Aspergers is a marriage partner, concerns over whether to stay in the relationship are at times overwhelming
• Lack of emotional support from family and friends who do not understand the condition
• Lack of intimacy in the relationship and a failure to have your own needs met

Aspergers makes for difficulties in understanding the emotions of others as well as interpreting subtle communication skills, as transmitted through eye contact, facial expressions, and body language. This often leads to the person with this disorder being labeled as rude, uncaring, cold, and unfeeling. While it is natural for those who interact with Aspergers to feel this way, it is unfair to the Aspergers adult. This is because Aspergers is a genetic, neurological condition which renders the individual mentally unable to readily understand and interpret the emotional states of others.

One of the problems associated with adult Aspergers is lack of accurate diagnosis. Because Aspergers is a disorder that has only been recognized and singled out from other autistic spectrum disorders in the last few decades, to date there has been little information about the behaviors of adults with the condition. As kids, these adults would have stood out among their peers as being "unusual," yet at the time there was no accurate diagnosis available. Hence there still remains many adults with Aspergers in the community who remain undiagnosed.

The other problem is that, even when diagnosis occurs, the Aspergers individual may refuse to go into family counseling or accept available assistance as they do not see that they have a problem. One of my client's who had a mother with the condition was relieved to finally discover the reason for his mother's emotional aloofness, yet was devastated when that same mother refused to go into family therapy because she simply said "I feel good, there's nothing wrong with me."

In this case, there was no denial involved on the part of the mother. She simply couldn't understand her son's pain, his feelings of rejection, or his desire for a real "mother-son" relationship. None of it made any "sense" to her. In addition, her interactions with the family and in-laws were fraught with difficulties. Eventually this man decided to limit interaction with his mother as it caused too much distress.

In other cases, the Aspergers individual, when told that their actions are hurtful or inappropriate, may be genuinely shocked. However, the behavior is likely to be repeated, unless there is some form of intervention, and the individual genuinely desires to change.

Many Aspergers adults can maintain ongoing relationships, however due to their neurological inability to effectively communicate on an emotional level, there are numerous difficulties. Even dating can prove to be a problem as the subtle "language of love" which operates during the courtship phase is often a mystery to the Aspergers individual. This can apply to even the most academically gifted individual.

Recent research into the sexual behaviors of Aspergers suffers indicates that they have similar sex drives as the general population, but seldom possess the social skills to deal with the high level of intimacy required of such a relationship. In fact, research suggests that the divorce rate for couples in which one partner has Aspergers is around 80%.

Letter from an Adult with Aspergers:

I am a 35 year old male with Aspergers. As I sit to write this I realize that I am trying to explain myself to myself, as much as I am trying to explain my thoughts and feelings to you the reader. I will try to keep on the track, not be indulgent, and make an attempt to explain "self" from the perspective of one who has Aspergers and to keep it as short and eloquent as I am able. Please bear with me as I realize that "self" is quite different between people and that Aspergers encompasses a very wide spectrum, no two cases being exactly the same. That being as it may.

I will now attempt to share with you, my feelings, in the hope that it may in turn help you to understand the feelings of another who may be close to you. Please understand that I am not trying to offer any solutions or to appear as to be offering either a positive or negative perspective here. I am simply trying to explain how I feel, how I have always felt and how another close to you may possibly be feeling.

Ever since I was a young kid, in fact, as far back as I can remember, I have felt myself to be totally alone, different and somehow unique. Not in an egotistical way but just unusual. As a kid I felt very strongly that I didn't belong here in this world.

By the age of five I had told myself many times that my "real" parents were in fact Time Travelers that had somehow lost me here. I felt so out of place in the world that I was certain it must be so. I remember commenting to my mom as a kid that I was really a time traveler, she thought it was cute and she and a friend had a giggle over morning tea. When I was six years old I realized and believed that no one ever really loves anyone else, not really and that no‐one ever really cared about anyone else, (well it made sense when I was six) I found out differently when I was 38, but always believed it until then. I was a very quiet and solitary kid and found it hard to make friends.

By adolescence I had realized that I was somewhat "emotionally retarded" and would at times respond poorly or inappropriately to a situation and regret but still fail to understand my actions upon later reflection.

My social skills were and still are, reasonably poor. I have never been able to like myself. I have never cared about my appearance, having long ago decided that I was ugly and unattractive anyway and that grooming and clothes would make no difference to the obvious. Even though I was able to marry a very beautiful woman who loved me deeply and many have assured me that this is not the case at all, inside I have always felt it to be the truth.

I find putting on nice clothes pretentious and embarrassing. I cannot remember any time in my life that I have ever felt truly happy and carefree. I have always felt that individuals regard me as strange or eccentric and as a result I live usually alone and have no genuinely close friends. I have not seen or spoken to any members of my immediate family since my mom's funeral seven and a half years ago but then, my sisters never did like me.

I have always been prone to mood swings. Ranging from severe depression, resulting in up to 3 to 4 days of uncontrollable crying and sobbing, to short bursts of Absolute and quite irrational anger. Not anger in a violent sense, I don't have a violent bone in my body, and have never broken anything, hurt myself or attacked anyone, but I can become very verbally aggressive if I am not aware, or made aware that my mood is changing. Yet at the same time, many consider me to be articulate and intelligent and often seek my advice on a wide range of topics, and I enjoy being able to help them. I think I have called "please help me" alone in the dark in tears at least a million times in my life.

I never knew I had Aspergers or indeed even knew of its existence until my child was diagnosed with Aspergers five years ago. He is now nine years old, living with my ex‐wife and (reasonably) well adjusted for a kid dealing with Aspergers.

As with many Aspergers kids, he is extremely intelligent, he could read at two years old and had read all his grade school required reading right up through all the grade 7 books by the time he was half way through grade 3, with excellent comprehension. He is capable of being at the top of any subject.

