ASD is often confused with Narcissistic Personality Disorder (NPD). The reason for this confusion is understandable since some of the symptoms found in people with ASD are also found in those with Narcissistic Personality Disorder.
Resources for parents of children and teens on the autism spectrum:
Autism Spectrum Disorders are often characterized by a lack of impulse control. Kids with Asperger’s (AS) and High-Functioning Autism (HFA) are sometimes labeled unmanageable or aggressive because of their impulsivity, which involves “a tendency to act on a whim, displaying behavior characterized by little or no forethought, reflection, or consideration of the consequences.”
Even though HFA kids can be caring and sensitive, their good qualities are often overshadowed by their lack of impulse control; their ability to "self-regulate" is compromised.
Impulse control can be a difficult skill to teach to any youngster, and is even more difficult with kids who have a neurological disorder. Many parents of these “special needs” children have reported that their youngster seems to spend his life in time-out, grounded, or in trouble for what he says and does – both at home and school – due to “acting before thinking.” Teaching self-regulation can be frustrating for parents and teachers, but is vital to the continued success of kids on the spectrum.
Here are a few strategies for parents and teachers that can be helpful when teaching self-regulation to kids with AS and HFA:
1. Be very specific in your instructions. Kids with HFA have difficulty telling right from wrong, so teachers and parents must be concrete, stating clear, consistent expectations and consequences. Telling the youngster to "be nice" is too vague. Instead, say something such as "Wait in line for the slide, and don't push" or "When we go into the store, just look – don’t touch.”
2. Consequences need to be instantaneous – and short. Delayed consequences (e.g., time-out or detention) don't work for those with difficulty anticipating future outcomes (an autistic trait). Consequences should be immediate (e.g., if the HFA student hits another student, recess is suspended – but for only 10 minutes).
3. Consider employing a "point system" in which the child earns tokens or pennies for a positive target behavior. He or she can then redeem the points at the end of the week for a special “prize” (e.g., pizza dinner, extra TV time, another small goldfish for the aquarium, etc.).
4. Ignore minor problems. For example, if your youngster spills some juice because she's pouring it carelessly or too quickly, talk to her about the importance of moving more precisely and slowly, help her clean up the spill, and move on. Some slip-ups simply don’t warrant consequences. Pick your battles carefully.
5. Another method that can be used to teach children with HFA how to self-regulate is “redirection” from the problem-causing stimulus. Over-stimulation of the senses is a common cause of impulsive behaviors in these kids. So, look for cues that often precede the impulsive behavior so that you are aware of when they are more likely to occur, and find opportunities to redirect the child’s attention before the problematic behavior ensues. Music and art are two examples of activities that kids on the spectrum tend to enjoy, since they appeal to visual and audio stimuli.
6. Make sure that the punishment fits the crime. For example, dinnertime tantrums can result in dismissal from the table without dessert, rather than loss of computer game privileges (in this case, computer games have nothing to do with tantrums at the table).
7. No child is above the law! While HFA is an explanation for some behavioral problems, it is never an excuse (e.g., the disorder may explain why Michael pushed Sarah, but the disorder did not “make” Michael do it). Kids on the autism spectrum need to understand the responsibility to control themselves.
8. Acknowledgement and praise should be provided immediately (and as often as possible) when the child behaves appropriately. Catch him in the act of doing something good. Accuse him of being successful. And, specifically state what he is doing well (e.g., waiting his turn).
9. Post the day's schedule on a dry erase board, and erase items as they are completed. This gives HFA children a sense of control about their day. For example: At home, parents can post chores that need to be completed on that particular day, such as “take trash can to the street for pick-up” or “run the vacuum in your bedroom.” At school, teachers can post items such as “organize your desk (with specific directions on how to do that)” or “sharpen pencils.” Also, be sure to alert the child in advance about any revisions to his or her daily routine.
