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Teaching Your Child on the Autism Spectrum How to Identify When He's the Victim of Bullying

Question

I have an 11 year old boy diagnosed with high functioning autism. He started middle school and we're having a very difficult time. Academically he is starting to settle in and is in advanced classes with a B average. However, he is having behavior issues particularly in settings like lunch time, PE, etc. He is being bullied but nothing is being done. The school says they don't see any bullying. Last week the PE teacher left the class to "free play" allowing my son to use metal pole to hit a tennis ball. A large boy (150lbs, my son weighs 60) hit my son in the face with a dodge ball knocking his glasses off (this same child has continuously teased and taunted by son all year), my son ran after him (of course rod still in hand) and there the story gets murky depending on who you talk to - the teacher was still no where around. My son had a skinned up elbow and bruising, apparently so did the other child - not confirmed. The teacher admitted he saw my child with the pole but didn't intervene. Now the school is trying to kick my son out. We have an IEP that might help but this is charter school (still state funded). Anyone with any suggestions?


Answer

A number of moms & dads have discovered that their kids with High-Functioning Autism (HFA) or Asperger's (AS) are being bullied, and that a lot of the time this is leading to different types of "exclusion" for their youngster. So, as well as the trauma and upset of being bullied - the chances are that the youngster is facing sanctions at the school as well.

Bullying is an bad problem with any youngster, but the needs of a youngster on the autistic spectrum make this even worse. The lack of understanding of social cues, difficulties in communicating the problems to others, interests and hobbies that often seem a little "goofy" and make the youngster an easy "target" - to name but a few.

As we all know, the multi-sensory and often very hectic nature of schools can be difficult enough for kids on the autism spectrum - so they can really do without having to contend with the extra "attention" of playground bullies.

Obviously, it is important to ensure that your youngster has some kind of feedback loop to a trusted person so that any signs of bullying can be picked up. Whether this is verbal, through some kind of symbol or PECS board, or more creative like "puppet talk" for youngsters, it needs to be crystal clear for the youngster what is and what isn't acceptable - and then what they should do about it.

This is easier for things like physical bullying - as the more subtle types of verbal bullying can be more difficult to explain. But generally your youngster's behaviors will be a key to something being not right, and then you have the [often difficult ] task of working out what is happening from there.

If you do have the ear of your youngster's teacher, it is worth raising this issue with them and finding out what mechanisms they have in place for your youngster to communicate if they are being bullied. There is a useful "bullying worksheet" [see below] that you can use to look at the issues around bullying with your youngster.

Bullying is sadly something that all moms & dads with a "special needs" child need to think about. This involves looking at different ways in which you can monitor him/her to check if something is going on so that you can take action.

Often times, the child with HFA or AS does not even know that he's the victim of bullying. He may simply assume that's how kids treat other kids. Thus, be sure to educate your child on this subject. Start by sharing the following worksheet with him or her:


BULLYING WORKSHEET—

Here is a list of some of the ways other kids might act around you. Read each act. Is the child being a friend or not? Or are you just not sure? Remember, a friend would be kind to you. If the other child is being mean to you, they are not being a friend, no matter what they say.

A kid in your class at school:

• Asks to sit next to you at lunch, but then hides your lunch when your back is turned and won’t give it back when you tell him the joke is over.

• Asks you to take your clothes off so he can see you naked and says “if you were a real friend, you’d be willing to do what I ask. It’s no big deal.”

• Let’s you be part of his circle of friends as long as you do his homework for him every day, even when you’re tired, because “you’re so much better at it than I am,” while he sits around chatting with his friends.

• Says “hey, let’s be friends,” and begins to play with you, but every time his buddies come around, he acts like he doesn’t know you and says things to make the other kids laugh at you.

• Says “that’s my seat” at lunch and tells you to get out of it, when no one has assigned seats at lunch.

• Says he’ll be your friend for a dollar.

• Says he’s thirsty and asks you to buy him a soda from the store. When you buy it, he says “thanks, you’re a real friend. Tomorrow I’ll buy the sodas.” And tomorrow he buys you one.

• Says he’s thirsty and asks you to steal a soda for him from the store to help him out. When you steal it, he says “thanks, you’re a real friend.” He keeps hanging out with you, but asks you to steal things here and there, from time to time, for him.

• Says he’s your friend, plays with you, and then asks to borrow a dollar, promising to pay it back tomorrow (and he does pay it back).

