Aspergers Kids: Reasons for Their Behavior

You need to understand what your youngster or adolescent is thinking, how he interprets what is going on, and how his deficits cause problems before you can begin any intervention strategy. Do not rush into action until you have collected enough information and analyzed what is going on. If you do not know the reasons behind the behavior, you may very likely do the wrong thing. If you know what is going on, you can help things go better.

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Aspergers Child Abuse: Physical, Emotional, and Sexual

Aspergers Child Physical Abuse—

The statistics on physical child abuse are alarming. It is estimated hundreds of thousands of kids are physically abused each year by a parent or close relative. Thousands actually die as a result of the abuse. For those who survive, the emotional trauma remains long after the external bruises have healed. Communities and the courts recognize that these emotional “hidden bruises” can be treated. Early recognition and treatment is important to minimize the long term effect of physical abuse. Whenever a youngster says he or she has been abused, it must be taken seriously and immediately evaluated.

Aspergers kids who have been abused may display:

• a poor self image

• aggressive, disruptive, and sometimes illegal behavior

• anger and rage

• anxiety and fears

• drug and alcohol abuse

• fear of entering into new relationships or activities

• feelings of sadness or other symptoms of depression

• flashbacks, nightmares

• inability to trust or love others

• passive, withdrawn or clingy behavior

• school problems or failure

• self destructive or self abusive behavior, suicidal thoughts

• sexual acting out

• sleep problems

Often the severe emotional damage to abused kids does not surface until adolescence or even later, when many abused kids become abusing moms and dads. An adult who was abused as a youngster often has trouble establishing lasting and stable personal relationships. These men and women may have trouble with physical closeness, touching, intimacy, and trust as adults. They are also at higher risk for anxiety, depression, substance abuse, medical illness, and problems at school or work.

Early identification and treatment is important to minimize the long-term consequences of abuse. Qualified mental health professionals should conduct a comprehensive evaluation and provide treatment for kids who have been abused. Through treatment, the abused youngster begins to regain a sense of self-confidence and trust. The family can also be helped to learn new ways of support and communicating with one another. Moms and dads may also benefit from support, parent training and anger management.

Physical abuse is not the only kind of child abuse. Many kids are also victims of neglect, or sexual abuse, or emotional abuse. In all kinds of child abuse, the youngster and the family can benefit from evaluation and treatment from a qualified mental health professional.

In the view of some experts, Aspergers child abuse in this country has reached almost epidemic proportions. According to a recent report, more than two million kids are subjected to neglect and physical, emotional, or sexual abuse every year.

There is no standard definition of what constitutes child abuse, but each state has statutes that describe the forms of child abuse. Regardless of distinctions in legalistic terminology, however, experts agree that the abuse cases reported represent a small percentage of the actual number of kids who are victims of sever abuse.

Causes and Consequences:

Most moms and dads prefer to think of chronic child abuse as something that happens to other people’s kids. While it is evident that certain kinds of stress make abuse statistically more likely – poverty, job loss, marital problems, extremely young and poorly educated mothers – abuse also occurs across all economic lines and in seemingly good homes. Many people blame the prevalence of violence on TV and in the movies, and while that theory has not as yet been fully substantiated, media violence may contribute to our acceptance of physical aggression toward kids. It is worth noting that cultures in which corporal punishment is not sanctioned have much lower rates of child abuse.

Aspergers Child Sexual Abuse—

Child sexual abuse has been reported up to 80,000 times a year, but the number of unreported instances is far greater, because the kids are afraid to tell anyone what has happened, and the legal procedure for validating an episode is difficult. The problem should be identified, the abuse stopped, and the youngster should receive professional help. The long-term emotional and psychological damage of sexual abuse can be devastating to the youngster.

Child sexual abuse can take place within the family, by a parent, step-parent, sibling or other relative; or outside the home, for example, by a friend, neighbor, child care person, teacher, or stranger. When sexual abuse has occurred, a youngster can develop a variety of distressing feelings, thoughts and behaviors.