10. Posting house rules and classroom rules lets HFA kids know what's expected of them, and also serves as a visual reminder for those who act before they think. At home, the rules can be posted on the refrigerator door. At school, they can be posted on the blackboard. Any location where they can be viewed throughout the day will suffice. Some kids benefit from seeing rules written on an index card, such as “Wash hands before eating,” taped directly on the dining room table, or "Raise hands before speaking," taped directly on their desks at school.
11. Prepare for impulsive reactions ahead of time. In situations where a lack of structure or some other situation sets off an impulsive reaction in the HFA child, have a plan ready to help him or her to keep impulses in check. For example: At home, maybe the child can help with dinner preparations as a distraction. At school, perhaps the child can be given a special task (e.g., "monitor" or "coach") to help him or her stay focused on self-control.
12. Prepare the HFA child for ALL transitions. To avoid meltdowns and tantrums when moving between tasks (another stressor for kids on the spectrum), give the child a 10-minute warning, then a 5-minute warning, and then a 1-minute warning of a transition so that he or she will have adequate time to stop one activity and start another. This would include everything from preparing for bedtime at home to preparing for lunch time at school.
Teaching self-regulation to HFA children is a challenge, and there is no single solution that works for everyone. As with most teaching, the more intervention you provide, the greater chance of seeing success. Like working to improve other skills, it is helpful to begin teaching impulse control as early as possible. Above all, avoid getting aggravated and know that it will take time and patience. In the meantime, you can be proud that you are helping your youngster reach his or her full potential.
Resources for parents of children and teens on the autism spectrum:
More articles for parents of children and teens on the autism spectrum:
Social rejection has devastating effects in many areas of functioning.
Because the ASD child tends to internalize how others treat him,
rejection damages self-esteem and often causes anxiety and depression.
As the child feels worse about himself and becomes more anxious and
depressed – he performs worse, socially and intellectually.
Meltdowns are not a pretty sight. They are somewhat like overblown
temper tantrums, but unlike tantrums, meltdowns can last anywhere from
ten minutes to over an hour. When it starts, the Asperger's or HFA child
is totally out-of-control. When it ends, both you and your child are
totally exhausted. But... don’t breathe a sigh of relief yet. At the
least provocation, for the remainder of that day -- and sometimes into
the next - the meltdown can return in full force.
Although Aspergers [high-functioning autism] is at the milder end of the
autism spectrum, the challenges parents face when disciplining a
teenager on the spectrum are more difficult than they would be with an
average teen. Complicated by defiant behavior, the teen is at risk for
even greater difficulties on multiple levels – unless the parents’
disciplinary techniques are tailored to their child's special needs.
Your older teenager or young “adult child” isn’t sure what to do, and
he is asking you for money every few days. How do you cut the purse
strings and teach him to be independent? Parents of teens with ASD face
many problems that other parents do not. Time is running out for
teaching their adolescent how to become an independent adult. As one
mother put it, "There's so little time, yet so much left to do." Click here to read the full article…
Two traits often found in kids with High-Functioning Autism are
“mind-blindness” (i.e., the inability to predict the beliefs and
intentions of others) and “alexithymia” (i.e., the inability to
identify and interpret emotional signals in others). These two traits
reduce the youngster’s ability to empathize with peers. As a result, he
or she may be perceived by adults and other children as selfish,
insensitive and uncaring. Click here to read the full article...
Become an expert in helping your child cope with his or her
“out-of-control” emotions, inability to make and keep friends, stress,
anger, thinking errors, and resistance to change.
Parenting a youngster with Asperger’s (AS) or High-Functioning Autism (HFA) places some unexpected burdens on moms and dads – as well as siblings. The time involved in meeting the needs of a family member on the autism spectrum may leave the parent with little time for the other kids. As a result, there may be consistent tension in the household.
