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What to Do When You Think Your Child May Have an Autism Spectrum Disorder

"What are the first steps parents should begin to take when they believe their child may have autism?"

For many moms and dads, finding out that your youngster has ASD level 1, or High-Functioning Autism (HFA), can be a mixed blessing. On one hand, a positive diagnosis gives rise to the prospect of management and greater certainty as to the factors at play in your youngster's life. On the other, most moms and dads are unprepared for the changes having a son or daughter with the disorder invariably brings.

We've compiled a list of the top 10 steps to take if you think your youngster may have an autism spectrum disorder, or if you've had your youngster diagnosed already:

1. Be honest with yourself. At times, rearing a son or daughter with HFA can cause you anger, sadness, anxiety, frustration and depression. Be open to understanding that you will, at times, feel all these feelings, and allow that authenticity to give rise to the possibility that you will take care of your own needs. In doing so, you can more effectively tend to the needs of others. Don't feel the need to explain or justify your actions to others. However you cope with the situation is exactly the way you are supposed to.

2. Contact community services and inquire as to whether you are eligible for some type of family benefit as a parent of a youngster on the autism spectrum. Your doctor should be able to advise you on this.

3. Contact your local Autism Association and ascertain what services are provided through the service. Make use of private and government resourced services.

4. Permit yourself to take stock of your situation from a place of positivity. With diagnosis comes some certainty, as you and your youngster are now dealing with a known quantity. There's nothing wrong with taking each day at a time, and understanding that you can now make a difference to your youngster's life, which you could not in the absence of a diagnosis. You're youngster has always had the disorder. The day your son or daughter receives a diagnosis is the first step in the right direction.

5. If your son or daughter is in school, contact the Principal and advise him or her of the diagnosis. Many schools are aware of – and, in fact, provide information on – autism. School counseling is designed to assist with the condition. In addition, ask your youngster's school whether they are aware of any parent workshops for autistic children.

If your child is older, home study and tutoring may be an option. It is important to be assertive in ensuring that your school can properly advocate for your youngster's needs, and ideally this can be achieved by working within the school protocols. There is no need for you to underestimate your youngster's potential, and certainly this attitude should be reflected in the educational institution. Involve yourself where possible in your youngster's educational and learning environments.

6. Invest in your own education. There is a vast quantity of information on autism spectrum disorders available, both online and in the form of medical literature. Sign up for information seminars, online e-courses, and if you are looking for immediately available information, give consideration to investing in an ebook written by an expert on autism spectrum disorders. Knowledge is power.

7. Involve your family in the process, and do your best to maintain objectivity. Kids on the spectrum have certain special needs; however, they are (for the most part) high-functioning children who can thrive with appropriate and measured care. Try and maintain a balance between focusing on providing that care, and being a spouse and parent to the rest of your family.

8. Make inquiries with your doctor for a referral to someone who has experience with autism spectrum disorders. Having professional assistance can make an enormous difference to how effectively you can help your youngster cope with the disorder. Permit those professionals you consult to guide you through the process and make the most of their advice.

9. Make inquiries within your local community as to the support groups available for those with HFA and for moms and dads of these children. Sharing your situation with others who are in a position to fully appreciate it can make an enormous difference.

10. Remember to smile. You have a special child. One day, he or she just might be the one looking after you.


Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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Changing Unwanted Behavior in Kids on the Autism Spectrum

“It is very frustrating not being able to change or modify the rigid behaviors that my child exhibits, for example, picky eating, rudeness to others, lack of motivation …just to name a few. Is there anything that can be done to help him be more open to change and flexibility?”

CLICK HERE for the answer...


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Dealing with Difficult Aspergers-related Behavior

"I need some advice on how to handle behavior problems in my child with Asperger syndrome, such as how to use the right discipline, dealing with his obsessions, sibling issues, sleep problems, school-related problems, and acting-out behavior in public. Thanks!"

Click here for the answer...