No youngster is psychologically prepared to cope with repeated sexual stimulation. Even a two or three year old, who cannot know the sexual activity is wrong, will develop problems resulting from the inability to cope with the overstimulation.

The youngster of five or older who knows and cares for the abuser becomes trapped between affection and loyalty for the person, and the sense that the sexual activities are terribly wrong. If the youngster tries to break away from the sexual relationship, the abuser may threaten the youngster with violence or loss of love. When sexual abuse occurs within the family, the youngster may fear the anger, jealousy or shame of other family members, or be afraid the family will break up if the secret is told.

A youngster who is the victim of prolonged sexual abuse usually develops low self-esteem, a feeling of worthlessness and an abnormal or distorted view of sex. The youngster may become withdrawn and mistrustful of adults, and can become suicidal.

Some kids who have been sexually abused have difficulty relating to others except on sexual terms. Some sexually abused kids become child abusers or prostitutes, or have other serious problems when they reach adulthood.

Often there are no obvious external signs of child sexual abuse. Some signs can only be detected on physical exam by a physician.

Sexually abused Aspergers kids may also develop the following:

• aspects of sexual molestation in drawings, games, fantasies

• delinquency/conduct problems

• depression or withdrawal from friends or family

• refusal to go to school

• secretiveness

• seductiveness

• sleep problems or nightmares

• statements that their bodies are dirty or damaged, or fear that there is something wrong with them in the genital area

• suicidal behavior

• unusual aggressiveness, or

• unusual interest in or avoidance of all things of a sexual nature

Child sexual abusers can make the youngster extremely fearful of telling, and only when a special effort has helped the youngster to feel safe, can the youngster talk freely. If a youngster says that he or she has been molested, moms and dads should try to remain calm and reassure the youngster that what happened was not their fault. Moms and dads should seek a medical examination and psychiatric consultation.

Moms and dads can prevent or lessen the chance of sexual abuse by:

• Encouraging professional prevention programs in the local school system

• Teaching kids that respect does not mean blind obedience to adults and to authority, for example, don't tell kids to, Always do everything the teacher or baby-sitter tells you to do

• Telling kids that if someone tries to touch your body and do things that make you feel funny, say NO to that person and tell me right away

Sexually abused kids and their families need immediate professional evaluation and treatment. Child and adolescent psychiatrists can help abused kids regain a sense of self-esteem, cope with feelings of guilt about the abuse, and begin the process of overcoming the trauma. Such treatment can help reduce the risk that the youngster will develop serious problems as an adult.

Many moms and dads are unsure or squeamish about bringing up sexual matters, especially with their kids. Yet, there are ways of laying the groundwork so that you can talk to your youngster without scaring her. Establish an open dialogue about sexual issues early on. If you introduce the subject of sex in a discussion of abuse, there is the danger that the idea of sex may become automatically linked in your youngster’s mind with danger and anxiety.

If you have fostered in your youngster a sense of ownership regarding her body, she will likely have an instinct about what is okay for her body and what is not. You build on her natural sense of ownerships of her body by letting her pick out her own clothes or wash herself in her own way. Also, avoid pushing her to kiss or hug other adults when she clearly does not want to.

Finally, when moms and dads treat their kid’s bodies with respect, kids tent to demand that others treat their bodies in a similar manner. Kids who are consistently hit, grabbed, or physically punished at home may feel that adults are entitled to misuse their bodies simply because they are bigger.

Responding To Aspergers Child Sexual Abuse—

When a youngster tells an adult that he or she has been sexually abused, the adult may feel uncomfortable and may not know what to say or do. The following guidelines should be used when responding to kids who say they have been sexually abused:

What to Say—If a youngster even hints in a vague way that sexual abuse has occurred, encourage him or her to talk freely. Don't make judgmental comments.

• Assure the youngster that they did the right thing in telling. A youngster who is close to the abuser may feel guilty about revealing the secret. The youngster may feel frightened if the abuser has threatened to harm the youngster or other family members as punishment for telling the secret.