Many siblings of an AS or HFA child experience the following stressors:
Angry that no one pays attention to them (in their opinion)
Being the target of aggressive behaviors from the autistic child
Concern over their role in care-taking
Concern regarding their parents’ anxiety
Embarrassment around peers
Frustration over not being able to engage or get a response from their AS or HFA sibling
Guilty for negative feelings they have toward their brother/sister
Guilty for not having the same problems as their sibling
Jealousy regarding the amount of time and attention their mom and dad spend with their sibling
Not knowing how to handle situations in which their sibling is teased or bullied by others
Pressure to be or do what their brother/sister can’t
Resentful of having to explain, support, or take care of their sibling
Resentful that they are unable to do things or go places because of their brother/sister
Trying to make up for the deficits of their sibling
Worried about their brother/sister
Due to the nature of AS and HFA, it is difficult for brothers and sisters to form a satisfying relationship with the sibling who has the disorder. For instance, the siblings’ attempts to play with their autistic brother may (a) be rejected by his ignoring them, (b) fail because of his lack of play skills, or (c) end suddenly because his meltdowns are scary. What child would keep trying to form a friendship with someone who seemed upset to one degree or another every time he was approached? It’s not surprising that siblings become discouraged by the reactions they encounter from their autistic sibling.
There are special demands placed on the siblings of an AS or HFA child. Thus, it is crucial that they learn to manage these demands. It’s also crucial that parents (a) educate their “neurotypical” (i.e., non-autistic) children about autism spectrum disorders, (b) work at improving interactions among all the kids in the family, and (c) ensure brothers and sisters grow up feeling they have benefited from the love, time and attention they all need.
Fortunately, your non-autistic kids can be taught simple skills that will help them to engage their AS or HFA sibling in playful interactions. These skills include things such as praising good play, making sure they have their autistic sibling’s attention, and giving simple instructions.
Below are some suggestions regarding ways parents can help their “neurotypical” kids in the family cope gracefully and effectively with the experience of having a sibling on the autism spectrum:
1. Even though it is important for your AS or HFA youngster to feel like a fully integrated member of the family, it is equally as important that your other kids have “special time” too. Thus, as much as possible, try to find some regular, separate time for the other kids. It could be as simple as one evening a week, a Sunday morning, or even a 10 minutes at bedtime each night.
Making sure that each and every child has the exact amount of “parent-time” is not necessary – or even important. What is important, though, is the opportunity for each child to feel special and to feel an overall atmosphere of equity in the home. If the “special needs” youngster experiences serious behavior-management problems, most parents will have neither the endurance nor the time to give all the kids exactly the same amount of attention. This is understandable and something that simply comes with the territory.
2. If the AS or HFA child is particularly aggressive or disruptive, the emotions of the “neurotypical” children may become so severe or upsetting that they will need professional counseling to help them cope. Also, meeting and talking with other kids going through the same thing can be very helpful (even if it's just online).
3. Research supports the idea that siblings of an AS or HFA child need to understand what autism is all about. Parents need to educate their “neurotypical” children about the disorder early – and do it often! From early childhood, these siblings need explanations that help them understand the behaviors that are of concern to them. And, the information provided needs to be adjusted to the siblings’ age and understanding.
For instance, very young kids may be concerned about the odd behaviors of the AS or HFA child that scare them (e.g., meltdowns, aggression, etc.). An older youngster may have concerns about how to explain autism to his or her peers. For teenagers, these concerns may shift to the long-range needs of their “special needs” sibling and the role they will play in future care. Every age has its needs, and the parent’s task is to listen carefully to the immediate concerns of the non-autistic children.
4. Some degree of sibling rivalry is to be expected in all families, whether or not autism is factored in to the equation. But, sometimes the rivalry crosses the line into abuse (e.g., one of the children acts out abuse in play, acts out sexually in inappropriate ways, has changes in behavior/sleep patterns/eating habits, has nightmares, always avoids his or her sibling, one child is always the aggressor while the other is always the victim, or the conflict between siblings is increasing over time). If there is a chance the sibling relationship has become abusive, parents should seek professional help.
