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The World of Aspergers: Advice to Teachers

"I've come to the frightening conclusion that I am the decisive element in the classroom... As a teacher, I possess a tremendous power to make a child's life miserable or joyous... In all situations, it is my response that decides whether a crisis will be escalated or de-escalated and a child humanized or de-humanized." - Haim Ginott

Few could disagree with the sentiments expressed by Ginott, at least in theory. Unfortunately, theory doesn't always translate into practice, at least not for kids with the enigmatic and complex disorder known as Aspergers (high functioning autism). Thus, when a crisis occurs, or worse yet escalates, it is often the youngster who is held accountable, and the teacher who is exonerated!

Consultants are rarely asked to look at what the school staff needs to know and do to better understand and address the challenges that accompany Aspergers. Rather, they are all too often directed to focus their efforts on "fixing" the youngster, as though his or her actions are the result of behavioral decisions, rather than the reflection of a neurological impairment.

Could it be that Ginott's words were intended only for educators of typical kids? That is most unlikely. Then what is there about Aspergers that "invites" placing the burden of responsibility with respect to aberrant behavior on the kids who manifest the disability, rather than on those who have the wherewithal to operate with far greater freedom and flexibility (i.e., their educators or caregivers)?

One parent's search for answers to a particularly distressing school situation led her to characterize the plight of her 8 1/2 year old son with Aspergers thusly: "The good news is he's bright, and the bad news is he's bright!" This revealing description makes a poignant, and sadly accurate statement about an educational system that not only fails to understand the youngster with Aspergers, it fails to recognize that such understanding is in fact necessary if positive change is to occur. An analysis of what this parent meant by her statement gives one a window on the topsy-turvy world of Aspergers.

In most disorders, descriptors such as "more able" and "high functioning" are excellent prognostic indicators - hence, the good news. How then can intelligence be considered bad news? The answer to this question lies in the paradoxical nature of Aspergers itself.

Individuals with Aspergers are cognitively intact. That is, they possess normal, if not above-average intelligence. This creates an expectation for success. Further, the pursuit of their restricted repertoires of interests and activities often results in the amassing of impressive facts, and in an expertise beyond their years. Therein lies the problem! Given their enormous strengths, and the expectation that they generate, and given the fact that intelligence is a highly-prized trait in our culture, intellectual prowess in the youngster with Aspergers virtually eclipses the social-emotional and other deficits that are at the heart of the unusual behavior and interests are often seen.

Stated more succinctly, unmindful of their neurologically-based weaknesses, educators and/or clinicians get blinded by the strengths of these kids. This situation inevitably leads to a mental set that can be summed up as follows: "If he/she is that smart, shouldn't he/she know better?" The answer to that question is a resounding "no". In fact, because of the social-emotional and communication deficits, as well as the presence of symptomatology unique to Aspergers, these kids can't "know better" until they are taught simply to know (i.e., to understand).

Consequently, in order to create an hospitable environment for kids with Aspergers in a world that is often inhospitable to their needs, it s vital that educators and other caregivers employ direct teaching strategies to address the following specific areas:
  • Executive dysfunction (i.e., problems in organizational skills/planning)
  • Perspective-taking
  • Problem solving
  • Reading/language comprehension
  • Socio-communicative understanding and expression

Together, these target areas constitute a kind of life skills curriculum for the more able student. Their inclusion in the student's IEP can help to ensure that each of these important skill areas gets the attention it deserves. After all, life skills are far too important to be left to chance! 

Struggling with an Aspergers or HFA student? Click here for highly effective teaching strategies -- specific to the disorder. 


 COMMENTS:

•    Anonymous said... I think schools should be trained on how to help children with different needs, in England alot of the one to ones and the special needs teacher have been cut because there isn't the funding for them as a result loads of children don't have their needs met.
•    Anonymous said... Thank you. I think that is the worst part of aspergers. My 7 year old was diagnosed with this ADHD and aniexty last year. The worst part is people treat him and me as if he is just a bad kid and a bully. Its can be so hard at time. I keep reminding him that people dont understand what they can see and that he is a good kid. We also talk how he has to try with his behavior and cant use his issues as an excuse. Once he learns to work with it it will be a gift.