• Show that you understand and take seriously what the youngster is saying. Child and adolescent psychiatrists have found that kids who are listened to and understood do much better than those who are not. The response to the disclosure of sexual abuse is critical to the youngster's ability to resolve and heal the trauma of sexual abuse.

• Tell the youngster that he or she is not to blame for the sexual abuse. Most kids in attempting to make sense out of the abuse will believe that somehow they caused it or may even view it as a form of punishment for imagined or real wrongdoings.

• Finally, offer the youngster protection, and promise that you will promptly take steps to see that the abuse stops.

What to Do—Report any suspicion of child abuse. If the abuse is within the family, report it to the local Child Protection Agency. If the abuse is outside of the family, report it to the police or district attorney's office. Individuals reporting in good faith are immune from prosecution. The agency receiving the report will conduct an evaluation and will take action to protect the youngster.

Moms and dads should consult with their pediatrician or family physician, who may refer them to a physician who specializes in evaluating and treating sexual abuse. The examining doctor will evaluate the youngster's condition and treat any physical problem related to the abuse, gather evidence to help protect the youngster, and reassure the youngster that he or she is all right.

Kids who have been sexually abused should have an evaluation by a child and adolescent psychiatrist or other qualified mental health professional to find out how the sexual abuse has affected them, and to determine whether ongoing professional help is necessary for the youngster to deal with the trauma of the abuse. The child and adolescent psychiatrist can also provide support to other family members who may be upset by the abuse.

While most allegations of sexual abuse made by kids are true, some false accusations may arise in custody disputes and in other situations. Occasionally, the court will ask a child and adolescent psychiatrist to help determine whether the youngster is telling the truth, or whether it will hurt the youngster to speak in court about the abuse.

When a youngster is asked as to testify, special considerations--such as videotaping, frequent breaks, exclusion of spectators, and the option not to look at the accused--make the experience much less stressful.

Adults, because of their maturity and knowledge, are always the ones to blame when they abuse kids. The abused kids should never be blamed.

When a youngster tells someone about sexual abuse, a supportive, caring response is the first step in getting help for the youngster and reestablishing their trust in adults.

Best Comment:

My problem is this....I don't have my son (9 years old)living with me at this time so I can't try the different ways of working with him. I am also facing charges of child abuse at this time and it's scary because I didn't do this and my son self-injured himself and told his father I did it. My son is not with me because he was placed with his father by CPS.

In April, my son was diagnosed as having Aspergers after initally being diagnosed as ADHD/OCD and bipolar tendancies. His father (my ex-husband), also has Aspergers (undiagnosed) and my son is like him in EVERY way. I have seen the destruction that this condition has done to his father, who is now engaged to his 6th wife (I was #4). I have been alone in trying to get my son to work through his problems, and to teach him to treat others with respect. He hates my husband, and doesn't treat anyone at my home nicely, especially me. Now because his father "understands" him, he allows my son's behavior, never correcting it because he doesn't know the difference. His father treats everyone poorly so he doesn't see that my son's problems with school and me are a problem, and thinks I am over exagerating our son's bad behaviour even though his teacher and counselor are on my side.

In May my son was kicked out of school after screaming for an hour in the principal's office because he didn't want to do his math test. His father's new fiance took him for the day because I had just had back surgery and was out of time at work to be able to stay home with him (I had him Monday-Friday). When he came home that night, he was adament that I let him live with his father. When I talked to his father, he said my son just wanted to do fun things with me on the weekend so I could still keep him during the week and if we had something fun coming up on the weekend, I could have him then too. Two weeks later, my son tried again to get kicked out of school (since it worked so well the first time) however the principal and vice principal were not at the school that day, just his counselor. His counselor told him she knew what he was up to, and that no matter how long he screamed, he would not be sent home. She explained to him that he could finish his work that he was refusing to do, and return back to class to try and work on having a good day. When faced with the fact that he wasn't going home, he stopped screaming, did his work, and had a good day. She described their relationship after this as "strained" now.

Again, my son insisted he wanted to go and live with his father, and stay with me on the weekend. He again told that this would not happen.

