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How Parents Can Help the Oppositional Child with High-Functioning Autism

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Revealing Your ASD Child's Diagnosis to Other Family Members

"How should we go about telling my parents (and other family members) that our son has been diagnosed with autism (high-functioning)? They have always thought his behavior was odd. We believe strongly they should know so they can help to one degree or another with his special needs."

Disclosing your youngster's diagnosis to other family members (e.g., grandparents, aunts and uncles, cousins, etc.) is a sensitive issue. Divulging this information should occur in partnership with your high-functioning autistic youngster in order to determine how much - or how little – extended family members need to know. 

In weighing your decision, ask yourself the following:
  • Can other family members be trusted to honor this disclosure?
  • Can they treat the subject with sensitivity and respect?
  • Can I foresee their reactions?
  • How often do I see these relatives?
  • If there's potential for misunderstanding and conflict, how will I handle it?
  • If they are intrigued and interested, how will I handle that without breaching my youngster's trust about disclosure (i.e., sharing more than what we agreed on)?
  • If I see them infrequently (e.g., only once or twice a year), is it important to say anything?
 
In the end, the pros of disclosure may outweigh the cons, but you and your youngster may decide that it's simply no one's business. Many high-functioning autistic (HFA) kids can skillfully “pass” and “blend in” for the duration of a day with extended family such that any differences may go completely unnoticed given all the other distractions.

If you decide it’s appropriate to share information about your youngster's diagnosis, you will want to be prepared to deal with the potential for other family members to show their ignorance (they may simply need to be educated about the condition), overcompensation, or discomfort. You will need to consider how best to control any situations that arise from over-reactions should they express concern about the entire family being stigmatized by the diagnosis.

For example, they may:
  • become increasingly distant due to their own issues in processing the information (e.g., they may only want to spend time with your other kids)
  • confuse HFA with severe Autism or some other diagnosis
  • exclude you and your youngster from future family get-togethers
  • express excessive and unreasonable concern (e.g., they may think that ASD is life threatening, contagious, etc.)
  • focus on a cure or a “quick fix”
  • offer assurances and support
  • be overly cautious (e.g., trying not to do or say the wrong thing)

So, be prepared for the full range of reactions from extended family.
 

Additional tips:
  1. Agree on how long you will attend family gatherings – and stick to it!
  2. Be certain to locate an area where your son can retreat, undisturbed by others, to recuperate during much-needed “downtime.” Show him where this “safe place” is, and assure him that he may use it at will.
  3. Check with your family members in advance to find out what materials your son may access with their permission.
  4. Ensure that your son has some materials related to his special interest (e.g., iPod, iPad) to quietly indulge in if he feels overwhelmed.
  5. Make sure he knows where books, TV or videos, crayons, pen or paper, and Internet access can be found for solitary downtime activities.
  6. To help your son in surviving a day or more with extended family, you will want to arm him with self-advocacy and coping skills prior to attending family get-togethers.

Sharing information about your youngster’s disorder with neighbors, acquaintances, or total strangers in your community is no different than the process of determining when, where, and how to share the same information with extended family. Weigh carefully the pros and cons that may come from disclosing this information. 
 
Ideally, your HFA child should be encouraged to be his own advocate as early as possible in order to decide how much or how little to tell others about his condition (if it's even necessary at all).
 
 
 

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When ASD Runs In The Family

Autism spectrum disorder (ASD) is often an invisible disorder. Because it is so subtle, it can go undetected. It is very likely that there many adults on the autism spectrum living and working in your community who are un-diagnosed.

It is hypothesized that certain types of individuals with “ASD-like” traits (e.g., smart, but antisocial) attract one another, leading to such couples having kids with the same traits – but magnified due to an overload of genes. It is estimated that the disorder correlates with a genetic component more apparent than other disorders.

About 33% of fathers of kids with ASD show signs of the disorder themselves – and there appear to be maternal connections as well. This information increases the likelihood that it may be present in your own family. Think about your youngster's lineage. Are there - or were there - brilliant and creative, but blatantly eccentric, family members?

Depending on your personality and the strength of your coping skills, this may be either a relieving or a disturbing revelation to ponder. If the diagnosis is received with a negative outlook, you may slip into a period of guilt or self-condemnation. You may even find yourself unjustly bearing the brunt of blame induced by your partner.

Moms and dads of kids on the autism spectrum do tend to reflect more stress tied to anxiety and depression when compared with moms and dads of neurotypical (i.e., non-autistic) kids. But never forget that the disorder is a naturally occurring phenomenon – and it is no one's fault. So, avoid believing pessimistic, self-defeating “autism stereotypes” in favor of focusing on the positives associated with this challenge.

One father reported that learning of his son’s diagnosis was “liberating,” because it wasn't until then that he realized he, too, had the disorder. He defined the experience as “reaching the end of a race to be normal.” At long last, he came to a point of acceptance, and was now in a position to voice his “quirks” using the framework of ASD. This father’s journey was challenging, but fortunately, his wife was very supportive throughout. However, not all families deal the experience of uncovering the disorder in themselves as well as this.

