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Pursuing a Formal Diagnosis of Asperger's or HFA

Pursuing a formal diagnosis is a family's individual decision to make. There is no "best" time to form this decision, although many moms and dads agree that they wish to know their child's diagnosis definitively - and as early in their youngster's development as possible.

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Aspergers Children and Poor Eating Habits

Question

My child with Aspergers loves pizza rolls. Problem is that's about all he eats (cheese only - doesn't like pepperoni or sausage). He would eat pizza rolls for breakfast, lunch and dinner if we let him. Is there any way to lure him into eating some fruits and/or vegetables?

Answer

Most Aspergers (high functioning autistic) children prefer just a few food items. And it can become quite a power struggle for parents when they attempt to get their child to try anything new. However, there are some ways that parents can "sneak" some healthy stuff into their child's belly. Here are a few tips that may work:

1. Don't get hung up on the time of day your Aspergers youngster eats – or how much he eats in one sitting. It is perfectly fine if your Aspie doesn't eat three square meals every day as long as over the course of a week or two he eats a few things from each food group.

2. Concoct creative camouflages. There are all kinds of possible variations on the old standby "cheese in the trees" (cheese melted on steamed broccoli florets), or you can all enjoy the pleasure of veggies topped with peanut- butter sauce, a specialty of Asian cuisines.

3. Make veggie art. Create colorful faces with olive-slice eyes, tomato ears, mushroom noses, bell-pepper mustaches, and any other playful features you can think of. Zucchini pancakes, for example, make a terrific face to which you can add pea eyes, a carrot nose, and cheese hair.

4. Plant a garden with your Aspergers child. Let him help care for the plants, harvest the ripe vegetables, and wash and prepare them. He will probably be much more interested in eating what he has helped to grow.

5. Slip grated or diced vegetables into favorite foods. Try adding them to rice, cottage cheese, cream cheese, guacamole, or even macaroni and cheese.

6. Steam your greens. They are much more flavorful and usually sweeter than when raw.

7. Using a small cookie cutter, cut the vegetables into interesting shapes.

8. Give your youngster acknowledgement and praise, even if he takes only one bite of something new. For example: "It's great that you tried the green beans!"

9. Let go of the power struggle. You can't force your youngster to do anything, especially eat, so just stop trying. Simply offer him nutritious, varied foods – and eat them yourself. He can have his, or not, but you're showing him how. When moms and dads demand that their children eat certain foods, they're attaching negative connotations to it. Pretty soon, the struggle is worse. Put the food on his plate, but if it stays there, don't push him – and don't stress over it.

10. Offer alternatives if your youngster won't eat meat. The texture turns off many Aspergers kids, and that's fine. Your youngster can still get all the protein he needs from the following:
  • cheese or even meat-filled ravioli (the pasta exterior goes a long way for meat-haters)
  • hard-boiled eggs or any egg dish
  • his favorite crackers dipped in hummus or spread with peanut (or nut) butter
  • mini-tuna melts
  • nachos with beans and cheese
  • yogurt, cheese, or cottage cheese

11. Offer choices that don't matter. You may face stubborn insistence that toast have a corner unbuttered to avoid messy hands, or that cereal be served only in a square bowl, or that nothing gets touched by the preparer of the food. While this kind of behavior is seemingly ridiculous, it's typical of Aspergers kids. Offering your youngster a limited choice is often enough to end the power struggle. But make your rules clear: "At home, you can choose your plate, but when we're eating out, you have to use whatever plates they have."

12. You may have to stick with one basic food color. Aspergers children may like a lot of colors in their pictures, but not always on their plates. When he only wants white foods, for example, consider:
  • fruit smoothies (blend a banana with vanilla yogurt)
  • half white-/half whole-wheat (make toast and sandwiches in fun shapes using cookie cutters)
  • mac and cheese made with whole-wheat (or whole-wheat blend) macaroni
  • oven-baked fries (half regular and half sweet potato to ease your youngster into the idea of trying other spuds)

13. Be creative with the veggies. Hating vegetables is the most common picky-eater problems with Aspergers kids. To convince your child that eating vegetables is not poisonous, try one or more of the following:
  • carrot slices and baby corn are a good start toward more serious veggie consumption
  • lettuce wraps (use a filling he'll eat, like turkey or cream cheese, and wrap it in a romaine lettuce leaf)
  • put a plate of raw veggies next to a sure thing (e.g., grilled cheese sandwich) to lure your child into eating at least one bite
  • thinly sliced veggies stir-fried with teriyaki sauce with a little chicken and rice
  • try dressing (e.g., honey mustard, ranch, ketchup, melted butter) with veggies for dipping
  • veggie lasagna
  • water chestnuts have little taste and can be a good stepping-stone to serious veggies
  • zucchini muffins

