Search This Blog

Traits of Partners/Spouses with Aspergers

The partner with Aspergers (high functioning autism) can manifest a wide range of varying behaviors with varying intensities. However feedback from their partners in marriage suggests there are many common threads in their experience of marriage.

Below is a list of some common characteristics of the marriage experience and of the partner with Aspergers, as described by members of our website:

• A tendency to correct and instruct those around them.

• After marriage the partner with Aspergers often seems to lose motivation to keep working on the quality of the relationship as though the wedding day has “completed” their pursuit, allowing them to pursue other interests.

• An essential need to have things done in a prescribed manner or order.

• Apparent evidence that the partner with Aspergers is not “reading” situations or people intuitively and is consequently behaving insensitively or inappropriately for the circumstances.

• Interests and hobbies of some partners with Aspergers tend to take on an obsessive characteristic at the expense of all other needs, duties and relationships around them.

• Seeming to be experiencing “normal” situations differently, noticing different things and having to deal with different priorities which often prevent co-operation and teamwork, leading to frequent conflict. As a result the relationship and communication deteriorate quickly. Efforts to reason and resolve situations often result in partners feeling that they have been dug in deeper. They often feel that their efforts have been fruitless and even worse, have increased the level of complication.

• Social isolation may result for the family if the partner with Aspergers is consistently avoiding social situations. On the other hand, some partners with Aspergers can seem like the “life of the party” and keep everyone entertained or “engaged” (willingly or unwillingly) by sharing a great deal of expert knowledge on favorite topics of interest.

• Some partners with Aspergers may be very controlling and unjust with the use of family finances, or on the other hand, avoid any financial responsibility within the household completely. They can quickly run the family into financial crisis by spending excessively on special interests, collections or hobbies.

• The partner with Aspergers can behave intrusively.

• The partner with Aspergers may “shut-down” if they don’t know what to say or how to behave. They may disengage with partner or family indefinitely.

• The partner with Aspergers may have great difficulty cooperating with others or working as part of a team or unit. They may seem focused only on what’s going on for them, and unaware of what’s going on for those around them.

• The partner with Aspergers may take roles seriously, to the letter of the law, especially as “Head of the Home” in a family with religious beliefs or tendency to traditional roles.

• The partner with Aspergers may appear to have an air of superiority or even arrogance and an apparent lack of respect for the knowledge, credibility, expertise or authority of others. They may have high intelligence or gifted abilities in some areas but seem to lack basic “common sense” or “know-how” in other more commonplace situations.

• The partner with Aspergers may not recognize the effort their partner is constantly contributing to the relationship to try to sustain it. They may be extremely sensitive and easily upset - and may take issue or be offended - over small matters which in turn can seem to jeopardize the stability or quality of the whole relationship.

• The partners of people with Aspergers will often feel as though they should and need to “repair” social faux pars created by the Aspergers partner.

• The spouses of partners with Aspergers claim that their spouses often do not appear to read the needs or notice the emotions of other family members, and they don’t inquire or reach out to them. However, when they do notice a need or “we tell them about our needs, they don’t seem to know instinctively what to do to make us feel better, and they will often do nothing and remain disconnected”.

• Their courtship style is almost “too good to be true”.

• There is frequently a tendency to hostility, defensiveness and retaliation if the partner with Aspergers is challenged or thwarted.

• They may also “melt-down” or have episodes of rage and aggression when they don’t know how to deal with circumstances, or they don’t want to discuss, negotiate, compromise or resolve situations.

• They may be very controlling.

• They may hold to a single acceptable method or opinion in many areas of daily life.

• They may insist on predictability in others and in household activities, but seem to “live on a whim” themselves leaving the family feeling uncertain all the time.

• They often have difficulty coping or adapting around the daily “happenings” within a family situation.

• They often seem to over-react to efforts to talk over matters with them and may perceive such efforts as a personal attack.

• Verbal combat around “technicalities” or “order” of a situation rather than the “spirit” or “essence”.

Aspergers and Marriage—

Many grown-ups with Aspergers do marry and have kids. Marriage often follows a period of "ideal" courtship. However the experience of the partners and children are quite different to what most partners would experience and expect.

Partners of an adult with Aspergers often have awareness early in the marriage that something is not right but they can’t work out what. They often speak of being aware that something, like a piece of a puzzle, is missing.

Parenting—
  • They may not be aware of or anticipate situations of danger or neglect when caring for a youngster.
  • If a parent with Aspergers chooses to take an interest in their youngster they can be very attentive and go to great lengths to assist them in practical ways.
  • On the other hand, they may have trouble reading their youngster’s needs or emotional state and may either respond inappropriately or not at all, leading to the possibility of neglect or mishandling or abuse.

The Experience of the Non-Aspergers Partner—

Partners living in a marriage or long-term relationship with an adult with Aspergers report feeling a deep impact in their lives in the following ways:
  • Alone
  • Being disbelieved by others, including professionals
  • Burn-out
  • Changes in personality in order to cope with Aspergers partner’s behavior
  • Confusion
  • Constantly criticized and blamed unreasonably
  • Depression
  • Efforts to build and sustain relationship constantly sabotaged by pedantic requirements of Aspergers person
  • Feeling like partner won’t cope without them (if we separate)
  • Frustration
  • Hopefulness dashed
  • Hyper vigilance to prevent chaos and relationship breakdowns
  • Increase in feelings of anger
  • Isolation
  • Like a single parent
  • Loss of sense of self
  • Neglected emotionally
  • Often betrayed by lack of loyalty and kindness from Aspergers partner
  • Often feel in damage control or crisis management
  • Powerlessness
  • Sense of being a mediator and interpreter at home and outside the home
  • Sense of sadness at unrealized potential in themselves, Aspergers partner and other family members
  • Shouldering responsibility for most household matters and well-being
  • Trapped
  • Unsupported
  • Verbally, psychologically and sometimes physically abused