*   Anonymous said... We give as much info on our Aspy child (triggers and signs) to look out for when his anxiety is rising and how to prevent the meltdown but when you have so many substitute teachers or teachers that treat yur child as a number and not as an individual he keeps getting suspended over trivial matters that could have been avoided if they didn't contribute to his anxiety...

Post your comment below...

HFA Teens & Angry Outbursts

My son is 13 years old; he has been previously diagnosed with high functioning autism, adhd and obsessive compulsive disorder. My son lived with his father for six months while I recovered from a nervous breakdown. When I got custody of him again he was very aggressive, would hit his 6 year old brother and call him names and put him down. My ex gave him no discipline from what I gather from my son, he told me he had to raise his six year old brother for them six months. He blames me for the divorce between me and his father. I have bipolar and he doesn’t seem to understand that I am different too and that I need him to cooperate and help me as much as possible. He’s too focused on his ocd, his adhd and his autism and he uses all of these things for an excuse for all of the negative behaviors he is having. In the last past year he has changed 3 schools, and moved to a new area, which he says he hates. I’m wondering if he will adjust to the new setting and new rules that I have for him. I think some of it is the teenage years; he uses profanity often and shows aggression to get his way no matter what the consequences. I want to help my son but I don’t know what to do. His brother is totally opposite; he does what I tell him and goes by all of the rules. How do I get my son to show me respect and work on his attitude without so many angry outbursts which could get me evicted from our apartment? I go with the flow to keep things as quiet as possible but things get worse, if I threaten to take his games he threatens and has went as far as walking out of the door leaving me to find him. Am I dealing with Aspergers, Adhd, compulsive disorder or just an unruly teenager? I think it is all of them. I was wondering if there is an autism training center that could come in and work with my son. I am desperate at this point and will do anything to help my child to stay on the right track, I worry that he is headed for suicide or prison. I am very concerned for him, he’s happy as long as I cater to him, but when I stand up for what I think is right he rebels and I pay dearly. Please help.

Click here for the answer...

Teaching Students with Asperger Syndrome: Guidelines for Educators


Teachers can be great allies in keeping the youngster with Aspergers or High Functioning Autism safe and successful in school, but you'll need to make sure you have all the knowledge you need to help...

Five Things Teachers Need to Know—
  1. If there will be any sort of change in my youngster's classroom or routine, please notify me as far in advance as possible so that we can all work together in preparing her for it.
  2. My youngster is an individual, not a diagnosis; please be alert and receptive to the things that make her unique and special.
  3. My youngster needs structure and routine in order to function. Please try to keep his world as predictable as possible.
  4. My youngster's difficulty with social cues, nonverbal communication, figurative language and eye contact are part of his neurological makeup -- he is not being deliberately rude or disrespectful.
  5. Please keep the lines of communication open between our home and the school. My youngster needs all the adults in his life working together.

Kids diagnosed with Aspergers present a special challenge in the educational milieu. This article provides teachers with descriptions of seven defining characteristics of Aspergers, in addition to suggestions and strategies for addressing these symptoms in the classroom. Behavioral and academic interventions based on the author's teaching experiences with kids with Aspergers are offered.

Kids diagnosed with Aspergers (AS) present a special challenge in the educational milieu. Typically viewed as eccentric and peculiar by classmates, their inept social skills often cause them to be made victims of scapegoating. Clumsiness and an obsessive interest in obscure subjects add to their "odd" presentation. Kids with AS lack understanding of human relationships and the rules of social convention; they are naive and conspicuously lacking in common sense. Their inflexibility and inability to cope with change causes these individuals to be easily stressed and emotionally vulnerable. At the same time, kids with Aspergers (the majority of whom are boys) are often of average to above-average intelligence and have superior rote memories. Their single-minded pursuit of their interests can lead to great achievements later in life.

Aspergers is considered a disorder at the higher end of the autistic continuum. Comparing individuals within this continuum, Van Krevelen (cited in Wing, l99l) noted that the low-functioning youngster with autism "lives in a world of his own," whereas the higher functioning youngster with autism "lives in our world but in his own way" (p.99).

Naturally, not all kids with Aspergers are alike. Just as each youngster with Aspergers has his or her own unique personality, "typical" Aspergers symptoms are manifested in ways specific to each individual. As a result, there is no exact recipe for classroom approaches that can be provided for every youngster with Aspergers, just as no one educational method fits the needs of all kids not afflicted with Aspergers.