Without getting into the legalities here, I need some help badly. He has now told everyone that I beat him on a daily basis, sometimes 2 or 3 times a day. I can count 2 times that he had been spanked in a 2 year period by me. Also during this process, in March he reported to his future step-mother that my husband was giving him daily spankings and she in reported us to CPS. When I received the call (2 days after being released from the hospital for my 3rd back surgery) I asked him what this was about, and he said it was about the nightly game that my husband played with him and my 12 year old son. This consisted of them both giving my husband a hug every night before bed. When my husband would release his hug, the boys would take off running, trying to get away before my husband could swat their butts. It was a game that he enjoyed, where he would usually circle back around and punch my husband in the leg, and run off again before he could get the playful swat on his butt. Well, one night he was not on his game and ended up getting tagged. He was pissed, to say the least, for losing that night and went to bed very angry. He stayed up all night obsessing over it, and I suspect went to his father's that morning before school and told his future stepmother that he was spanked the night before.

My oldest son (now 13) is extremely upset with him for lying about this and having CPS investigate it (it was closed out as unsustained). He's also not happy that his brother is telling lies about my "daily beatings". I should also note that my 9 year old was the only child placed by CPS, as my 13 yr old, and my husband's 9 yr old and 6 yr old were deemed to be "safe" (none of them have any problems with me....in fact they all told CPS that my son is not very nice, but I'm very loving).

Both his father and I are police officers. I was forced to retire in October because of my back problems after 21 years. This only compounds things because his father has "pushed" this case through the sheriff's department and now up the chain of command at the D.A.'s office.

I am at a loss as to prove how I did not do these things to my son, and was wondering if you have any ideas that could help me get someone that can help me in court. I have a CPS hearing coming up on December 16th, along with a hearing on December 19th as my ex filed for full custody. 

Aspergers Children: Medication & Side Effects

Kids who have Aspergers (high functioning autism) think and function very differently than other kids. In most cases, they need special help and coaching to function more successfully in their school and home environments. Treatments for Aspergers focus on helping kids manage in these settings.

Special education services, behavior therapy, speech therapy, and physical or occupational therapy may help the youngster learn to function more effectively and harmoniously with others. Training and counseling for parents and other family members also may be helpful.

There are no specific medications used to treat Aspergers. However, kids who suffer from anxiety, depression, hyperactivity, or obsessive-compulsive disorder as a result of Aspergers may benefit from medication to help with these symptoms. When these medications are prescribed, the youngster will be monitored by his or her health care provider at regular intervals throughout treatment.

To treat depression, drugs such as fluoxetine (Prozac®, Sarafem®) may be prescribed. It is important for parents to work closely with the youngster's health care provider and to fully understand how to monitor the youngster for side effects of antidepressant medication. In some kids and teenagers, these medications may increase suicidal thoughts and actions.

Other side effects that should be reported to the youngster's health care provider immediately include the following:

• Aggressive or impulsive behavior

• Agitation or restlessness

• Increased activity level

• Increased chattiness

• Increased depression or anxiety

• Increased irritability

• Panic attacks

• Sleep difficulties

• Strange moods or behavior changes

Kids should be monitored especially closely when they first begin taking antidepressant medication or if the dosage of the medication is changed. These medications should not be discontinued or the dosage changed without consulting a qualified health care provider.

To treat obsessive-compulsive behavior (OCD), clomipramine (Anafranil®) may be prescribed. Clomipramine is also an antidepressant and increases the risk for suicidal thoughts and actions in kids and teens. Patients should be monitored closely while taking this medication. Side effects that should be reported immediately to the youngster's health care provider include the following:

• Weakness

• Tremors

• Tiredness

• Seizures

• Muscle stiffness

• Loss of bladder control or difficulty with urination

• Increased heart rate

• Hallucinations

• Eye pain

• Depression

• Breathing difficulties

The following side effects, which generally are less serious, should be reported to the youngster's health care provider if they persist or cause particular discomfort:

• Sinus congestion

• Nervousness

• Loss of memory or difficulty concentrating

• Intestinal symptoms

• Headache

• Drowsiness

• Changes in appetite

These medications should not be discontinued or the dosage changed without consulting a qualified health care provider.

