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Adult Children With Aspergers: Tips For Parents

Does your “adult-child” with Aspergers (high functioning autism) often resist your guidance?

As the parent of an adult child with Aspergers, you may have discovered that as he gets older and feels the need to assert his independence, it may be harder and harder to take advice from you. This is not necessarily a bad thing. It’s important for our older children to learn to solve their own problems. Especially as they become our adult children. Still, it’s tough to see the effectiveness of, “Because I said so,” recede into the distance.

If you see a continuing need to be involved in your child’s life as he grows into an adult, you may need to acknowledge that he is becoming his own person, and find appropriate ways to influence his decisions. This can be a real challenge.

Individuals with Aspergers often have trouble with subtle distinctions. They may think, “Adults are independent. Being independent means making my own decisions. If I take my mother’s advice, I’m not acting like an adult.” So, what do we do when we want to respect our adult child’s quest for independence and still help them over or around the obstacles he will likely face?

My 23-year-old grandson, Kyle, was diagnosed with Aspergers when he was 12. He has a B.A. in music, but has gone back to school to complete a two-year college program in business. He hopes what he learns about business will help him land a full-time job. He’s living at home and working part-time at our local YMCA.

While he’s done well in his business classes, Kyle recently had difficulties with some long-term assignments for a complicated accounting class. He was frustrated and his mother was concerned. Kyle made it clear that he wanted to prove he could handle this without our help.

The solution involved my daughter engaging the assistance of Kyle’s “job coach.” The coach met with Kyle to work out a new plan, including studying in the library away from distractions. They came up with a schedule for completing parts of the assignments. This schedule included, if necessary, approaching his professor before the projects were due, to request additional time.

On his own, Kyle enlisted a “study buddy” to explain some of the difficult concepts involved and started breaking down the obstacles that had caused his frustration. His mother was greatly relieved. We were also impressed with Kyle’s initiative in seeking help.

As a parent of a child with Aspergers, you may have gotten used to constantly having your hands on the safety net. You may have spent a lot of time wondering when to deploy it and when to whip it behind your back and say, “What safety net!?” But if you can gradually forgo the direct approach and guide your adult child to find the help he needs, even if it’s not from you, you may just reach the Holy Grail point for parents. That’s the point where your "grown-up" is competent and confident enough to ask for your advice because he values it -- not because he’s afraid he can’t succeed without it.

Click here for more information on how you, the parent, can foster the development of high self-esteem and confidence in your older Aspergers child.


Best Comment:

I have a very smart son with Aspergers. I did not realize this until he was a Senior in high school. Many of his teachers thought he had ADHD but in some classes he got As, in other classes he barely passed. Meaning he only worked on the classes that interested him.

This is what he does when we (my husband and I) are trying to talk to him about his life. He is mute. He will not speak, He is expressionless. Sometimes I see a pained look on his face but he will not articulate his thoughts.

He refuses to tell us what he is thinking.

When he was in a big mess academically at school, high school or community college, he would never tell us what was going on. He would never explain nor would he tell us what he needed to succeed. He has never tried to negotiate, tell us he will try harder, or even, I hate this subject it is dead boring to me, would have been a relief to hear.

He barely managed to finish High School. We had to place him in the alternative High School his senior year because he was failing most of his classes. at the comprehensive HS. The alternative HS was a place that offered a bare bones curriculum and students did their homework at the school. It was not a college bound curriculum. We hated to do it but we wanted him to graduate and get a HS diploma.

He went to one semester of community college, he failed to register early, so he was not able to get the classes he wanted or needed for a 4 year transfer. He failed everything except Astronomy. We pressed him hard to enroll for a second semester, which he did and then he quit after two days of classes.

He did tell me after he quit the second semester: "Nobody talks to me there" and he was in tears about, about 'all my failures'. That is about the first and last time he has ever expressed himself to me about how he feels about school. He spent about six months at home, doing nothing, laying in bed a lot. I begged him to get on an anti-depressant. He finally did. By last July he had gotten himself a job as a dishwasher at a high end restaurant in the next town over. He refused to try and get a job at the shopping mall near us because he was afraid of seeing someone from his old comprehensive HS. Evidently he had run into someone at the Mall who was snotty to him and bragged about the great college they were going to go to....and scorned him because he ended up at Village HS and was going to go the community college route. We live in a town of High Achievers and helicopter parents super sized.

We thought he was doing great at this restaurant, they asked him to buy kitchen knives and they were starting to train him to do kitchen prep work and pantry work. I was proud of him for keeping a tough job that many kids would have said, this is beneath me, this is too hard, I quit. He also seemed to have friends at this restaurant, and we ate there once and the manager told us 'he is a good man'....wow, all great.