Following are descriptions of seven defining characteristics of Aspergers, followed by suggestions and classroom strategies for addressing these symptoms. (Classroom interventions are illustrated with examples from my own teaching experiences at the University of Michigan Medical Center Youngster and Adolescent Psychiatric Hospital School.) These suggestions are offered only in the broadest sense and should be tailored to the unique needs of the individual student with Aspergers.

Insistence on Sameness—

Kids with Aspergers are easily overwhelmed by minimal change, are highly sensitive to environmental stressors, and sometimes engage in rituals. They are anxious and tend to worry obsessively when they do not know what to expect; stress, fatigue and sensory overload easily throw them off balance.

Programming Suggestions:
  • Allay fears of the unknown by exposing the youngster to the new activity, teacher, class, school, camp and so forth beforehand, and as soon as possible after he or she is informed of the change, to prevent obsessive worrying. (For instance, when the youngster with Aspergers must change schools, he or she should meet the new teacher, tour the new school and be apprised of his or her routine in advance of actual attendance. School assignments from the old school might be provided the first few days so that the routine is familiar to the youngster in the new environment. The receiving teacher might find out the youngster's special areas of interest and have related books or activities available on the youngster's first day.)
  • Avoid surprises: Prepare the youngster thoroughly and in advance for special activities, altered schedules, or any other change in routine, regardless of how minimal.
  • Minimize transitions.
  • Offer consistent daily routine: The youngster with Aspergers must understand each day's routine and know what to expect in order to be able to concentrate on the task at hand.
  • Provide a predictable and safe environment.

Impairment in Social Interaction—

Kids with Aspergers show an inability to understand complex rules of social interaction; are naive; are extremely egocentric; may not like physical contact; talk at people instead of to them; do not understand jokes, irony or metaphors; use monotone or stilted, unnatural tone of voice; use inappropriate gaze and body language; are insensitive and lack tact; misinterpret social cues; cannot judge "social distance;" exhibit poor ability to initiate and sustain conversation; have well-developed speech but poor communication; are sometimes labeled "little professor" because speaking style is so adult-like and pedantic; are easily taken advantage of (do not perceive that others sometimes lie or trick them); and usually have a desire to be part of the social world.

Programming Suggestions:
  • Although they lack personal understanding of the emotions of others, kids with Aspergers can learn the correct way to respond. When they have been unintentionally insulting, tactless or insensitive, it must be explained to them why the response was inappropriate and what response would have been correct. Individuals with Aspergers must learn social skills intellectually: They lack social instinct and intuition.
  • Kids with Aspergers tend to be reclusive; thus the teacher must foster involvement with others. Encourage active socialization and limit time spent in isolated pursuit of interests. For instance, a teacher's aide seated at the lunch table could actively encourage the youngster with Aspergers to participate in the conversation of his or her peers not only by soliciting his or her opinions and asking him questions, but also by subtly reinforcing other kids who do the same.
  • Emphasize the proficient academic skills of the youngster with Aspergers by creating cooperative learning situations in which his or her reading skills, vocabulary, memory and so forth will be viewed as an asset by peers, thereby engendering acceptance.
  • In the higher age groups, attempt to educate peers about the youngster with Aspergers  when social ineptness is severe by describing his or her social problems as a true disability. Praise classmates when they treat him or her with compassion. This task may prevent scapegoating, while promoting empathy and tolerance in the other kids.
  • Most kids with Aspergers want friends but simply do not know how to interact. They should be taught how to react to social cues and be given repertoires of responses to use in various social situations. Teach the kids what to say and how to say it. Model two-way interactions and let them role-play. These kid’s social judgment improves only after they have been taught rules that others pick up intuitively. One adult with Aspergers noted that he had learned to "ape human behavior." A college professor with Aspergers remarked that her quest to understand human interactions made her "feel like an anthropologist from Mars" (Sacks, l993, p.112).
  • Older students with Aspergers might benefit from a "buddy system." The teacher can educate a sensitive non-disabled classmate about the situation of the youngster with Aspergers and seat them next to each other. The classmate could look out for the youngster with AS on the bus, during recess, in the hallways and so forth, and attempt to include him or her in school activities.
  • Protect the youngster from bullying and teasing.