Totally the opposite of me ‐ he looks forward to school exams because he sees them as puzzles and thinks they're fun and better than lessons. But, by the same token, he gets teased at school because his peers perceive him to be "different" somehow. He can also alienate his friends through his actions, he can be silly, irrational, incredibly defiant and a big strain on his mom, much the same as I was I imagine.

His mom and I get along quite well and I am able to see him whenever I like. Though when she left, nearly eight years ago, it affected me so deeply that I have remained celibate ever since and I sincerely doubt that it will ever change. I still look at attractive women and wish I could talk with them, I am in fact human after all, but I feel too self conscious to even make eye contact and also find the whole idea of being touched by someone, even my ex‐wife, to be embarrassing and even quite scary now, which complicates things considerably, and the longer it takes, the worse it becomes. So now, at 35, thoughts of a companion don't often even enter into my head at all any more as I feel, what's the point?

When my child was diagnosed as having Aspergers, I was able to read some of the literature regarding his condition. Upon reading a couple of books it soon became apparent where the root source of my own problems lay and subsequent investigation proved these suspicions to be well founded. At first my reaction in regard to myself was one of relief at finally having some kind of tangible definition for what I had been feeling all these years.

The relief was soon replaced by mixed feelings of remorse, frustration and helplessness. For a while I felt "ripped off". I felt that 30 years of my life had been stolen from me and that, had I known about Aspergers from the beginning, my life could have been vastly different. Maybe I could have understood myself a little before now and maybe others could have too.

I can, at least, find solace in the fact that my child now has that support from childhood. I am a professional musician, in fact many of my peers consider me to be quite a talented one, though I do not particularly share their opinion and have always been my own worst critic.

I find music and other artistic pursuits to be easy and obvious. Computer skills were a breeze to pick up, requiring virtually no effort. Still playing rock 'n' roll at 35, I even rap a few Eminem numbers. I feel quite relaxed and comfortable performing on stage in front of hundreds or even thousands of individuals; doing some intricate drawing or figuring out some computer problem.

Yet I find it difficult to sit in a room with more than 3 or 4 other individuals, and even then, unless I know those 3 or 4 quite well, I feel tense and nervous. I find it hard to make eye contact with other individuals, even those I know well. Filling out a form or talking to a stranger can be fine or it can reduce me to tears. I find light conversation nearly impossible. Working with other individuals makes me feel self‐conscious and inadequate but I can excel working on my own at the same task. I've put on a brave face but Parties, Shopping, Supermarkets and Laundromats are a nightmare. Go figure.

When I try to explain my condition to individuals I feel like they either think I'm making up excuses for myself or look on me as a freak or as some kind of nut case. Sometimes I feel that by telling them I have Aspergers I'm alienating myself, but then, if I don't tell them I will probably mess up at some stage and they will think I'm strange anyway so I figure it’s better to tell them on the whole, especially if I intend to try and pursue any type of friendship.

But then at times I feel quite fine about myself, I feel like it's the rest of humanity that has the problem, not me. Sometimes I too, look on myself as a freak and a nut case. But then, I'm sure I'm not, because they always say that if your nuts you don't know it, and I'm sure I am, so I guess I'm not..... Make sense?

I don't know if I will ever come to terms with myself or with Aspergers. I try, but it gets very difficult on your own at times without the support of another. Just a shoulder or an ear or even a hug sometimes would do wonders. Plus I do believe that everyone needs to feel loved or needed in some way. I still cry every day and must go to some lengths to convince myself I am a worthwhile member of the human race so I can put on my mask and face the world each morning, just as I have always done.

But I think I'm getting better at it. And, in the end, ultimately I believe that I AM worthwhile. Though I seem to mess up so much that I sometimes wonder whether it’s worth leaving the house any more than is absolutely necessary, so I tend to stay home and be reclusive and may seem almost shy to some.

I know there is no cure for Aspergers, no drugs than can be prescribed, no diet or exercise routine that can be undertaken. I know that my life will always remain a struggle and that I will never be one who will be considered as being "Neurologically Typical". I will always be an "Aspie" and to me, being a person with Aspergers is in many ways to be alone in the world and I am so very tired of being alone. And I'm altogether tired of feeling alone and isolated, even in a crowd, but I go on, and I try to find something positive in each day, what other choice do I have?

I think that, all in all, Life is good, especially if you consider the options. But oh how I ache to my bones to be "normal" and just talk about the weather or something.

I hope this letter has helped or provided some insight to someone who has Aspergers or perhaps to someone who may be dealing with a loved one or friend who has Aspergers. I hope that by sharing my feelings you may in turn be helped to understand theirs.

I still believe I have goodness and can help some one's life. I still believe through it all that I am worth something.

Living With Aspergers: Help for Couples

Aspergers Children and Aggressive Behavior

Question

Is there a way to stop aggressive behavior when my son with Aspergers is in the middle of a meltdown?

Answer

It is not uncommon for kids with Aspergers to become aggressive. Aspergers causes a youngster to struggle to understand how his behavior affects other children. The many symptoms and characteristics of Aspergers can cause extreme frustration. This frustration can lead to anxiety, depression, anger, and aggressive behavior.

Here are a few specific reasons for aggressive meltdowns:

• Change of routine— Inability to handle unexpected changes in the daily schedule, such as a substitute teacher or a cancelled class period.
• Communication problems— Inability to recognize humor, sarcasm, or slang during conversations with peers.
• Sensory issues— Inability to handle the discomfort in his environment due to sights, sounds, smells, or other sensory dysfunction.
• Social struggles— Inability to understand social cues and gestures or to make and keep friends.

How can you stop your Aspergers child from becoming aggressive? Aspergers calls for a direct approach. Therapies such as cognitive-behavioral therapy, social skills training, and occupational therapy will help with levels of frustration and also touch on self-control – a necessary skill for all of us. However, there are several things moms and dads can do at home to lessen the impact of aggressive meltdowns:

• Teach children to recognize red light/green light behaviors, red being a poor choice and green being a good choice.