5. Try to have a mixture of family activities where all members participate, and individual activities where one child is the focus of your attention. In addition to one-on-one time, it’s also good to have some events when one youngster in the family has the focus of everyone’s attention (e.g., birthdays, graduations, etc.).
Siblings may become frustrated and angry if they have to do everything with their AS or HFA sister/brother. In fact, there may be times when it may not be fair to insist that they be included. For instance, if the AS or HFA child can’t sit still for a school play, then it may be better if she or he stays home while your “neurotypical” youngster performs.
6. Consider purchasing some books on the topic. Here are a few:
Brothers and Sisters: A Special Part of Exceptional Families, by Thomas Powell and Peggy Gallagher.
Offspring and Parents, by Diane Marsh, Rex Dickens and E. Fuller Torrey.
It Isn't Fair! Edited by Stanley D. Klein and Maxwell J. Schleifer
Living with a Brother or Sister with Special Needs: A Book for Siblings, by Donald Meyer and Patricia Vadasy.
Siblings Without Rivalry, by Adele Faber and Elaine Mazlish.
7. Talk to your physician if you see any of these warning signs in your “neurotypical” children as they try to cope with a sibling on the autism spectrum:
withdrawal (e.g., hibernating in their bedroom)
talk of hurting themselves
poor self-esteem
poor concentration
physical symptoms (e.g., headaches or stomachaches)
perfectionism
loss of interest in activities
hopelessness
frequent crying or worrying
difficulty separating from parents
changes in eating or sleeping (e.g., too much or too little)
Research indicates that the majority of “neurotypical” kids cope well with their experience of having an AS or HFA sibling. However, that doesn’t mean that they do not encounter particular difficulties in learning how to deal with him or her. While having a sibling on the spectrum is a challenge to the siblings, it is certainly not an insurmountable obstacle. Most “neurotypical” kids handle the challenge effectively, and many of them respond with humor, grace, and love far beyond their years.
More resources for parents of children and teens with High-Functioning Autism and Asperger's:
If your youngster has High-Functioning Autism (HFA), should you discipline him in a different way than you do with your other kids? The answer is YES! But, they still need discipline. HFA is a challenge, not an excuse for misbehavior. Nonetheless, moms and dads will need to be more flexible in their expectations.
Parents must understand up front that HFA impacts their child’s ability to understand instruction, follow through on tasks, and control his impulses. Also, they will need to provide discipline and instruction more often and with more consistency. Your “special needs” child is emotionally much younger than his chronological age. After all, he has a “developmental disorder.” So, lessons may take longer to sink in.
Misbehavior from kids on the autism spectrum is frustrating – and repeated disobedience over an extended time can be infuriating to many moms and dads. Just like with their “typical” kids, most parents will automatically respond to misbehavior by using punishment to stop it. But this isn’t the most effective approach – especially for a youngster with combined autism and ADHD or ODD. Punishment alone never teaches new behavior. It only teaches what NOT to do – it doesn’t teach what TO do.
Here are a few tips regarding modified disciplinary techniques for kids on the autism spectrum:
A Different Form of Time-out—
Kids on the spectrum often enjoy playing alone. As a result, a “time-out” in their bedroom is often a reward rather than a punishment. Thus, when issuing a time-out with your HFA child, it’s best to put him in a place without the comforts of the bedroom (e.g., at the dining room table without games, toys, digital devices, etc.).
Keep time-outs unusually short (e.g., 1 minutes for young kids, 3 minutes for preschoolers, and 5 minutes for 6-10 year olds). This is plenty of time IF your child shows quiet feet, quiet hands, and quiet mouth. Long time-outs often start a battle of wills, and the message that the consequence sends gets lost.
Contrast “time-out” with “time-in.” For example, if you put your HFA youngster in time-out for pushing his sister, you should have been praising him earlier for playing appropriately with his sister – and should praise him after time-out for completing the 1-5 minute consequence successfully. If there isn't a big difference between time-out and time-in, the “special needs” youngster doesn't understand the consequence.