Restricted Range of Interests—

Kids with Aspergers have eccentric preoccupations, or odd, intense fixations (sometimes obsessively collecting unusual things). They tend to relentlessly "lecture" on areas of interest; ask repetitive questions about interests; have trouble letting go of ideas; follow own inclinations regardless of external demands; and sometimes refuse to learn about anything outside their limited field of interest.

Programming Suggestions:
  • Use the youngster's fixation as a way to broaden his or her repertoire of interests. For instance, during a unit on rain forests, the student with Aspergers who was obsessed with animals was led to not only study rain forest animals but to also study the forest itself, as this was the animals' home. He was then motivated to learn about the local people who were forced to chop down the animals' forest habitat in order to survive.
  • Use of positive reinforcement selectively directed to shape a desired behavior is the critical strategy for helping the youngster with Aspergers (Dewey, 1991). These kids respond to compliments (e.g., in the case of a relentless question-asker, the teacher might consistently praise him as soon as he pauses and congratulate him for allowing others to speak). These kids should also be praised for simple, expected social behavior that is taken for granted in other kids.
  • Students can be given assignments that link their interest to the subject being studied. For example, during a social studies unit about a specific country, a youngster obsessed with trains might be assigned to research the modes of transportation used by people in that country.
  • Some kids with Aspergers will not want to do assignments outside their area of interest. Firm expectations must be set for completion of class work. It must be made very clear to the youngster with Aspergers that he is not in control and that he must follow specific rules. At the same time, however, meet the kids halfway by giving them opportunities to pursue their own interests.
  • For particularly recalcitrant kids, it may be necessary to initially individualize all assignments around their interest area (e.g., if the interest is dinosaurs, then offer grammar sentences, math word problems and reading and spelling tasks about dinosaurs). Gradually introduce other topics into assignments.
  • Do not allow the youngster with Aspergers to perseveratively discuss or ask questions about isolated interests. Limit this behavior by designating a specific time during the day when the youngster can talk about this. For example: A youngster with Aspergers who was fixated on animals and had innumerable questions about a class pet turtle knew that he was allowed to ask these questions only during recesses. This was part of his daily routine and he quickly learned to stop himself when he began asking these kinds of questions at other times of the day.

Poor Concentration—

Kids with Aspergers are often off task, distracted by internal stimuli; are very disorganized; have difficulty sustaining focus on classroom activities (often it is not that the attention is poor but, rather, that the focus is "odd" ; the individual with Aspergers cannot figure out what is relevant [Happe, 1991], so attention is focused on irrelevant stimuli); tend to withdrawal into complex inner worlds in a manner much more intense than is typical of daydreaming and have difficulty learning in a group situation.

Programming Suggestions:
  • Work out a nonverbal signal with the youngster (e.g., a gentle pat on the shoulder) for times when he or she is not attending.
  • The teacher must actively encourage the youngster with Aspergers to leave his or her inner thoughts/ fantasies behind and refocus on the real world. This is a constant battle, as the comfort of that inner world is believed to be much more attractive than anything in real life. For young kids, even free play needs to be structured, because they can become so immersed in solitary, ritualized fantasy play that they lose touch with reality. Encouraging a youngster with Aspergers to play a board game with one or two others under close supervision not only structures play but offers an opportunity to practice social skills.
  • Seat the youngster with Aspergers at the front of the class and direct frequent questions to him or her to help him or her attend to the lesson.
  • In the case of mainstreamed students with Aspergers, poor concentration, slow clerical speed and severe disorganization may make it necessary to lessen his or her homework/class work load and/or provide time in a resource room where a special education teacher can provide the additional structure the youngster needs to complete class work and homework (some kids with Aspergers are so unable to concentrate that it places undue stress on moms and dads to expect that they spend hours each night trying to get through homework with their youngster).
  • If a buddy system is used, sit the youngster's buddy next to him or her so the buddy can remind the youngster with Aspergers to return to task or listen to the lesson.
  • Kids with severe concentration problems benefit from timed work sessions. This helps them organize themselves. Class work that is not completed within the time limit (or that is done carelessly) within the time limit must be made up during the youngster's own time (i.e., during recess or during the time used for pursuit of special interests). Kids with Aspergers can sometimes be stubborn; they need firm expectations and a structured program that teaches them that compliance with rules leads to positive reinforcement (this kind of program motivates the youngster with Aspergers to be productive, thus enhancing self-esteem and lowering stress levels, because the youngster sees himself as competent).
  • A tremendous amount of regimented external structure must be provided if the youngster with Aspergers is to be productive in the classroom. Assignments should be broken down into small units, and frequent teacher feedback and redirection should be offered.