• Social stories are excellent for teaching Aspergers children about problem behaviors. These should be used during quiet moments and not during any stage of aggressiveness or frustration.

• Role-play appropriate responses to tricky situations with your youngster. Role-playing is an excellent option for teaching all types of social skills to kids with Aspergers.

• Removal from the situation is necessary once a meltdown has developed.

• Redirection can sometimes be used during the beginning stages of a meltdown to reduce the escalation.

Individual counseling may be beneficial if you are still struggling with aggressive Aspergers behaviors. Sometimes a caring professional specially trained to deal with the issues brought on by ASD can make a difference. Some schools are able to offer this counseling, but you can also find help through your doctor and your local Aspergers support groups.

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

Traits of Partners/Spouses with Aspergers

The partner with Aspergers (high functioning autism) can manifest a wide range of varying behaviors with varying intensities. However feedback from their partners in marriage suggests there are many common threads in their experience of marriage.

Below is a list of some common characteristics of the marriage experience and of the partner with Aspergers, as described by members of our website:

• A tendency to correct and instruct those around them.

• After marriage the partner with Aspergers often seems to lose motivation to keep working on the quality of the relationship as though the wedding day has “completed” their pursuit, allowing them to pursue other interests.

• An essential need to have things done in a prescribed manner or order.

• Apparent evidence that the partner with Aspergers is not “reading” situations or people intuitively and is consequently behaving insensitively or inappropriately for the circumstances.

• Interests and hobbies of some partners with Aspergers tend to take on an obsessive characteristic at the expense of all other needs, duties and relationships around them.

• Seeming to be experiencing “normal” situations differently, noticing different things and having to deal with different priorities which often prevent co-operation and teamwork, leading to frequent conflict. As a result the relationship and communication deteriorate quickly. Efforts to reason and resolve situations often result in partners feeling that they have been dug in deeper. They often feel that their efforts have been fruitless and even worse, have increased the level of complication.

• Social isolation may result for the family if the partner with Aspergers is consistently avoiding social situations. On the other hand, some partners with Aspergers can seem like the “life of the party” and keep everyone entertained or “engaged” (willingly or unwillingly) by sharing a great deal of expert knowledge on favorite topics of interest.

• Some partners with Aspergers may be very controlling and unjust with the use of family finances, or on the other hand, avoid any financial responsibility within the household completely. They can quickly run the family into financial crisis by spending excessively on special interests, collections or hobbies.

• The partner with Aspergers can behave intrusively.

• The partner with Aspergers may “shut-down” if they don’t know what to say or how to behave. They may disengage with partner or family indefinitely.

• The partner with Aspergers may have great difficulty cooperating with others or working as part of a team or unit. They may seem focused only on what’s going on for them, and unaware of what’s going on for those around them.

• The partner with Aspergers may take roles seriously, to the letter of the law, especially as “Head of the Home” in a family with religious beliefs or tendency to traditional roles.

• The partner with Aspergers may appear to have an air of superiority or even arrogance and an apparent lack of respect for the knowledge, credibility, expertise or authority of others. They may have high intelligence or gifted abilities in some areas but seem to lack basic “common sense” or “know-how” in other more commonplace situations.

• The partner with Aspergers may not recognize the effort their partner is constantly contributing to the relationship to try to sustain it. They may be extremely sensitive and easily upset - and may take issue or be offended - over small matters which in turn can seem to jeopardize the stability or quality of the whole relationship.

• The partners of people with Aspergers will often feel as though they should and need to “repair” social faux pars created by the Aspergers partner.

• The spouses of partners with Aspergers claim that their spouses often do not appear to read the needs or notice the emotions of other family members, and they don’t inquire or reach out to them. However, when they do notice a need or “we tell them about our needs, they don’t seem to know instinctively what to do to make us feel better, and they will often do nothing and remain disconnected”.

• Their courtship style is almost “too good to be true”.

• There is frequently a tendency to hostility, defensiveness and retaliation if the partner with Aspergers is challenged or thwarted.

• They may also “melt-down” or have episodes of rage and aggression when they don’t know how to deal with circumstances, or they don’t want to discuss, negotiate, compromise or resolve situations.

• They may be very controlling.

• They may hold to a single acceptable method or opinion in many areas of daily life.

• They may insist on predictability in others and in household activities, but seem to “live on a whim” themselves leaving the family feeling uncertain all the time.

• They often have difficulty coping or adapting around the daily “happenings” within a family situation.

• They often seem to over-react to efforts to talk over matters with them and may perceive such efforts as a personal attack.

• Verbal combat around “technicalities” or “order” of a situation rather than the “spirit” or “essence”.

Aspergers and Marriage—

Many grown-ups with Aspergers do marry and have kids. Marriage often follows a period of "ideal" courtship. However the experience of the partners and children are quite different to what most partners would experience and expect.

Partners of an adult with Aspergers often have awareness early in the marriage that something is not right but they can’t work out what. They often speak of being aware that something, like a piece of a puzzle, is missing.

Parenting—

• They may not be aware of or anticipate situations of danger or neglect when caring for a youngster.
• If a parent with Aspergers chooses to take an interest in their youngster they can be very attentive and go to great lengths to assist them in practical ways.
• On the other hand, they may have trouble reading their youngster’s needs or emotional state and may either respond inappropriately or not at all, leading to the possibility of neglect or mishandling or abuse.