• Says you can only be in my club if you pick up all these sticks alone while the rest of us watch you. When you do it, he and the other club members sit around telling you what to do and laugh at you. They said the sticks were for a fort, but no fort is ever built.

• Says you can only be in my club if you pick up all these sticks with me, so we can build a fort together. He then joins you picking up the sticks, and builds a fort with you.

• Says you can’t be in the club because it’s for teenagers and you’re only 9.

• Says you can’t be in the club because your name is Michael.

NOTE: If the other kid does any of these things listed above - he is NOT being a friend. He or she will have to earn your trust back before you should trust him/her again.


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 COMMENTS:

•    Anonymous said… Been there.... Done that.... As a parent of as child on the spectrum and a special education worker I totally get this. Lunch and PE are non structured times and two of the hardest times for even typical kids. If you feel the school isn't listening to your concerns I recommend getting an advocate. You can even find them for free. Watch the schools tune change.
•    Anonymous said… I moved my son to a school that listens to children. Made an incredible amount of difference.
•    Anonymous said… I'd be inclined to switch schools
•    Anonymous said… I'd go and observe for yourself. Volunteer in the lunch line or recycling duty..or whatever gets you a glimpse into his day. Then go to principal w concerns. Hopefully the district has a peer buddies program in place or something similar.
•    Anonymous said… Is there a possibility of going to a computer room or supervised play area for that time. My son does this as well as the library and he no longer gets bullied.
•    Anonymous said… It's really a bigger effort for autistic/aspergers children that needs to be addressed with the teaching universities. I took E C-4(which is up to 4th) and had to stop before I could start my internships due to my now 10 year old aspergers daughter's b...See More
•    Anonymous said… Problem still doesn't go away.....is a big change which can be stressful in itself.
•    Anonymous said… Same here in UK. But my son's new school go above and beyond and train staff in all different areas to learn more about additional needs, so moving for him was a great idea.
•    Anonymous said… Unless ur a special ed teacher. Of course all districts are different. Some are great. Just hard to find them.
*   Ken said... I SO hear you! This is exactly what happened with my son. We ended up putting him in online school so he could study without being bullied. He recently graduated and has gone on to college now. I hope you find what works for your boy.


Post your comment below...

Angry Outbursts in Teenagers on the Autism Spectrum

Question

My son is 13 years old; he has been previously diagnosed with high functioning autism, adhd and obsessive compulsive disorder. My son lived with his father for six months while I recovered from a nervous breakdown. When I got custody of him again he was very aggressive, would hit his 6 year old brother and call him names and put him down. My ex gave him no discipline from what I gather from my son, he told me he had to raise his six year old brother for them six months. He blames me for the divorce between me and his father. I have bipolar and he doesn’t seem to understand that I am different too and that I need him to cooperate and help me as much as possible. He’s too focused on his ocd, his adhd and his autism and he uses all of these things for an excuse for all of the negative behaviors he is having.

In the last past year he has changed 3 schools, and moved to a new area, which he says he hates. I’m wondering if he will adjust to the new setting and new rules that I have for him. I think some of it is the teenage years; he uses profanity often and shows aggression to get his way no matter what the consequences. I want to help my son but I don’t know what to do. His brother is totally opposite; he does what I tell him and goes by all of the rules.

How do I get my son to show me respect and work on his attitude without so many angry outbursts which could get me evicted from our apartment? I go with the flow to keep things as quiet as possible but things get worse, if I threaten to take his games he threatens and has went as far as walking out of the door leaving me to find him. Am I dealing with autism, Adhd, compulsive disorder or just an unruly teenager? I think it is all of them. I was wondering if there is an autism training center that could come in and work with my son. I am desperate at this point and will do anything to help my child to stay on the right track, I worry that he is headed for suicide or prison. I am very concerned for him, he’s happy as long as I cater to him, but when I stand up for what I think is right he rebels and I pay dearly. Please help.

Answer

Parents of High-Functioning Autistic (HFA) and Asperger's (AS) children/teens will face many behavior problems (e.g., aggression and violent behavior, anger, depression, and many other problematic behaviors). Part of the problem stems from (a) the conflict between longings for social contact and (b) an inability to be social in ways that attract friendships and relationships.
 