Poor Motor Coordination—

Kids with Aspergers are physically clumsy and awkward; have stiff, awkward gaits; are unsuccessful in games involving motor skills; and experience fine-motor deficits that can cause penmanship problems, slow clerical speed and affect their ability to draw.

Programming Suggestions:
  • Do not push the youngster to participate in competitive sports, as his or her poor motor coordination may only invite frustration and the teasing of team members. The youngster with Aspergers lacks the social understanding of coordinating one's own actions with those of others on a team.
  • Individuals with Aspergers may need more than their peers to complete exams (taking exams in the resource room not only offer more time but would also provide the added structure and teacher redirection these kids need to focus on the task at hand).
  • Involve the youngster with Aspergers in a health/fitness curriculum in physical education, rather than in a competitive sports program.
  • Kids with Aspergers may require a highly individualized cursive program that entails tracing and copying on paper, coupled with motor patterning on the blackboard. The teacher guides the youngster's hand repeatedly through the formation of letters and letter connections and also uses a verbal script. Once the youngster commits the script to memory, he or she can talk himself or herself through letter formations independently.
  • Refer the youngster with Aspergers for adaptive physical education program if gross motor problems are severe.
  • When assigning timed units of work, make sure the youngster's slower writing speed is taken into account.
  • Younger kids with Aspergers benefit from guidelines drawn on paper that help them control the size and uniformity of the letters they write. This also forces them to take the time to write carefully;

Academic Difficulties—

Kids with Aspergers usually have average to above-average intelligence (especially in the verbal sphere) but lack high level thinking and comprehension skills. They tend to be very literal: Their images are concrete, and abstraction is poor. Their pedantic speaking style and impressive vocabularies give the false impression that they understand what they are talking about, when in reality they are merely parroting what they have heard or read. The youngster with Aspergers frequently has an excellent rote memory, but it is mechanical in nature; that is, the youngster may respond like a video that plays in set sequence. Problem-solving skills are poor.

Programming Suggestions:
  • Academic work may be of poor quality because the youngster with Aspergers is not motivated to exert effort in areas in which he or she is not interested. Very firm expectations must be set for the quality of work produced. Work executed within timed periods must be not only complete but done carefully. The youngster with Aspergers should be expected to correct poorly executed class work during recess or during the time he or she usually pursues his or her own interests.
  • Capitalize on these individuals' exceptional memory: Retaining factual information is frequently their forte.
  • Kids with Aspergers often have excellent reading recognition skills, but language comprehension is weak. Do not assume they understand what they so fluently read.
  • Do not assume that kids with Aspergers understand something just because they parrot back what they have heard.
  • Emotional nuances, multiple levels of meaning, and relationship issues as presented in novels will often not be understood.
  • Offer added explanation and try to simplify when lesson concepts are abstract.
  • Provide a highly individualized academic program engineered to offer consistent successes. The youngster with Aspergers needs great motivation to not follow his or her own impulses. Learning must be rewarding and not anxiety-provoking.
  • The writing assignments of individuals with Aspergers are often repetitious, flit from one subject to the next, and contain incorrect word connotations. These kids frequently do not know the difference between general knowledge and personal ideas and therefore assume the teacher will understand their sometimes abstruse expressions.

Emotional Vulnerability—

Kids with Aspergers have the intelligence to compete in regular education but they often do not have the emotional resources to cope with the demands of the classroom. These kids are easily stressed due to their inflexibility. Self-esteem is low, and they are often very self-critical and unable to tolerate making mistakes. Individuals with Aspergers, especially adolescents, may be prone to depression (a high percentage of depression in adults with Aspergers has been documented). Rage reactions/temper outbursts are common in response to stress/frustration. Kids with Aspergers rarely seem relaxed and are easily overwhelmed when things are not as their rigid views dictate they should be. Interacting with people and coping with the ordinary demands of everyday life take continual Herculean effort.