The Experience of the Non-Aspergers Partner—

Partners living in a marriage or long-term relationship with an adult with Aspergers report feeling a deep impact in their lives in the following ways:

• Alone
• Being disbelieved by others, including professionals
• Burn-out
• Changes in personality in order to cope with Aspergers partner’s behavior
• Confusion
• Constantly criticized and blamed unreasonably
• Depression
• Efforts to build and sustain relationship constantly sabotaged by pedantic requirements of Aspergers person
• Feeling like partner won’t cope without them (if we separate)
• Frustration
• Hopefulness dashed
• Hyper vigilance to prevent chaos and relationship breakdowns
• Increase in feelings of anger
• Isolation
• Like a single parent
• Loss of sense of self
• Neglected emotionally
• Often betrayed by lack of loyalty and kindness from Aspergers partner
• Often feel in damage control or crisis management
• Powerlessness
• Sense of being a mediator and interpreter at home and outside the home
• Sense of sadness at unrealized potential in themselves, Aspergers partner and other family members
• Shouldering responsibility for most household matters and well-being
• Trapped
• Unsupported
• Verbally, psychologically and sometimes physically abused

The Benefits of Attending a Support Group—

• Being with others who “know”
• Help us heal
• Information and feedback about other helpful services and professionals
• Learn strategies to help us cope and manage better
• No longer alone
• No need to explain, prove or justify ourselves or our experiences
• Opportunity to gain more understanding of Aspergers
• Reassurance of our own worth and sanity
• Regular opportunities to hear professionals speak
• Special Events give us opportunity to promote awareness of, and learn more about Aspergers
• Validation of our experiences

==> Living With Aspergers: Help for Couples

 
Comments from Partners/Spouses in an Asperger's Relationship:

My husband is an Aspie. I love him for being kind, supportive and loving me for who I am. I am the only "girl" he has ever kissed or dated. For us, the key was wanting to not play games and finding a best friend. Aspies tend to not play dating games and value honesty. Find a friend with the same interests and you will fall in love. Then they will have the patience they need when you mess up emotions.

__________

Like NTs some HFA/Aspergers are quite capable of maintaining close relationships with other people on the spectrum or even with NTs. Just like NTs some are better suited to this than others. People on the spectrum can vary enormously and some may have a higher emotional intelligence than others and allow for socializing and forming closer bonds. Others may just prefer to be alone and there is nothing wrong with that. I myself have two boys on the spectrum and of course am a fully fledged aspie, lol I have been married for 30 years to an NT. Like any other marriage we have had times when we have had to work hard, but generally we understand each other and support each other. I do know other autistic people who have children and have good, warm and loving relationships.

Remember that autism does not define us, condemn or damage us and we are not diseased. So there is hope for many and especially for those who have a diagnosis and develop a sense of self awareness and acceptance. My advice to anyone in these mixed relationships of autistic/NT to be patient, accepting of each other and make adjustments if possible. Maybe it will be hard sometimes, but like with our kids, always rewarding in the long run.

__________


My husband has Aspergers and we have a great and intimate relationship. There are some differences: I typically drive, I typically talk to waiters, he often doesn't look me in the eyes, and sometimes I have to pose an important question to him and then walk away so he has time to think about it. He can't always just respond on the spot for important and/embarrassing topics. We'll have been married for five years this May!

__________


There is nothing "normal". Everyone has some type of issues or needs. It is all about learning different tools and having patience. I really struggle with my husband sometimes and I constantly have to remind myself that his process isn't going to be the same as mine.

__________

I have AS and I was married for 13 years before getting the diagnosis. We have a happy marriage although it has become easier now that there are explanations for my sometimes eccentric behavior or unusual mood swings. However my non-AS hubby has many issues of his own. I know there are loads of undiagnosed AS people out there who are in relationships and I think they have the same chance of success as NT relationships provided you are with the right person.

__________

Total honesty. You have to become as brutally honest as he is - it will feel awkward but will open up all kinds of doors. "Giving me a rose, every now and then, makes me happy..." and then explain the symboism.  Or, "when we are intimate - can you touch me here or kiss me there, it feels good."  Or, "I know that it isnt something you would normally do, but when you do this - it reminds me that you love me."

__________

It is definitely isolating to have a husband and son on the spectrum. I feel like I concede daily to my happiness and needs because I'm too busy putting out fires. I said to my husband last night "I just wish there was one day where one or the other of you weren't mad at me." And by mad I mean taking their anger, frustration etc. out on me. I have virtually no friends now because I'm sick of the "better you than me" looks. I love my family very much and am trying very hard to keep us together. However, a little acknowledgement of how hard I work to keep our ship righted would be appreciated. I'm feeling very isolated, under-appreciated etc as a result of being married to an AS spouse and having a AS son. I work very hard to cover all of their needs and as a result have lost myself.

__________

You're not along, its okay to grieve and part of the grieving process is anger. Its a rough road, especially at first, but it can be worked with. Just as I do not give up on my son, I do not give up on my husband. My husbands family appears to all be ASD as well, and that gives me the belief my son will be fine too - better even, because we acknowledge ASD in my son, and get him the help and support he needs (whereas my husband and his family deny ASD). Grieve, breath.... it will all be okay.

__________

As a woman with AS who has been happily married for almost 30 years to a man with AS, the mother of a daughter and four sons who are all on the spectrum, the grandmother of little Spectrumites and as a fully human being with a complete range of emotions I would like to say that it is the mis-match between different neurologies that causes most of the problems. Oh, and I'm the daughter and grand-daughter of Spectrumites too. I have dropped my non-AS 'friends' over the years as I was unable to meet their expectations that I should change to be more like them. They never tried to understand me, yet expected ME to understand THEM!

I have great Spectrum friends and we have fortnightly family get-togethers that are huge fun. Socializing with other Spectrumites is easy. We understand each other’s body language; eye-contact is not a problem nor is bluntness and honesty in conversation. We make allowances for each other's sensory difficulties and can tell if the other is uncomfortable, and why.

__________

My AS husband had a diagnosis 3 years ago and now that we have this framework to understand his behavior we have been able to 'save our relationship'. Pre-diagnosis, it was often difficult for either of us to make sense of many of the things that he did. His diagnosis gave him a new way to understand himself and gave me the necessary information to try to support him with his challenges. We have also been able to begin to change our expectations of how our relationship can be successful. It was a very difficult time emotionally for us both but we found some support online - services for adults in the UK are very few and far between. Sharing helps - so a big "thanks".