HFA and AS adolescents possess a unique set of attitudes and behaviors:
  • Adolescents with the disorder tend to be physically and socially awkward, which makes them a frequent target of school bullies. Low self-esteem caused by being rejected and outcast by peers often makes these adolescents even more susceptible to “acting-out” behaviors at home and school.
  • These teenagers rely on routine to provide a sense of control and predictability in their lives. Another characteristic of the disorder is the development of special interests that are unusual in focus or intensity. These young people may become so obsessed with their particular areas of interest that they get upset and angry when something or someone interrupts their schedule or activity.
  • Adolescents on the autism spectrum often suffer from “mindblindness,” which means they have difficulty understanding the emotions others are trying to convey through facial expressions and body language. The problem isn’t that adolescents with Aspergers can’t feel emotion, but that they have trouble expressing their own emotions and understanding the feelings of others. “Mindblindness” often give parents the impression that their HFA or AS teen is insensitive, selfish and uncaring.
  • They can be extremely sensitive to loud noise, strong smells and bright lights. This can be a challenge in relationships as adolescents on the spectrum may be limited in where they can go on, how well they can tolerate the environment, and how receptive they are to instruction from parents and teachers.
  • Social conventions are a confusing maze for adolescents with the disorder. They can be disarmingly concise and to the point, and may take jokes and exaggerations literally. Because they struggle to interpret figures of speech and tones of voice that “neuro-typicals” naturally pick up on, they may have difficulty engaging in a two-way conversation. As a result, they may end up fixating on their own interests and ignoring the interests and opinions of others.

Focus on prevention and on helping your son to develop communication skills and develop a healthy self-esteem. These things can create the ability to develop relationships and friendships, lessening the chances of having issues with anger.

Anger is often prevalent in HFA and AS when rituals can't get accomplished or when the teen's need for order or symmetry can't be met. Frustration (over little things that usually don't bother others) can lead to anger and sometimes violent outbursts. This kind of anger is best handled through cognitive-behavioral therapy that focuses on maintaining control in spite of the frustration of not having their needs met.

Rest assured, communication skills and friendship skills can be taught to teens (and even adults) on the spectrum, which can eliminate some of the social isolation they feel. This can avert or reverse many anger control issues.


Resources for parents of children and teens on the autism spectrum:
 
 
 
More articles for parents of children and teens on the autism spectrum:
 
Social rejection has devastating effects in many areas of functioning. Because the ASD child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

Click here to read the full article…

---------------------------------------------------------------

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's or HFA child is totally out-of-control. When it ends, both you and your child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

Click here for the full article...

--------------------------------------------------------------

Although Aspergers [high-functioning autism] is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager on the spectrum are more difficult than they would be with an average teen. Complicated by defiant behavior, the teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

Click here to read the full article…

------------------------------------------------------------

Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with ASD face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

Click here to read the full article…

------------------------------------------------------------

Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

Click here
to read the full article...

------------------------------------------------------------

Become an expert in helping your child cope with his or her “out-of-control” emotions, inability to make and keep friends, stress, anger, thinking errors, and resistance to change.

Click here for the full article...
 
------------------------------------------------------------
 
A child with High-Functioning Autism (HFA) can have difficulty in school because, since he fits in so well, many adults may miss the fact that he has a diagnosis. When these children display symptoms of their disorder, they may be seen as defiant or disruptive.

Click here for the full article...


PARENTS'  COMMENTS:

*   Anonymous said... I'd like to say to you this. My son has Aspergers/Oppositional Defiant Disorder. He too present with anger, negativity and outbursts with authority figures. One thing I learned early on, NEVER walk on broken glass waiting to get cut! Never let things go with ease to avaoid a melt down. Set clear limits he understands with clear consequences he also understands. Get your child the help hhe needs NOW before it's too late with the laws in your State. Many parents of Spectrum children do not understand the Laws that protect the child and hinder the parents. As with my son, at the age of 14 in our State children have the RIGHT to not participate in therapy of any sort including Mental Health Services. If and when your child is made aware of the Laws you should be prepared as we were not as we did not even know the Law existed. My son is as I've said now 17. He is reminded daily that no matter what his diagnosis are, he is bound by the same laws as the rest of the world. Dealing with anger outbursts are horrifying to say the least. It takes a toll on your entire family dynamics. Having a younger child watch this behavior will lead them to issues with outbursts as well. I also have a 7 yr old who learns from his brothers behavior. We do the same, set limits, make rules and make consequences clearly understood and FOLLOW THROUGH! NEVER let your guilt for the diagnosis to interfere with following through! This will by far be your biggest mistake. For yourself, establish a support system, keep time for yourself, try to stay positive at all times and again use your support system. If and when violence erupts, call the police to intervene and make sure they are aware of the diagnosis before they arrive for it can cause a bigger problem as well as a negative outcome all around.
 

