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Aspergers Plus ADHD

Question

My daughter is 9 and has ADHD and Asperger's. She takes Methylphenidate twice a day so that she may focus at school, but when the second dose wears off she becomes uncontrollable. She is loud & completely disobedient. I have a 6 year old son also and am a single mother. I am at my wits end. I feel like I have tried everything and nothing works. She talks back to me always. There is not one time that I ask her to do something that she doesn't argue back. Please help me :o)

Answer

It sounds like she does fine until her meds wear-off. We’ll start there…

Have you tried sustained release forms of ADHD medication, or one of the long acting stimulants?

Sustained release forms of these medications have the benefit that the medication is often still working after school, as your youngster is trying to do his homework. The sustained release pills must be swallowed whole (except for Adderall XR).The long acting stimulants generally have the duration of 8-12 hours and can be used just once a day. They are especially useful for kids who are unable or unwilling to take a dose at school.

At least 80% of kids will respond to one of the ADHD stimulants, so if 1 or 2 medications don't work or have unwanted side effects, then a third might be tried. It can help if you are aware of the different medications that are available. Stimulants are considered to be first line treatments, and antidepressants are second line treatments and might be considered if 2 or 3 stimulant medications don't work for your youngster.

Here is a list of long acting stimulants to explore with your youngster’s doctor:

• Adderall XR— Adderall XR is approved for use in kids over the age of six years, although regular Adderall can be used in younger kids from 3-5 years of age. Adderall XR is a sustained release form of Adderall, a popular stimulant which contains dextroamphetamine and amphetamine. It is available as a 10mg, 15mg, 20mg, 25mg, and 30mg capsule, and unlike many of the other sustained release products, the capsule can be opened and sprinkled onto applesauce if your youngster can't swallow a pill.

• Concerta— Concerta is a sustained release form of methyphenidate (Ritalin). It is available as a 18mg, 36mg and 54mg tablet and is designed to work for 12 hours. Teens can take two 36mg tablets to get to a dose of 72mg. Like Adderall XR, it is only approved for kids over the age of six years.

• Daytrana— Daytrana is a methyphenidate or Ritalin patch. The patch is available in 10mg, 15mg, 20mg, and 30mg dosages, which are worn for about nine hours at a time on a youngster's hip. The medication in your youngster's system then continues to work for a few more hours once you take the patch off, although you may have to figure how the patch works best for your youngster. One benefit of the Ritalin patch, in addition to working well for kids who don't like to take medicine, is that it gives you a lot of flexibility. For example, on some days your youngster could just wear the Daytrana patch for a few hours and on other days he could wear it a little longer if he has extra homework (as long it doesn't interfere with bedtime).

• Focalin XR— An extended release form of Focalin, with the active ingredient dexmethylphenidate hydrocholoride, which is also found in methylphenidate (Ritalin). It is available in an 5mg, 10mg, 15mg, and 20mg capsule.

• Metadate CD— This is also a long acting form of methylphenidate (Ritalin).

• Ritalin LA— This is is a new long acting form of methylphenidate (Ritalin). It is available in 10, 20, 30, and 40mg capsules. Unlike the other long acting forms of methylphenidate, the Ritalin LA capsules can be opened and sprinkled on something if your youngster can't swallow them whole.

• Vyvanse— The latest medication to get approval to treat ADHD is Vyvanse, a long acting stimulant that is similar to Adderall. In fact, its main ingredient is lisdexamfetamine dimesylate, a derivative of one of the ingredients in Adderall. Initially available in 30mg, 50mg, and 70mg capsules, newer 20mg, 40mg, and 60mg capsules should be available soon.

Side effects of stimulants can include a decreased appetite, headaches, stomachaches, trouble getting to sleep, jitteriness, and social withdrawal, and can usually be managed by adjusting the dosage or when the medication is given. Other side effects may occur in kids on too high a dosage or those that are overly sensitive to stimulants and might cause them to be over-focused on the medication or appear dull or overly restricted. Some moms and dads are resistant to using a stimulant because they don't want their youngster to be a 'zombie,' but it is important to remember that these are unwanted side effects and can usually be treated by lowering the dosage of medication or changing to a different medication.