__________

My ex is an Asperger's man and so is our son. I could not deal with it but it was mostly because of my own personality. I am extremely outgoing and very much a people person. I thrive on volunteering, being with friends, etc. My ex did not and got upset if I wasn't at home with him. I am also highly kinesthetic (I process through my feelings and emotions more than through visual or audio clues). Many Asperger's tend to 'lack affect'--not show emotions very well and tend to not be as affectionate. I am the opposite so on the whole we were just a bad match. Everyone is different however. Some 'normal' (heck who is really normal? I mean non-asperger's people here) people are naturally not so outgoing or strong people-persons. Some tend to not be as emotional. Some don't like as much affection.

There are plenty of those out there who CAN deal with the aspects of asperger's. I think it is also easier if you are a woman. It has been said that Asperger's is like being overly male. That on a spectrum men tend to be a little further away from social, etc. than women and that asperger's syndrome people tend to take that a step farther. So the average man is sort of a bit closer to the asperger part of the spectrum than the average woman--making it a bit easier for a asperger woman to find a man than an asperger man find a women. The thing is, humans are all over the spectrum in every trait. There probably is someone out there for everyone--probably several someones to be honest. It may be a bit harder if someone is farther towards one end of the spectrum or the other, but it is quite possible.

__________

Being married to someone with AS is so lonely. I feel that all my time is spent on how I can make things better for my husband to cope with life. Yet I am the one that has to handle everything and there is never someone there to help me. I agree about being fin/soc ind. For a long time I pushed aside my friends when it came to social outings since my husband always seemed so awkward at these events. I have started going to things by myself which may sound rude but at least I feel alive!!!! To have another adult to talk to is worth more than anything.

__________

I agree that living with an Asperger's person is not easy, but the marriage can be manageable and happy if the two talk about the challenges and work through them. It is only natural for a person with any difficulty to choose someone who complements them to be their partner. Reading this article gave me a very negative feeling about people with Asperger's Syndrome; but this is not accurate. Beneath all that "oddness" lays a very vulnerable person who is easily overwhelmed and overloaded. The "selfishness" is just a means of coping with that. The partner can be happy as long as he/she lower their expectations and look at the other half of the cup.

__________

 I don't feel that being married to a person with Asperger's is the worst thing in the world. Would you just up and run if your partner developed cancer or was seriously injured in a car crash and need care all the time? My husband has Asperger's and OCD. We have been married for 6 years but together on and off for 13 years. We have 5 kids together, two of whom also have Asperger's. My daily life is VERY exhausting mentally and physically caring for my children and my husband especially since they all have their own set of challenges to tend to but I wouldn't trade my family for anything in the world!!

I think as long as you (the neurotypical spouse) have some outlet to keep yourself balanced it is very doable. I know my husband loves me with all his being. It may not always be perceived that way because all his love can seem small in comparison to a "normal" relationship but I know that he is giving all he can and that means something.

__________

For many years I had no idea what the reason was for the strange, nearly indefinable problems we had in our marriage. Now I realize that there must be many exhausted, isolated, deeply sad women out there trying to cope with a very difficult situation alone, because so few understand. My husband is a beautiful, gentle, intelligent individual but this does not prevent my suffering. Denying one's self and sacrificing all basic emotional needs every single day, giving up the most important personal desires bit by bit as the years go by is so damaging. I wish support was better organized for partners of Aspergers. Many of us live in a trap, denying ourselves more and more as times goes by but finding it unacceptable to abandon a good and in a way helpless person who is the way he is out of no fault of his own. It is enough to make one crazy and there is no help around.

__________

My husband definitely is Aspie. He has a lot to learn in the social department. Luckily, he likes to be physical and that is a plus for our marriage (i actually told him I can't marry him unless we have sex at least 3x's a week ;o) haha Yes, I'm a woman! LOL He is not very romantic but he has allowed me to open some doors and travel places I don't think he would have without me. He has been more flexible and so I believe the balance has helped him. I insist on Intimacy. Luckily, this is not uncomfortable with him.

The biggest problem is him being a work horse and "shutting him down" almost like a computer FROM the computer and him learning to "realize" that it's "too much" He needs to check in to Life, the kids, me Things he once felt was important (and still does) I guess it's the transition. I don't like the emotional detachment (like i feel he could have sex with someone else and it wouldn't be a BIG deal) and so yes, I feel he would be more likely to "wander" but he does know the difference right/wrong and hopefully he will keep to his vows/promises. I know he loves me and the kids. He's just a bit "impulsive" and so that sometimes makes me worried that it will ruin our marriage. We've been married for 10 happy years though and I feel we both compliment each other, though I'm not on the Spectrum. I love that he's a very logical thinker and he is more involved with the kids activities than most men. He also is not into sports so that frees up some time for the family. I love my Aspie husband and I like that he sees/knows he has weaknesses (isn't arrogant) and knows he has much more strengths.

__________

I am a 50 year old Aspie woman. I have had to admit that I am emotionally unavailable. I find being in a couple difficult, and I am infatuated with another man who is also emotionally unavailable (and he infatuated with some lover he had years ago, long gone). So what I say is this: Emotionally unavailable people are drawn to one another. If you are with someone who cannot show you love and tenderness, then there is a reason within yourself for that. Easier to focus on the partner's inability to love than your own (I know this because I have done that myself). We choose each other. We have some need, some craving, for the pursuit of someone who can never truly be with us. All the focus goes on to "if only s/he'd change, I'd be happy". Not true. It's a bitter, repulsive fact that people like us love each other because of the guarantee of coldness and distance. I have come to believe this is all part of Asperger's, not lack of self esteem, childhood trauma etc (though being Aspie, we are rich in both those things). He can't love? Nor can you. Nor can I. I want to face this miserable, hurtful truth. I suspect some partners of Aspies are also on the spectrum, or have some other condition that draws you to us. There's no right, no wrong and (short of domestic violence) no victim and no villain. We can't love as we'd wish to love. What now? Accepting that is the first step, for me. Not that I know what comes after that.