•    Anonymous said… Communication is hard and understanding is wanted. Those that act out are in pain themselves..
 

•    Anonymous said… I have been dealing with this for 16 years. Therapy is a on going process. If the behavior is out of control. I would suggest a inpatient treatment facility. This will allow for continued therapy and behavior modification. Trust me.. I know this well. You are not along.
 

•    Anonymous said… I know this comment may sound soft and shallow, but believe me, as a single parent of an autistic/Asperger's son prone to violent outbursts just like the rest of you, all I can offer is for you the parent to take care of yourself. For me it was Transcendental Meditation. It calms me like nothing else and for some bizarre reason it calms my son, even though he's not the one meditating. I'm not affiliated and not trying to pitch them, but you need to do something CALMING for yourself. Every child is different and requires a unique strategy to cope, and so does every parent. Bless everyone here and let's try to keep our heads and hearts clear.
 
•    Anonymous said… Well i give my son 1 for being good and its been working i got him on ssi and he had outbursts 3 times before i decided this and i took one day at a time and for 5 days my son been good no outbursts and i give him options too like if he cant do something for a example my son he wanted to go yesterday to dollar General i said play on ur phone or color or drawl or eat popsicle something to distract him from what he wants til u can do it when ur ready . Take 1day at a time and be calm with him at all times i just started this 2 months ago and im handling it pretty well and he has asperger's and odd so i understand
 

•    Anonymous said… Wow! My son is 15 and this is my life right now, although luckily without the physical aggression. I have to admit it is nice to know I'm not the only one dealing with these severe behavior issues!
 

•    Anonymous said… your beautiful boy sounds like my 8yr old grand son , but these kids live in a completely different world to ours they like to do what they do eat what they eat and if left alone they survive just as well as if we never said a word the more we tell them and yell the worse they get .I have seen the outbursts and man its scary .
 
*     Anonymous said... Not enough focus on reaching out to others on the spectrum, other teens getting together. Organized by the supports already in place to have purposed get togethers for the teens. They just don't cut it , in high school. Highschool is a dead bully zone. Kids there are mean mean mean, if anyone is a bit 'off' they can make their life miserable, too miserable. I would not have my kid enter high school at all, and focus on get togethers with other aspergers kids, and just do it that way, engaging them in activities in the community.

*     Anonymous said...I really dont know what to do my 12 year old shouts at me and says the most horrible things most days and calls me and her sister names im a single mum of 3 and finding it hard to cope ive asked for help since she was 4 and no one does anything she has no therapy and we have no help at all just me because while at school etc she wants to be the same as everyone else she tells them shes fine and the works ok but what she does is bottle all her anxieties frustrations things that havent gone as shes wanted all day etc and lets rip at me when she gest home if something isnt how she wants or she cant have what she wants or things dont go as she expects she has meltdowns that can last hours ive said i will speak to school to see if there is anything they can do to help us she said if i speak to school or anyone else about her shes going to tell them i hit and hurt her i dont do either but do have to hold her when in meltdown to prevent her hurting herself me or someone else or damaging property until shes in either a safer place or calms down i have had a dislocated shoulder a torn rotary cuff in my shoulder which needed surgery to repair and still has limited movement shes broken 3 of my toes and i often end up bruised and sore muscles i have health conditions that mean the above and stress makes me really poorly she knows this but in meltdown does not care at all i do not hit h.  Id stayed out on sat nt my mum had her for the night so i could have a day/nt off her nanna treated her to sweets her favourote programme then on the way home took her clothes shopping she had a good time id been home 10 min and she'd reduced me to tears with shouting at me and calling me names and i got up this morning to the same today i really dont know what to do im so tired and drain from it all ���� im worried about what her future will be

Please post your comment below…

Parenting Kids with High-Functioning Autism PLUS Attention Deficit Disorder

Question

"My 12 year old was recently diagnosed with having high functioning autism. He doesn't fit the typical mold that I read about, and the neuro-psychologist agreed that he is an unusual case. He is extremely likable, has a good many friends, very polite and well mannered. He does however have the obsessive personality and hyper-focusing that is typical with this disorder as well as fascination with collecting things, bottle caps, shark teeth...which he can look for hours at a time for. He is very smart and has always made great grades and has never had behavior issues at home or at school, which is probably why he flew under the radar until now.