The Benefits of Attending a Support Group—
  • Being with others who “know”
  • Help us heal
  • Information and feedback about other helpful services and professionals
  • Learn strategies to help us cope and manage better
  • No longer alone
  • No need to explain, prove or justify ourselves or our experiences
  • Opportunity to gain more understanding of Aspergers
  • Reassurance of our own worth and sanity
  • Regular opportunities to hear professionals speak
  • Special Events give us opportunity to promote awareness of, and learn more about Aspergers
  • Validation of our experiences


 
Comments from Partners/Spouses in an Asperger's Relationship:

My husband is an Aspie. I love him for being kind, supportive and loving me for who I am. I am the only "girl" he has ever kissed or dated. For us, the key was wanting to not play games and finding a best friend. Aspies tend to not play dating games and value honesty. Find a friend with the same interests and you will fall in love. Then they will have the patience they need when you mess up emotions.

__________

Like NTs some HFA/Aspergers are quite capable of maintaining close relationships with other people on the spectrum or even with NTs. Just like NTs some are better suited to this than others. People on the spectrum can vary enormously and some may have a higher emotional intelligence than others and allow for socializing and forming closer bonds. Others may just prefer to be alone and there is nothing wrong with that. I myself have two boys on the spectrum and of course am a fully fledged aspie, lol I have been married for 30 years to an NT. Like any other marriage we have had times when we have had to work hard, but generally we understand each other and support each other. I do know other autistic people who have children and have good, warm and loving relationships.

Remember that autism does not define us, condemn or damage us and we are not diseased. So there is hope for many and especially for those who have a diagnosis and develop a sense of self awareness and acceptance. My advice to anyone in these mixed relationships of autistic/NT to be patient, accepting of each other and make adjustments if possible. Maybe it will be hard sometimes, but like with our kids, always rewarding in the long run.

__________


My husband has Aspergers and we have a great and intimate relationship. There are some differences: I typically drive, I typically talk to waiters, he often doesn't look me in the eyes, and sometimes I have to pose an important question to him and then walk away so he has time to think about it. He can't always just respond on the spot for important and/embarrassing topics. We'll have been married for five years this May!

__________


There is nothing "normal". Everyone has some type of issues or needs. It is all about learning different tools and having patience. I really struggle with my husband sometimes and I constantly have to remind myself that his process isn't going to be the same as mine.

__________

I have AS and I was married for 13 years before getting the diagnosis. We have a happy marriage although it has become easier now that there are explanations for my sometimes eccentric behavior or unusual mood swings. However my non-AS hubby has many issues of his own. I know there are loads of undiagnosed AS people out there who are in relationships and I think they have the same chance of success as NT relationships provided you are with the right person.

__________

Total honesty. You have to become as brutally honest as he is - it will feel awkward but will open up all kinds of doors. "Giving me a rose, every now and then, makes me happy..." and then explain the symboism.  Or, "when we are intimate - can you touch me here or kiss me there, it feels good."  Or, "I know that it isnt something you would normally do, but when you do this - it reminds me that you love me."

__________

It is definitely isolating to have a husband and son on the spectrum. I feel like I concede daily to my happiness and needs because I'm too busy putting out fires. I said to my husband last night "I just wish there was one day where one or the other of you weren't mad at me." And by mad I mean taking their anger, frustration etc. out on me. I have virtually no friends now because I'm sick of the "better you than me" looks. I love my family very much and am trying very hard to keep us together. However, a little acknowledgement of how hard I work to keep our ship righted would be appreciated. I'm feeling very isolated, under-appreciated etc as a result of being married to an AS spouse and having a AS son. I work very hard to cover all of their needs and as a result have lost myself.

__________

You're not along, its okay to grieve and part of the grieving process is anger. Its a rough road, especially at first, but it can be worked with. Just as I do not give up on my son, I do not give up on my husband. My husbands family appears to all be ASD as well, and that gives me the belief my son will be fine too - better even, because we acknowledge ASD in my son, and get him the help and support he needs (whereas my husband and his family deny ASD). Grieve, breath.... it will all be okay.

__________

As a woman with AS who has been happily married for almost 30 years to a man with AS, the mother of a daughter and four sons who are all on the spectrum, the grandmother of little Spectrumites and as a fully human being with a complete range of emotions I would like to say that it is the mis-match between different neurologies that causes most of the problems. Oh, and I'm the daughter and grand-daughter of Spectrumites too. I have dropped my non-AS 'friends' over the years as I was unable to meet their expectations that I should change to be more like them. They never tried to understand me, yet expected ME to understand THEM!

I have great Spectrum friends and we have fortnightly family get-togethers that are huge fun. Socializing with other Spectrumites is easy. We understand each other’s body language; eye-contact is not a problem nor is bluntness and honesty in conversation. We make allowances for each other's sensory difficulties and can tell if the other is uncomfortable, and why.

__________

My AS husband had a diagnosis 3 years ago and now that we have this framework to understand his behavior we have been able to 'save our relationship'. Pre-diagnosis, it was often difficult for either of us to make sense of many of the things that he did. His diagnosis gave him a new way to understand himself and gave me the necessary information to try to support him with his challenges. We have also been able to begin to change our expectations of how our relationship can be successful. It was a very difficult time emotionally for us both but we found some support online - services for adults in the UK are very few and far between. Sharing helps - so a big "thanks".