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My husband has not been officially diagnosed, but has taken the online test and we have suspected he has Asperger's ever since our daughter was diagnosed.

I actually have found that knowing what I now know, I have become much more understanding and less peevish. What used to drive me crazy with frustration is now just a part of life with the man I love.

The most important thing I have found to remember is that the things that drew me to my husband in the first place and the things I love about him have not changed with the diagnosis. The only thing that has changed has been the day-to-day dynamics. I now know to communicate with written messages and notes rather than blast him with a long list of verbal expectations. I am more sensitive to "zone out" times and understand why he has them and why he sometimes needs them.

Knowing doesn't remove challenges, but it helps my creativity kick into gear and it actually enlivens the marriage - we aren't just any other boring couple. We get to go about life and marriage in a new way with new little twists and in the end we will be closer and stronger than ever before.

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I am married to a man with aspergers. We have been married for 45 years. He was only diagnosed 3 years ago. When we met most couples did not live together before marriage. If we had I do not think I would have married hemi also have 2 adult children with it. One has out going/assertive a/s [like her dad] with severe mental health problems. The other one has passive a/s. [like her paternal uncle and cousin.]SO YES A/S PEOPLE DO MARRY. Once you have a diagnosis things get a little easier. P.S. Most of my families have good careers they all have some connection to their obsessive hobby.

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My a/s husband just carries on in his own sweet aspergers way. He will not discuss it or read up on it. He is so stubborn. I think if he read up on it, he thinks he will lose face by admitting he has it. And of course they do not like change, and to make a move to change his behavior will mean change. Why should he change? He has the life he wants, it may make me happier, but that may mean I am more affectionate to him. And he can’t stand that. I think we have to change, not them.

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John and I met in 2002. He was 39, I was 35. Neither of us had children and we’re now 'ready' for a relationship. We met at, of all places, a personal development course. After the 4 month course ended, I approached him and asked him out. I was attracted to his quiet, gentle nature, his intelligence and his warm heart. We developed a beautiful relationship. We were quick to start physically, but emotionally were very slow. John is a principal of a primary school, and I, a nurse. We established a routine very quickly, of my coming to his house Wednesdays to Sundays, and being apart in between. We had fun together, laughed, shared our love of football and fine dining, and got to a point of saying we loved each other. Every now and again, John would become very distant, particularly if I became clingy or intense. He would need time apart, which was often very painful, and eventually come back to me, saying that I 'meant the world' to him.

After a year together, John broke things off. He could not really tell me why, he just said, he couldn't 'do it anymore'. I was devastated as I loved him very, very much. After 6 months, we were back together again, and I asked him if we could go to couples counciling, which he very bravely agreed to. We had 4 sessions together, which mainly centered around him, which was ok for me, but I'm not sure if it was the correct process!! After that, John did not want to go back, and he ended our relationship again. This time it was very painful for the both of us. I saw him cry for the first time, and once again, he was unable to tell me why. I felt like he loved me, the best way he could, but he said he didnt know what to feel. I felt like I had died. It was horrible. We would catch up for coffee from time to time, usually ending up kissing or going to bed together, and now this too, has stopped. I've not had any contact for 4 years now.

I went to see our psychologist, soon after we broke up, who told me she felt John had Aspeger's. Now, she may be incorrect, but a lot of what I've read fits John. I don't love him any less, in fact, if this is the case, I love him more, as I can understand him more. I wish I had your book back then (2003-2005). I may have been able to be more supportive and less demanding. I may have found some skills to manage things differently. Things may have worked out between us. Neither of us have had a relationship since, we are both still single.

Now, I totally acknowledge I have some stuff going on here too. It was a 2 way thing! And our relationship was, at times, a struggle. There were times he was emotionally unavailable, and I sometimes felt lonely. And am sure there were times where my 'stuff' got in the way too. But the good outweighed the bad, and I wish I could turn the clock back and have been a more understanding partner.

John was never, to my knowledge, officially diagnosed with Asperger's, but if it is the case, I wish I had known at the time. I would've fought harder, and loved him more.

Thank you for listening to my story, I just felt the need to tell someone who would understand. You don't need to reply, I feel better just telling you. And maybe, somewhere, sometime, John and I might get another chance.

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I'm a 30 year old woman and I've been dating my partner, Dave, who has a diagnosis of Asperger Syndrome for nearly a year now. At times we talk about marriage and children and I know this is what he wants. I too want this.

We met quite by chance and it was during the very early days of our relationship that Dave disclosed to me that he had diagnosis of AS. To be perfectly honest, I had next-to-no understanding of what this was and promptly dismissed it from my mind. I thought he 'speaks funny' and is 'bizarrely smart' neither of which bothered me too much (I work as a Mental Health Nurse in Remote Australian Communities - and in my mind a person has to significant difficulties functioning for there to be a problem. Sharing an interest in the human rights and health of Aboriginal and Torres Strait Islanders has been a great strength of our relationship... but thats another story).

To my naive mind, I thought that Dave can’t have been that severely Asperger-ed, he's a solicitor and great at his work. He ‘functions’. We have been living together for the past 2 months, its temporary (Dave will be working in another community 5 hours north in another month) but they have been challenging +++. And when I search online for some help and discover that 80% of marriages, where one partner has AS, end in divorce… I'm not exactly filled with hope. We have never yelled or sworn at one another, but we have some terrible arguments that never seem to end… the fact that we both have a tendency to ‘over-think’ everything, doesn’t help! But I love this man and I hope that he and I can have a family and all that we both dream of, and while we are still in-love I want to give our relationship every possible chance.