However, he quit the job two weeks ago. And he did not tell us. We figured it out for ourselves when he did not go into work two days in a row. He had also barricaded himself in his room and was avoiding us and refusing to speak to us.

I finally got into his room last Sunday at 4:30 in the morning when I was awake, worrying about him, heard him stirring about, I heard him open the door and decided, I am going to walk into his room and I did.

Predictably enough he did not want to talk to us. Finally he said, "I wasn't fired, I quit." His Dad immediately asked did you give two week’s notice? And he said, ten days. We said you can have two weeks off then you need to find a job, or take classes at a trade school, a college, a cooking school, to get some skills, and get a job. I asked him if there was a new hire at the restaurant that was bullying him, he said no. He took a ton of bullying in public school, that was nightmare.

I am not looking forward to talking to him about what his plans are now. Because he will not tell us. He will give us the silent treatment.

What is he doing with himself right now? He sleeps all day and is up all night on his computer. He has also been teaching himself to read and write Japanese very diligently. Classic aspergers right? We told him he gets two weeks off to do as he likes, then he needs to start job hunting, and get a job, or go back to school or a combination of both.

I know he is brilliant but he does not accept the diagnosis of Aspergers. I went to a two day conference with Michelle Winner Garcia, if you do not know who she is, find out, she is brilliant at teaching people on the Asperger spectrum social skills, she works with kids, she works with adults with doctorates from Harvard. My son refuses to meet with her. His response to anything I say about Aspergers is "I DON"T CARE". Her take on my son is, well at his age he is going to have to bump around for a few more years on his own before he will be willing to seek help.

How do we deal with his mute behavior? I know it is intentional, I know it is his way of refusing to interact but it is maddening to deal with. We want to give him a few options, such as you can go to a local trade school and learn to code for computers, you can take a Japanese language program at USF as a visiting student, you do not need to enroll in their degree program, you will get a Certificate. I could see him becoming a 'document translator' for Japanese.

I fear he will always be under employed or unemployed if he does not work on his social issues and get the education he needs to have a career worthy of his brain power.

Older Teens and Young Adult Children Still Living At Home

Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent?

Parents of teens with Aspergers face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

Parents face issues such as college preparation, vocational training, teaching independent living, and providing lifetime financial support for their child, if necessary. Meanwhile, their immature Aspergers teenager is often indifferent – and even hostile – to these concerns.

As you were raising your child, you imagined how he would be when he grew up. Maybe you envisioned him going to college, learning a skilled traded, getting a good job, or beginning his own family. But now that (once clear) vision may be dashed. You may be grieving the loss of the child you wish you had.

If you have an older teenager with Aspergers who has no clue where he is going in life, or if you have an “adult-child” with Aspergers still living at home (in his early 20s or beyond), here are the steps you will need to take in order to foster the development of self-reliance in this child.

Click here to read the full article…


Best Comment:

My 18yr has totally lost the run of himself. He no longer lives at home and has had social difficulties from day 1. He an extravert, he is hyperactive impulsive and has always found it difficult to understand facial expression and body language.

I have always felt we have had a good relationship, his problems were always with everyone else in authority his dad and later his step dad were totally unable to handle him they either fought with him or didn't deal with misbehaviour. The majority of his teachers the same, I often just wanted to take him away to the country where people couldn't fight with him. I was a regular mediator and couldn't understand why people had to be such authoritarian bullies and why they couldn't deal with him kindly and be clear and consistant with what was expected and accepted.

I believed with kindness and love and very clear and consistant boundries and constant praise for good behaviour and kindness he showed, that he would learn that not everyone knew or wanted to be kind & decent but that for himself he would treat everyone with respect and that he could be proud to know that he has carried himself with respect decency and dignity regardless of how anyone else choose to behave around or towards him.

He has obviously on occasion over the years shown disrespect etc toward me but would quickly pull in his horns when I spoke to him. Since he moved out of the house I am the only one who keeps regular contact with him even though I have spoken to both his dad and stepdad about just checking in with a text to let him know they care even if he doesn't respond. Also incouraging his (birthday tomorrow)16yr old sister but he can verbally be quite nasty to her so she doesn't bother. He is living his own life and shutting us out and I know that's normal but I believe it's up to the adults to keep comunicating with him.

In the past 6mts he has been more and more arragont, willfull and defiant with every one including me showing me disrespect regularly.and recently he went to an all new level going from someone who would not attempt to curse infront of me to ball face verbally attaching me with every possible obscenity he has told me he is done with me etc etc I never found him hard to handle he just constantly took handling of course I regularly worried and questioned things and then I would read more about parenting methods or other behavioural concerns till I was satified I was handling things.

