Summer Activities for Aspergers Children

Many Aspergers (high functioning autistic) kids have extreme difficulties with transitions. This can be a simple transition, such as moving from one activity to another, or a more significant transition like school letting out for the summer. When moms and dads plan ahead and schedule summer activities for their youngster, the transition out of school and into the less structured summer-time can be easier for all involved.

The purpose of summer vacation should be to give kids the opportunity to explore new learning avenues. If you have an Aspergers child, two new learning opportunities that he can benefit from are (a) new activities and (b) new places. Being able to do a new activity or go into a new location - and feel comfortable - is a valuable skill that many Aspergers kids struggle with. Fortunately, during the summer months, you can go to new places earlier in the day when they are not as crowded, which should make the experience a lot easier for your child to deal with.

Get ready for summer outdoor activities, and get some great gear. Globo Surf can help you with their great guides and tips about everything outdoors.

The first step in exposing your Aspergers child to new activities and places will be to create a social story about it. The social story will explain where you will be going, what you will be doing, and how long you will stay there.

The second step is to walk your child through the activity he will be engaging in at the new place (e.g., he may be riding his bike in a park he has never been in).

The third step is to go to the location and engage in the activity (while monitoring closely how well your child is adjusting to the experience). It is a good idea to involve a reward at the end of a ‘successfully completed’ activity (e.g., buying a special video or book).

Now that you know how to handle exposing your child to new places and activities, sift through the list below for some ideas on what to do. (Note: Aspergers children are not all alike. One child may tolerate a particular activity or location quite well – while another may slip into a full-blown meltdown. So take it slow at first – and keep it simple).

Summer Activities for Aspergers Children—

1. AMC movie theaters provide sensory friendly film showings to families affected by Aspergers on a monthly basis. The movies are shown with the lights up and sound turned down and sensory affected audience members are invited to get up out of their seats whenever they want. It's an excellent way to enjoy a movie!

2. As the pressures of the school year ease up during the summer months, this can be a great time to get involved with other families of Aspergers children in your area. Join or form a social-skills group, which helps Aspergers children practice specific social skills within the context of a play group, field trip, or activity. Many Aspergers children desperately want to make friends and participate in social activities, but lack the direct understanding of how to do so. A social-skills group, made up of other children on the autism spectrum, is a safe place to learn and practice social skills without fear of rejection or ridicule.

3. Attend a concert.

4. Bake some cupcakes and deliver them to friends and family.

5. Bead some bracelets and sell them for charity.

6. Blow up balloons, put notes inside and let them go into the atmosphere.

7. Build a tree house.

8. Clean up a nature trail.

9. Create a web site or blog.

10. Donate some of the toys and clothes you no longer use.

11. Explore nature at a local park and take pictures of what you find to make a family scrapbook.

12. Fly a kite.

13. Go backpacking.

14. Go camping.

15. Go canoeing.

16. Go on a walk and take pictures of trees, flowers, dogs, etc.

17. Go to a ballgame.

18. Go to a museum.

19. Go without TV for a day.

20. Have a family game night.

21. Have a picnic.

22. Have a yard sale.

23. If you live in a larger metropolitan area, there may be day camps and other structured activities designed especially for children with Aspergers. These camps provide children with some of the same routines they are used to at school, while allowing them to participate in activities such as camping, swimming, arts and crafts, and other projects. Check with your child's teacher, case manager, or doctor for recommendations. Look for a day camp staffed by counselors that have had extensive training with ASD children. A counselor who has not been trained to work with Aspergers children may inadvertently trigger a meltdown, and not know how to handle one in progress. Be sure you and your child's doctor or therapist can meet with camp staff to go over strategies to make this a positive experience for your child.

24. Jump on a trampoline.

25. Learning does not have to stop just because school is out for summer. Build time into your child's daily or weekly schedule to research, experiment, and investigate a topic that interests him. If he loves video games, challenge him to design one of his own. If he is fascinated by insects, summer is a great time to begin (or add to) an insect collection. Before school is over, talk to your child about what he would like to learn more about, and begin collecting materials and planning activities to support his goals.