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 I have been married to an HFA for 29 years and never knew it. I have learned much of this by trial and error, but plan to read this several times and implement as many as I can. Josie, my husband lives in absolute disarray, but for many years his behavior could have been labeled emotionally abuse with expectations through the ceiling and rage to equal it. It's been a trip, but the think that has helped me most besides the Lord, is realizing I'm not responsible for his expectations, his unhappiness, or moodiness. I can approach the line of his behavior, but I will not enter into it and try to rescue him. That is just a rabbit hole you will never find your way out of. Try to see clearly what is his baggage and don't pick it up. Choose your battles carefully because most things just don't matter in the grand scheme. And remember, you are helping one of God's kids make it through this life, that is actually an honor though it may not seem so at times.

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My husband and I were just discussing last night how he is constantly mis reading me and other situations. How he feels frustrated that he tries and tries, but still misses out, even in social settings. We have a LOT of communication issues. But since we have a son diagnosed with Aspergers, we at least have something we can hold on to. We understand what is going on, but fixing it is definately a challenge. Many evenings are usually watchign tv, working on the computer or flat out arguing Nothing in between. We have tried therapy, but my husband doesn't see anything wrong with HIM! He lives by the adage if it isn't squeeking, then it doesn't need the grease, so it doesn't get attention. WE just talk about it all night and then forget about it until the next time. WE have been married for 15 years this way. probably remain so for another 40 or so. Not healthy, but we are adapting.

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Sending hugs to all dealing with an aspergers spouse. It was like emotional abandonment and verbal abuse for 19 years with denial on their part and receiving the constant reminder that we are the one with "emotional problems". One doesn't realize the toll it takes until they are out of it. Everyone makes a different choice for themselves and their relationships. Even just focusing on the positive may not be enough. Aspergers behavior finally resulted in divorce. Indirectly, I received what I needed for my emotional and physical well-being. Yes, ongoing stress can manifest itself in physical ailments. Life is amazing, even my kids have done better emotionally & academically since not living in the dysfunctional environment that unfortunately occurred.

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I have been married to a man with Aspergers for 32 years! It's only been two years since we discovered this. For the entire duration of our marriage, until recently, I blamed myself for everything. I blamed myself for not being pretty enough; after all if I were he would be attracted to me, and would be affectionate....so I thought. And I blamed myself for not being interesting or smart enough; had I been he would communicate with me. I've been pained with such guilt feelings because rather than appreciating his good qualities, I wanted a marriage like my parents. I wanted a marriage like my friends have. So guilt is all I've known. But I realize now that all I asked for was the same "normal" marriage that every woman seeks and expects when finding a mate. It has been emotionally and physically draining being married to him. My health has suffered greatly from it. It takes me to such a sad place when I think how I spent all of my youth waiting for him to change; never realizing his ways will never change. It's been lonely for me. But although the road has been long and arduous, and I question if I even love him anymore, I won't leave him. My new journey now is to learn how to find happiness in this mother-child relationship. I need to desperately focus on his good qualities rather than dwell on what is missing. It's going to be very challenging, but I've made up my mind to fight for this with all I have.

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I say my husband is "great" -- but it's just really fleeting and surface discussions, nothing deep and my taking care of him and everything else has just worn me out. I can't even consider another argument or discussion that goes nowhere. I find the resentment building and building. I fear I won't even want him as a friend is this keeps up. I get the selfish comment, whether it's intentional or not, doesn't make it ANY easier. How did you get out? I've spent our whole marriage protecting him and now I'm going to be the villain b/c no one really knows him. He has no real friends and can go days, weeks, months w/o intimacy of any kind. I mean not even your basic married talks, just his rants or "areas of focus". I will try to tell him something and I feel so degraded that after a dozen interruptions only then do I realize he has no interest in what I have to say. He can be so nice but he can be passively vicious too. It's all I've known, now I just want time to heal, time away. If he won't acknowledge it, if he just focuses on winning every discussion than what's the point when it's truly killing me? How do I get out, I don't want to hurt him, I just want time, I really am scared but I think I want out once and for all.

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I'm with an aspergers man now for 13years, married for 8 . It's my 3rd husband and I loved his gentleness after an abusive previous marriage. I'm now 69 so no chance of leaving as anyway I'm the beadwinner and he couldn't manage alone. He's an alcoholic which bothers me more than the the aspergers. I work really hard all day but in the evening I have no companionship. I think he loves me but I don't think I do any more. I didn't know he had it even though I raised his son for 10 years . His son is now living on his own in UK but in charge of the state. My husband has worked and still does a bit . I mistook his engineering ability and his past history of the hospitality industry to mean he was whole. I gradually started to see his complete dependence on me for most things and his jealousy of my friends as he has none.im afraid I do run him down but mostly because of the drinking .

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I am the 3rd wife of an Aspie classical musician. Although my husband will never admit he is affected by this syndrome the lightbulb came on when our granddaughter was sent to occupational therapy for her Aspie behavior (hand flapping, grimacing, self-mutilation at 4 yrs. old) It all SUDDENLY clicked.

When we met my husband seemed so calm (LOL - passive aggressive, I now realize); so many quirky non-caring things have happened; like the time he left me behind at Nordstrom's while he drove home without me; will not respond to any comment I make unless its a direct question (says "your comments don't merit a response -- ask a question if you want a response.")

Because he's a professor he thinks he's smart about everything -- except remembering my birthday, of course. He is PERFECTLY happy in this marriage because he has NO needs - none whatsoever (except to be agreed with and then left alone) - which leaves me 80% intellectually, emotionally, sexually lonely.

Yes, I'm in therapy -- if you're married to an Aspie, you probably should be too.