__________

My ex is an Asperger's man and so is our son. I could not deal with it but it was mostly because of my own personality. I am extremely outgoing and very much a people person. I thrive on volunteering, being with friends, etc. My ex did not and got upset if I wasn't at home with him. I am also highly kinesthetic (I process through my feelings and emotions more than through visual or audio clues). Many Asperger's tend to 'lack affect'--not show emotions very well and tend to not be as affectionate. I am the opposite so on the whole we were just a bad match. Everyone is different however. Some 'normal' (heck who is really normal? I mean non-asperger's people here) people are naturally not so outgoing or strong people-persons. Some tend to not be as emotional. Some don't like as much affection.

There are plenty of those out there who CAN deal with the aspects of asperger's. I think it is also easier if you are a woman. It has been said that Asperger's is like being overly male. That on a spectrum men tend to be a little further away from social, etc. than women and that asperger's syndrome people tend to take that a step farther. So the average man is sort of a bit closer to the asperger part of the spectrum than the average woman--making it a bit easier for a asperger woman to find a man than an asperger man find a women. The thing is, humans are all over the spectrum in every trait. There probably is someone out there for everyone--probably several someones to be honest. It may be a bit harder if someone is farther towards one end of the spectrum or the other, but it is quite possible.

__________

Being married to someone with AS is so lonely. I feel that all my time is spent on how I can make things better for my husband to cope with life. Yet I am the one that has to handle everything and there is never someone there to help me. I agree about being fin/soc ind. For a long time I pushed aside my friends when it came to social outings since my husband always seemed so awkward at these events. I have started going to things by myself which may sound rude but at least I feel alive!!!! To have another adult to talk to is worth more than anything.

__________

I agree that living with an Asperger's person is not easy, but the marriage can be manageable and happy if the two talk about the challenges and work through them. It is only natural for a person with any difficulty to choose someone who complements them to be their partner. Reading this article gave me a very negative feeling about people with Asperger's Syndrome; but this is not accurate. Beneath all that "oddness" lays a very vulnerable person who is easily overwhelmed and overloaded. The "selfishness" is just a means of coping with that. The partner can be happy as long as he/she lower their expectations and look at the other half of the cup.

__________

 I don't feel that being married to a person with Asperger's is the worst thing in the world. Would you just up and run if your partner developed cancer or was seriously injured in a car crash and need care all the time? My husband has Asperger's and OCD. We have been married for 6 years but together on and off for 13 years. We have 5 kids together, two of whom also have Asperger's. My daily life is VERY exhausting mentally and physically caring for my children and my husband especially since they all have their own set of challenges to tend to but I wouldn't trade my family for anything in the world!!

I think as long as you (the neurotypical spouse) have some outlet to keep yourself balanced it is very doable. I know my husband loves me with all his being. It may not always be perceived that way because all his love can seem small in comparison to a "normal" relationship but I know that he is giving all he can and that means something.

__________

For many years I had no idea what the reason was for the strange, nearly indefinable problems we had in our marriage. Now I realize that there must be many exhausted, isolated, deeply sad women out there trying to cope with a very difficult situation alone, because so few understand. My husband is a beautiful, gentle, intelligent individual but this does not prevent my suffering. Denying one's self and sacrificing all basic emotional needs every single day, giving up the most important personal desires bit by bit as the years go by is so damaging. I wish support was better organized for partners of Aspergers. Many of us live in a trap, denying ourselves more and more as times goes by but finding it unacceptable to abandon a good and in a way helpless person who is the way he is out of no fault of his own. It is enough to make one crazy and there is no help around.

__________

My husband definitely is Aspie. He has a lot to learn in the social department. Luckily, he likes to be physical and that is a plus for our marriage (i actually told him I can't marry him unless we have sex at least 3x's a week ;o) haha Yes, I'm a woman! LOL He is not very romantic but he has allowed me to open some doors and travel places I don't think he would have without me. He has been more flexible and so I believe the balance has helped him. I insist on Intimacy. Luckily, this is not uncomfortable with him.

The biggest problem is him being a work horse and "shutting him down" almost like a computer FROM the computer and him learning to "realize" that it's "too much" He needs to check in to Life, the kids, me Things he once felt was important (and still does) I guess it's the transition. I don't like the emotional detachment (like i feel he could have sex with someone else and it wouldn't be a BIG deal) and so yes, I feel he would be more likely to "wander" but he does know the difference right/wrong and hopefully he will keep to his vows/promises. I know he loves me and the kids. He's just a bit "impulsive" and so that sometimes makes me worried that it will ruin our marriage. We've been married for 10 happy years though and I feel we both compliment each other, though I'm not on the Spectrum. I love that he's a very logical thinker and he is more involved with the kids activities than most men. He also is not into sports so that frees up some time for the family. I love my Aspie husband and I like that he sees/knows he has weaknesses (isn't arrogant) and knows he has much more strengths.

__________

I am a 50 year old Aspie woman. I have had to admit that I am emotionally unavailable. I find being in a couple difficult, and I am infatuated with another man who is also emotionally unavailable (and he infatuated with some lover he had years ago, long gone). So what I say is this: Emotionally unavailable people are drawn to one another. If you are with someone who cannot show you love and tenderness, then there is a reason within yourself for that. Easier to focus on the partner's inability to love than your own (I know this because I have done that myself). We choose each other. We have some need, some craving, for the pursuit of someone who can never truly be with us. All the focus goes on to "if only s/he'd change, I'd be happy". Not true. It's a bitter, repulsive fact that people like us love each other because of the guarantee of coldness and distance. I have come to believe this is all part of Asperger's, not lack of self esteem, childhood trauma etc (though being Aspie, we are rich in both those things). He can't love? Nor can you. Nor can I. I want to face this miserable, hurtful truth. I suspect some partners of Aspies are also on the spectrum, or have some other condition that draws you to us. There's no right, no wrong and (short of domestic violence) no victim and no villain. We can't love as we'd wish to love. What now? Accepting that is the first step, for me. Not that I know what comes after that.