Programming Suggestions:
  • Affect as reflected in the teacher's voice should be kept to a minimum. Be calm, predictable, and matter-of-fact in interactions with the youngster with Aspergers, while clearly indicating compassion and patience. Hans Asperger (1991), the psychiatrist for whom this syndrome is named, remarked that "the teacher who does not understand that it is necessary to teach kids [with Aspergers] seemingly obvious things will feel impatient and irritated" (p.57); Do not expect the youngster with Aspergers to acknowledge that he or she is sad/ depressed. In the same way that they cannot perceive the feelings of others, these kids can also be unaware of their own feelings. They often cover up their depression and deny its symptoms.
  • Be aware that adolescents with Aspergers are especially prone to depression. Social skills are highly valued in adolescence and the student with Aspergers realizes he or she is different and has difficulty forming normal relationships. Academic work often becomes more abstract, and the adolescent with Aspergers finds assignments more difficult and complex. In one case, teachers noted that an adolescent with Aspergers was no longer crying over math assignments and therefore believed that he was coping much better. In reality, his subsequent decreased organization and productivity in math was believed to be function of his escaping further into his inner world to avoid the math, and thus he was not coping well at all.
  • Kids with Aspergers must receive academic assistance as soon as difficulties in a particular area are noted. These kids are quickly overwhelmed and react much more severely to failure than do other kids.
  • Kids with Aspergers who are very fragile emotionally may need placement in a highly structured special education classroom that can offer individualized academic program. These kids require a learning environment in which they see themselves as competent and productive. Accordingly, keeping them in the mainstream, where they cannot grasp concepts or complete assignments, serves only to lower their self-concept, increase their withdrawal, and set the stage for a depressive disorder. (In some situations, a personal aide can be assigned to the youngster with Aspergers rather than special education placement. The aide offers affective support, structure and consistent feedback.)
  • It is critical that adolescents with Aspergers who are mainstreamed have an identified support staff member with whom they can check in at least once daily. This person can assess how well he or she is coping by meeting with him or her daily and gathering observations from other teachers.
  • Prevent outbursts by offering a high level of consistency. Prepare these kids for changes in daily routine, to lower stress (see "Resistance to Change" section). Kids with Aspergers frequently become fearful, angry, and upset in the face of forced or unexpected changes.
  • Report symptoms to the youngster's therapist or make a mental health referral so that the youngster can be evaluated for depression and receive treatment if this is needed. Because these kids are often unable to assess their own emotions and cannot seek comfort from others, it is critical that depression be diagnosed quickly.
  • Teach the kids how to cope when stress overwhelms him or her, to prevent outbursts. Help the youngster write a list of very concrete steps that can be followed when he or she becomes upset (e.g., 1-Breathe deeply three times; 2-Count the fingers on your right hand slowly three times; 3-Ask to see the special education teacher, etc.). Include a ritualized behavior that the youngster finds comforting on the list. Write these steps on a card that is placed in the youngster's pocket so that they are always readily available.
  • Teachers must be alert to changes in behavior that may indicate depression, such as even greater levels of disorganization, inattentiveness, and isolation; decreased stress threshold; chronic fatigue; crying; suicidal remarks; and so on. Do not accept the youngster's assessment in these cases that he or she is "OK".

Kids with Asperger's syndrome are so easily overwhelmed by environmental stressors, and have such profound impairment in the ability to form interpersonal relationships, that it is no wonder they give the impression of "fragile vulnerability and a pathetic childishness" (Wing, 1981, p. 117). Everard (1976) wrote that when these youngsters are compared with their nondisabled peers, "one is instantly aware of how different they are and the enormous effort they have to make to live in a world where no concessions are made and where they are expected to conform" (p.2).

Teachers can play a vital role in helping kids with Aspergers learn to negotiate the world around them. Because kids with Aspergers are frequently unable to express their fears and anxieties, it is up to significant adults to make it worthwhile for them to leave their safe inner fantasy lives for the uncertainties of the external world. Professionals who work with these youngsters in schools must provide the external structure, organization, and stability that they lack. Using creative teaching strategies with individuals suffering from Aspergers is critical, not only to facilitate academic success, but also to help them feel less alienated from other human beings and less overwhelmed by the ordinary demands of everyday life.