Our struggles have to do with his attention...as if he is ADD (tested negative three times). He literally cannot stay on task and is so easily distracted. After a "pep" talk stating that he "owns" his brain and he can control the urges if he puts his mind to it...he can produce. I know its short term but he doesn’t and he feels great when he knocks out something. Remember, we just found out...so we've always treated him as "normal" as the others, why wouldn't we? And again, he's always risen to the challenge of most anything...with a great attitude. I'm desperately looking for ways to help him stay on task with schoolwork and staying on task? Is there anyone there that might know of something, tips, tricks, etc.? Please let me know."

Answer

Most kids with High-Functioning Autism (HFA) and Asperger's (AS) do not receive that diagnosis until after age 6. Usually, they are diagnosed with Attention Deficit Disorder as toddlers. Part of the reason is that doctors routinely screen kids for Attention Deficit Disorder (ADD) - but not for autism.

Another reason is that an HFA child's social impairment becomes more evident once he hits school. Finally, doctors are reluctant to label a youngster "autistic." It is okay - and even a badge of honor - to have a "hyperactive youngster," but it is another thing whatsoever to have an "autistic youngster."

Doctors make their diagnoses based on kid's behaviors. Since kids with Attention Deficit Disorder and HFA share similar behaviors, the two can appear to overlap. However, there is a fundamental difference between Attention Deficit Disorder and HFA. Children on the autism spectrum lack what doctors call "social reciprocity" or Theory of Mind.

Theory of Mind is "the capacity to understand that other people have thoughts, feelings, motivations and desires that are different from our own." Kids with ADD have a Theory of Mind and understand other people's motives and expectations. They make appropriate eye contact and understand social cues, body language and hidden agendas in social interactions. HFA children can't.

One author put it this way: kids with Attention Deficit Disorder respond to behavioral modification. With Aspergers (HFA), the syndrome is the behavior.

Both kinds of kids can tantrum, talk too loud and too much and have problems modulating their behaviors and making friends. Both are social failures but for different reasons.

The youngster with Attention Deficit Disorder knows what to do but forgets to do it. HFA children do not know what to do. They do not understand that relationships are two-sided. If a child on the spectrum talks on and on in an un-modulated voice about his particular interest, he simply does not understand that he is boring his friend and showing disinterest in his friend's side of the conversation. On the other hand, the youngster with ADD cannot control himself from dominating the conversation.
 
An HFA youngster can appear unfocused, forgetful and disorganized like a youngster with Attention Deficit Disorder, but there is a difference. The ADD youngster is easily distracted; the HFA child has no "filter." The child on the spectrum sees everything in her environment as equally important. Her teacher's dangling earring is as important as what she writes on the blackboard. The HFA child does not understand that she does not have to memorize the entire textbook for the next test. She does not "get" such rules.

Children on the high-functioning end of the autism spectrum tend to get anxious and stuck about small things and cannot see the "big picture." Kids with Attention Deficit Disorder are not detailed-oriented. The ADD youngster understands the rules but lacks the self-control to follow them. The HFA child does not understand the rules.

If the unfocused HFA child is "nowhere," the obsessive-compulsive and "Fantasy" HFA child is somewhere else. "Fantasy kids" retreat into a world of their own making - a world where everything goes the way they want it to. They play video games for hours or retreat into books and music. Their daydreaming and fantasizing resembles the behaviors of non-hyperactive kids with ADD.

Obsessive-compulsive children with HFA live a world they create from rules and rituals. Like ADD kids, they appear preoccupied and distracted but for different reasons. They appear distracted because they are always thinking about their "rules." Did I tie my shoelaces right? Did I brush my teeth for 120 seconds?

Some authors estimate that 60% to 70% of children with HFA and AS also have Attention Deficit Disorder, which they consider a common comorbidity of the disorder. Other authors say that the two cannot exist together. Still others insist doctors have it all wrong and that the two disorders are the same. The real problem is that there is no hard science. No one knows exactly how slight imperfections in brain structure and chemistry cause such problems.

For this reason, getting the right diagnosis for a youngster who exhibits behavior problems may take years of trial and error. Diagnosis is based on observation of behaviors that are similar for a myriad of disorders. The tragedy is that the youngster often does not receive the correct medications, educational strategies, and behavioral modification techniques that could help him function on a higher level. He falls farther behind his peer group and loses ground when he could be getting appropriate treatments.