To treat inattentiveness or hyperactivity, stimulants such as methylphenidate (Concerta®, Ritalin®) or dextroamphetamine (Dexadrine®) may be prescribed. These medications can be habit forming and should be used with caution in patients who have heart problems or psychiatric conditions. The youngster's health care provider will take a careful health history and perform a medical evaluation before prescribing this medication.

Methylphenidate and dextroamphetamine can interfere with the youngster's growth and weight gain. If this occurs, the youngster's health care provider should be contacted right away. The following serious side effects also should be reported immediately:

• Vision problems

• Speech difficulties

• Shortness of breath

• Seizures

• Pounding heartbeat

• Numbness in arms or legs

• Muscle weakness

• Mood changes

• Hives

• Hallucinations

• Extreme tiredness

• Dizziness

• Distorted perceptions of reality

• Chest pain

The following side effects generally are less serious and should be reported to the youngster's health care provider if they persist or cause particular discomfort:

• Sleep problems

• Shakiness, nervousness, or restlessness

• Nausea or vomiting

• Loss of appetite

• Headache

• Gastrointestinal distress

• Dry mouth

These medications should not be discontinued or the dosage changed without consulting a qualified health care provider.

==> VIDEOS: Understanding Your Partner or Spouse on the Autism Spectrum

Aspergers in Grown-ups

More males than females have Aspergers (high functioning autism). While every man or woman who has the syndrome will experience different symptoms and severity of symptoms, some of the more common characteristics include:

• Adherence to routines and schedules, and stress if expected routine is disrupted
• Average or above average intelligence
• Difficulties in empathizing with others
• Hampered conversational ability
• Inability to manage appropriate social conduct
• Inability to think in abstract ways
• Problems with controlling feelings such as anger, depression and anxiety
• Problems with understanding another man or woman's point of view
• Specialized fields of interest or hobbies

The emotions of other individuals—

A man or woman with Aspergers may have trouble understanding the emotions of other individuals, and the subtle messages that are sent by facial expression, eye contact and body language are often missed. Because of this, a man or woman with Aspergers might be seen as egotistical, selfish or uncaring. These are unfair labels, because the affected individual is neurologically unable to understand other individual's emotional states. They are usually shocked, upset and remorseful when told their actions were hurtful or inappropriate.

Sexual codes of conduct—

Research into the sexual understanding of individuals with Aspergers is in its infancy. Studies suggest that affected individuals are as interested in sex as anyone else, but many don't have the social or empathetic skills to successfully manage adult relationships.

Delayed understanding is common; for example, a man or woman with Aspergers aged in their 20s typically has the sexual codes of conduct befitting a teenager. Even affected individuals who are high achieving and academically or vocationally successful have trouble negotiating the 'hidden rules' of courtship. Inappropriate sexual behavior can result.

Being a partner and parent—

Some affected individuals can maintain relationships and parent children, although there are challenges. Dutch research suggests that the divorce rate for individuals with Aspergers is around 80 per cent.

A common marital problem is unfair distribution of responsibilities. For example, the partner of a man or woman with Aspergers may be used to doing everything in the relationship when it is just the two of them. However, the partner may need practical and emotional support once children come along, which the individual with Aspergers is ill equipped to provide. When the partner expresses frustration or becomes upset that they're given no help of any kind, the individual with Aspergers is typically baffled. Tension in the relationship often makes their symptoms worse.

The workplace—

The Commonwealth Department of Family and Community Services, in conjunction with a range of specialist employment services, help to place individuals with disabilities in the workforce. A man or woman with Aspergers may find their job opportunities limited by their disability. It may help to choose a vocation that takes into account the individual's symptoms, and plays to the strengths rather than the weaknesses. The following career suggestions are adapted from material written by Temple Grandin, who has high-functioning autism and is an assistant professor at Colorado University, USA.