The Complete Guide to Teaching Students with Aspergers and High-Functioning Autism

Aspergers Teens and Picky Eating: Questionnaire


Question: "Are you a fussy eater?"



My whole life, I've found that I seem to be more fussy than most when it comes to foods. It seems to be more the texture that bothers me about the food than the taste itself.

My meals consist largely of the same things every day. When I eat a particular thing, I tend to get addicted to it and will eat it constantly for days and days until I finally get sick of eating the food I kept on eating for so many days.

I suspect that it's my Aspergers that has made me fussy when it comes to food.

I've heard of lots of babies/toddlers with Aspergers who vomit when they try to swallow foods of certain textures. This was the case for me when it came to many types of foods when I was a young age. The main food that I remember vomiting after trying to swallow was potatoes. It was simply impossible for me to swallow mashed potatoes without throwing up or gagging until I was maybe ten years old or so.

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Hi,

Yes, I am the most fussiest eater that there is. However, I think that it's related to the OCD part of Aspergers, and the way that we like everything to be predictable and in order. When we are in a restaurant, for example, we feel out of control about what we eat. Sometimes, I can just 'let go' and order anything, but mostly I get anxious about what the chef will make (despite me choosing off a menu). I also have Bulimia. I don't think that the eating disorder + Aspergers issue has been discussed at all on this forum.

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For sure.

My mom has always said I’m the pickiest eater she knows. Texture definitely plays a big role in it. Cheese and eggs, fish and mushrooms, I won't touch. Usually I just won't eat if those foods are on the menu. When I sleep over somewhere I always dread breakfast because it usually involves eggs or grilled cheese sandwiches, so I’ll usually go hungry.

Lately I’ve been living off of ground beef or pork chops with a side of pasta.

I've been to certain fancy restaurants that are big on exquisite foods, and I’ll order a simple hamburger and fries...

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Very similar to me. With me this is structure at first, and appearance, and then smell. I smell everything (food, clothes, other things, skin...it helps me feel things and like them if I smell it, whatever it is), but then it comes to taste. Anyway, I have trouble with trying new things and even as a toddler, so I can't try new food in any way, if I am not psychically prepared. I'd freak out if I am pushed to do it when I am actually not psychically prepared to.

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There are some things I simply can't stand eating, but I would think that's more just to do with personal taste.

My pickiness isn't so much to do with me being picky about what I eat, but more that I tend to stick to what I know. I'm very reluctant to try different foods, and the thought of doing so simply freaks me out a bit.

I also don't particularly like other people preparing food. As soon as I see that someone else's hands are involved in making the food, it freaks me out. But I just force myself to go along with it. I'd look like a complete nutter if I was all, "Nope, I can't eat that... I saw you touching the food while preparing it." BUT, if I don't see the person preparing the food, it doesn't get to me at all.

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This was a big topic with my Psychotherapist. She asked many questions about how I eat and what I eat. She also asked my Mother the same questions when it was her appointment, but geared more towards when I was a toddler, obviously. My Mum told her I would always eat the same sort of food and reject all others. I think it was baked beans for quite a while... Poor me, looking back!

Nowadays I'm no real different; I eat the food I like and do not touch others at all. I don't tend to eat many vegetables, save for carrots and sweet corn. Texture was not really brought up but positioning of food was. Although I can eat it I like all my food to be separate on the plate and on its own - not grouped together. I also tend to eat with my fork far more than my knife. Many meal times I will simply not even use the knife once, and stab/cut the food with my fork.

She also asked if I could tell the difference easily. That is to say if I had chicken soup and then another day was prepared a different make of it (but not told) would I be able to tell? The answer being "Of COURSE."

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When I was a kid I was a very picky eater because I always worried that there were germs in the food and food always reminded me of horrible things, for example, sausages looked like fingers, chocolate sauce looked like dog poo, melted cheese looked like vomit, etc. Also, I couldn't eat in the presence of anyone who didn't look clean. If my grandfather came round I had to eat in my room, because he looked unclean to me, and I couldn't eat anything around him at all. Poor guy! What a monster kid I was. I am okay now.

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I'm going to be the odd-man out here.