14. Many Aspergers kids like to “nitpick” their way through food (i.e., a nibble here – a nibble there). Use an ice-cube tray, a muffin tin, or a compartmentalized dish, and put bite-size portions of colorful and nutritious foods in each section. Give these “finger foods” names in order to disguise how disgustingly healthy that may be, such as:
  • egg canoes (hard- boiled egg wedges)
  • cheese building blocks
  • carrot swords (cooked and thinly sliced)
  • broccoli trees (steamed broccoli florets)
  • banana wheels
  • avocado boats (a quarter of an avocado)
  • apple moons (thinly sliced)

Place the food on an easy-to-reach table. As your Aspie makes his rounds through the house, he can stop, sit down, nibble a bit, and, when he's done, continue on his way. These foods have a table-life of an hour or two.

15. A veggie pizza is one the most cleaver ways to disguise healthy foods. We tried a spinach-cheese pizza with our 5-year-old several years ago. We knew he probably wouldn’t even touch it – but guess what? It is his favorite food item now! Go figure :)

More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book

==> Highly Effective Research-Based Parenting Strategies for Children with Asperger's and High-Functioning Autism

How To Improve Your Aspergers Child's Self-Image

 "Any tips on how to help my newly diagnosed daughter (high functioning autistic) to improve her self esteem. She thinks she's 'stupid' ...she thinks she's 'ugly' ...she thinks nobody likes her... I don't know where she's coming up with these negative evaluations of herself, but it breaks my heart. We are all a bit anxious since we got the news about this disorder. But how can I help my daughter have a better perspective of her true self and her strengths?"

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More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

The Difference Between Aspergers and PDD-NOS

Question

My 7-year-old son has been diagnosed with ADHD. The pediatrician also thinks that he may have Aspergers or Pervasive developmental disorder not otherwise specified. After researching the two diagnoses, I see that they are very similar. What type of testing can I have done to determine what kind of help my son needs?

Answer

Like Autism and Aspergers, Pervasive developmental disorder not otherwise specified (PDD-NOS) is one of the five subtypes of the Autism Spectrum Disorders. Children diagnosed with PDD-NOS will have less social impairment than a youngster with Autism or Aspergers.

The Autism Spectrum Disorders are:

1. Pervasive developmental disorder not otherwise specified
2. Autism
3. Asperger syndrome
4. Rett syndrome
5. Childhood disintegrative disorder

To confuse matters, there is a division among therapists on the use of the term Pervasive Developmental Disorder (PDD), which is the same thing as Autism Spectrum Disorder (ASD). Many use the term PDD as a short way of saying PDD-NOS. Others use the general category label of PDD because they are hesitant to diagnose very young kids with a specific type of PDD (e.g., Autism). Both approaches contribute to confusion about the term, because the term PDD actually refers to a category of disorders and is not a diagnostic label.

PDD is not itself a diagnosis, while PDD-NOS is. To further complicate the issue, PDD-NOS can also be referred to as “atypical personality development,” “atypical PDD,” or “atypical Autism.”

Some clinicians use PDD-NOS as a "temporary" diagnosis for youngsters under the age of 5, when for whatever reason there is a reluctance to diagnose Autism. There are several justifications for this. Very young kids have limited social interaction and communication skills to begin with, thus it can be tricky to diagnose milder cases of Autism in a toddler. The unspoken assumption is that by the age of 5, unusual behaviors will either resolve or develop into diagnosable Autism.

Because of the "NOS" (i.e., not otherwise specified), it is hard to describe what PDD-NOS is, other than its being an Autism Spectrum Disorder (ASD). Some children diagnosed with PDD-NOS are close to having Aspergers, but do not quite fit the profile. Others have near full-blown Autism, but without some of its symptoms. The field of psychology is considering creating several subclasses within PDD-NOS.

To confirm the diagnosis, continue to consult with your doctor and get a referral to either a neurologist or child and adolescent psychiatrist to figure out exactly what is going on with your child. Once you have a definitive answer, you can then check for resources in your local area. Each U.S. state has different resources tied-in with the local schools. Your doctor should be able to point you in the right direction. If not, the local school district should have some referrals for you.

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