26. Make a bird feeder.

27. Make a bonfire and roast hotdogs and/or marsh mellows.

28. Make a collage from magazine words and pictures.

29. Make a movie.

30. Make a root beer float.

31. Make a scrapbook of everything you and your child do this summer.

32. Make dinner together.

33. Make homemade ice cream.

34. Make refreshing (and healthy) snacks like fruit smoothies and ice pops.

35. Order a pizza.

36. Plant something.

37. Set up a lemonade stand.

38. Sign up at your local library for their Summer Reading Program.

39. Sleep outside under the stars (when the weather is conducive to such an activity) using only a sleeping bag and a blow-up mattress.

40. Some Aspergers kids’ greatest sensory gains come from good old-fashioned trips to the pool. In addition to overcoming sensory issues in terms of water, you and your child can practice a lot of spatial activity with simple games of catch (e.g., with a wet, spongy nerf ball). As your child progress over some of the water issues, you may want to try water slides at your local water park.

41. Stargaze in your backyard, encouraging your kids to imagine what it would be like living on another planet.

42. Summer is the perfect time to visit local bouncer locations. “Pump It Up” is highly involved in ASD therapy bounces and has many "open" jumps on their calendar every week. Many parents see great sensory gains after a round on the giant bouncers. It's hard to call this "treatment" when it's fun for the whole family.

43. Take a boat ride.

44. Tie-dye some t-shirts.

45. Visit a farm.

46. Visit a National Park.

47. Visit the zoo.

48. Volunteer at the local animal or homeless shelter.

49. Walking and hiking can be great physical activities that your child may enjoy. However, if they have visual sensory issues, they may get vertigo if you try walking down a hill. Keep this in mind when selecting placing to walk at or hike.

50. You might find a non-profit organization near you that offers horseback riding as a therapy for special needs riders. Most moms and dads of ASD children immediately see the benefit that natural horseback riding provides in the "bouncing" and "crashing" movements that stimulate spatial relations.

Summer is a time for Aspergers children to take a breather from school and get their bearings. There are so many alternative therapies out there that thrive on outdoor, warm weather fun outside of a school setting. So get outside and have a great summer!

Oppositional Defiance in Kids on the Autism Spectrum

"My 8 y.o. has been diagnosed with autism (high functioning) recently, and before that was diagnosed with ODD. When we have behavior problems with him, it's hard to know if the particular 'misbehavior' is driven by autism or by ODD. How do we tell the difference, and how do we approach the multitude of behavior issues we are having with him?"

Click here for the answer...

Popular Screening Tools for Aspergers and Autism

Question

What kind of assessment tools do clinicians use when they are trying to determine whether or not a child or teen has Aspergers or Autism?

Answer

There are many (with new ones coming along all the time) …so I have listed the “most used” screening tools to date. These include:

1. Aspergers/High Functioning Autism (HFA) Screening Tools

2. Autism Screening Tools

3. Developmental and Behavioral Screening Tools

Aspergers/HFA Screening Tools (4 years to adult) —

Most Aspergers/HFA screening tools are designed for use with older kids, and are used to differentiate these disorders from other ASDs and/or other developmental disorders (e.g., mental retardation and language delays). These tools concentrate on social and behavioral impairment in kids four years of age and older (up to adulthood), who usually develop without significant language delay. Qualitatively, these tools are quite different from the early childhood screening tools, highlighting more social-conversational and perseverative-behavioral concerns.

• Australian Scale for Asperger Syndrome (ASAS) by Michelle Garnett, M. Clinical Psychology, Anthony Attwood, Ph.D. (for kids 5 and older)
• Autism Spectrum Screening Questionnaire (ASSQ) by Stephen Ehlers, Ph.D., Christopher Gillberg, Ph.D., Lorna Wing, Ph.D. (Published in 1999 in the Journal of Autism and Developmental Disorders, 29,129-141) (for kids 7-16)
• Social Communication Questionnaire (SCQ) by Catherine Lord, Ph.D., Sir Michael Rutter, Ph.D., et al. (for kids 4 and older)

Autism Screening Tools (4 years to adult) —

Most autism screening tools are designed to detect ASDs specifically, concentrate on social and communication impairment in kids 18 months of age and older, and focus on all three DSM-IV criteria for autism. Their limitations lie in the lack of highly validated autism screening tools available for kids under 18 months of age. Since autism screening ideally would follow a developmental screening that has indicated concerns, the administering clinician should directly observe the youngster in addition to using an autism screening tool questionnaire.