There are married couples that simply don’t do well under real (or perceived) pressures of raising a youngster with a different way of being. Families of kids on the spectrum are no exception. Educate and inform yourself - and your husband or wife - early on. Connecting with other moms and dads in similar situations can help cast out destructive, stigmatizing myths and stereotypes.

If your child has been diagnosed with ASD, and you suspect that you or your partner also has the disorder, consider the following suggestions:
  1. Arm yourself with knowledge and gather as much information as you can from the Internet or the resources.
  2. Avoid the “blame game” (e.g., “It's your fault our son is this way.”).
  3. Avoid the “guilt game” (e.g., “It must be my fault.”).
  4. Because you are both still assimilating your youngster's experience, allow yourself and your partner time to process this new twist on the situation.
  5. Broach the subject with your partner by asking leading questions that will provide opportunity for reflection (e.g., “Do you think our son gets his love of history from your side of the family or mine?”).
  6. Discuss marriage counseling or other professional supports with your partner.
  7. Offer to research the disorder with your partner or to provide your partner with whatever literature you've already gathered.
  8. The conversations you have about it in the family should build slowly and incrementally.

Understanding ASD as a probability for you and your partner will be a learning experience for the both of you. It can create marital stress and chaos, or it can be an opportunity to strengthen and enhance your relationship. It’s your choice!

As one parent stated, "How interesting. My husband and I have agreed that we share a preponderance of traits and that is probably what attracted us to each other. Thankfully, we view our son's difference as a positive. I love that he is only seven and has taught me about the history of World War II. He is definitely a challenge, but we love him for who he is and not is spite of it."  
 
 
 
 

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Sibling Aggression in Children with High-Functioning Autism

Question

My son is an 8 yr old fraternal twin. He was diagnosed with ADHD and generalized anxiety disorder in the summer of 2018 and was diagnosed with autism (high functioning) in the summer of 2019. He is the oldest of 5 boys ranging from 8 to 14 months. My question is: How do I keep him from physically attacking the baby when he gets frustrated? This has only been happening physically since September of last year, but verbally has always said he hates the baby, wants the baby to die, etc. since he was born. I know it has to do with him feeling he's not getting the attention he wants, but with 5 kids, the youngest being of an age that is very demanding, I don't always get to focus on the 8-yrear-old as much as he would like.

Answer

Parents of a large family (i.e., 3 or more children) have to deal with personality clashes, attention tactics, and multiple mini-battles, and eventually come to realize that sibling rivalry is one of the inevitable annoyances of having kids. Moms and dads must learn that the degree of sibling rivalry, and whether or not it has long-term positive or negative consequences, depends on what they do about it. 

Here are several ways that you can help your older child be friends with the younger ones:

1. If possible, start most days with "special time" with your oldest child. Often times, starting the day with 15 minutes of “special time” can ward off angry feelings in the child toward the new baby – and it is a good investment for the rest of the day.

2. When your older child says things like, “I hate the baby!” …always come back with the comment, “The baby loves you – and he looks up to you because you’re his BIG brother” (emphasis on “big”).

3. Promoting sibling harmony requires a bit of parental marketing. You may think that your older youngster should be thrilled to have gained a live-in friend, but kids are often preoccupied with what they've lost. They're not so keen on sharing their toys, their room, and most importantly, their mom and dad with someone else. Turn this around to help the normally egocentric youngster to imagine, "what's in it for me?" Use the term "special time" (you'll get a lot of marketing mileage out of the word "special"). The attention your older youngster apparently has lost from mom, he gains from dad. Arrange a lot of one-on-one outings for your older youngster (e.g., time at the park), so the youngster realizes that even though he's lost some time with mom, he's gets more special time with dad, grandparents, or other caregivers.
 

4. What bothers your older child the most is sharing you with the new baby. Since the concept of sharing is foreign to the child (as mom is his most important "possession"), it's unlikely that you'll be able to sell him on the concept of “sharing mother.” It sounds good to say that you'll give your older youngster equal amounts of your time, but in practice that's sometimes unrealistic. New babies require a lot of maintenance, and you don't have 200 percent of yourself to give. So what can you do? Wear your infant in a baby sling, which will give you two free hands to play a game with the older one. While feeding baby, you can read a book to the older sibling. Spending a lot of time sitting on the floor increases your availability to your child while your baby is in-arms or at-breast. As baby gets older, place him in an infant seat, or on a blanket on the floor to watch you play one-on-one with his big brother. This entertains two children with one parent.

5. While kids are created equally, it's impossible to treat them that way all the time. In their desire to prevent sibling squabbles, moms and dads strive to do everything the same way for all their kids, whether it's buying pajamas or selecting a college. Kids aren't the same; you don't need to behave as if they are. Make moment-by-moment decisions, and don't worry about the long-term consequences if you give one youngster more strokes than the other on any particular day.

6. In the future, as much as you can, try to divide chores equally among kids according to their ages and capabilities, yet don't beat yourself up trying to be 100 percent fair. You can't be. Remember, you are preparing your kids for life, and life does not treat people fairly and equally.