Careers to avoid—

Careers that rely on short term memory should be avoided. Examples include:

• Air traffic controller
• Cashier
• Receptionist
• Short order cook
• Taxi dispatcher
• Waitress

Career suggestions for visual thinkers—

Suggestions include:

• Appliance repair
• Building maintenance
• Building trades
• Commercial art
• Computer programming
• Drafting
• Equipment design
• Handcraft artisan
• Mechanic
• Photography
• Video game designer
• Webpage designer

Career suggestions for those good at mathematics or music—

Suggestions include:

• Accounting
• Bank teller
• Computer programming
• Engineering
• Filing positions
• Journalist, copy editor
• Mathematician
• Physician
• Piano (or other musical instrument) tuner
• Statistician
• Taxi driver
• Telemarketing

Common issues for partners—

An adult's diagnosis of Aspergers often tends to follow their child's diagnosis of autism spectrum disorder. This 'double whammy' can be extremely distressing to the partner who has to cope simultaneously with both diagnoses. Counseling, or joining a support group where they can talk with other individuals who face the same challenges, can be helpful. Some common issues for partners include:

• A sense of isolation, because the challenges of their relationship are different and not easily understood by others.
• After accepting that their partner's Aspergers won't get better, common emotions include guilt, despair and disappointment.
• Difficulties in accepting that their partner won't recover from Aspergers.
• Failure to have their own needs met by the relationship.
• Feeling overly responsible for their partner.
• Frequent wondering about whether or not to end the relationship.
• Frustration, since problems in the relationship don't seem to improve despite great efforts.
• Lack of emotional support from family members and friends who don't fully understand or appreciate the extra strains placed on a relationship by Aspergers.

Depression—

Like all mental conditions which cause people to behave differently from the norm, Aspergers is associated with depression. Depression can be caused by a number of things including:

• Anxiety and Panic Attacks
• Fatigue or Tiredness due either to the condition that all to the treatment of the condition
• Guilt or regret over past actions/outburst/meltdowns
• Miscommunications / Misunderstandings
• Overwhelming feelings and thoughts
• Social troubles because you do not seem to fit in

Recent research suggests that depression is common in individuals with Asperger syndrome with about 1 in 15 people with Aspergers experiencing such symptoms. There are a number of factors which would influence the onset of depression. These include as follows:

• Difficulty reading of other people's body language expressions and tone (leading to misunderstandings)
• Obsession with completeness, order and patterns
• Obsessive compulsion
• Unusual world view/Paradigm
• Very good long term memory

Things to remember—

A man or woman with Aspergers often has trouble understanding the emotions of other individuals, and the subtle messages that are sent by facial expression, eye contact and body language are often missed. Research suggests that the divorce rate for individuals with Aspergers is around 80 per cent. Social training, which teaches how to behave in different social situations, is generally more helpful to a man or woman with Aspergers than counseling.

==> VIDEOS: Understanding Your Partner or Spouse on the Autism Spectrum

Examples of Schedules for Children on the Autism Spectrum

A daily schedule benefits Aspergers (high functioning autistic) children by providing the structured environment that is critical to their sense of security and mastery. If you spend any time in a kindergarten or elementary school, you will marvel at the teacher's ability to organize the kid's day.

In this post, we will look at the following:

• Analyzing The Day 
• Brainstorming What You Want
• Writing Everything Down 
• Following the Schedule for a Week 
• Tweaking the Schedule
• An in-depth example of a schedule

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Diagnosing "Asperger's Syndrome" in Children

When moms and dads seek help for their youngster, they encounter varied opinions – he'll outgrow it, leave him alone, it's no big deal, he just wants attention, and so on. Many professionals try to work with the Aspergers (high-functioning autistic) youngster as if his disorder is like other developmental disorders, but it is quite different. In most cases, there is a great misunderstanding by many people of the needs of these special individuals.

For the inexperienced, recognizing the six defining characteristics of Aspergers as outlined in the introduction can be difficult, and misdiagnoses are quite common. This is further complicated by the fact that an Aspergers youngster or teen has many of the same characteristics found in other disorders. These various characteristics are often misinterpreted, overlooked, under-emphasized, or over-emphasized. As a result, a youngster may receive many different diagnoses over time or from different professionals.