Here are several points to keep in mind with regard to medication for Aspergers and High-Functioning Autism:

• Anti-Depressants May Be Needed— While many kids with Aspergers present with hyperactivity, there is a tendency for teenagers to suffer from depression. There are various reasons why depression may be so common. For example, teens with Aspergers generally want to fit in socially. They can become depressed when they fail to fit into society's molds or norms or can't grasp the importance of its rules. Depression may also hit as they deal with anxiety and obsessive behaviors.

• Consider non-Medical Therapies— There are several therapies that are proven to be effective in treating and improving behaviors in children with Aspergers. Behavioral therapies help the child learn to cope with obsessive tendencies, deal with tantrums, cope with anxiety or control angry outbursts. Social skills classes help them to understand more of the back-and-forth nature of communication. Speech therapy can help them understand different uses of language. Occupational therapy improves the clumsiness or lack of co-ordination problems.

• Diet and Vitamin Treatments Improve Symptoms— Nutritional deficiencies and mal-absorption problems are common in Aspergers children. Many parents report success with a restricted diet or adding vitamin supplements. Other parents report success with the gluten and casein-free diet or a low-sugar, low-yeast diet. It is best to get a blood or stool test to check for any food intolerances or vitamin deficiencies. Consult a nutritional therapist if you want to go this route. After testing, some common vitamins that Aspergers children often use include: B vitamins, zinc, magnesium, Vitamin C and cod liver oil supplements.

• Medications for Anti-Anxiety or ADD/ADHD are Useful— Anxiety and stress are usually elevated in Aspergers children and teens. They often require medications to cope with the anxiety. Children with Aspergers also struggle with concentration, hyperactivity, focus and attention. Medicines to target ADD or ADHD have proven useful for Aspergers. There can be side effects with new behaviors showing up, however, so any medication use needs to be closely monitored.

• There Is Not Just One Medication— While many of the symptoms of Aspergers can be treated with a variety of medications, there is not one magic pill for the syndrome. Aspergers children and teens often lack proper social skills, have obsessive tendencies and can be clumsy or awkward. Some medications can be used to improve specific behaviors associated with Aspergers, such as anxiety, hyperactivity or attention deficit.

My Aspergers Child: Preventing Meltdowns and Tantrums in Aspergers Children


COMMENTS:

•    Anonymous said... I feel your pain.... I have 3 with ASD and complex behavior challenges including ADHD. Maybe there is a different dose that is more time released ? I am about to go the med route for my daughter. She is so difficult and has been since she was 1.5... She is six now. Ugh it's so draining!!!
•    Anonymous said... I'm familiar w this. Repeat every request and or argue for every little thing.
•    Anonymous said... We have three rules for our family. Each one has a clear consequence. By making these clear then following through discipline is simplified enough that we can spend most our energy on positive interactions with our son. Two years on this approach and he's got himself so much under control that he and his therapist weaned him off all meds. In his case he would take all the emotional power we would give him, so we just had to take the emotions out of correction and give him very clear expectations and hold him calmly to them. Then, we did all we could to let him know we adore and enjoy him just the way he is. In the end my belief is that the work is Gods inside our kids hearts, so prayer is the best thing you can do for your kids, but schedule, routine, clear expectations, calm correction, and happy parents are things that can benefit every family.
 
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The Gluten-free Casein-free Diet: Does It Really Work?

A gluten-free, casein-free diet is definitely recommended for children with Aspergers and High Functioning Autism. Here’s why:

The molecular structure of partially undigested proteins, called peptides, resembles opiates. These peptides have an effect much like opiates (i.e., morphine, heroin) in the brain and nervous system. Long-term exposure to these opiate peptides can have many damaging effects on the developing brain and also affects behavior, just as any narcotic would. The opioid peptides involved are identified as casomorphines from casein, and gluten exorphines and gliadorphin from gluten.