• Modified Checklist for Autism in Toddlers (M-CHAT) by Diana Robins, M.A., Deborah Fein, Ph.D., et al. (for kids 16-30 months)

Developmental and Behavioral Screening Tools (Birth to 36 Months) —

Most developmental and behavioral screening tools have a wide application with kids of varying ages, allow flexibility to capture “parent report’ with minimal assistance, ask less threatening and more universal questions of mothers and fathers, and coordinate with hallmark developmental milestones. Because of their broad use, developmental and behavioral tools often lack the sensitivity to screen specifically for autism and therefore require follow up with an autism screening tool when a developmental screening raises concerns.

• Ages and Stages Questionnaire (ASQ-3) by Jane Squires, Ph.D. & Diane Bricker, Ph.D. et al. (for kids 1-66 months)
• Ages and Stages Questionnaire: Social-Emotional (ASQ:SE) by Jane Squires, Ph.D. & Diane Bricker, Ph.D. & Elizabeth Twombly, M.S. (for kids 6-60 months)
• Brief-Infant-Toddler Social-Emotional Assessment (BITSEA) by Margaret Briggs-Gowan, Ph.D. and Alice Carter, Ph.D. (for kids 12-36 months)
• Child Development Inventory by Harold Ireton, Ph.D. et al. (for kids 0-6 years)
• CSBS DP Infant-Toddler Checklist by Amy Wetherby, Ph.D. & Barry Prizant, Ph.D. (for kids 6-24 months)
• Parents Evaluation of Developmental Status (PEDS) by Frances Page Glascoe, Ph.D. (for kids 0-8 years)
• Parents Evaluation of Developmental Status-Developmental Milestones (PEDS:DM) by Frances Page Glascoe, Ph.D. (for kids 0-8 years)
• Social-Emotional Growth Chart by Stanley I. Greenspan, MD (for kids 0-42 months)
• Temperament and Atypical Behavior Scale (TABS) by Stephen J. Bagnato, Ed.D., John T. Neisworth, Ph.D., et al. (for kids 11-71 months)

The Aspergers Comprehensive Handbook

Aspergers and American Idol

During one of the episodes of the TV program “American Idol,” producers saved a “thriller” for the final audition spot. The “tough-luck” story told by James Durbin, 21, was almost too much to believe.

James grew up barely knowing his bass-playing father, who was always on the road, and was raised by his mother after his dad died of a drug overdose. Durbin reveals that he was never able to spend much time with his father, who was always away touring. James stated, “People say that I get my musical talent from my dad. Well, I’ll never know.”

Later diagnosed with both Tourettes and Aspergers, James turned to music to help deal with his stress. Both Tourettes and Aspergers are extremely debilitating neurological disorders that can result in behavioral tics and extreme social awkwardness. Durbin is classified as "high-functioning” (i.e., his symptoms are milder, he's able to handle social situations with more tolerance than others with Tourettes or Aspergers, and his facial and vocal tics should become more manageable with time).

Tourettes and Aspergers are lifelong conditions, but experts say that adults "can learn to understand their own strengths and weaknesses." As living proof, James Durbin says he does his best to "suppress" the negative effects and play up what he's best at – “singing.”

Durbin hasn’t let his disorders slow him down as a performer. He’s gone on to star in productions of Singing in the Rain, Grease, Beauty and the Beast, West Side Story, Sweet Charity, Fiddler on the Roof, and My Fair Lady. He was also the lead singer for the band Hollywood Scars and jammed alongside a teen music ensemble known as Guitarmy.