__________

My husband has not been officially diagnosed, but has taken the online test and we have suspected he has Asperger's ever since our daughter was diagnosed.

I actually have found that knowing what I now know, I have become much more understanding and less peevish. What used to drive me crazy with frustration is now just a part of life with the man I love.

The most important thing I have found to remember is that the things that drew me to my husband in the first place and the things I love about him have not changed with the diagnosis. The only thing that has changed has been the day-to-day dynamics. I now know to communicate with written messages and notes rather than blast him with a long list of verbal expectations. I am more sensitive to "zone out" times and understand why he has them and why he sometimes needs them.

Knowing doesn't remove challenges, but it helps my creativity kick into gear and it actually enlivens the marriage - we aren't just any other boring couple. We get to go about life and marriage in a new way with new little twists and in the end we will be closer and stronger than ever before.

__________

I am married to a man with aspergers. We have been married for 45 years. He was only diagnosed 3 years ago. When we met most couples did not live together before marriage. If we had I do not think I would have married hemi also have 2 adult children with it. One has out going/assertive a/s [like her dad] with severe mental health problems. The other one has passive a/s. [like her paternal uncle and cousin.]SO YES A/S PEOPLE DO MARRY. Once you have a diagnosis things get a little easier. P.S. Most of my families have good careers they all have some connection to their obsessive hobby.

__________

My a/s husband just carries on in his own sweet aspergers way. He will not discuss it or read up on it. He is so stubborn. I think if he read up on it, he thinks he will lose face by admitting he has it. And of course they do not like change, and to make a move to change his behavior will mean change. Why should he change? He has the life he wants, it may make me happier, but that may mean I am more affectionate to him. And he can’t stand that. I think we have to change, not them.

__________

John and I met in 2002. He was 39, I was 35. Neither of us had children and we’re now 'ready' for a relationship. We met at, of all places, a personal development course. After the 4 month course ended, I approached him and asked him out. I was attracted to his quiet, gentle nature, his intelligence and his warm heart. We developed a beautiful relationship. We were quick to start physically, but emotionally were very slow. John is a principal of a primary school, and I, a nurse. We established a routine very quickly, of my coming to his house Wednesdays to Sundays, and being apart in between. We had fun together, laughed, shared our love of football and fine dining, and got to a point of saying we loved each other. Every now and again, John would become very distant, particularly if I became clingy or intense. He would need time apart, which was often very painful, and eventually come back to me, saying that I 'meant the world' to him.

After a year together, John broke things off. He could not really tell me why, he just said, he couldn't 'do it anymore'. I was devastated as I loved him very, very much. After 6 months, we were back together again, and I asked him if we could go to couples counciling, which he very bravely agreed to. We had 4 sessions together, which mainly centered around him, which was ok for me, but I'm not sure if it was the correct process!! After that, John did not want to go back, and he ended our relationship again. This time it was very painful for the both of us. I saw him cry for the first time, and once again, he was unable to tell me why. I felt like he loved me, the best way he could, but he said he didnt know what to feel. I felt like I had died. It was horrible. We would catch up for coffee from time to time, usually ending up kissing or going to bed together, and now this too, has stopped. I've not had any contact for 4 years now.

I went to see our psychologist, soon after we broke up, who told me she felt John had Aspeger's. Now, she may be incorrect, but a lot of what I've read fits John. I don't love him any less, in fact, if this is the case, I love him more, as I can understand him more. I wish I had your book back then (2003-2005). I may have been able to be more supportive and less demanding. I may have found some skills to manage things differently. Things may have worked out between us. Neither of us have had a relationship since, we are both still single.

Now, I totally acknowledge I have some stuff going on here too. It was a 2 way thing! And our relationship was, at times, a struggle. There were times he was emotionally unavailable, and I sometimes felt lonely. And am sure there were times where my 'stuff' got in the way too. But the good outweighed the bad, and I wish I could turn the clock back and have been a more understanding partner.

John was never, to my knowledge, officially diagnosed with Asperger's, but if it is the case, I wish I had known at the time. I would've fought harder, and loved him more.

Thank you for listening to my story, I just felt the need to tell someone who would understand. You don't need to reply, I feel better just telling you. And maybe, somewhere, sometime, John and I might get another chance.

__________

I'm a 30 year old woman and I've been dating my partner, Dave, who has a diagnosis of Asperger Syndrome for nearly a year now. At times we talk about marriage and children and I know this is what he wants. I too want this.

We met quite by chance and it was during the very early days of our relationship that Dave disclosed to me that he had diagnosis of AS. To be perfectly honest, I had next-to-no understanding of what this was and promptly dismissed it from my mind. I thought he 'speaks funny' and is 'bizarrely smart' neither of which bothered me too much (I work as a Mental Health Nurse in Remote Australian Communities - and in my mind a person has to significant difficulties functioning for there to be a problem. Sharing an interest in the human rights and health of Aboriginal and Torres Strait Islanders has been a great strength of our relationship... but thats another story).

To my naive mind, I thought that Dave can’t have been that severely Asperger-ed, he's a solicitor and great at his work. He ‘functions’. We have been living together for the past 2 months, its temporary (Dave will be working in another community 5 hours north in another month) but they have been challenging +++. And when I search online for some help and discover that 80% of marriages, where one partner has AS, end in divorce… I'm not exactly filled with hope. We have never yelled or sworn at one another, but we have some terrible arguments that never seem to end… the fact that we both have a tendency to ‘over-think’ everything, doesn’t help! But I love this man and I hope that he and I can have a family and all that we both dream of, and while we are still in-love I want to give our relationship every possible chance.

