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I've been diagnosed with Aspergers -- now what?

Question

I’m a 35-year-old male. My therapist has suggested that I may have high-functioning Aspergers (symptoms are difficulty with talking, words and overall social ability; extreme difficulty with change in routine; isolation; astounding and detailed long-term memory with poor short-term, etc.). I find it hard to believe that a "fully developed" adult can actually remedy this.

Should I confront this diagnosis as a behavioral issue with cognitive behavioral therapy …or a biological one with medication? At this point, can a treatment do anything besides make me more comfortable with the disorder? I've asked my therapist, but because most medical literature addresses intervention in childhood, he can't say much.

Answer

Aspergers (high functioning autism) is nearly impossible to identify outside of the context of traditional social and cultural settings. The brain is simply wired a bit differently and acts on different sets of cues. You're not defective.

If your “impairment” is mild, you may have just always been considered "socially awkward" – and there may not be any particular medication available that doesn't have side effects or risks greater than the problems you already have. As a general rule of thumb, stay away from drugs. There's nothing to fix! If you have secondary symptoms (e.g., depression, anxiety, OCD, etc.), then maybe you should consider medication (but make sure you get an opinion from an ASD specialist).

Treatment alternatives may be as simple as behavioral therapies, behavioral coaching, or group therapy. Aspies may need to work with a therapist longer than neurotypicals do, because the Aspie’s social skills are somewhat lacking. It can take longer for an Aspie to achieve the desired results compared to someone with a different, non-developmentally based problem. But, you may do more harm than good by going to a therapist who knows little about Aspergers.

The interpersonal relationship models that most therapists use are not really applicable to those with Aspergers. You'll find conventional therapy telling you to read body language, take social cues, and all sorts of things that the Aspie brain is not wired for. A therapist who specializes in Aspergers will key you in on things that will work.

The areas you'll need to focus on are primarily interpersonal relationships (e.g., manners, courtesies, diplomacy, social conventions, dress, hygiene, etc.). Neurotypicals generally acquire those things from an early age through socializing, but Aspies don't pick up on it as well.

Any adult who has been told that they “may have” Aspergers should ask himself/herself the following questions:
  • What am I trying to change in my life?
  • Will an official diagnosis (as opposed to being aware that I probably have Aspergers) do anything or create any opportunities to help me change those things?
  • If my therapist is correct in his diagnosis, what does he have in mind to make it worth my while …what's his plan?
  • Should I get a second opinion before doing anything else?

Aspergers is definitely not a death sentence – far from it. So what if you find out that you really have Aspergers? If you have it – you have it – and you always had it. So it’s really nothing new.

Aspergers Teen Chat: For Aspergers and Autistic Teens - Ages 13 to 18 Only

==> Go to AspergersTeenChat.com

The "Specific Carb Diet" for Children with Autism and Aspergers

The Specific Carb Diet was developed by Dr. Sidney Haas (a New York City pediatrician) who used it successfully to treat people with ulcerative colitis and Crohn's disease.

Dr. Haas' theory was that carbs (which are forms of sugar) feed the bacteria and yeast in the intestines, which causes an over-abundance of bacteria and yeast. He believed that this bacterial overgrowth prevents (a) enzymes on the intestinal cell surface from functioning and (b) the proper digestion and absorption of carbs. This would cause the carbs to remain undigested in the intestines, which provides even more food for bacterial and yeast growth.

A number of illnesses can develop from this digestive balance, including celiac disease, chronic diarrhea, crohn's disease, inflammatory bowel disease, irritable bowel syndrome, spastic colon, and ulcerative colitis.

Many ASD children have severe gastrointestinal symptoms, including diarrhea, constipation, bloating and pain. Some ASD specialists believe these symptoms could be caused by bacteria or fungal overgrowth in the intestines, and ASD treatments – especially those recommended by alternative medicine specialists – aim to eradicate the bacteria and yeast.

The Specific Carb Diet eliminates the complex starches that feed bacteria and yeast in the intestines, which improves ASD symptoms by starving the bacteria and yeast. Killing these bad bugs not only leads to improvements in the GI tract, but also improves neurological function because many neurological problems actually originate in the digestive system.

There are two groups of carbs: monosaccharides and disaccharides. Monosaccharides are simple carbs, easily broken down in the intestines. Disaccharides are complex carbs, and individuals with poor gastrointestinal systems cannot break them down.