James views “the stage” as a form of therapy, a place that allows him to put aside his tics and obsessions. He went on to meet his fiancé, Heidi, and the two went on to have a son. The singer credits his family for helping him turn his life around.

James Durbin has a pitch-perfect voice and a hard rocker’s attitude. American Idol footage shows James ‘tearing-it-up’ with Led Zeppelin’s “Whole Lotta Love.” Another clip has him floating his way through the Beatles’ “While My Guitar Gently Weeps” with equal power. His versatile voice has already earned him comparison to American Idol favorite Adam Lambert.

On the show, James stated, "I have Tourettes and Aspergers, but Tourettes and Aspergers don't have me. I'm doing what I can to suppress it. I don't let it take advantage of me. It's not who I am. You need to give it 210 percent. The reason why I can be the next 'American Idol' is because I believe. From day one, all I've been doing is believing …believing that I can …believing that I have the power to do something real.”

So, what does this mean for Aspergers awareness? Clearly, as was dramatically demonstrated on American Idol, Durbin has talent. American Idol truly found a genuine San Francisco rocker in the form of James Durbin.

James Durbin performing While My Guitar Gently Weeps:

Aspergers Children and Summer Vacation: 25 Tips for Parents

You're trying to find things for your child to do all summer that are safe, entertaining, and maybe if you're lucky, have some educational value. If you're like most moms and dads, you're trying to hold down a job at the same time. Now, add “Aspergers” (high functioning autism) to the equation and things have just gotten exponentially more complicated.

Your Aspergers youngster needs structure and routine during the summer, and you're at a loss to think of activities that can give it to them. You fear a summer full of meltdowns and regression. What can you do?

Not to worry, the list below will include plenty of tips for ensuring a successful summer for both you and your youngster with Aspergers or High-Functioning Autism:

1. Ask your Aspergers youngster about what he plans or expects to happen when out of school or on vacation. Doing so will help clear up any misconceptions about the things you either agree on or disagree about.

2. Avoid springing things on your Aspergers youngster. It causes confusion and distress. There go those insecurity-control issues again. Prepare him for changes as far in advance as possible.

3. Bring a Discman or MP3 player so he can listen to music on the plane or in the car or a favorite toy – and definitely favorite foods. Try to imagine possible problems that might come up and how you will solve them—and what materials you will need to solve them. Take books, video players or anything else you think will help for distraction during those difficult moments. If you're going on a long car trip, you might want to look up some car games to play, such as trying to spot letters on license plates, 20 questions, or other games one can play in the car to pass the time and keep your youngster occupied.

4. Discuss fear of the unknown or uncontrolled event with your quiet Aspergers youngster. Aspergers kids don’t like the unexpected and they really need the security of knowing when, where, how, and why. They are generally very comfortable in their usual surroundings (school, home, friend’s house), but may become anxious about traveling, staying in hotels or camping “in the wild!”

5. Do not try “breaking habits” while on vacation. I know a mother who tried to break her Aspergers son’s annoying habit of drumming his feet and fingers on just about everything. She reasoned that since she would be constantly with the boy while on a family trip to the beach, she could break him of the habit by catching him and threatening dire consequences if he didn’t stop. I later learned that the entire trip was a disaster. Instead of focusing on family fun and relaxation, it became a constant battle of “who was in control!”

6. Don't be alarmed if your youngster doesn't want to do much during the summer. But by the same token, do try to plan some regular activities and outings so that they are still engaged with the world. Find areas of interest. If your youngster is interested in movies, see if there is a movie-making class or club that meets nearby; if they are into reading, then find a book club. Most towns have town-sponsored recreation programs that are offered during the summer at low cost, and this can be a great place to start. There is everything from sports to arts and crafts and things in between. Some towns even have programs specifically for special needs children.

7. Don't try to fit your youngster into a mold of what they "should" want, or what you think should be typical for their age; pay attention to what their actual needs and wants are to ensure a more successful vacation.

8. Give your Aspie as much control about “what happens” during his vacation and out-of-school time as possible. Remember, all Aspergers children have control issues. If they feel out of control, they feel threatened.