__________

 I have been married to an HFA for 29 years and never knew it. I have learned much of this by trial and error, but plan to read this several times and implement as many as I can. Josie, my husband lives in absolute disarray, but for many years his behavior could have been labeled emotionally abuse with expectations through the ceiling and rage to equal it. It's been a trip, but the think that has helped me most besides the Lord, is realizing I'm not responsible for his expectations, his unhappiness, or moodiness. I can approach the line of his behavior, but I will not enter into it and try to rescue him. That is just a rabbit hole you will never find your way out of. Try to see clearly what is his baggage and don't pick it up. Choose your battles carefully because most things just don't matter in the grand scheme. And remember, you are helping one of God's kids make it through this life, that is actually an honor though it may not seem so at times.

__________

My husband and I were just discussing last night how he is constantly mis reading me and other situations. How he feels frustrated that he tries and tries, but still misses out, even in social settings. We have a LOT of communication issues. But since we have a son diagnosed with Aspergers, we at least have something we can hold on to. We understand what is going on, but fixing it is definately a challenge. Many evenings are usually watchign tv, working on the computer or flat out arguing Nothing in between. We have tried therapy, but my husband doesn't see anything wrong with HIM! He lives by the adage if it isn't squeeking, then it doesn't need the grease, so it doesn't get attention. WE just talk about it all night and then forget about it until the next time. WE have been married for 15 years this way. probably remain so for another 40 or so. Not healthy, but we are adapting.

__________

Sending hugs to all dealing with an aspergers spouse. It was like emotional abandonment and verbal abuse for 19 years with denial on their part and receiving the constant reminder that we are the one with "emotional problems". One doesn't realize the toll it takes until they are out of it. Everyone makes a different choice for themselves and their relationships. Even just focusing on the positive may not be enough. Aspergers behavior finally resulted in divorce. Indirectly, I received what I needed for my emotional and physical well-being. Yes, ongoing stress can manifest itself in physical ailments. Life is amazing, even my kids have done better emotionally & academically since not living in the dysfunctional environment that unfortunately occurred.

__________

I have been married to a man with Aspergers for 32 years! It's only been two years since we discovered this. For the entire duration of our marriage, until recently, I blamed myself for everything. I blamed myself for not being pretty enough; after all if I were he would be attracted to me, and would be affectionate....so I thought. And I blamed myself for not being interesting or smart enough; had I been he would communicate with me. I've been pained with such guilt feelings because rather than appreciating his good qualities, I wanted a marriage like my parents. I wanted a marriage like my friends have. So guilt is all I've known. But I realize now that all I asked for was the same "normal" marriage that every woman seeks and expects when finding a mate. It has been emotionally and physically draining being married to him. My health has suffered greatly from it. It takes me to such a sad place when I think how I spent all of my youth waiting for him to change; never realizing his ways will never change. It's been lonely for me. But although the road has been long and arduous, and I question if I even love him anymore, I won't leave him. My new journey now is to learn how to find happiness in this mother-child relationship. I need to desperately focus on his good qualities rather than dwell on what is missing. It's going to be very challenging, but I've made up my mind to fight for this with all I have.

__________

I say my husband is "great" -- but it's just really fleeting and surface discussions, nothing deep and my taking care of him and everything else has just worn me out. I can't even consider another argument or discussion that goes nowhere. I find the resentment building and building. I fear I won't even want him as a friend is this keeps up. I get the selfish comment, whether it's intentional or not, doesn't make it ANY easier. How did you get out? I've spent our whole marriage protecting him and now I'm going to be the villain b/c no one really knows him. He has no real friends and can go days, weeks, months w/o intimacy of any kind. I mean not even your basic married talks, just his rants or "areas of focus". I will try to tell him something and I feel so degraded that after a dozen interruptions only then do I realize he has no interest in what I have to say. He can be so nice but he can be passively vicious too. It's all I've known, now I just want time to heal, time away. If he won't acknowledge it, if he just focuses on winning every discussion than what's the point when it's truly killing me? How do I get out, I don't want to hurt him, I just want time, I really am scared but I think I want out once and for all.

__________

I'm with an aspergers man now for 13years, married for 8 . It's my 3rd husband and I loved his gentleness after an abusive previous marriage. I'm now 69 so no chance of leaving as anyway I'm the beadwinner and he couldn't manage alone. He's an alcoholic which bothers me more than the the aspergers. I work really hard all day but in the evening I have no companionship. I think he loves me but I don't think I do any more. I didn't know he had it even though I raised his son for 10 years . His son is now living on his own in UK but in charge of the state. My husband has worked and still does a bit . I mistook his engineering ability and his past history of the hospitality industry to mean he was whole. I gradually started to see his complete dependence on me for most things and his jealousy of my friends as he has none.im afraid I do run him down but mostly because of the drinking .

__________

I am the 3rd wife of an Aspie classical musician. Although my husband will never admit he is affected by this syndrome the lightbulb came on when our granddaughter was sent to occupational therapy for her Aspie behavior (hand flapping, grimacing, self-mutilation at 4 yrs. old) It all SUDDENLY clicked.

When we met my husband seemed so calm (LOL - passive aggressive, I now realize); so many quirky non-caring things have happened; like the time he left me behind at Nordstrom's while he drove home without me; will not respond to any comment I make unless its a direct question (says "your comments don't merit a response -- ask a question if you want a response.")