He is dyslexic and for years everytime I brought this to the attention of his teachers they told me he was just unwilling, wouldn't try, he won't settle down etc that he was too intelligent to be that he just needed a firmer hand. Eventually when he was around 10yrs I had saved enough money to have him accessed and even with his diagnosis teachers still bullied and harassed him but in primary school with just one teacher to deal with I was able to form a relationship and in turn usually a method of working well together with huge improvements all round and a much happier child. Each year a new teacher and it would start all over.

When he got to secondary school it was awful he now had 6-8 teachers per day, and was given out to on an hourly basis usually it started with them being dissatified or frustrated by his academic profermance and then behavioural problems.

I had met with everyone of the teachers prior to H_____ starting bringing with me his psychological reports to and asking each on to please include me when they experience any difficulties so that we could keep control and not allow small problems to esculate. I always approached the teachers with respect and from the point of H_____ is having difficulties which in turn is creating problems for his teacher so lets work together to resolve this. (even thought I often did not believe they deserved any respect) I never expressed to H_____ my opinion that the majority of his teachers incompetence but always praise any good traits they had and expressed how they were trying to do what was best and that he had responsibility as well in getting along.

He is very angry with me and is not coping with difficulties if he gets a flat tyre he looses the plot ranting and raving when everything is going smoothly he is very pleasant but the minute he has any problem no matter how trivial he bitches at whoever is nearest. He is often verbally very nasty and recently towards younger teens and his sister. And I feel like I have obviously seriously mess up and I don't know how. I am not stupid enough to think I was doing every thing right nor have I ever taught I was doing an amazing job but I sure did read and watch every parenting programme possible to deal with him and my other kids in the best way possible to give them every chance to become the best person they can be.

Even though he appears perfectly normal I have known there is something not quite right. People would expect certian behaviours of him and judge him yet they would comment on how odd or strange and hyper he is. My 16yr old also struggles socially she direct opposite an intravert, she finds it hard to talk at all but chats away at home, she struggles to look at people and is seen as intellegent but lazy and wilfully withdrawn in school, but I found a much better school now for her she move there last year and they brought up her adverage by 2 grades per subject in general her teachers now are kind and encouraging with the exception of 1or 2 so major improvements she too has dyslexia which suggestion of was laughed at by her teachers for years (money has always been an issue) she too is discribed as odd.

We also have a 2 and a half yr old who so far so good appears normal but I do see similar traits as the older two. Same as with the other two she is also way ahead of her peers at all her developmental tests, they all adveraged 8mths to a year ahead in all areas in early developmental tests. All three would sit quietly in the waiting areas while all the other childern were demanding noisy jumping around etc where mine would ask nicely to get a toy or book etc. but if they were in the company of another adult (dad auntie) they would be very unruley. Obviously even though I could get on well with them it is obvious they do not interact well in society and I feel I have seriouly failed H_____ and am well on the way to failing the other two. I don't know what to do. I feel completely alone my husband is a very kind and caring man but he has no idea how self distructive H_____ has become. When I showed my husband a conversation on Face Book between H_____ his Cousin who he shares a house with and another young woman which had nasty sexual remarks his response was shock first and then he just said he's being a complete twat. And hasn't mentioned it since. I have shown my husband your web site and I have told him I am writing to you but he like me just has no idea what we can do.

H_____'s dad is a good man but he is an alcoholic we seperated when H_____ was 6 Paul and I got together when H_____ was 12. Paul has been ill for the past couple of years and struggling with the medical system to get answers and is presently and being treated for hormonal deficiencies with some improvements.



Aspergers Teens and Behavior Problems at School

Question

Can you help me with behavior management for teenagers with Aspergers Syndrome in mainstream school (e.g., interrupting, joking, attention seeking)?

Answer

Social boundaries are not always understood by teenagers with Aspergers (high-functioning autism). Teens as a whole may have difficulty with these concepts; however, the teen with Aspergers may have a tougher time understanding how his behavior is disruptive or unacceptable. Teenagers with Aspergers struggle to understand how to control their feelings. Anger, stress, anxiety, and frustration can build quickly. This can cause inappropriate behaviors as the teenager strains to maintain control. Other times the teenager may act improperly without realizing what has happened.

Here are some commonly used treatment options:

• Individual counseling— Much like Cognitive-behavioral therapy, a trained professional counselor will attempt to develop a relationship with the teen with Aspergers. Teens can benefit from the one-on-one of basic counseling sessions that deal directly with the ‘whys’ and ‘hows’ of emotions and actions. This type of therapy may last for years.

• Cognitive-behavioral therapy— Cognitive-behavioral therapy is a time controlled intense therapy that is based on the belief that a teen’s individual thoughts are the cause of his behavior. In other words, the people around you and the situations that occur are not the cause, but an effect. Since this is the reality, a person should then be able to change the outcome of actions and feelings by changing the way they think about them, and not by changing the situations.