Children with Aspergers and High Functioning Autism usually have gastrointestinal problems (e.g., reflux, constipation, diarrhea, vomiting, hiccups, etc.). Proteins found in wheat, rye, oats, barley and dairy products (gluten and casein) aren't completely broken down in the Aspergers child’s digestion process. These undigested proteins can leak into the bloodstream, potentially interfering with neurological processes by having an opiate-like effect upon their systems. These undigested proteins (peptides) can reach toxic levels, with the youngster seeming to "crave" milk and wheat products.

The results produced by the diet vary – but you can expect to see some result. Parents report a variety of outcomes such as:
  • improved fine motor skills
  • improved focus and attention span
  • improved intestinal function
  • improved personal hygiene habits
  • improved sleep patterns
  • improved social skills
  • improved speech and communication
  • increase in affection shown
  • reduction of tantrums and irritability

With results like this, why would you NOT want to try it! A gluten-free, casein-free diet is definitely worth considering. You don't have to feel overwhelmed by the restrictive nature of the diet. Simply start slowly and eliminate one group (either gluten or casein) at a time. Once you're comfortable without wheat or dairy products, then you can tackle the next element. If you see a desirable result from eliminating one component, you may decide not to go any further. Simply substituting gluten-free flour in all recipes can be a highly effective action.

Many parents worry about removing wheat and dairy because these foods are the only ones their child will eat, and because prevailing attitudes in Western culture consider them an essential staple. However, Aspergers children who eat mostly wheat and dairy products may show remarkable improvement once a gluten-free, casein-free diet is implemented. Many families have found from experience that their children's menu options actually increase after the effects of eating gluten and casein have subsided.

A gluten-free, casein free diet usually has a detoxifying effect – not only on Aspergers children – but on the entire family. The benefits will be obvious. Some Aspergers children experience immediate improvement (although it may take as long as six months for gluten to clear out of the system - and one month for casein to clear). Advocates of the diet recommend trying it for at least a year, because it can take this long for some children to show improvement. The diet tends to make changes in the body at a cellular level and promote healing of the stomach and intestinal lining, both of which can take time.

The Aspergers Comprehensive Handbook

Aspergers: Different Levels of Severity

Question

As I read articles about Aspergers, I have to question if there are different levels of Aspergers? My son does not have extreme behavior however I also have to ask if some of the behavior training I have drilled into him is showing more now as he ages. Some of the stories that I read seem extreme. I can think of extreme behaviors that he has displayed and lack of reasoning skills that he has shown, social issues, but still I wonder if he was dx incorrectly or am I just grasping at straws?

Answer

Health care providers think of autism as a “spectrum” disorder, a group of disorders with similar features. One person may have mild symptoms, while another may have serious symptoms. But they both have an autism spectrum disorder. Different kids with an autism spectrum disorder can have very different symptoms.

Aspergers (high-functioning autism) can range from mild to severe. A child might have a few traits of Aspergers, or might have a large number of traits, and each of these traits can range from mild to severe. So, some children with Aspergers have only minor difficulties functioning in society while others need someone to help with most aspects of life.

Some children have all of the criteria for Aspergers that are quite severe and very noticeable, and others may not get diagnosed until they are a teenager (or even later) because they were thought of as just being shy or eccentric. Some adults with Aspergers can't get a job, can't live on their own, can't drive, have major marriage problems, and have very few friends. Others are married and have children, hold down employment, can drive, and have plenty of friends (but still have the social problems and obsessive interests/routines that are part of the disorder).


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book



 
COMMENTS:

•    Anonymous said… Everyone is different and has a different set of circumstances. Consider yourself lucky if your kid doesn't rage. I know my daughters rages are not just because of Aspergers, unfortunately the split between me and her dad has affected her negatively. Sometimes I think some of her rages stim from that and lack of control. She is a major control freak......
•    Anonymous said… I have 2 boys with it, 1 with the extreme rage and 1 not. Totally different behaviours and aspects of it. I beleive the younger 1 is because we didn't know what was going on with the older 1 and at the time we were told this is what we were looking at the youngest had started showing the smae traits. So the younger 1 had earlier intervention and help than the older 1.
•    Anonymous said… Many adults have Aspergers and they don't know it. And you would never know it. Its not about being "extreme".
•    Anonymous said… My 13 year old Aspie daughter doesnt get on at school,can hardly get her 2 go.She sits in her room,she used 2 go 2 judo twice a week but now doesnt go.Her anxiety is thru the roof alot of days.Ive tried 2 get her the help but mental health say she has 2 be 14 before certain organisations step in.
•    Anonymous said… My 9 year old aspie does not have any rage - he has infrequent meltdowns or gets overly rigid & emotional - but no rage. Every aspie, autistic, autism spectrum, sensory child - every child is different & unique.
•    Anonymous said… My son has definitely changed in his teens. He used to be crazy and funny (when he wasn't melting down or angry). Now he is super quiet and shuts down a lot. Closed off. He won't leave the house at all except for school. The social anxiety is more extreme.
•    Anonymous said… This article reminds me so much of my thoughts! It gets so tricky-! There are 3 kids one of which is a cousin that my son can make that connection with everyone else is like back ground noise to him- as if there not in his picture - just there- he operates in same room but not connecting- however while one on one play date s he thrives!! Leaving me thinking-- did they get this right! Could it be wrong! But then we go out to the world such as a Drs appt and I see his body language and demeanor- he can't stand to even be in same lobby with others of its close quarters- he will even take his blanket and cocoon hisself with it-- then it's like yep! They got it right! And also going into the classroom to just observe is so telling!! So so telling! He's in his world  🌎-- and will allow the one kid in-- I think tony Atwood's book- Guide to Asperger is best read I have found!! It's like a blue book to my son! I think they should mandatory every therapist, that is going to be giving therapy to these kids to read it 3 x!!! Lol!!! Then let's have a session!! I am so worried about his teen age years-- that will be the crucial part! Keeping him going to school , trying to interact will be so important-! This year it almost got to point of home school- I'm so glad we pushed through because he is so happy there now! He is still who he is but it's as if the others kids have accepted him but not only accepted it they help him! It was Beautiful how I saw them helping him! Wish I had it on video to share !! Kids can be just awesome!  ❤

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Problems with Insurance Reimbursement

Question

My son has Aspergers, and I am having problems getting my insurer to pay for specialty medical treatments that should obviously be covered. Do you have any suggestion?

Answer

Unfortunately, this is not uncommon. I have found that parents with Aspergers (high functioning autistic) children not only have a tough enough time locating a good referral for either diagnosis or treatment of the disorder, but they also have problems with insurance reimbursement.

Sometimes, parents simply need to do some good old fashion “ranting and raving” to get things done – seriously! When parents are in HMO's and they are only offered low level assistance by therapists who don't know about Aspergers – it’s time to get tough.

Find out who in your area is an expert on Aspergers and demand that your insurer pay for that person (even if they are out of network). It’s up to YOU to make sure your insurers will pay! If you are in the U.S., ask your State Insurance Office to help you. Keep notes on all phone contacts with your insurer (always ask the name of the person you are talking to), and if you are getting nowhere, file a complaint with the State Insurance Office.

The Aspergers Comprehensive Handbook

The Best Books About Aspergers

Question

I’m a psychologist in the Chicago area. I’ve been getting more and more Aspergers clients over the last year, but am not well versed with this disorder or its treatment. Are there any books on this subject that you would recommend?

Answer

The following is an alphabetical list of “must have” books if you’re really serious about becoming an “expert” in the Aspergers field. These are all in my personal library:

1. An Asperger Marriage by Gisela Slater-Walker

2. Aquamarine Blue 5: Personal Stories of College Students With Autism by Dawn Prince-Hughes

3. Asperger Syndrome and Long-Term Relationships by Ashley Stanford, Liane Holliday Willey

4. Asperger Syndrome in the Family: Redefining Normal by Liane Holliday Willey

5. Aspergers in Love: Couple Relationships and Family Affairs by Maxine Aston

6. B. Smith Myles, K. Tapscott Cook, N. E. Miller, L. Rinner, L. A. Robbins, Asperger Syndrome and Sensory Issues: Practical Solutions for Making Sense of the World, (2000) Autism Asperger Publishing Co.