 
COMMENTS:
Anonymous said... Yes, I found that my son used to really freak out when young if he got in trouble, he didn't really know what was up or what he did wrong - he has very little understanding of some of his behaviors and why they are not OK at times. When he was a toddler, I discovered the strong connection between dairy products (even Goldfish crackers) and his wild behaviors, so a dietary change did a lot of good. Then as a teen, when he became extremely aggressive when his testosterone surged with puberty, and they tried many meds to help him calm down a bit. Finally Trileptal (Oxcarbazepine) and a small dose (don't use larger ones, they can cause obsessions) of Abilify, plus Clonidine .1mg at night to sleep was the perfect combo. He has been able to reduce some of these as he got older, but if we take him off the Trileptal he gets really frustrated and explosive, so he may be on it for life, but it's not a really bad drug - it's an antiseizure med that they use to help bipolar patients also. And the cool thing when he took it is the meltdowns cut WAY back and his mind changed where he could actually form expressions about what he liked, didn't like, talk about his day, tell stories, make jokes, laugh, etc. His counselor was thrilled because he usually never said more than a few words during sessions, and suddenly they were having conversations. I also find this interesting because I read a story last year about some children diagnosed with Autism being found to be having small seizures on a constant basis, and when they were given antiseizure meds they were suddenly able to come out of it and begin to function neurologically - amazing. He still is very much an Aspie and quite a handful and has many challenges, but at least we don't have to call the police to try to get him to stop wrecking the house and attacking people and yelling - that was awful. My poor child, I really do try to see what he goes through, too. And as a foot note - the greatest challenge in dealing with the changes and improvements these meds brought about was when he moved on to new teachers, counselors, etc, for whatever reason, and they would get confused about his diagnosis at first because he didn't "appear" as an Aspie nearly as much as he did without the meds, and could make eye contact, talk, etc. - I kept trying to explain to them that it's like someone with say, schizophrenia - they can take their meds and appear quite normal, but take them away and then you can see their diagnosis. Sometimes I wondered if they even had a clue - but I guess they didn't see very many Aspies at all on this treatment my son is on and it was not something they were used to being presented with.

Anonymous said... My son either laughs at us if we try to discipline him or he screams at the top of his lungs at us. Ugh. We've started a reward sticker chart which is working right now, but with everything else, he loses interest in things over time and then we have to come up with a new system.
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Dealing with Aspergers Employees: What Employers Need to Know

Your new Aspergers employee has the skills you were looking for and is dedicated to doing the job well. The challenging part for a person with Aspergers or High Functioning Autism is the less structured, more social aspects of office culture. Small talk, picking up what others are thinking, and being imaginative about solving problems are challenging for these individuals.