Because he's a professor he thinks he's smart about everything -- except remembering my birthday, of course. He is PERFECTLY happy in this marriage because he has NO needs - none whatsoever (except to be agreed with and then left alone) - which leaves me 80% intellectually, emotionally, sexually lonely.

Yes, I'm in therapy -- if you're married to an Aspie, you probably should be too.

__________

I am married over 25 years to Aspie man and I am exhausted, depleted, lonely and I fear my resentment will not abate. I have always gotten the counseling and been the one he blames yet he is a textbook case and in total denial. "Askmollybeauty", you just described my husband, but I'm just broken and fear I can't do it anymore and he claims he wants to be w/me but just fights to win (what?), I too describe him as utterly selfish and he used to be a good Dad but not anymore so much. Kids are grown and it's just either me trying not to talk, him interrupting and seeking me for whatever HIS needs are and no talking other than what TV show to watch. I've watched our friends solely go away and I'm tiring of this life. I can't believe all of these women believe we should continue being sick and sad forever. I too am sick and it's time for someone to show me empathy and support. I feel like I'll always be his mother and so many of the wives are sick, has to be connected. My husband is of little to no support on that front either, the loneliness and building resentment is unbearable. I think it's wrong to tell us we should stay, this is our life, they can't help it, etc. I'd rather be alone than feel alone w/a man that takes no responsibility and just piles it on me. He left me alone through serious illness & has no friends & as a result I'm losing mine too. No one is comfortable around him & all he wants to do is blame me and make no changes. I can't imagine never knowing what it is to live w/o all of this stress and oddly, I want that for him too. Why don't they admit they would rather be alone, is it the change b/c he can go so long w/o noticing me, of course that is unless HE needs or wants something. If you aren't married yet, run, it will destroy you, they can't cope w/anything and you are always wrong and they are reclusive and lack all introspection and empathy except on the rarest of occasions. I'm scared, but I really think this time I'm done. I just wish he could let us be friends, maybe more, just can't live w/it day in and day out. I wish you all so much happiness and support.


==> Living With Aspergers: Help for Couples

Spouses with Aspergers

Question

My husband was recently diagnosed with Aspergers. He graduated from college, but his self-absorption, social awkwardness and rigid behaviors have negatively affected our marriage. Is there hope for our relationship?

Answer

If there is one word that describes the reaction of a family member to the diagnosis of Aspergers (high functioning autism) in someone you love, that word is loneliness. Certainly it is not easy to bridge the communication gap that exists in the everyday life which you describe. It is important to look at the history of your relationship. You must have had good times together and shared positive feelings about each other. Try to recapture whatever glimmers of that you can of what brought you together. You may benefit from consultation with a mental health professional who is experienced in helping people in your kind of situation. Even if your husband won't go with you, you may gain some insight into the relationship that will help you regain some hope, and possibly change the chemistry of what is happening right now in your relationship.

It is often both a major relief and a major disappointment to be diagnosed or married to someone who is diagnosed with Aspergers. Your hopes may be dashed and it may feel worse right now, but the truth is your spouse is still the same man you have loved and married. There is no way out of the Aspergers diagnosis, but now that you and he know more about him and his sensitivities and behaviors, it is finally possible to find ways to compensate and learn and change and grow.

People can change. Since your husband functions at a high cognitive level, he will be able to use that to learn social behavior that is less awkward and rude. In order to work on this it will be important for him to accept his diagnosis. That is the next hardest step. After that, you and he can work on overcoming the hurdles and progress can be seen. He can change.

Once the diagnosis is made and then accepted, adults with Aspergers are able to move forward – not quickly and easily perhaps – but slowly and steadily. It takes patience and perseverance. You will both have to change some of your current understanding and expectations. In every marriage couples must make some sacrifices and compromises that they did not expect, and this often brings couples to a deeper more mature place in their love, marriage and commitment to one another.

In a marriage it is common for a husband and wife to have some disagreements. They may find little things that get on each others nerves. They may often misunderstand one another, but usually a couple can find a way to work things out in a healthy relationship. However, a couple affected by Aspergers may have larger issues. A wife may start to see a particular pattern in the actions of her husband or the way he avoids confrontation. She may not understand why he doesn't remember things or offer to help her around the house. She may wonder why he doesn't catch on to her hints for affection or let her finish a conversation. At first she may pass it off as laziness or stubbornness. For a couple not knowing of the possibility of Aspergers, it may soon lead to frustration, anger and hurt feelings.

Once husband and wife accept that Aspergers is going to be part of their lives, there are steps they can take to make their relationship work. They may have to accept the lack of spontaneity. They must realize they need to be more direct in their communication. It may be difficult at first, but there are many support groups and self help ideas that can be found on the web.

Here are some helpful relationship tips:
  • Ask your spouse to ask questions when he is not sure of nonverbal cues.
  • Be accepting of each others dislikes, quirks, or calming activities.
  • Communicate with your Aspergers spouse precisely and directly. Since Aspergers adults have trouble reading non-verbal cues, you will need to give full and complete messages. Do not speak ambiguously. Try different forms of communication, such as letters, lists and email.
  • Establish routines and plans agreed on by both partners.
  • Find help for yourself. Get involved with a support group for spouses of Aspergers adults. If you become depressed, don't hesitate to get medical assistance.
  • Prepare yourself to take on the majority of the parenting responsibilities. Many men with Aspergers have difficulty relating to children. It is usually up to the non-Aspergers spouse to provide a nurturing and consistent environment for children.
  • Recognize the traits of the disorder. Aspergers adults frequently have a lack of empathy and an inability to consider the viewpoints of others. They often prefer rigid routines that others find difficulty to follow. Do not see any of this as a personal attack -- this is part of the disorder.
  • Respond instead of reacting. This can be difficult when you're frustrated with your Aspergers spouse, but if you force yourself to remain calm, you will have a more positive interaction.
  • Seek on-going professional help for your spouse.
  • Set up times to openly listen to each other.
  • Set up to do lists, calendars, reminders.
  • Talk openly about finances. Aspergers adults frequently have poor money management skills. An Aspergers husband may want to spend lavishly on his hobby, yet be critical of normal household expenses. Using a third party, such as a financial planner, may be helpful.