If you tell your youngster to go to time-out and she ignores you, then simply add 1 minute to her time-out. If she ignores you again, then add another minute. If she ignores you a third time, DON’T add more additional minutes (if it goes over 5 minutes), and DON’T pick her up and drag her to time-out. This will make things worse, and the attention (which is now negative attention) can unintentionally reinforce the noncompliance.
The course of action at this point is to simply impose a consequence that “hurts” (e.g., no video games for the rest of the day). Deliver that consequence calmly, and don't talk about it further. Even if your youngster says, “No mom, I'll go into time-out now” …don't give in! Otherwise, she will know that you “cave-in” if she just sounds desperate enough.
A “prompt” (e.g., a timer) to signal the beginning and end of a time-out will help. If your youngster won’t cooperate, remind her that the time-out doesn’t start until she is quietly in her time-out location.
Practice time-outs ahead of time. For example, ask your youngster to pretend that she behaved badly, and that she is being sent to time-out. Have her practice going to time-out without putting up a fight. Then reward with acknowledgement and praise for completing the practice run.
Rewards work well for kids with HFA, but they, too, may need to be tweaked slightly. For instance, one expectation may be to take turns when playing games with siblings. It's probably not realistic to set that expectation for a whole day, because if the HFA child messes up in the morning, he’s lost the entire day. Rather, break the day up into thirds and give points for appropriate behavior in the morning, the afternoon, and the evening. Once your child has earned points, you can’t take them away.
So, if your child plays fairly in the morning, he earns reward points (rewards can include doing something special, or receiving a special treat or privilege). If he plays unfairly in the afternoon, he must leave the game and go somewhere else for a timeout, and he doesn’t receive reward points – BUT he doesn’t lose the morning points he earned. Also, most kids on the spectrum need more frequent rewards. They will lose interest if they have to wait an entire week to earn one.
Avoiding Physical Punishment—
A good ass-whipping may have worked for you as a child – I know it did for me! However, spanking, yelling, or other aversive methods should never be used on an HFA child. These somewhat traditional (or old school) methods may work in the short term, but they don’t prevent problematic behavior in the long run – often resulting in worse problems! This is because one side-effect of the use of physical punishment is counter-aggression. So, if you use this type of punishment on your “special needs” youngster, guess what he is going to do the next time he’s angry with his sister? Counter-aggress!
Physical punishment teaches aggressive behavior; it teaches how to punish back. Also, the HFA youngster may begin to engage in escape or avoidance behavior. For example, if he gets spanked at home for acting-out at school, he may refuse to go to school due to the anxiety he now has about his school-related, acting-out behavior.
Almost all kids go through periods of development where they become engrossed in one subject matter or another, but kids with HFA often display obsessive and repetitive characteristics, which can have significant implications for behavior. In many cases, it is appropriate to utilize the obsession or “special interest” to motivate and reward your youngster for good behavior. However, always ensure any reward associated with positive behavior is granted immediately in order to assist the youngster in recognizing the connection between the two.
Concrete Instruction—
The HFA child also does better with very specific instructions. For example, instead of telling her to “clean her room,” be specific. For example, “Be sure to pick all clothes off the floor, and put all books on the bookshelves.” In this way, she clearly understands what to do. Also, this chore should be visually represented on a chore chart somewhere in her bedroom.
Learn How Your Child Thinks—
Kids on the spectrum tend to be very logical in their thinking, focusing more on facts than feelings. If the consequence doesn’t make sense, it will not likely change the unwanted behavior (e.g., making the child do extra chores because he got mad and broke his favorite toy). The discipline must fit the “crime” (e.g., the child breaks his treasured toy, so he must take money from his allowance to purchase a new one). There must be a connection between the misbehavior and the discipline.