==> CLICK HERE for some specific tips to help your child with school work...

More resources for parents of children and teens on the autism spectrum:
 
 
 
More articles for parents of children and teens on the autism spectrum:
 
Social rejection has devastating effects in many areas of functioning. Because the ASD child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

Click here to read the full article…

---------------------------------------------------------------

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's or HFA child is totally out-of-control. When it ends, both you and your child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

Click here for the full article...

--------------------------------------------------------------

Although Aspergers [high-functioning autism] is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager on the spectrum are more difficult than they would be with an average teen. Complicated by defiant behavior, the teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

Click here to read the full article…

------------------------------------------------------------

Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with ASD face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

Click here to read the full article…

------------------------------------------------------------

Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

Click here
to read the full article...

------------------------------------------------------------

Become an expert in helping your child cope with his or her “out-of-control” emotions, inability to make and keep friends, stress, anger, thinking errors, and resistance to change.

Click here for the full article...
 
------------------------------------------------------------
 
A child with High-Functioning Autism (HFA) can have difficulty in school because, since he fits in so well, many adults may miss the fact that he has a diagnosis. When these children display symptoms of their disorder, they may be seen as defiant or disruptive.

Click here for the full article...

Insomnia in Kids with High-Functioning Autism and Asperger's

“What do you suggest for my 4-year-old boy who has a hard time getting to sleep at bedtime, but can’t take melatonin? He has an allergic reaction to that supplement (gives him headaches). And why does it seem that so many high functioning autistic children have trouble going to sleep – even when they are exhausted?”

Researchers don't know for sure why HFA kids have problems with sleep, but they have several theories. Here are the main ones:
  1. Anxiety: Stress or anxiety is a possible condition that could adversely affect sleep. HFA kids tend to test higher than other kids for anxiety.
  2. Low levels of nighttime melatonin: Melatonin normally helps regulate sleep-wake cycles. To make melatonin, the body needs an amino acid called tryptophan, which research has found to be either higher or lower than normal in kids on the spectrum. Typically, melatonin levels rise in response to darkness and dip during the daylight hours. Studies have shown that some kids with HFA don't release melatonin at the correct times of day. Instead, they have high levels of melatonin during the daytime and lower levels at night.
  3. Sensory sensitivities: HFA and Aspergers kids may have trouble falling asleep or awaken in the middle of the night due to an increased sensitivity to outside stimuli (e.g., touch or sound). While most kids continue to sleep soundly while their mother opens the bedroom door or tucks in the covers, the youngster might wake up abruptly.
  4. Ignoring social cues: Most “typical” kids know when it's time to go to sleep at night thanks to the normal cycles of light and dark and their body's circadian rhythms. But they also use social cues (e.g., kids may see their siblings getting ready for bed). These kids may misinterpret or fail to understand these cues.



Sleep problems are some of the most common problems moms and dads face with their children. Most Aspies have sleep difficulties, and many are actually going through their days sleep-deprived. 
 

Here’s how you can help your child with Aspergers (High-Functioning Autism) get to sleep in a reasonable amount of time – even if he can’t take melatonin:

1. An hour before bedtime, avoid all physically stimulating activities (e.g., running, jumping, climbing, etc.).

2. An overnight sleep study may be recommended for your son, especially if he has excessive daytime sleepiness or problems staying asleep. The sleep study will help determine if he has a diagnosable problem (e.g., pure snoring, obstructive sleep apnea, restless legs syndrome, etc.). These disorders may require specific therapy that your son’s doctor will prescribe.

3. Avoid feeding your son big meals close to bedtime, and don't give him anything containing caffeine less than six hours before bedtime.

4. Avoid scary stories or TV shows prior to bedtime.

5. Establish a consistent and relaxing bedtime routine that lasts between 20 and 30 minutes and ends in your son's bedroom. Maintaining a predictable and soothing bedtime routine is critical with Aspergers children. Bathing, brushing teeth, singing lullabies, and reading books are some suggestions for a nightly routine.

6. Feed your son bedtime snacks that contain the amino acid “tryptophan.” Tryptophan helps the body to produce the sleep-inducing chemical serotonin. Tryptophan-containing foods include dairy products, whole grains, poultry, rice, eggs and sunflower seeds.
 

7. Give your son tools to overcome his worries. These can include a flashlight, a spray bottle filled with "monster spray," or a large stuffed animal to "protect" him.