The Specific Carb Diet characterizes foods as "legal" or "illegal" based on their carb content. Some “illegal” carbohydrates include grains, sugars, beans, potatoes, and all processed foods (including canned vegetables). Some “legal” carbs include unprocessed meats, vegetables, fruits, and some dairy products (however, it's possible to do a casein-free version of this diet). The Specific Carb Diet already is naturally gluten-free.

Additional foods to avoid—

o Acidophilus milk
o All cereal grains
o All seeds
o Arrowroot or other starches
o Baking powder
o Bean sprouts
o Beer
o Boullion cubes
o Breaded or canned fish
o Buttermilk
o Canned fruits
o Canned vegetables
o Carob
o Carrageenan or pectin
o Chickpeas
o Chocolate
o Coffee
o Coffee substitutes
o Commercially prepared sour cream
o Commercially prepared yogurt
o Corn or maple syrup
o Cornstarch
o Fava beans
o Flour
o Flours made from legumes
o Ice cream
o Instant soup bases
o Instant tea
o Ketchup
o Medication containing sugar
o Milk or dried milk solids
o Molasses
o Mung beans
o Parsnips
o Potatoes
o Processed cheeses
o Processed meats
o Refined sugar
o Seaweed
o Smoked or canned meat
o Soybeans
o Soymilk
o Yams

Foods to eat—

• Natural cheeses
• Homemade yogurt
• Fresh, raw, or dried fruits
• Fresh or frozen meats, poultry, fish, eggs
• Fresh and frozen vegetables and legumes
• Dry curd cottage cheese

Be aware that ASD symptoms may not improve right away due to the profound changes taking place in the digestive tract. Also, many parents report significant worsening of symptoms at key points in the diet that they attribute to yeast die-off.

A survey from the Autism Research Institute shows that the Specific Carb Diet can be very effective overall in treating ASD symptoms. In looking at overall ASD diet approaches, the survey asked 278 parents whose children were following the Specific Carb Diet if it worked. A total of 69% said it had improved ASD symptoms …24% said it had no effect …and 7% said it worsened symptoms. Many parents said they had tried other ASD diet approaches, but the Specific Carb Diet proved to be the key, even in the absence of other ASD treatments.

Although the Specific Carb Diet is somewhat restrictive and difficult to follow, many mothers/fathers have reported significant gains in their kids with autism and Aspergers. Unfortunately, many parents don’t stick with the diet long enough to find some benefits in it. It is after all a fairly simple diet: no starch or refined sugars. But that simple statement requires a complete change of life style which, in turn, requires a great deal of determination. The Specific Carb Diet is more difficult to follow than the GFCF diet, and most parents find they must prepare virtually everything at home.


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book


==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

The Damage Done: Over-Indulging the Aspergers Child

Question

Our son is a 34-year-old with Asperger's who is living in supported housing. He went into his first apartment 2 years ago. It was very difficult as he was so angry and upset and even took revenge on us by smashing a television. He has had a lot to deal with. He has Crohn's Disease although it is in remission, with two operations at 17 and 19. He is defiant at times, super communicative, although of course it’s very much like verbal diarrhea. We haven't been too effective with parenting him, I think because of feeling sorry for him. This is coming back to bite us.

He sees a psychiatrist through the community mental health services (about once a month) and also a caseworker more frequently. About a month ago, he hit his psychiatrist (glancing blow on the shoulder), however the doctor has now charged him with assault. We are at our wits end. His MD says because it's a first offense, he will not go to jail but probably get a warning, maybe probation. His psychiatrist, a young fellow, told us a couple of years ago that he really doesn't know much about Asperger's as our son is his only AS client.

We know we have to change our communication with him, but my husband is feeling very sorry for him and not drawing a line in the sand very much. Our son is rude often, and often escalates into anger. Other times he is loving and almost normal. Can you offer any immediate suggestion?

Answer

Parents with an Aspergers (high-functioning autism) child often have trouble knowing how much to help out their “suffering” child at certain times in his life. But, is it really bad to “cushion” him or to “feel sorry” for him? Unfortunately, the answer is a profound YES!

Let me be very clear about this: If the Aspergers child hasn’t had to work for most of his materials things and privileges over the years …and if parents have “stepped-in” time and time again to over-protect and over-assist the child …it WILL cause serious problems for that child later in life. Parents are not doing their Aspergers child any favors by over-indulging and over-assisting, in fact, quite the opposite – THEY ARE HURTING THEIR CHILD!

We’re talking about over-indulgent parenting here. Over-indulged children have too much stuff, too much assistance, and soft structure (i.e., lax rules, few chores, aimless). As a result, this child grows up with very little “self-reliance” (a critical skill to have to “make it” in the real world as an adult).