Without strong support at home, Aspergers teens may not make much progress with dealing with emotions and poor behavior. Any therapy will include homework. Some families, either by choice or desire, may choose to handle the adolescent years without the assistance of private therapy. In many instances, this can be an acceptable alternative.

My Aspergers Teen: Discipline for Defiant Aspergers Teens

Aspergers Children and Language Development

Language seems to develop on time in children with Aspergers (high functioning autism), but words, while formulated according to the rules, seem to lack functional effectiveness, because they most often are used to express immediate needs or to expound on the child’s favorite subjects.

The child with Aspergers seems not to see the main idea or the pivotal point. They tend to have problems with abstraction, inference, or practical, functional language. And their semantic understanding is limited, which frequently shows up in tests and instructional measures of listening comprehension.

Instead of delaying language development, Aspergers impairs the subtleties of social communication. Aspergers children have difficulty understanding nuances such as irony, sarcasm and fanciful or metaphoric language. Many Aspergers children take language literally. Expressions such as “watching paint dry,” or “smart as a tack” leave these children very confused.

Children with Aspergers are often referred to as “little professors,” which is due to their stiff and often pedantic and monotonic use of language. The varied, expressive qualities of expressive language may be unusual. This is called prosody, which is the pitch, loudness, tempo, stress emphasis, tonality, and rhythm patterns of spoken language. Aspergers speech patterns often seem odd to people who don’t know them. Tone, intonation and volume are often restricted, seemingly inappropriate, or at appear at odds with what is being said.

Children with Aspergers also have difficulty interpreting and displaying non-verbal communication. Facial expressions, body language, gestures and postures are often mysteries to children with Aspergers, as is personal space. This inability to instinctively comprehend unspoken communication has led some experts to suggest Aspergers is actually a non-verbal communication disorder.


Characteristics Checklist for Aspergers: Language Skills

Impairments in Language Skills 

A. Impairment in the pragmatic use of language. This refers to the inability to use language in a social sense as a way to interact/communicate with other people. It is important to observe the individual’s use of language in various settings with various people (especially peers), since the impairments are in pragmatic language usage.

1. Uses conversation to convey facts and information about special interests, rather than to convey thoughts, emotions, or feelings.

2. Uses language scripts or verbal rituals in conversation, often described as “nonsense talk” by others (scripts may be made up or taken from movies/books/TV). At times, the scripts are subtle and may be difficult to detect.

3. Has difficulty initiating, maintaining, and ending conversations with others. For example:
  • Focuses conversations on one narrow topic, with too many details given, or moves from one seemingly unrelated topic to the next.
  • Once a discussion begins it is as if there is no “stop” button; must complete a predetermined dialogue.
  • Knows how to make a greeting, but has no idea how to continue the conversation; the next comment may be one that is totally irrelevant.
  • Does not make conversations reciprocal (has great difficulty with the back-and-forth aspect), attempts to control the language exchange, may leave a conversation before it is concluded.
  • Does not inquire about others when conversing. 
4. Is unsure how to ask for help/make requests/make comments:
  • Fails to inquire regarding others.
  • Makes comments that may embarrass others.
  • Interrupts others.
  • Engages in obsessive questioning or talking in one area, lacks interest in the topics of others.
  • Has difficulty maintaining the conversation topic.
B. Impairment in the semantic use of language. This refers to understanding the language being used. 

1. Displays difficulty understanding not only individual words, but conversations and material read.

2. Displays difficulty with problem solving.

3. Displays difficulty analyzing/synthesizing information presented:
  • Does not ask for the meaning of an unknown word.
  • Uses words in a peculiar manner.
  • Is unable to make or understand jokes/teasing.
  • Creates jokes that make no sense.
  • Interprets known words on a literal level (concrete thinking).
  • Has a large vocabulary consisting mainly of nouns and verbs.
  • Creates own words, using them with great pleasure in social situations.
  • Has difficulty discriminating between fact and fantasy.
C. Impairment in prosody. This refers to the pitch, stress, and rhythm of an individual’s voice. 

1. Rarely varies the pitch, stress, rhythm, or melody of his speech. Does not realize this can convey meaning.

2. Has a voice pattern that is often described as robotic or as the “little professor”; in children, the rhythm of speech is more adult-like than child-like.

3. Displays difficulty with volume control (too loud or too soft).

4. Uses the voice of a movie or cartoon character conversationally and is unaware that this is inappropriate.

5. Has difficulty understanding the meaning conveyed by others when they vary their pitch, rhythm, or tone.

D. Impairment in the processing of language. This refers to one’s ability to comprehend what has been said. The Asperger individual has difficulty absorbing, analyzing, and then responding to the information. 

1. When processing language (which requires multiple channels working together), has difficulty regulating just one channel, difficulty discriminating between relevant and irrelevant information.