8. Have him get used to falling asleep with a transitional object (e.g., a favorite blanket or stuffed animal).

9. If your son calls for you after you've left his room, wait a few moments before responding. This will remind him that he should be asleep, and it'll give him the chance to soothe himself and even fall back asleep while he is waiting for you.

10. If your son comes out of his room after you've put him to bed, walk him back and gently - but firmly - remind him that it's bedtime.

11. It's better to read a favorite book every night than a new one because it's familiar.

12. Keep the bedroom as quiet as possible for your son. If outside noise is unavoidable, use a sound machine or stereo to block noise.

13. Make sure your son has interesting and varied activities during the day, including physical activity and fresh air.

14. Make sure your son is comfortable. Clothes and blankets should not restrict movement or be too itchy, and the bedroom temperature shouldn't be too warm or too cold.
 

15. Put some thought into finding your son’s ideal bedtime.  In the evening, look for the time when he really is starting to slow down and getting physically tired. That's the time that he should be going to sleep, so get his bedtime routine done and get him into bed before that time. If you wait beyond that time, then your son may get a second wind.  At that point, he will become more difficult to handle and will have a harder time falling asleep.

16. Remove the television from your son's bedroom. Television stimulates the brain, making sleep difficult to achieve.

17. Set up a reward system. Each night your son goes to bed on time and stays there all night, he gets a star. After three stars, give him a prize.

18. Talk to a sleep psychologist about bright-light therapy. Exposing your son to periods of bright light in the morning may help regulate the body's release of melatonin.

19. To prevent sensory distractions during the night, put heavy curtains on your son’s windows to block out the light, install thick carpeting, and make sure the door doesn't creak.

20. Warn your son that bedtime is in five minutes or give him a choice, for example, "Do you want to go to bed now or in five minutes?" …but do this only once.

How To Help Other Family Members Accept Your Child's Diagnosis

"I'm a stay-at-home mom. My husband works out of town and is only home on weekends. My question is how can I get my husband and in-laws to accept our daughter’s diagnosis (high functioning autism)? They claim I am just 'making this up' and that it's really a behavior problem with her – not a 'disorder'."

This is not surprising, and you're not alone. High-Functioning Autism (HFA) and Asperger's (AS) is hard to see if you don’t live with it every day like you do. Also, some family members are simply in denial. Either way, the truth should come out.

Accepting the presence of this high functioning form of autism can lead to the best possible support and treatment available for your daughter. It’s crucial that all family members are on the same page. You could survive handling everything on your own, but life will be much easier for the whole family when everyone is working together to care for your daughter.

Some family members will choose to stand on the outside. You can’t do much about that. Nonetheless, you can equip them with information about autism spectrum disorders so they can make a choice regarding the position they plan to take.

Here are some tips on how to accomplish this:
1. Contact your local Autism support groups. Without family support, it is crucial that you find encouragement elsewhere. Tell your husband about community events or group meetings so he has the opportunity to stay informed.

2. Find books, eBooks, videos, and other media sources that you can share with your family. A great place to start is with one of the resources listed below this post.

3. If you haven’t done so already, involve your daughter in therapy with a professional who works with children on the autism spectrum. Hopefully, your daughter’s therapist will offer parent-training sessions. These sessions allow you to ask questions about your daughter’s program and her progress, while also educating you on her new goals and coaching you on how to meet these goals. Invite your husband and in-laws to attend this parent training. They can ask questions that will help them understand your daughter’s disorder.

4. Network with other parents raising children on the spectrum. Listening to the stories of those parents who are ahead of you in the journey can give you and your husband insight into the disorder. Here are our two Facebook support groups:

5. Maybe your in-laws simply need to hear the truth from a doctor. Official paperwork containing your daughter’s diagnosis is available from your doctor, neurologist, or therapist. You can request copies of any Early Intervention assessments, private therapy evaluations, and school system evaluations. Explain to your in-laws that these individuals are professionals who see autism spectrum disorders every day. You can also mention that the assessments and evaluations rely on much more than your input, removing any possibility that you are “making this up.”

6.Lastly, get the support you need to help yourself and your daughter. Try not to worry about how the other family members are dealing with this. Always encourage their participation, but concentrate on your daughter’s needs.