Over-indulgent parents often view themselves as loving their child unconditionally by permitting most requests and offering their child free reign with few restrictions. They also believe that being good parents entails supplying the child with most of his wishes – and assisting at the first sign that the child is struggling.

Being “taken care of” all of your life has grave consequences. Children who are over-indulged have great goals, but because they are so accustomed to being catered to, they do not have the skills or drive for achieving their ambitions. Impulsivity, refusing to take responsibility, abusing drugs, continuing to live at home as an adult-child, spoiled behavior, and so on, all stem from needing control – but having no ability to appropriately exercise it.

The “easier life” makes for children who feel “privileged” and who actually miss out on some important social skills (e.g., how to make friends, work with others, achieve self-sufficiency, etc.). Doing well in college, finding and keeping a job, and raising a family takes individual hard work, but if the child is used to not having to work for his money or interact with people in order to do well, his lack of determination will be the catalyst for his downfall.

Over-indulged children don’t know the difference between “needs and wants.” Ultimately, knowing what you “want” versus what you actually “need” is something that comes with maturity, but when a child is so privileged that he gets most of what he wants, it’s hard to know the difference. In general, children that are used to being the center of attention and not having to work for their share at life are disadvantaged as adults.

Parents are supposed to set a good example and give their child a strong background in the “real world” so that he can succeed on his own someday. If children don’t learn early on that making a living doesn’t come easy, their lives won’t be as fulfilled because they’ll have a strong sense “entitlement” (e.g., “You owe me …I shouldn’t have to work for anything”).

Directives for Over-Indulgent Parents—
  1. Allow your child to experience the negative consequences and painful emotions of poor choices.
  2. Differentiate between your child’s wants and his needs.
  3. Discipline rather than nag.
  4. Discipline without later reducing or negating the discipline.
  5. If you have tried to correct your parent’s mistakes by attempting to be a “better” parent, know that (a) you turned out all right, and (b) you may be erring on the other end of the extreme.
  6. Keep an eye out for your child’s guilt-trips.
  7. Know that your child does not always have to be happy in order to have high self-esteem.
  8. Know when to be your child’s parent and when to be his buddy.
  9. Learn to say, and stick with, “no”.
  10. Make sure you and your child’s other parent are united and bonded on most issues.
  11. Pay attention to your feelings of guilt about how you have parented, and know it is a sign that you are – once again – beating up on yourself.
  12. Think in terms of “everyone has a responsibility to the solution” rather than attributing blame.
  13. When you catch yourself feeling sorry for your child, know it is a sign that you are – once again – taking on too much responsibility.
  14. When your child needs to be comforted/cheered-up, do so with active listening, empathy, paraphrasing, validation, hugs, etc. rather than giving him things (e.g., unearned privileges, food, gifts, fun activities).
  15. Your child is a priority, but allow your marriage to come first (it’s the foundation for the entire family).

In Summary—

Overindulgent parenting (i.e., parenting from parents who fail to enforce age-appropriate limits) is associated with children who:
  • are ill-tempered
  • are manipulative
  • are overly dependent on parents
  • are self-centered
  • are verbally/physically aggressive
  • have less concern for others
  • lack assertive skills
  • lack motivation

The methods of indulgence are:
  • over-nurturing
  • soft structure
  • too much freedom
  • too much stuff

The reasons parents over-indulge their children:
  • correct their own parent’s mistakes/repair their own childhood issues
  • don’t have much money (so give too much freedom)
  • feel guilty
  • feel sorry for the kid
  • parent fears confrontation/lacks assertiveness
  • response to a major life event
  • the parent was overindulged as a child

…as a result, they parent their child based on what THEY want for him rather than on what he actually needs …or they parent their child the way THEY wanted to be parented by their parents.

The results of overindulgence:
  • child believes the rules do not apply to him
  • child depends on the parent to give him what he wants, but at the same time, resents being dependent …and this resentment comes out as anger and ungratefulness and a strong desire for more and more and more
  • child does not get along well with authority figures
  • child feels entitled to privileges but not responsible for his actions
  • child has adjusted so completely to (a) being catered and/or (b) not having to be responsible for anything that he cannot function on his own
  • the child is in charge rather than the parent (tail is wagging the dog)

Parents who overindulge have trouble:
  • believing the fact that they are overindulging their child
  • defining the difference between nurturing behavior and overindulgence
  • enforcing discipline and setting limits
  • knowing when to be the child’s “buddy” and when to be his parent
  • saying -- and sticking with -- “no”

Launching Adult Children With Aspergers: How To Promote Self-Reliance

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