2. Has difficulty shifting from one channel to another; processing is slow and easily interrupted by any environmental stimulation (seen as difficulty with topic maintenance). This will appear as distractibility or inattentiveness. (Note: When looking at focusing issues it is very difficult to determine the motivator. It could be attributed to one or a few of the following reasons: lack of interest, fantasy involvement, anxiety, or processing difficulty.)

3. Displays a delay when answering questions.

4. Displays difficulty sustaining attention and is easily distracted (one might be discussing plants and the Asperger individual will ask a question about another country — something said may have triggered this connection or the individual may still be in an earlier conversation).

5. Displays difficulty as language moves from a literal to a more abstract level (generalization difficulties found in the Asperger population are, in part, due to these processing difficulties).


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book


==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

Asperger Syndrome and Attention Difficulties

Question

My question is my 13 yr old Asperger daughter does not pay attention to what is going on around her. Like if something looks dangerous, she doesn't seem to mind…. does not really pay attention crossing road or in parking lots, gets in trouble at school for doodling rather than listening, and so on. Is this part of Aspergers?


Answer

In the past, kids with Asperger Syndrome (now called high functioning autism) would sometimes get an ADHD diagnosis when they just couldn't focus in school. Today, we know a lot more about the differences between Aspergers and ADHD. Still, there are many similarities that can be difficult even for therapists to straighten out.

Theoretically, the distinction is easy enough. Asperger Syndrome is a part of the Autistic spectrum with emotional, social and possible verbal/motor impairments. ADHD and others may also have social components, but they're executive function disorders that usually go away as the youngster grows up. They also don't have the autistic traits often found in Asperger Syndrome kids. Asperger Syndrome is different in that children often have an almost uncanny ability to apply laser-like focus on a topic of interest to the exclusion of everything else, such as a teacher. ADHD, meanwhile, may not be able to focus on the teacher either, but that's because the attention is bouncing around all over the place. Thus, Asperger-related attention problems are more about striking balance between interests, and especially the ability to prioritize what is necessary rather than merely what the youngster happens to find interesting.

Some folks like to joke that they haven't quite received a bill until they open the envelope, so they don't have to worry about it just yet. A youngster with Asperger Syndrome can disregard requests to focus on “uninteresting” things in a similar way, simply blocking it out. Or, it could be the inability to maintain focus despite good efforts (kind of like how it's impossible to stay clear-headed at 2 AM when your whole body is crying out for sleep). No more can you “will” yourself to snap into an alert and rested state than an Asperger Syndrome kid may be able to snap into focus on a dull subject instead of an interesting one.

Either way, this is not something the youngster can help, nor does scowling and lectures help. You're more likely to drive the child away – and do everybody involved a disservice. Instead, talk to your daughter and try to pinpoint the problem. Every case is unique, so you have to look for tricks that help you and your youngster get around those particular problems. The key here is to follow up and give reminders without losing your temper. You can't just say, for example, "Remember to feed the cat at 5:00 PM" …and then get angry when it doesn't happen on its own.

There are many other tricks that may be equally or even more helpful. Again, discuss the nature of the challenges with your youngster with the goal of figuring out workable solutions together. Finally, never lose sight of the fact that even the most perfect plan is bound to have slip-ups; this is not the fault of your child, and she is probably just as frustrated as you are even if she lacks the tools to express it properly.

 
COMMENTS:

•    Anonymous said... Describes my son, who is now 31, to a T. Wish there had been a support group back then. He continues to struggle with focusing attention. On some things, he can be hyper focused seemingly ignoring other things around him. Then there are other situations where he doesn't seem focused at all. No he does not drive. He worked for 6 years but no longer. He is highly intelligent & high functioning, but he often stays to himself.
•    Anonymous said... Exactly what I'm dealing with! Seems rare for my son to be thinking or talking about what is relevant!!! Drives me insane!!! I need to learn more about this and ways to deal and cope with it!
•    Anonymous said... I am mostly concerned that the educators are "chastising." Sensory breaks and quiet environment are crucial.
•    Anonymous said... I feel like this not only explains my own 8 year old aspie but also myself.
•    Anonymous said... I'm easily distracted... Oh a squirrel
•    Anonymous said... it is all part of autism spectrum disorder...they will have distractions and moments of behavior issues...
•    Anonymous said... it might be beneficial to get the school resource teacher involved to help w/the teacher & your son!! Our resource teachers helps w/all of my son's struggles & helps his teacher in a positive reinforced way & they all get along so well & are productive in class!! good luck!
•    Anonymous said... my 7th grader is having a lot of difficulty with this right now...she was doodling and when that was taken away from her she started pulling her hair out...after redirection and an increase in meds we are starting to see improvents.
•    Anonymous said... My child has HFA and ADHD combined type and always struggled with staying on task...
•    Anonymous said... My daughter is very smart but has a very hard time focusing on school work and homework or a subject on hand, down to chores. She already got three F's, even one subject with an A at the first quarter but now F.....frustrating but not giving up yet. Some testings are going to be needing to see how far she is doing.
•    Anonymous said... My son was given a squishy stress ball in class , at first to stop him from finding other things to fiddle with and less distracting for the others, it turned out to be great because he could concentrate more, his hands were busy so he was happy and listened to class , Melissa Buckel Rokusek sounds like the same thing for your son when drawing
•    Anonymous said... My step son was using his drawings as his fidget. One of the teachers decided to test how much information he was getting from the class, he passed with flying colors. I think that doodling focuses him on what is actually being said. He also doodles while watching movies (after he can repeat every word). So sometimes its not a bad thing.
•    Anonymous said... sounds a lot like my son. we're going to be homeschooling for a while to see if he can learn to focus his attention on schoolwork. he hasn't been able to function in a class room environment. such a bright boy, we just need to help him focus on the things he needs to focus on in order to do well. drives me insane too.
•    Anonymous said... Sounds alot like my son. He is in fourth grade and every teacher he has had has said that he is very intelligent. But his grades do not reflect that since he is too distracted at school to do better.
•    Anonymous said... sounds alot like my son. His teachers, aides, counselors all say he is super smart. But his grades do not reflect this because they say he doesn't pay attention in class most of the time. I don't think he does it on purpose, but I think his mind wanders. He is 10, but hasn't had an iq test yet.
•    Anonymous said... Sounds like my son.
•    Anonymous said... Stimulants do help with this in my experience with my son. Seems to improve his meltdowns too
•    Anonymous said... This describes my son exactly! We have been dealing with attention issues all through school. I am quite sure he would test as gifted, but his current grades do not reflects it. We always hear he needs to pay more attention, but so far have not found a solution. He reacts badly to stimulants. My son admits he has too many ideas in his head to concentrate.
•    Anonymous said... This is exactly my son!
•    Anonymous said... This just came up at our annual for my daughter. She needs to be redirected because she gets lost in her thoughts. Do any of you have any goals on IEP for dealing with this?
•    Anonymous said... This sounds very much like my 14 y.o. He's very intelligent, but his schoolwork suffers because his attention slips easily while in class.

Please post your comment below… 

Aspergers Children: Obsessions and Rituals

Question

My Aspergers son spends all his time collecting and ruminating over his baseball cards. That’s ALL he talks about, all day long: baseball trivia (names of teams, names of players, player stats, and on and on...). Is this Aspergers related behavior, and how can I get him to broaden his interests?


Answer

Rituals and obsessions are one of the hallmarks of Aspergers (high functioning autism) and other Autistic Spectrum Disorders. In order to cope with the anxieties and stresses about the chaotic world around them, children often obsess and ritualize their behaviors to comfort themselves. While some children may spend their time intensely studying one area, others may be compulsive about cleaning, lining up items, or even doing things which put them or others in danger.

Based on data from psychological testing, it is likely that the memory of the youngster with Aspergers may not be better than others in general, but the huge collection of facts he knows probably represents the amount of time and effort that has gone into accumulating knowledge on one or two subjects to the exclusion of much else. The obsessions are not necessarily characterized by memorization of data alone.

The term “systemizing” applies to the “fascination with data” that has inherent networks, such as maps, weather patterns, or airline schedules. Although it is commonly thought that obsessions can be strengths that can be utilized in the educational process, these obsessions can interfere significantly with other important daily functions. Children with Aspergers are more interested in systems that can be described as “folk physics” (an interest in how things work) versus “folk psychology” (an interest in how people work).

Obsessions aren't always so bad, especially if they are some of educational or healthful value, but when mixed with the mental makeup of a child with Aspergers, problems may arise. Kids with Aspergers have trouble with social and emotional development and understanding the nonverbal cues in a conversation. While they are more than happy to start discussing their subject of obsession to another person, they will most likely not notice if the other person is not interested.

They may not get the hint of a person's disinterest or lack of time to talk. They may instead proceed to follow another person around continuing to talk on and on about their area of fascination. They may go right up to someone else already engaged in conversation and interrupt them to begin associating their topic of interest with their obsession. They may take over a conversation and talk endlessly not leaving much time or room for any feedback from another.

Kids with Aspergers may become so obsessed with a particular toy, game, or subject, that they may push friends away unknowingly. They may leave little time for anything else, and homework may suffer. They may become too easily distracted always thinking back to their obsession and not be able to stay on task.

Moms and dads need to take care to allow their kids to be passionate about certain subjects but to not let it entirely rule their lives. If a child is overly obsessed with playing video games of play on the computer, it is OK to give them some time to play, but the time should be limited. Even if the subject of fascination is reading books or doing science experiments, it is still important that time be given to other subjects or just to get out to get some exercise.