7. It's unrealistic for moms and dads to claim they never play favorites. Some parents and some kids have personalities that clash – others mesh. Some kids bring out the best in their parents – others push the wrong buttons. The key is to not let your kids perceive this as favoritism. Better yet, make them all feel special. If your youngster asks you a question, "Who do you love more – me or Johnny?" …give the politically correct answer: "I love you both in special ways."

8. Children are so caught up in their own emotions that they don't hear what you're saying. Show that you understand what your oldest child is going through by echoing his feelings (e.g., "Bobby, you feel like Jimmy is getting too much attention and that I love him more than you. But that’s not true. I love all my children equally.”).

9. Just for future reference (in case you have another child), get your older youngster acquainted with the new baby before birth. Show him pictures of a baby growing in mommy's belly. Let him pat the baby beneath the bulge, talk to baby, and feel baby kick. Replay the older youngster's babyhood. Sit down with your youngster and page through his baby photo album. Show him what he looked like right after birth, coming home from the hospital, nursing, and having his diaper changed. By replaying the older youngster's baby events, he will be prepared for a replay of his new brother or sister.
 

10. Make the older sibling feel important. Savvy visitors to your home (who themselves have survived sibling rivalry) may bring along a gift for the older youngster when visiting the new baby. In case this doesn't happen, keep a few small gifts in reserve for the older child when friends lavish presents and attention on the new baby. Let him be the one to unwrap the baby gifts and test the rattles. Give him a job in the family organization.

11. As the children grow up, minimize comparisons. This is also the basis for feelings of inferiority, which encourages undesirable behavior among siblings. Praise your older youngster for accomplishments in relation to himself and not in comparison to a sibling. Each youngster can feel he is special in the eyes of his parents. Kids are constantly being compared. Most of their life they will be rated on their performance (e.g., grades in school, batting order on the baseball team, races, games among themselves, etc.). The home is the only organization left that values a youngster for himself and not in comparison with others. So, avoid comments like, "Why can't you behave like your brother?"

12. “Disciplining” siblings is not “punishment,” rather it is giving them the tools to succeed in life, and one of the most important tools that will have life-long social implications is the quality of empathy. Help your kids learn how to get behind the eyes of another person and think first how their behavior is going to affect that other person. You want your kids to think through what they're about to do. A lack of empathy is the hallmark of sociopathic relationships between adult siblings.

13. It's hard to hate - and hit - a person you care about and who cares about you. Siblings are not born adversaries, certainly not unless moms and dads permit it. You can nurture patterns of life-long friendship among your kids by helping them find constructive ways to be sensitive to each other. Learning to live with a sibling is a youngster's first lesson in getting along with other kids. Your job is not to control how siblings relate, but rather to shape these relationships.

14. When to step in as a referee and when to remain a bystander is a round-by-round judgment call. Sometimes “letting kids be kids” or giving them reminders is all that is necessary. One parent’s immediate fight-stopper was, "You're disturbing my peace." This worked because she had already planted the idea that, in crowds, one respects the peace of others.

15. Sometimes you're too tired to play amateur psychologist and you just want to switch into “police mode.” Do it and don't worry about permanently damaging your youngster's psyche. Give clear messages about how you expect your children to behave toward one another before arguments become a way of life. Offer calm verbal reminders (e.g., "that's a put-down") as one sibling belittles the other, or issue a look that says "don't even think about it!" Head off fights at the first squabble, before they get out of hand.

16. Be watchful for aggressor-victim roles. Your job is to protect your kids, even from one another. How siblings behave toward one another is their first social lesson in how to behave in a group. In your family, set certain "maximum allowable limits," which are behaviors that you insist upon – and the kids are taught to respect these. 
 

17. When one of the younger siblings gets hurt, ask the older one to help attend to the injury. Even give him a job title (e.g., "Dr. Billy, you hold Michael’s leg while I wrap it" …or "Please be my assistant and help me put the bandage on Johnny's cut"). The "doctor" will most likely muster up compassion for the "patient."

18. If your older child is a born clown, capitalize on that asset and encourage the clown to entertain the baby, such as the older youngster humoring the baby while you get ready for work.

19. When the kids get a little older (which will happen sooner than you think), encourage your oldest youngster to teach a skill he is proficient in to his siblings (e.g., get your older son, who may be an avid baseball player, to show his younger brother how to hit and catch a ball).

20. Since your kids are several years apart, give the older youngster some supervised responsibility for the younger ones. This will motivate the older brother to care, and the younger sibling will sense this.

21. Sometime during middle childhood (ages 5 through 10), impress upon your kids what "brother" really means. Kids sense that "blood is thicker than water." Brothers are a sort of live-in support system. Here's the message to give your kids: "Your brothers will ultimately be your best friends. Once your other friends have moved or drifted away, your family friends will always be there when you need them. Friends come and go, but siblings are forever."

22. Try sleeping together occasionally. Kids who sleep together at night usually play more peacefully together during the day.

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Attention Problems in Children with High-Functioning Autism




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