Here are some straightforward tips to help them thrive:
  1. Be open to someone who may be a support person in the personal life of your Aspergers employee. Some moms and dads stay involved a little longer in the life of their adult Aspergers child as an advocate in the background. Until your employee initiates the conversation about bringing in his advocate, remember to build trust through messages that convey you value his work. Some young people with Aspergers want to do it on their own, while others would welcome their support person to coach or help them get independent with some of the more interpersonal aspects of being on the job.
  2. Be precise and specific with your instructions. Slang and expressions of speech may not translate to what you want to communicate. Details and examples help (e.g., "This is how it should look when it is done").
  3. Don’t let the "diagnosis" be a defining characteristic of your employee; it is one aspect of who this person is. The diagnosis becomes important for you to know when it helps you to help her shine on the job.
  4. Encourage co-workers to have a collaborative office culture when it comes to helping out each other. Your Aspergers employee will have strengths that will be an asset to your team. Helping others in the office by lending a hand with one’s own talents helps everyone bond socially with fellow employees.
  5. Encourage your Aspergers employee to come up with some process strategies for doing her job. For example, she might work well by recording tasks on a template she creates with visuals, spacing or organization that makes good sense to her.
  6. Help your employee relax about asking for help on the job. "Disability acts" encourage individuals to discuss the modifications they need in the work place. However, there is often hesitation because of the fear that disclosure will be a stigma or put the job in jeopardy. You want to be receptive should your Aspergers employee want to ask for an accommodation that will help her work better.
  7. Try to give a personal "heads up" if there is a schedule or routine change that your employee may not pick up on automatically. An individual with Aspergers will need some extra "signaling" at times. Keep the focus on the person's gifts, which brought him to your work place and motivated you to hire him!
  8. To set up for office place success, you will find it pays off to invest in some training time early on in some of those skills unrelated to the primary job, but fundamentally important to navigating the day at the office.
  9. Be prepared to give your input with some of the smaller steps you may not typically think of stating. Gradually transfer responsibility and accountability to your Aspergers employee, withdrawing your level of involvement as you see him catching on to the rhythm of the office environment.
  10. Be very specific about what you expect in general office matters. Help your employee to know where more and less flexibility is in order and appropriate in the daily flow of the work place. What routines must be done one way only? Observe, make notes and plan for periodic feedback time.
  11. Create a "cheat sheet" for phone coverage. If you want your Aspergers employee to "pinch hit" on the phones, have a few generic phrases that work for your workplace (e.g., “Can I have someone get back to you with that information?”).
  12. Don’t be afraid to be blunt. It will be helpful. There is a distinction between "blunt" and "rude." Your employee will appreciate and understand directness and clarity. If you are finding yourself repeating requests, you can say, “What plan can we come up with to help you establish routines that I have been reminding you about?”
  13. Have a set routine for evaluation and feedback sessions. Start the meeting by talking about the positive qualities you see in your new Aspergers employee (e.g., “Here’s where your work is very well done”). Then move on to the areas that need some re-adjusting. Be sensitive to feelings of past failure with social and organizational issues. Your employee is probably quite familiar with her weaknesses, having heard about them and struggled with them in some other past setting. You can say, “Here’s where we will work together.”
  14. Help your employee become comfortable with the social culture of your workplace. Individuals with Aspergers tend to want to stay focused on tasks they enjoy for extended periods of time. Being specific about when to go for breaks and lunch will be a cue for him to personally connect with co-workers.
  15. As you see a routine or task that requires daily attention, log it on a list. Explaining the purpose behind the task may help it to become automatic. Individuals with Aspergers like to make sense out of things.

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Is Your Child a "Level 1" or "Level 3" on the Autism "Spectrum"

"How can parents tell if their child has ASD Level 1 rather than Level 3? Also, what therapies are available for these kids?"

The main difference between ASD level 3 and ASD level 1 is that the youngster dealing with level 1 retains his/her early language skills. If you have a son or daughter that is having a greater degree of social difficulties than other kids, or has diminished communication skills and exhibits a restrictive pattern of thought and behavior, he or she may have ASD1.

The peculiar symptom of level 1 is the youngster’s obsessive interest in a single object or topic to the exclusion of any other ...she wants to know ALL about this one topic.
 

Sometimes the child's speech patterns and vocabulary may resemble that of a little professor. Other ASD1 symptoms include the inability to interact successfully with peers, clumsy and uncoordinated motor movements, repetitive routines or rituals, socially and emotionally inappropriate behavior, and last but not least, problems with non-verbal communication.

ASD1 kids find difficulty mingling with the general public. Even if they converse with others, they may exhibit inappropriate and eccentric behavior. The child may always want to talk about his singular interest.

Developmental delays in motor skills (e.g., catching a ball, climbing outdoor play equipment, pedaling a bike, etc.) may also appear in the youngster. Kids with ASD1 often show a stilted or bouncy walk, which appears awkward.

Therapy for the level 1 child concentrates mainly on 3 core symptoms: physical clumsiness, obsessive or repetitive routines, and poor communication skills. It is unfortunate that there is no single treatment for these kids, but therapists do agree that the disorder can be treated successfully when the intervention is carried out at the earliest possible time.

The treatment package involves medication for co-existing conditions, cognitive behavioral therapy, and social skills training. Treatment mainly helps to build on the youngster’s interests, teaches the task as a series of simple steps, and offers a predictable schedule.

Although children living with ASD1 can manage themselves and their deficits, personal relationships and social situations are challenging for them. In order to maintain an independent life, the older teen or young adult on the spectrum requires moral support and encouragement to work successfully in mainstream jobs.
 



Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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