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I am married over 25 years to Aspie man and I am exhausted, depleted, lonely and I fear my resentment will not abate. I have always gotten the counseling and been the one he blames yet he is a textbook case and in total denial. "Askmollybeauty", you just described my husband, but I'm just broken and fear I can't do it anymore and he claims he wants to be w/me but just fights to win (what?), I too describe him as utterly selfish and he used to be a good Dad but not anymore so much. Kids are grown and it's just either me trying not to talk, him interrupting and seeking me for whatever HIS needs are and no talking other than what TV show to watch. I've watched our friends solely go away and I'm tiring of this life. I can't believe all of these women believe we should continue being sick and sad forever. I too am sick and it's time for someone to show me empathy and support. I feel like I'll always be his mother and so many of the wives are sick, has to be connected. My husband is of little to no support on that front either, the loneliness and building resentment is unbearable. I think it's wrong to tell us we should stay, this is our life, they can't help it, etc. I'd rather be alone than feel alone w/a man that takes no responsibility and just piles it on me. He left me alone through serious illness & has no friends & as a result I'm losing mine too. No one is comfortable around him & all he wants to do is blame me and make no changes. I can't imagine never knowing what it is to live w/o all of this stress and oddly, I want that for him too. Why don't they admit they would rather be alone, is it the change b/c he can go so long w/o noticing me, of course that is unless HE needs or wants something. If you aren't married yet, run, it will destroy you, they can't cope w/anything and you are always wrong and they are reclusive and lack all introspection and empathy except on the rarest of occasions. I'm scared, but I really think this time I'm done. I just wish he could let us be friends, maybe more, just can't live w/it day in and day out. I wish you all so much happiness and support.

==> Living With Aspergers: Help for Couples

Spouses with Aspergers

Question

My husband was recently diagnosed with Aspergers. He graduated from college, but his self-absorption, social awkwardness and rigid behaviors have negatively affected our marriage. Is there hope for our relationship?

Answer

If there is one word that describes the reaction of a family member to the diagnosis of Aspergers (high functioning autism) in someone you love, that word is loneliness. Certainly it is not easy to bridge the communication gap that exists in the everyday life which you describe. It is important to look at the history of your relationship. You must have had good times together and shared positive feelings about each other. Try to recapture whatever glimmers of that you can of what brought you together. You may benefit from consultation with a mental health professional who is experienced in helping people in your kind of situation. Even if your husband won't go with you, you may gain some insight into the relationship that will help you regain some hope, and possibly change the chemistry of what is happening right now in your relationship.

It is often both a major relief and a major disappointment to be diagnosed or married to someone who is diagnosed with Aspergers. Your hopes may be dashed and it may feel worse right now, but the truth is your spouse is still the same man you have loved and married. There is no way out of the Aspergers diagnosis, but now that you and he know more about him and his sensitivities and behaviors, it is finally possible to find ways to compensate and learn and change and grow.

People can change. Since your husband functions at a high cognitive level, he will be able to use that to learn social behavior that is less awkward and rude. In order to work on this it will be important for him to accept his diagnosis. That is the next hardest step. After that, you and he can work on overcoming the hurdles and progress can be seen. He can change.

Once the diagnosis is made and then accepted, adults with Aspergers are able to move forward – not quickly and easily perhaps – but slowly and steadily. It takes patience and perseverance. You will both have to change some of your current understanding and expectations. In every marriage couples must make some sacrifices and compromises that they did not expect, and this often brings couples to a deeper more mature place in their love, marriage and commitment to one another.

In a marriage it is common for a husband and wife to have some disagreements. They may find little things that get on each others nerves. They may often misunderstand one another, but usually a couple can find a way to work things out in a healthy relationship. However, a couple affected by Aspergers may have larger issues. A wife may start to see a particular pattern in the actions of her husband or the way he avoids confrontation. She may not understand why he doesn't remember things or offer to help her around the house. She may wonder why he doesn't catch on to her hints for affection or let her finish a conversation. At first she may pass it off as laziness or stubbornness. For a couple not knowing of the possibility of Aspergers, it may soon lead to frustration, anger and hurt feelings.

Once husband and wife accept that Aspergers is going to be part of their lives, there are steps they can take to make their relationship work. They may have to accept the lack of spontaneity. They must realize they need to be more direct in their communication. It may be difficult at first, but there are many support groups and self help ideas that can be found on the web.

Here are some helpful relationship tips:

• Ask your spouse to ask questions when he is not sure of nonverbal cues.
• Be accepting of each others dislikes, quirks, or calming activities.
• Communicate with your Aspergers spouse precisely and directly. Since Aspergers adults have trouble reading non-verbal cues, you will need to give full and complete messages. Do not speak ambiguously. Try different forms of communication, such as letters, lists and email.
• Establish routines and plans agreed on by both partners.
• Find help for yourself. Get involved with a support group for spouses of Aspergers adults. If you become depressed, don't hesitate to get medical assistance.
• Prepare yourself to take on the majority of the parenting responsibilities. Many men with Aspergers have difficulty relating to children. It is usually up to the non-Aspergers spouse to provide a nurturing and consistent environment for children.
• Recognize the traits of the disorder. Aspergers adults frequently have a lack of empathy and an inability to consider the viewpoints of others. They often prefer rigid routines that others find difficulty to follow. Do not see any of this as a personal attack -- this is part of the disorder.
• Respond instead of reacting. This can be difficult when you're frustrated with your Aspergers spouse, but if you force yourself to remain calm, you will have a more positive interaction.
• Seek on-going professional help for your spouse.
• Set up times to openly listen to each other.
• Set up to do lists, calendars, reminders.
• Talk openly about finances. Aspergers adults frequently have poor money management skills. An Aspergers husband may want to spend lavishly on his hobby, yet be critical of normal household expenses. Using a third party, such as a financial planner, may be helpful.

Married couples affected by one or even both partners with Aspergers can have a happy, loving, and successful relationship. It may take a little work and a little extra effort, but it is possible and it is worth it. Couples that truly love each other can and will make their marriage work.

Living With Aspergers: Help for Couples