For example, if a youngster with Aspergers demonstrates a high degree of attention deficit hyperactivity disorder (ADHD) -- that might be the only diagnosis he receives. However, this is a common characteristic of Aspergers kids. The same holds true if obsessive or compulsive behaviors are displayed – the youngster gets labeled with obsessive-compulsive disorder (OCD) instead of Aspergers. The following traits are also commonly seen in those with Aspergers in varying degrees. However, just because these traits are there, it doesn't mean that the youngster should be diagnosed differently; these traits should be noted as significant features of Aspergers:

• Anxiety

• Difficulty with pragmatic language skills

• Hyperlexia (advanced word recognition skills)

• Motor deficits

• Oppositional defiant disorder (ODD)

• Sensory difficulties

• Social skills deficits

As mentioned, professionals who do not have much experience with Aspergers have a hard time identifying the defining characteristics. For example, social skill deficits may be noted by a professional, but then they are often downplayed because the youngster or adolescent appears to be having appropriate conversations with others or seems to be interested in other people. But with an Aspergers youngster, the conversations are not generally reciprocal, so the youngster must be carefully observed to see whether or not there is true back-and-forth interaction.

Also, many Aspergers kids have an interest in others, but you need to clarify if the objects of their interest are age appropriate. Do they interact with peers in an age-appropriate fashion? Can they maintain friendships over a period of time or do they end as the novelty wears off? These are the types of observations and questions that must be asked in order to ensure a proper diagnosis.

Another example of an overlooked area is the narrow routines or rituals that are supposed to be present. This does not always manifest as obsessive-compulsive behavior in the typical sense, such as repeated handwashing or neatness, but rather in the insistence on the need for rules about many issues and situations. These kids may not throw tantrums over their need for rules, but may require them just as much as the person who has a meltdown when a rule is violated. In essence, there is no single profile of the typical Aspergers individual. They are not all the same, as you will see in later chapters.

Because of these subtleties and nuances, the single most important consideration in diagnosis is that the person making the initial diagnosis be familiar with autistic spectrum disorders – in particular, Aspergers. They should have previously diagnosed numerous kids. To make a proper, initial diagnosis requires the following:

1. An evaluation by an occupational therapist familiar with sensory integration difficulties may provide additional and valuable information.

2. It is important to include a speech and language evaluation, as those with Aspergers will display impairments in the pragmatics and semantics of language, despite having adequate receptive and expressive language. This will also serve to make moms and dads aware of any unusual language patterns the youngster displays that will interfere in later social situations. Again, these oddities may not be recognized if the evaluator is not familiar with Aspergers.

3. The youngster should see a neurologist or developmental pediatrician (again, someone familiar with autistic spectrum disorders) for a thorough neurological exam to rule out other medical conditions and to assess the need for medication. The physician may suggest additional medical testing (blood, urine, fragile X, hearing).

4. You and your youngster should have sessions with a psychologist where your youngster is carefully observed to see how he responds in various situations. This is done through play or talk sessions in the psychologist's office and by discussions with both moms and dads. The psychologist may ask you to complete checklists or questionnaires to gain a better understanding of the youngster's behaviors at home and/or school. If the youngster is in school, the psychologist may call the youngster's teacher or ask her to complete additional checklists. The checklists or questionnaires used should be ones that are appropriate for individuals with Aspergers. It is important to determine the IQ level of your youngster as well. An average or above-average IQ is necessary for a diagnosis of Aspergers.

Diagnosis of Autism and Resultant Parental-Grief

Question

I have a son recently diagnosed with ASD [level 1] and am in denial about my family situation, but I want to start to take some control back ...where should I start?

Answer

The feelings you are experiencing are completely normal. A diagnosis of ASD level 1 (high functioning autism) brings with it a mourning process in some cases. Every parent faced with a life-changing situation will need time (some more than others) to sort out the emotions.

Denial is natural. Even if the diagnosis has been a long time coming, you may still feel like someone ripped the rug from beneath your feet. Your first reaction, "not my child," is not just common but expected. Be aware that there are several steps in the mourning process. Anger and depression are other steps of mourning that can come at any time.