7. Biological Basis of Autism by William Shaw, Ph.D., available from Great Plains Laboratory (913) 341-8949

8. Brenda Smith Myles, Melissa L. Trautman, Ronda L. Schelvan, The Hidden Curriculum: Practical Solutions for Understanding Unstated Rules in Social Situaitons, Autism Asperger Publishing Company (2004)

9. Children with Starving Brains, by Jacquelyn McCandless, M.D.

10. Employment for Individuals With Asperger Syndrome or Non-Verbal Learning Disability: Stories and Strategies by Yvona Fast

11. Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence by Luke Jackson

12. G. Berard, Hearing Equals Behavior, (1993) Keats Publishing Inc., New Canaan, Connecticut

13. Gail Gillingham, Autism: Handle with Care! (1998, 3rd edition), Tacit Publications, Inc., Edmonton, Alberta, Canada

14. H. Irlen, Reading by the Colors: Overcoming Dyslexia and Other Reading Disabilities Through the Irlen Method, (1991) Avery Publishing Group, Inc., Garden City Park, NY.

15. How to Find Work That Works for People with Asperger Syndrome: The Ultimate Guide for Getting People With Asperger Syndrome into the Workplace (and Keeping Them There!) by Gail Hawkins

16. J. Dimitrius and M. Mazzarella, Reading People: How to Understand People and Predict Their Behavior—Anytime, Anyplace, (1999) Ballantine Publishing Group

17. J. L. Savner, and B. Smith Myles, Making Visual Supports Work in the Home and Community: Startegies for Individuals with Autism and Asperger Syndrome, (2000) Autism Asperger Publishing Co.

18. J. Newport and M. Newport, Autism-Asperger’s & Sexuality, (2002) Future Horizons

19. Jean Kearns Miller, editor, Women from Another Planet: Our Lives in the Universe of Autism,(2003) 1stBooks Library

20. Jeanette McAfee, Navingating the Social World: A Curriculum for Individuals with Asperger’s Syndrome, High Functioning Autism and Related Disorders, (2002) Future Horizons, Inc.

21. Jerry Newport, Your Life is Not a Label: A Guide to Living Fully with Autism and Asperger’s Syndrome for Parents, Professionals, and You!, Future Horizons, Inc.

22. K. Stewart, Helping a Child with Nonverbal Learning Disorder or Asperger’s Syndrome: A Parent’s Guide, (2002) New Harbinger Publications

23. L. Holliday Willey, Pretending to be Normal, (1999) Jessica Kingsley Publishers

24. Loving Mr. Spock: Understanding an Aloof Lover, by Barbara Jacobs

25. Rebekah Heinrichs, Perfect Targets: Asperger Syndrome and Bullying, (2003) Autism Asperger Publishing Co.

26. Right Address ... Wrong Planet: Children with Asperger Syndrome Becoming Adults by Gena Barnhill

27. Stephen M. Shore (editor), Ask and Tell: Self-Advocacy and Disclosure for People on the Autism Spectrum, (2004) Autism Asperger Publishing Co.

28. Stephen Shore, Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome, (1961) Autism Asperger Publishing Co.

29. Succeeding in College With Asperger Syndrome by John Harpur, Maria Lawlor, Michael Fitzgerald

30. Temple Grandin & Kate Duffy, Developing Talents: Careers for Individuals with Asperger Syndrome and High-Functioning Autism, (2004) Autism Asgerger Publishing Co.

31. Temple Grandin, Thinking In Pictures: and Other Reports from My Life with Autism, (1996) Vintage Books

32. Teresa Bolick, Asperger Syndrome and Adolescence: Helping Preteens and Teens Get Ready for the Real World, (2001) Fair Winds Press, Gloucester, MA

33. The Other Half of Asperger Syndrome: A guide to an Intimate Relationship with a Partner who has Asperger Syndrome by Maxine C. Aston

34. Tony Attwood, Asperger’s Syndrome: A Guide for Parents and Professionals, (1998) Jessica Kingsley Publishers

The Aspergers Comprehensive Handbook

Crucial Strategies for Parents of Challenging Kids on the Autism Spectrum

    Resources for parents of children and teens on the autism spectrum :   ==> How to Prevent Meltdowns and Tantrums in Children ...