9. Help your Aspergers adolescent find work. A part-time job is a rewarding way for an adolescent to spend some of his summer. Few things work better in building a sense of maturity, independence, and personal competence. The structure a job affords is a plus for children with Aspergers, and the extra spending money is, of course, an added bonus. While some Aspergers teens are capable of finding a job for themselves, most need guidance and encouragement. Start by defining work goals for your youngster, such as earning money or learning a new skill. Discuss the right types of jobs, based on his skills, organizational ability, and attention capability. Then help him choose where to apply. It doesn't hurt to work on interview skills; role-play business owners and managers with him. Your encouragement and support may be just what your adolescent needs to follow through on a job search.

10. If you can, try to choose the least-busy times to do any given activity. Do things early or late in the day when most individuals haven't left yet or have already gone home. If a summer vacation can wait until fall or be taken in early spring, then by all means do it at those times. If you follow these tips, for any vacation you might consider, your Aspergers youngster will be in a better state of mind to be able to enjoy him or herself, and your chances of a peaceful vacation will increase.

11. If you’re striving for an educational experience, it had better be “fun” and not boring. If not, then try to use personal methods such as search and name games to help make them fun and different.

12. Keep a calendar (but leave some blank spaces). Even during the languorous summer months, Aspergers kids need structure to feel secure and have a sense of what to expect. A simple calendar of events lets your youngster see what's coming. Fill in ahead of time a mix of major summer activities, such as the family vacation or trips to visit relatives, and casual recreational activities, such as a weekend trip to the zoo or museum. You may also want to prearrange and mark down play dates. Of course, summer should still be a time to relax, so try not to over schedule. One planned event a weekend is great, three or four can feel rushed and hectic. Leave room for down time every day, when your youngster can do whatever he wants — even nothing at all. And make time at the end of the day for the family to relax, read, and talk.

13. Loosen the reins, but stay on course. The summer months cry out for flexibility. That being said, you don't want to relinquish basic family rules and routines. It's tempting to let children stay up later in summer, and a bit of that is OK. But remember that even a little sleep deprivation can lead to irritability and meltdowns at any time of year. Try to maintain basic bedtime habits. Stick to scheduled chores, too, as well as other established behaviors. A whole day in front of the TV should remain taboo even during summer months.

14. Maybe you don't have the time or money for a vacation, or you don't want the stress of dealing with one. If you're sticking around the house this summer, don't despair, there are lots of things you can do around the house to keep your little one engaged.

15. Money is not a requirement for fun. Take your youngster to a local pool (but try to go during the off hours when there won't be as many individuals), or hold pool parties in your yard if you have your own pool, and increase your youngster's socialization skills at the same time. Look on your town calendar to see if there are any free concerts in parks, which is often the case. Some towns have outdoor movie nights in parks as well, or a local library might have them. Use the library or a cheap Netflix subscription to rent movies for the family to watch. Also, summer is a great time for festivals; if your youngster can handle the crowds and sensory stimulation, of course. Festivals do not usually cost anything to get into, and provide lots of entertainment and visual stimulation. Another idea is to go to a craft store or a store that recycles old materials and sells them for craft projects, and have an arts and crafts day.

16. One of the hardest parts for Aspergers children in summertime is the change in routine. Even if they don't particularly like school, the routine of the school day (getting up at a certain time, going to classes which are usually in the same order, coming home and doing homework, etc.) is comforting to them. They might be at a loss for what to do with their time when summer comes, and they may feel lost and adrift with no routine to anchor them. This is normal for children with Aspergers. Try to create a loose routine for your Aspergers youngster if you can. Post it on the wall as a visual reminder. Such a schedule could go something like this: "Breakfast, morning activity, lunch, afternoon activity, TV/video game period (if allowed), dinner, pre-bedtime activities. You can create a list of activities that the youngster can choose from and post those as well so that the youngster has some idea of what could or might happen, or you could decide ahead of time and post them for the week. Things like going to the park, going to the library, arts and crafts, some kind of sports if your youngster is interested, baking, reading, whatever you can come up with can be on the list, and you can rotate activities. In some ways, you could make it like a loosely structured, non-academic home school, which might make your youngster feel more comfortable and reduce behavior problems that might stem from anxiety over loss of routine.