Kids with Aspergers do not learn the social norms and common sense ideas the same way another child does. They may never completely understand the reasons why things matter socially. They may not see any reason why they shouldn't devote all their time to their one major fascination. Moms and dads can take consideration for their passion, but also help them become a more socially rounded person. It is important, however, if a child fixates on a particularly bad habit or inappropriate subject matter, that a parent put an end to it immediately.

Even with Aspergers, a child will eventually notice when a parent is not interested and it may become hurtful. Moms and dads should take the time to listen to their child and even learn about what is so fascinating. A parent who will take the extra initiative to go visit a planetarium for their child interested in space, or take a trip to a dinosaur museum for the child obsessed with dinosaurs, will give their child the extra support and assurance they need.

Choose your battles wisely. Breaking an obsession or ritual is like running a war campaign. If not planned wisely or if you attempt to fight on many fronts, you're guaranteed to fail. Not only is it time consuming and tiring, it means you can't devote 100% to each particular area. So, if you have a youngster with (1) a game obsession, (2) a phobia of brushing his teeth, and (3) bedtime troubles, choose only one to deal with. Deal with the worst problem first!

When tackling any problem with any youngster, Aspergers or not, it's always best to remain calm at all times. Children can feed off your anger, frustration and anxiety, so keeping a level head at all times is essential. If you feel a situation is escalating and elevating your blood pressure, take a step back and collect yourself.


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book


==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism


 COMMENTS:
    •    Anonymous said... With time obsessions change, evolve...as long as it doesn't interfere with their studies.
    •    Anonymous said... Definitely Asperger's related!! My son used to categorize his trains when he was little by their "usefulness" as he put it. The we moved on to Legos and them needing to be categorized by shape, size, color, etc. Your son will be fine. There is nothing wrong with fixating on one subject or area within a subject...he can't help it. Throughout his life he will go on to other things, on his own time. I myself had a baseball card fixation when I was younger, then I moved on, then ended up coming back, re-sorting previous collections, staring a new one, etc..
    •    Anonymous said... Don't bother. My son now 21 and in college still crazy about trains. But think of their interest in a broader spectrum is easier. I got Eurail maps for him and he learned geography and history. Be age appropriate but go for it. Baseball is worldwide. There are teams in many other counties. Japan is one.
    •    Anonymous said... I never really felt the need to broaden my sons interests. He has similar behaviors with other things that he perseverates on and I think it is such a unique characteristic to him and other children like him that I try to support it and encourage him to learn in a variety of different ways. I have always made sure that I expose him to a variety of different things and interests and I've always given him many different flavors in life such as different sports different TV shows and now different YouTube channels but in the end I just encourage his interactions with what he enjoys. Because my son would focus on one thing I would use that to my advantage and use that one thing to show him many different avenues with sports you can use statistics for math you can use teamwork for socialization you can use whatever it is that they focus on as your grounds and topic for teaching them important things in life. In the end what really matters I think it's happiness health and being able to function in society. We all have a different purpose in our life and whether your purpose is baseball, teaching or just inspiring others I really try to provide my son with as much support for his purpose as he needs.
    •    Anonymous said... Most children with Aspergers also have OCD (like my son) and the have something that they just cling to. For my son it's the video games Skylanders. The best thing you can do is try to introduce him to as many different things as possible. Now that doesn't guarantee that he won't revert back to the game cards but it will plant seeds for other options.
    •    Anonymous said... My daughter obsessively studies dogs, if we are out and she sees a dog she will ask what breed it is, of course that is not enough, she wants to know its weight, coat type, how much walking it does, how fast it runs, what it was used for in history, what health issues the breed has.... It goes on and on!!... and on.
    I brought her a note book, and a dog encyclopedia, she can draw a picture and write 5 facts about the particular breed. Works very well.
    •    Anonymous said... My son has his obsession with fish tanks. He's now scuba certified and taught himself to maintain a saltwater reef. Use the obsessions as a life lesson and let them run with it. It's a great thing to watch a child so tuned in and focused.
    *   Anonymous said... There are a number of issues to overcome....misdiagnosis, wrong medications and side effects, judgemental people in society and of course how the rest of the family is effected!! On top of all this, theres not enough support with regards to assessments and ongoing therapy, especially if your not wealthy!
    *   Anonymous said... Can you tell me what medication your referring to which can assist with obsessive behavior?
    *   Anonymous said... My son has extreme OCD with his Aspergers. Doctors want me to put him on Prozac , which I am etremely hesitant to do. Does anyone else have experience with this?

    Post your comment below...

