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How can I help my daughter with ASD to deal with bullying...?

Question

"How can I help my daughter with ASD to deal with bullying and feeling like ‘she is an alien’ (her words)?"

Answer

It is very common for children with ASD (i.e., high-functioning autism) to feel different. These children are very intelligent and the fact that they have struggles in many different areas is very obvious to them. You frequently hear children and adults with ASD refer to themselves as “from another world”. They spend much of their lives trying to fit into a world that doesn’t seem to accept them.

Here is a child who has trouble making and keeping friends, may appear clumsy and awkward, is sensitive to sound or light, has strange obsessions she talks about all the time, and has difficulty with changes in routines or schedules. All of these things are bombarding your daughter’s mind when everyone around her is going through the day happily in a group, while she watches from afar. It’s not surprising she is feeling like an alien.

Because of the differences that make children on the autism spectrum stand out from the crowd, they also frequently have to deal with bullying. They are smart, capable of handling their school work for the most part, but keen on following the rules and doing what is right. You will read about kids on the spectrum being labeled as geeky or nerdy.

A child who is being bullied may not realize that she is supposed to tell someone that it is happening. When you struggle with communication, it is difficult to know when or even how to speak up. She may be realizing for the first time that she has been a target all along.

Assure your daughter that you understand her statement regarding feeling out of place. Tell her that there are ways to control bullying and come up with a written plan of action. Talk to her about the specifics and help her see that she can find her way around these trying situations.

Involve your daughter’s school personnel. They may be able to offer suggestions that can be added to her educational plan to make things easier for her, such as additional individual therapy or social skills classes.

With help, your daughter can get past her feelings of alienation and helplessness. Having the support of her parents and professionals will prove invaluable and in time, she’ll be feeling less like a target and more like the capable human being she is.
 
 
 

 
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How to Motivate Aspergers Children

Question

I am looking for more tips on how to get a 9-year-old with Aspergers to enjoy writing more.

Answer

Aspergers (high-functioning autistic) kids respond best when their motivation level is high; when the answer to the question "What's in it for me?" is something an Aspergers youngster most wants or desires. Kids with Aspergers never really make the leap from instant gratification to internal motivation or drive, such as self-satisfaction in a job well done, or pride in their ability to face a challenging situation. Aspergers kids are simply wired differently emotionally, and parents and educators soon come to realize that motivation to attempt or complete tasks is closely linked to perceived personal gain or reward for the youngster.

For Aspergers kids to achieve and keep on achieving, the possibility of personal reward must be present as a motivator. Often this reward revolves around the special interest of the Aspergers youngster.

So how do we achieve a state of constant motivation and satisfy the need for almost instant gratification without bankrupting our finances?

I believe Token Economy best suits the needs of kids with Aspergers. A Token Economy is a system where the Aspergers youngster earns tokens as a reward for desired behaviors or actions. A predetermined number of tokens are then exchanged or “cashed in” for an item or activity the Aspergers youngster desires.

Token Economies that use money tokens seem to be the most successful with Aspergers kids in increasing their ability to delay gratification, and lessening the risk of satiation (overuse of a reward can result in the youngster no longer viewing it as a reward). Using money in a Token Economy negates the need for the Aspergers youngster to decode an abstract concept, as in the ‘real’ world people are paid money for completing tasks by way of employment.

A token economy works well with Aspergers kids at school and at home right through Elementary School, and can continue to be used successfully at home throughout High School.

Aspergers kids take a long time establish trust, and for this reason a token economy should focus on rewarding desired behaviors and actions. Once the program has been established for a number of years, you may then be able to introduce “fines” or response costs, where the Aspergers youngster is fined for inappropriate behavior. This correlates the Token Economy program with real-world experiences for Aspergers kids. However, the focus of the program must be on the positives, because kids with Aspergers are prone to quickly losing their motivation and trust.

Be creative with the reinforcers offered as motivation for Aspergers kids. Offering a ‘menu’ of rewards to choose from seems most successful. Initially for kids with Aspergers “cashed in” rewards need to be fairly instant i.e. at the end of each day. Over time this can be stretched to the end of each week. As the Aspergers youngster matures this delayed gratification may be able to be stretched to a month or term, however small rewards and motivators should be offered consistently along the way.

My Aspergers Child: How to Prevent Tantrums
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Aspergers and Picky Eating

Question

My nephew (10 yrs ) has aspergers and eats very little variety of food. How can his parents change this? He is quite thin and not healthy. He is low to moderate on the spectrum.

Answer

Because of their sensitivity to smell, temperature, taste and texture, kids with Aspergers and High-Functioning Autism are often "picky" eaters. Some develop fetishes such as only eating beige-colored foods or foods with creamy textures. They often like very sour or very spicy tastes. Some develop chewing fetishes and as a result, they constantly suck on pens, pencils or times of clothing.

These kids also sometimes have issues with developing gastric problems such as acid reflux, hiccups, diarrhea, vomiting, or constipation. They are susceptible to celiac disease, which is caused by poor absorption of certain nutrients. The danger is that celiac disease damages the digestive system. Aspergers children frequently suffer from Dermatitis herpetiformis, which causes skin rashes and tissue damage in the intestine. It has also been shown that gluten can aggravate behavioral symptoms in those with Aspergers that are sensitive to these foods.