Married couples affected by one or even both partners with Aspergers can have a happy, loving, and successful relationship. It may take a little work and a little extra effort, but it is possible and it is worth it. Couples that truly love each other can and will make their marriage work.

Living With Aspergers: Help for Couples

Parenting Teens with Aspergers

Adolescence is full of challenges – especially if a teenager has to deal additionally with the Aspergers condition.

The change is fast, everywhere, and hard to keep up with: The body changes in response to increasing levels of sex hormones; the thinking process changes as the youngster is able to think more broadly and in an abstract way; the social life changes as new people and peers come into scope. Yet the youngster needs to deal with every single one of these changes, all at the same time! With their willingness to help, that’s where the parents come in, who have "been there", with the life experience, maturity and resources. So, how can parents help? Recognizing the complex and sometimes conflicting needs of an adolescent would be a good point to start.

Teenagers yearn to develop a unique and independent identity, separate from their moms and dads. Yes, they love their parents, but they don’t simply want to follow their footsteps. They challenge their parents in any way they can. They disobey their rules; criticize their "old fashioned" values; they discard their suggestions. Experienced moms and dads know that sometimes they have to be very "political" approaching their adolescent kids, if they are going to get their point across. On the other hand, teenagers give a lot of credit to their peers. They yearn to belong to a peer group which would define and support their identity. They may attempt to do things very much out of character just to gain the approval and acceptance of their peers. They tend to hide their weaknesses and exaggerate their strengths. Of course, what teenagers consider as "weakness" or "strength" may sometimes shock their parents.

Young people with Aspergers (high-functioning autism) bring their special flavor to the adolescence, essentially determined by the levels of three ingredients: interest, avoidance and insight.

Level of interest—

Since all forms of Aspergers has an impact on social development by definition, most teenagers with moderate to severe Aspergers will show little or no interest in others. They may seem to be totally unaware of their peers’ presence or they may appear indifferent when peers try to interact. As Aspergers gets less severe, the level of interest in peers usually increases. For these young people, the quality of social interactions mostly depends on the levels of avoidance and insight.

Level of avoidance—

In the social development of teenagers who show some interest in peer interactions, social anxiety and resultant avoidance play an important role. Some young people get very nervous just with the thought of approaching others and may choose to avoid it at all costs. Their avoidance may appear as if they are not interested in others. It is important to differentiate this since anxiety can be treated much more easily than genuine lack of interest.

Anxiety: A Fifteen year-old adolescent with Aspergers was brought by his mother to seek help with his high level of social anxiety. He was refusing to go to school, where he lately had been labeled as "tardy". Their home was in walking distance of school and he would leave home late in the morning to avoid his peers riding or walking to school. He would not go to the school cafeteria to avoid waiting in line. He would avoid classes in which students had to study in groups. Most of his anxiety could be eliminated over a few weeks by the trial of an anti-anxiety medication which he tolerated well and he was able to function better in school.

Most frequently, interaction with peers will create more anxiety than interaction with younger or older people: Younger kids are safer to approach since they would be more likely to accept the dominance of an adolescent with Aspergers and less likely to be critical. Older teenagers and adults are safer because they will be more likely to understand and tolerate. Moms and dads therefore commonly observe that their kids with Aspergers prefer to interact with younger kids or adults over their peers.

For teenagers with Aspergers who show interest in peers and do not avoid contact, the quality of social interactions will depend on the level of insight.

Level of insight—

Yet some teenagers with Aspergers will not avoid interacting with others; younger, older or similar age. Rather, they are eager to communicate, though, often in a clumsy, in-your-face way. The level of their insight into their social disability will then become the determining factor of their social success. If they are unaware of their shortcomings in gauging the social atmosphere and reading social cues, they may inadvertently come across as rude, insulting or boring. They may miss subtle criticism, sarcasm or tease. As they develop better insight, they become more motivated to learn which had not come naturally and intuitively. They also have a better chance to work through a sense of loss, common to all disabilities.

Coping with the Loss of Normalcy—

Regardless of the individual developmental route, most kids with Aspergers start realizing that they are not quite like others at some point during their adolescence. A few factors seem to facilitate the process:
  • higher IQ
  • higher level insight into difficulties in social interaction
  • higher level of interest in others

Once the adolescent realizes that he has significant difficulties in conducting social relationships compared to his peers, he needs deal with this loss, just like dealing with another loss. Understanding the thoughts, feelings and behavior of an adolescent with Aspergers is the necessary first step in helping him out and being there for him. Considering this coping process in a few stages may make the caregivers’ job easier:
  • Acceptance
  • Adaptation
  • Anger
  • Denial
  • Depression

Most commonly, the adolescent will not go through these stages one after another, but rather display a larger or smaller aspect of each at any given time. This is a painful process for not only the adolescent but for others who care for him as well. Moms and dads may find themselves compelled to forget the whole thing and act as if nothing is happening. Well, we are all tempted to avoid pain and denial is an excellent pain killer. The good news is, as much as the denial is contagious, the courage and strength, too, and seeing his parents dealing with the pain calmly and matter-of-factly will encourage the adolescent talk about his anger and frustration. This will in turn help the adolescent get closer to the acceptance and adaptation:
  • You don’t have to bring it up, but when he does, give them a good listening ear and be patient.
  • Don’t try to change the subject, unless your youngster does so.
  • Don’t try to minimize his difficulties, but also don’t let him exaggerate, providing gentle reality testing.
  • Offer the option of counseling, since sometimes it is easier to talk to a stranger; however, try not to push the idea directly even if you feel that your youngster clearly needs professional help.