    Perseveration: Stereotypic Behaviors in Aspergers Kids

    Question

    My 10-year-old son with Aspergers has a variety of stereotypical behaviors (e.g., he flaps his arms, hops, makes some odd writhing movements). They get worse when he is excited or over-stimulated. At age 10, these behaviors are really sticking-out and can be quite annoying and embarrassing to the rest of the family when we are out with him, in particular his older sister. Do you have any suggestions of what to do about it?

    Answer

    Almost all kids with any form of autism tend to repeat behaviors, an action referred to as stereotypic behaviors or perseveration. Your youngster may stare at objects or repeat behaviors that seem to have no purpose for hours at a time. This can be seen in the “flapping” of your child’s hands or other circumscribed, repeated movements, even those that are self-injurious or destructive to others or property.

    In kids with Aspergers (high-functioning autism), these stereotypic behaviors may diminish and give way to obsessive interests, usually topical in nature, as the youngster gets older. This is exemplified by obsessive fascination with a particular narrow field such as sharks, weather, train schedules, airport architecture, maps, and so on. The pursuit of a very limited area of knowledge may encompass a huge amount of detail on the subject. Such persons seem to display an exquisite ability to memorize the smallest facts.

    In discussion on their favorite topic, they can “nitpick” over the smallest details. Grandpa may think he remembers World War II, but his grandson with Aspergers has memorized the details of the war with far greater accuracy. Clearly, the student can display perfectionism in building such a base of information. For this reason, Aspergers has been compared in such respects to obsessive compulsive disorder. Autistic kids who are later found not to be categorized as having Aspergers may tend to display stereotypical behaviors longer and at levels that are difficult to extinguish. In many cases, physical perseverations decrease significantly over time, and in some cases, only obsessive thinking is perseverative.

    Stereotypic behaviors such as hand flapping, ritualistic pacing, spinning, lining up objects, or visual inspection of objects are thought to be “automatically” and intrinsically rewarding for many kids with Autism Spectrum Disorders (ASD). These activities may give a youngster a new sensory experience that is rewarding.

    One way to think about this is that many kids with ASD often do not have age-level play and social skills. Some pass time by engaging in repetitive motor behaviors. It is also possible that, though stereotypic behaviors are initially reinforced intrinsically, they may also become reinforced by social attention when parents try to stop or discourage the behaviors. These behaviors can interfere with learning if they occur a lot in the school setting. They can also “stigmatize” the youngster (i.e., make him appear odd).

    There are at least 3 possible behavioral interventions that may be used to reduce such repetitive behaviors. These interventions are usually employed separately, but they may also be done simultaneously. If moms and dads wish to reduce such behavior, they should seek the help of a behavior therapist.

    First, some therapists may decide to stop the behavior. Simply ignoring the behavior, if it is intrinsically rewarding, usually will not work. One usually attempts to stop the behavior with as little social attention as possible. Talking with or looking at the youngster is usually discouraged when preventing the behavior from continuing. The minimal amount of physical guidance to stop the behavior is recommended. Then parents and others around the child are coached to pay attention to the youngster again when the repetitive behavior has stopped.

    A second approach involves teaching the youngster how to play appropriately with toys. This approach works even better the child is exposed to toys that achieve the same or similar sensory experience provided by the repetitive behavior.

    If the repetitive behavior involves objects or household equipment, such as rewinding a part of a video cassette, a third approach is sometimes used. One can minimize the behavior by limiting access to those objects or equipment. Regardless of the approach used, any behavioral intervention for stereotypic behaviors needs to be highly individualized. We strongly recommend that moms and dads obtain expert consultation with a qualified clinical psychologist.

    Some medicines may also help to reduce repetitive or compulsive behaviors. Sometimes the serotonin selective reuptake inhibitors (Prozac-like medicines) are helpful. Examples are citalopram, sertraline, and paroxetine. The newer types of antipsychotic medicine are sometimes helpful for reducing stereotypic behaviors. Examples of these medicines are risperidone, aripiprazole, and ziprasidone.

    Ordinarily, the antipsychotics would not be used solely to reduce repetitive behaviors, however, unless such behaviors were linked to other, more serious, behaviors. This is not frequent, but sometimes Ritalin-like medicines may actually make stereotypic behaviors increase in some kids with autism-spectrum disorders. The parent and doctor should be watchful for this if a youngster with an autism-spectrum disorder is starting a new medicine for ADHD or if the dose of the medicine is increased.

    The stereotypical behaviors that you mention can certainly be associated with pervasive developmental disorders. It is important that you get your youngster to a clinic familiar with autism and related issues, and with psychopharmacological management. Only then can a plan be best formulated.


    More resources for parents of children and teens with Asperger's and High-Functioning Autism:

    ASD: Difficulty Identifying and Interpreting Emotional Signals in Others

    Autism spectrum disorder (ASD) is a complex neurodevelopmental condition that affects an individual's ability to communicate, interact w...