17. Play after work. During the school year, you set a regular study time for your Aspergers youngster because it helps him get his work done. In the same way, scheduled playtimes in summer — for children and moms and dads together — will insure fun as well as family bonding. So play catch in the backyard, take a bike ride, or go out for ice cream. These relaxed times provide just the change of pace you and your youngster need to de-stress after nine months of school, or even a day's work.

18. Since most children with Aspergers are visual learners and they have a need to know what is going to happen ahead of time, social stories work well. To make a social story, you simply need to make or find pictures of the places you will be going to do and the things you will be doing and write out a story that illustrates what your daily activities will be like. The story should give the details of the daily routine so that your youngster can plan ahead and have a sense of what to expect. Talk about how you are going to get to your vacation spot, who will be coming with you, and what some of the activities will be. Make sure to think of the details when planning your trip.

19. Some Aspergers children are sensitive to the heat, and will be uncomfortable and irritable during the day when the sun is at its peak. If this is a problem, try to choose events where you can go in the evening, or go out on cloudy days.

20. Some structure during summer vacation is important. But so is unstructured downtime. Most Aspergers kids can be amazingly creative in finding ways to have fun. With your encouragement, the freedom to do nothing opens up countless possibilities to do anything. Moms and dads needn't be constant entertainment directors in the summer. It may be more helpful to express confidence in your youngster's ability to be creative and inventive — and then let him. So go ahead and schedule some activities, then get out of the way and let your youngster do what comes naturally.

21. There is nothing more stressful to a youngster with Aspergers than not knowing what is going to happen. For example, if you're at a beach, maybe schedule swimming time in the morning, a walk on the boardwalk at lunch, time to see nearby attractions or play on any available playgrounds in the afternoon… try to have the day loosely planned out a day ahead of time or at least in the morning of that day so your youngster knows what to expect. Most individuals enjoy the feeling of unstructured free time, but Aspergers children are so worried about what might happen next, and how they will cope with it, that they need to have an idea of what is happening. The schedule can be modified to some degree if you need to, but giving your youngster some advance notice of this (or planning a favored activity for after the change of plans) will have the best results. Be aware that individuals will always talk, and most individuals don't know what they're talking about.

22. Think very carefully about where you want to go. You want a place that will be Aspergers friendly. For many individuals, this means a place that is not too loud or does not offend other sensory quirks of your youngster. For example, if your kid has tactile issues with sand, you might not want to go to the beach. If they're scared of large animals, you don't want to go to the circus, for example. Choose a place that matches your youngster's interests and ability levels.

23. Use community resources. Take advantage of the summer recreational and educational opportunities that most towns offer. Find a youth sports league, or sign up for day camp. Many local recreation centers offer swimming, gymnastics, even computer classes. Encourage your artistic youngster to join a kid's theater group or sign up for community art or jewelry-making courses. In addition, visit local zoos and museums, and find out where and when summer festivals are scheduled in your area. Don't forget to add selected activities to your calendar. When you plan ahead and write it down, you're more likely to do it.

24. Whatever keeps your Aspergers kid happy at home will probably work when he is away from home. If hand-held games are acceptable distractions, then by all means take them with you.

25. You want to make sure that you very carefully choose the place that you will be staying. Whether you're staying at a hotel, a camp site, a motel, or renting a house, there are different issues to consider. If your youngster has a lot of food issues and sensitivities, you might want to choose a place where you'll have your own kitchen, so you can make your own food. This could include hotel rooms with a small kitchen area, or a rented house with kitchen facilities. If noise is a factor, you want to make sure you're not in a crowded hotel with thin walls where you can hear your neighbors fighting and the ice machine, or elevator, makes noise all night. On the other hand, if your youngster hates bugs and getting dirty, camping might not be such a good choice.

My Aspergers Child: Preventing Meltdowns