No, I have never had problems with foods in that way. I was the easiest child to feed that you could possibly imagine. While other kids were picking candy from the Ryan's buffet, I was going for the broccoli and the spaghetti. So, I suppose I was a bit weird with food... but not in a picky way so much. I'm still like that too. I don't eat much candy or junk, I prefer real food, and have no problem with ~97% of veggies and fruits. There is some food that I don't like, but everyone has dislikes, so I don't attribute it to my AS. I do have my own food quirks though... I don't try to eat the same stuff every day, but it doesn't bother me if I do, if I like the food. I can't tell the number of times I've eaten leftovers, and everyone else was sick of it, and I was still eating it because it was there. What it is doesn't really matter to me; food is food. It all looks the same coming out anyway...

I have one other quirk that is related to OCD, which is that I tend to eat things in a certain manner or pattern. Any cereals with different kinds of pieces deserve its own ritual for consumption. Lucky Charms take me a while to eat because I have to eat the non-mallow pieces first, and then eat the mallow pieces in a certain order. Whenever eating malleable things on a plate, I have to mash the food against the lip in such a way that the food makes a semi-circle pattern. I do the same thing with cereals that consist of one design, but I eat a hole (circle) in the middle, and then mash it against the side to make the half-circle.

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I too would happily eat the same meal for weeks on end. I ate nothing but tuna mayonnaise sandwiches when I first moved out of my parent's house. I started avoiding the local mini market because they were starting to question me about buying the same things every time and it was a little embarrassing. I am really fussy with bread and have to examine it and sniff it before I use it. I will not eat the first or last biscuit in a packet, these have to be binned. If I'm eating chips then the ends must be pulled off.

When I was going through the diagnostic interviews, the psychologist did actually touch on eating disorders. I suppose what I went through years ago could technically be called bulimia though I never thought of myself as having an eating disorder. I simply didn't like eating and couldn't be bothered. I weighed seven stone at my lightest when my ideal weight is actually closer to ten.

Parenting Aspergers Children: How to Cope

Question

It can be exhausting coping with my 9 year old. I often feel like a failure because I struggle to cope sometimes. Is that normal?

Answer

The diagnosis of a serious condition such as Aspergers brings many changes and demands to the family. It is not uncommon for family members to feel depressed and the NAS Autism Helpline receives thousands of calls a year from families who are under many pressures. So you are not alone!

Having a child with Aspergers has the potential to place a great deal of strain on families. Couples struggle with issues of blame, whose fault is it, and guilt. Daily routines are a constant challenge. A special needs child often comes with additional financial costs to the family.

Dealing with the school can seem like a full-time job. The time that it takes to care for a special needs child can leave other family relationships with no attention.

So in order to avoid burnout, parents must make time for themselves. Parents often respond to this suggestion by saying that they don't have any time to do that! However, what you need to keep in mind is that even a few minutes a day can make a difference. Some parents just do such simple things as apply hand lotion or cook their favorite dinners to make themselves feel better.

Parents, just like individuals with Aspergers need rewards in order to be motivated. Parents who have children with autism have even more of a need to reward themselves, because parenting their child is often frustrating and stressful.

In addition to rewarding themselves, family members need to reward one another. Spouses need to acknowledge the hard work that each is achieving. Also remember to thank siblings for watching or helping out their brothers and sisters.

It is also important that spouses try to spend some time alone. Again, the quantity of time is not as important as the quality. This may include watching television together when the children are asleep, going out to dinner, or meeting for lunch when the children are in school.

Families may also want to occasionally engage in activities without the individual with Aspergers. This may include mom, dad and the siblings attending an amusement park together. Often families feel guilty not including the individual with Aspergers, but everyone deserves to enjoy time together that is not threatened by the challenges of Aspergers.

Search your area for support groups or networks. It gives us comfort to know that we are not the only ones experiencing a particularly stressful situation. In addition, one can get the most useful advise from others struggling with the same challenges.

Support groups for parents, siblings and grandparents are available through educational programs, parent resource centers, autism societies and Developmental Disabilities Offices. In addition, there are now online supports available for family members.

Crucial Strategies for Parents of Challenging Kids on the Autism Spectrum

    Resources for parents of children and teens on the autism spectrum :   ==> How to Prevent Meltdowns and Tantrums in Children ...