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==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

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==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

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==> Highly Effective Research-Based Parenting Strategies for Children with Asperger's and High-Functioning Autism

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PARENTS' COMMENTS:

Anonymous said…  I think the acknowledgment is there, the trouble is, most people do not know the true difficulties and how it effects everyday life Every day is a struggle and every day brings new challenges. People who are not with your child day in and day out may think it is not a big deal and is easy... it is NOT. Also, that Aspies cannot be disciplined and treated the same as average children to get results.

Anonymous said…  From my personal experience, my son's Aspergers was not as apparent in the home setting in isolation from his peers. Once I saw him at school and noticed the stark difference between him and the other kids and how he did or did not interact with them it was much more obvious. Family members don't always get to see that, so it can be harder to make believers out of them.

Anonymous said…  My sister, who also has a degree in education, babysat my son along with his same aged cousin when they were both 2. She also taught a couple days per week at a Mother's Day Out day care setting. She noticed that my son was very different and often kept him with her because some of the other teachers were less able to handle him. Though my son is good at heart, his bad social judgment often resulted in issues at school each year. It was very frustrating! So when an insightful teacher recommended testing for him in 4th grade, resulting in the diagnosis, we finally had an explanation that made perfect sense to all of us! And I felt better about the future because his teachers could now better understand him instead of writing him off at just "passive aggressive" or simply "difficult." I think if people realize that a diagnosis can yield better understanding and teacher training gives teachers tools for better working with kids, then family can feel better about the child's prognosis and outcome.

* Anonymous said...  Love these articles. A lot of us deal with things similar. This is definitely something that happens with this diagnosis. Even I as the parent of a kiddo that has these tendencies, sometimes would question whether it was just a "behavior problem" or not...whether it was my parenting style or not. If you aren't with the child 24/7, you don't see the whole picture at all. Being education is so important. When one is educated on this particular diagnosis...so much falls into place. 

* Anonymous said... i am now a single-mom to one ASD son & one non_ASD daughter. I lived out of state for 3 years. I couldnt wait to get back hom with my kiddos (& then husband). But noone welcomed us....not even my own mother (this was before the autism diagnosis). Even after, no one wanted to learn about it...we were just too much inconvience for their lives. I also kicked my husband out for various reasons....but "failure to understand autism" was a big one. It's a lonely life. Me & my 2 kids usually stay home & do the same routine everyday. I try to avoid public...because no one understands, & i dont want my children hurt :o( i'm from a state who fears "different people"...i've always been alternative myself. But, God, if you can at least help your husband "get free" & love you all like you are..that would be awesome for you guys. Who cares what in-laws (or even your own folks think!) let them learn! Or stay away. The world needs to be more open-minded not in "words at church" or "words on social media"
 
•    Anonymous said… I had this a lot with some friends & family and what I did was sent them a link to the National Autistic Societies website and asked them out of Respect to please read it, take it in and that the very fact they are choosing not to Learn more and accept our child for the way he/she is - hurts us more than our child's Diagnosis! Some really made the effort to read more and some didn't bother! This is very common and I have to be honest and say I chose to close the door on those that would not accept my son for who he is! You are not alone! Keep your head up and just always put your child before others
 
•    Anonymous said… Thankfully most people in my life are accepting and understanding, but I have this problem with my sons father... He refuses it completely, and during the long process of getting a diagnosis of Aspergers, he tried to make me stop taking our son to the appointments completely. I would like to say things are getting easier, but since my sons diagnosis, his father and I have actually split up, after 22 years together, and sadly this was one of our major issues that caused it. It's exhausting.. It's all on my shoulders.. I work day after day with my son..And then he goes and spends a weekend with his Dad and comes back to me in turmoil because his Dad refuses to learn how to properly deal with a child with Aspergers. I've tried everything to get him to face reality unsure emoticon I think there are some people who will just never get it..
 
•    Anonymous said… Unfortunately a lot of the symptoms are typical of "normal" kids but when you add them all together they spell Aspergers. I think this website has a concise list that might help those who don't want to read much. My son pretty much had all the symptoms but most of them were fairly mild. Had we not had him in a daycare setting where his caretakers would notice his interactions, we may have just written him off as quirky. Early intervention is the key. He is now seven and was diagnosed between 2 and 3 and it's made a HUGE difference. He has "outgrown" most of his issues but still has social problems to a degree. 
 

*   Anonymous said... My parents and siblings clearly think my kid's diagnosis is bogus (they haven't said in so many words, but keep hinting at it). It used to annoy me, but I actually don't care; they love and appreciate him as he is, quirks and all; so I don't feel the need to shove a diagnosis down their throats. 

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