It becomes a challenge for moms and dads to make sure their Aspergers child gets proper nutrition. One trick that works for many moms and dads is to change the texture of a despised food. If your youngster will not eat peas, try serving pea soup. If she refuses orange juice, try orange slices. Most clinicians believe that the less you indulge food fetishes, the less entrenched they become. If an Aspergers child creates a rule that "no foods can touch on my plate," it can easily become a lifelong rule if moms and dads do not intervene.

One promising food therapy is the "Gluten-Free Casein-Free Diet" or GFCF diet. The theory behind it is that a youngster with Aspergers cannot digest casein (found in dairy) or gluten (found in grains). It is true that undigested molecules of these substances frequently show up in their urine samples. These amino acid chains (called peptides) affect neurological function and can worsen a youngster's symptoms. Peptides may have an opiate effect on some kids.

Moms and dads begin the diet by first eliminating either the casein or the gluten food group. No gluten means no bread, barley, rye, oats, pasta, all kinds of flour, food starch, biscuits, cereals, cakes, donuts, pie, pretzels, pizza, croutons, and even crumbs stuck in the toaster. You can substitute gluten-free products. Next, you eliminate all dairy products including milk, cheese, goat's milk and cheese, ice cream, yogurt, most margarines, puddings, and so forth. If you eliminate the dairy group, you may have to give your youngster calcium supplements. You also need to cut out "trigger foods" including chocolate, food colorings, caffeine, and peanut butter. The GFCF Diet website offers all kinds of resources for moms and dads such as cookbooks, food products, and DVDs.

Many moms and dads believe that the GFCF diet really helps their kids. In an unscientific survey of over 2000 moms and dads who tried it, most saw significant improvement and five reported "miracles."

Research into diet and vitamin therapy for kids with Aspergers is very sketchy at this point. Nevertheless, many moms and dads try them. One scientific study of alternative therapies found that over half of all moms and dads of kids with autism spectrum disorders have tried diets, herbs or vitamin therapy and 72% felt they were worthwhile. Many moms and dads swear by the GFCF diet, others prefer the Feingold diet or megavitamin therapy. You can buy supplements of herbs and vitamins specifically made for kids with Aspergers. Such supplements often include calcium, fish oil, omega -3 -6 or -9, vitamin B-6, HNI enzymes and DMG or dimethylglycine. If you use these diets and therapies, the best thing to do is to keep written records of how often your youngster tantrums or exhibits other behaviors. This way you can tell if the therapy is working.

There have been a few scientific studies of the GFCF diet. In one three-month study of fifteen kids ages two to 15 years old, there was no difference between the kids who followed the diet and those who did not. However, researchers at the Loma Linda Medical Institute in California concluded that the diet was mostly helpful and improved nonverbal cognition, but that more double blind studies are needed.

Many moms and dads have tried the GFCF or Feingold diets and found that they were not worth the effort. These diets make it extremely hard to buy regular grocery foods or to eat in restaurants. If there are other kids, you end up cooking different meals for them. Trying to keep to the diets causes parental burnout and that may not be worth their benefits.

My Aspergers Child: How to Prevent Meltdowns and Tantrums
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How can I cope with my son with Aspergers’ sensory problems?

Question

How can I cope with my son with Aspergers’ sensory problems?

Answer

Having a child with sensory integration issues can be a challenge for a parent. Sensory integration dysfunction is a neurological disorder where a person has difficulty processing sensory information. This difficulty can be on one of the five senses – hearing, sight, smell, touch, or taste – or in a combination of senses. Sensory integration dysfunction (SID) can include hypersensitivity as well as a hyposensitivity.

Kids with SID have a difficult time navigating the world. Many kids have a hypersensitivity to sounds. The vacuum cleaner will be too loud, or the hair dryer. Socks won’t feel right or they won’t wear shirts unless you cut the tags out. Many kids with SID will only eat certain foods.

If you have a child who you feel has SID issues, the first step in coping with them is to get a proper diagnosis. The diagnosis can help you understand the depth and breadth of the issues. Consult your physician about treatment for the issues.

When you are coping with sensory issues at home, you’ll need to be patient and understanding of your child’s needs. It’s important to remember that your child is truly affected by sounds and smells and tastes that may seem perfectly normal to you. Learn to understand what situations cause a problem for your child. It is advisable to try to avoid those situations with your child, and if you do have to encounter them, work with your therapist to teach your child how to better cope with the situation.

Often, a child with SID, especially when he is very young, will react badly in a situation by doing something such as throwing a tantrum. When this happens, you’ll need to try to figure out what triggered the reaction. You’ll need to trace back the steps and try to discover the sound or the smell or the taste that set your child off.

Often, kids with sensory issues have trouble adapting to school. The classrooms can be too loud or the cafeteria smells can be overpowering. Sometimes it can be the proximity of the other kids that will upset a SID child. Work with your occupational therapist to come up with behavioral techniques to help teach your child how to better deal with these situations. Your occupational therapist will likely put your child on a sensory diet that will incorporate movement, sound and smells. In a safe environment, your child will be exposed to different sensory experiences.

My Aspergers Child: Preventing Tantrums and Meltdowns
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Crucial Strategies for Parents of Challenging Kids on the Autism Spectrum

    Resources for parents of children and teens on the autism spectrum :   ==> How to Prevent Meltdowns and Tantrums in Children ...