So, before you discipline, be mindful that your youngster's logic will not necessarily reflect your idea of common sense. In addition, look for small opportunities to deliberately allow your youngster to make mistakes for which you can set aside “discipline-teaching” time. This will be a learning process for your youngster – and you!
Picking the Right Battles—
Parents can't change everything at once in their HFA youngster. Instead, they should choose a few big things that they want to work on, and put the other things aside for now. Pick your battles carefully. BUT, when you do pick one, stay with it and be consistent! HFA children thrive on consistency, routine and structure. Use this trait to your advantage.
Replacement Behavior—
Kids on the autism spectrum need a “replacement behavior.” So, rather than saying, “You need to stop that” …say something such as, “I need you to stop _______ (be very specific in describing the misbehavior), and do ________ instead (be very specific in describing the replacement behavior).” For example, “I need you to stop bullying your sister. So, go to your room and find something else to do. Maybe play your video game.” Also, use the phrase “I need…..” as noted above. This is something YOU, the parent, need. Your HFA child doesn’t “need” to stop picking on his sister. He’s perfectly fine with doing it.
Visual Instruction—
Another important consideration for a youngster with HFA is to teach him the skills he needs to succeed BEFORE he has a problem. For instance, all kids need guidance to help them keep up with chores and homework. However, a child on the autism spectrum can't be expected to "just get it" from verbal instruction. Instead, he needs a visual schedule that he can follow. So, devise a visual chore chart, as well as a homework chart (i.e., what is to be done, in what order, and when it is to be completed).
In order to effectively discipline the HFA child, parents will need to comprehend each of the factors above and fully place them in the proper context of any given situation. This knowledge will aid parents in catching problems early and laying a foundation for “prevention,” rather than dealing with problems after they occur and having to jump to “intervention.”
Resources for parents of children and teens on the autism spectrum:
More articles for parents of children and teens on the autism spectrum:
Social rejection has devastating effects in many areas of functioning.
Because the ASD child tends to internalize how others treat him,
rejection damages self-esteem and often causes anxiety and depression.
As the child feels worse about himself and becomes more anxious and
depressed – he performs worse, socially and intellectually.
Meltdowns are not a pretty sight. They are somewhat like overblown
temper tantrums, but unlike tantrums, meltdowns can last anywhere from
ten minutes to over an hour. When it starts, the Asperger's or HFA child
is totally out-of-control. When it ends, both you and your child are
totally exhausted. But... don’t breathe a sigh of relief yet. At the
least provocation, for the remainder of that day -- and sometimes into
the next - the meltdown can return in full force.
Although Aspergers [high-functioning autism] is at the milder end of the
autism spectrum, the challenges parents face when disciplining a
teenager on the spectrum are more difficult than they would be with an
average teen. Complicated by defiant behavior, the teen is at risk for
even greater difficulties on multiple levels – unless the parents’
disciplinary techniques are tailored to their child's special needs.
Your older teenager or young “adult child” isn’t sure what to do, and
he is asking you for money every few days. How do you cut the purse
strings and teach him to be independent? Parents of teens with ASD face
many problems that other parents do not. Time is running out for
teaching their adolescent how to become an independent adult. As one
mother put it, "There's so little time, yet so much left to do." Click here to read the full article…
Two traits often found in kids with High-Functioning Autism are
“mind-blindness” (i.e., the inability to predict the beliefs and
intentions of others) and “alexithymia” (i.e., the inability to
identify and interpret emotional signals in others). These two traits
reduce the youngster’s ability to empathize with peers. As a result, he
or she may be perceived by adults and other children as selfish,
insensitive and uncaring. Click here to read the full article...
Become an expert in helping your child cope with his or her
“out-of-control” emotions, inability to make and keep friends, stress,
anger, thinking errors, and resistance to change.
A child with High-Functioning Autism (HFA) can have
difficulty in school because, since he fits in so well, many adults
may miss the fact that he has a diagnosis. When these children display
symptoms of their disorder, they may be seen as defiant or disruptive.