The fact that you sense the need to take control shows that you are moving through the process. You are reaching acceptance. Your child needs you and you want to offer him the very best support possible. Here are some ideas you can use to regain control of your home life.

* Finding support is crucial. Autism support groups are a great place to connect with other parents. You do not have to go through this trial alone. Gathering with others living with ASD can give you the strength you need to find acceptance.

* Arm yourself with information on the disorder. Read books, consult specialists, and contact research organizations. Knowledge equals power. When you know what to expect, your situation becomes smaller than you are, allowing you to conquer what once seemed too big.

* Work together as a family to change your circumstances. Do the things you have been avoiding because of the diagnosis. Get out of the house together, enjoy each other, and don’t worry about what other people think or say.

* Consider going to a counselor. Sometimes we need a neutral, caring professional to talk with about our situation. Couples counseling can also help. Having a special needs child can be tough on a marriage. Group therapy for the family can get everyone on the same page, united and ready to move forward.

* Now you can get down to the business of treatment. Children with ASD usually do very well with a little assistance. Discuss treatment options with your child’s physician, psychologist, and school special education team.

You will find that taking action, even if you have to start out with baby steps, will help you get out of that hole called denial and have you moving along toward a brighter future.

==> Click here for more information on parenting kids on the autism spectrum...

More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book

==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

 

COMMENTS:

•    Anonymous said... Don't forget your extended support system like the child's grandparent or very close friends. They can be a good sounding board.

•    Anonymous said... I remember when my son was diagnosed with Aspbergers. I cried all day, then the next day I read everything I could on Aspbergers. My husband and I fought a lot after he was diagnosed. He felt like nothing had changed, and we should treat him the same way we did our daughter with punishment for bad behavior, ect. Now, after 3 years I think he finally understands. It finally feels like we are working together not against each other when it comes to our son. It's hard, I felt like I was the only one supporting our son and accepting him for who he really was.

•    Anonymous said... I think there is always someone in our lives who goes into denial about our children. For me it was my ex husband (her father) and my own mother. I got lots of "she'll grow out of it" "you worry to much" to even having it suggested I suffered from Munchhausen. They did finally come around and she is now the apple of the families eye but it does take time for some people to take it all on board. As the parent who is dealing with it face to face we don't have that luxury. Burying our heads in the sand does not get our children the help they need

•    Anonymous said... It's really hard and I know how you feel. My ex husband blamed "my" parenting for our sins behaviour. For years I had to fight not only the professionals but him...right up to the point I got the diagnoses. I'm still not able to give any kind if medication as his dad won't allow it. It's still not 100% but we are now working together. It took about 5 years. Good luck and I hope your husband comes around as you need the support x

•    Anonymous said... Janette remember my entire years of experience bringing up a child that was just labelled "a naughty boy" and the only thing that got us through the entire ordeal was our love for him and Gods help without us knowing it. You too will "get through it" there is much help available now, not so in the 1960s and you know this "child" so you know what i'm telling you is positive proof that one can handle these situations. Love Gillianx

•    Anonymous said... My "aspie" is 25 and he still needs me as his advocate. The degree has changed, but not the basic need. We're in this for the long haul! He brings so much joy , to those willing to take the time and explore the depths.

•    Anonymous said... My aspberger's child also has multiple rare diseases. My husband is supportive I'm his own way but not always in the me or our son need. We both know he loves us but he doesn't handle " sick " well and he is very military minded and has a hard time understanding that our son is not the same child that he was growing up.

•    Anonymous said... my son is nearly 8 and was diagnosed at 5..his dad and i separated a year later..he is still in denial and blames our sons behavior on my parenting,i know my x is also asd and his 2 sons from a previous relationship,all in denial...it's so hard..i love my son dearly and find it so difficult standing alone as his advocate sometimes without any support..his dad does not support him financially,his relationship with my son is not consistent but hey we do so much better without his constant criticism,negative energy,and mood swings,angry outbursts and control...life has been much more relaxed and happy without him...yeyyyy

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