Sometimes you have to be very political trying to sell an idea to a teenager. The mere fact that the idea is coming from his parents may make him refuse it. Let the idea come from a family friend, teacher, or a neighbor he trusts. Give him time to think about it. He may come back to the suggestion when he feels he is ready.

Consider trying an antidepressant medication if he doesn’t seem to be able to move on. Look for the following common symptoms of clinical depression. If five or more of these are present week after week, put your foot down:
  • Appearing sad for most of the time
  • Becoming irritable and angry with the drop of a hat so that family members start walking on egg shells
  • Blaming himself unfairly for anything that goes wrong
  • Complaining that he is tired all the time and wanting to take naps during the day
  • Eating less or more than usual
  • Losing interest in activities he usually enjoys
  • Making remarks like he hates life, he hates you, nobody loves him, or wishing he was dead
  • Not being able to fall asleep, waking up in the middle of the night and having difficulty falling back to sleep
  • Putting himself down, saying he is stupid
  • Withdrawing himself from the rest of the family, refusing to participate in group activities

Clinical depression is a serious condition which carries a significant risk for self-harming behavior. If you suspect that he may have clinical depression, set up an appointment with a child and adolescent psychiatrist as soon as possible and do not put this as an option. He does not have a veto power on this decision.

Anger, Denial and Depression A young teenager was referred from a clinical study of depression in kids and teenagers to maintain his antidepressant medication. My clinical evaluation revealed Aspergers in addition to his ongoing depression. The diagnosis of Aspergers made very much sense to the moms and dads who had wondered for years what was wrong with their son who, among other things, had difficulty relating to his peers, despite being very bright and able to communicate with adults in a quite sophisticated manner. Since he had responded only partially to the study medication we tried him on another antidepressant. Even though his mother thought that he was happier, more motivated and energetic, he was not able to recognize any improvement.

During his most recent follow-up he was very angry with me and announced that he didn’t think that he had Asperger’s, he wanted to stop his medication and wished everybody leaved him alone. My suggestion for counseling was discarded, too. His mother and I firmly insisted that he continues to take his medication. We didn’t push the diagnosis or the counseling idea. I recommended his mother that if he does not feel like coming next time, she comes by herself so that we can strategize how to continue his treatment.

Most teenagers with Aspergers excel in one or two subjects. They tend to accumulate a lot of information on the subject and love to talk about it over and over. Unfortunately, after one point family members end up losing interest and start getting bored to death. Rather than avoiding the subject, try finding out new ways to engage the young person in the subject. Structure the topic in a different way. Find a way to challenge him. Be creative and let sky be the limit! Your interest will make your youngster feel better about himself, realizing his mastery on the subject will boost his self-esteem.

Many teenagers with Aspergers resolve their sense of loss by turning the issue upside down: Rather than clinging to depression and despair, they find their identity in Aspergers. They get in touch with other youth with Aspergers. They take on themselves educating their peers about Aspergers at school. They set up web sites, chat rooms and even write books about it. They gather support for a better understanding and treatment of Aspergers. Encouraging your youngster, providing him means to this end and removing the obstacles in front of him may turn out to be the best antidepressant treatment ever. All this may seem remote and you may not know where to start.

Consider the following tips:
  • Attend support groups for parents and make acquaintances.
  • Get in touch with the organizations like the Autism Society of America or Asperger Syndrome Coalition of the U.S. and contact their local chapters.
  • If it doesn’t work right away, don’t get discouraged and keep trying, always letting your youngster make the first move in showing interest.
  • Invite your new acquaintances to your house and encourage them to bring their kids.
  • Leave brochures, leaflets and other information about teen groups around to catch the attention of your teenager.

Acknowledging Sexuality—

In contrast with their rather slow social development and maturation, teenagers with Aspergers develop physiologically and sexually at the same pace as their peers. As their sons and daughters with Aspergers grow older and display sexualized behavior, many moms and dads find themselves worrying that their:
  • youngster will be taken advantage of
  • youngster will contract sexually transmitted diseases
  • youngster will not have the opportunity of enjoying sexual relationships
  • youngster’s behavior will be misunderstood
  • daughter will get pregnant or their son will impregnate someone else’s daughter

While some moms and dads get concerned that their kids show no interest in sexual matters, others have to deal with behaviors like:
  • masturbating in public
  • staring at others inappropriately
  • stripping in public
  • talking about inappropriate subjects
  • touching others inappropriately
  • touching their private parts in public

Talking about sex, especially the sexuality of our kids makes us feel uncomfortable. Even though we all wish that our kids have safe and fulfilling sexual lives, we hope the issue just gets resolved by itself, or at least somebody else takes the responsibility of resolving it. We may find ourselves lost trying to imagine our kids, who have significant problems carrying a simple conversation, building relationships that may lead to healthy sexuality. We may find it comforting to believe that our kids don’t have sexual needs and feelings, and avoid bringing up the subject in any shape or form. We may feel uneasy about sex education, believing that ignorance will prevent sexual activity.

How can we make sure that our kids with Aspergers express sexuality in socially acceptable and legally permissible ways, avoiding harm to themselves and others?

The key is making your mind that you will address the issue, rather than avoid it. Set up a time with your youngster to talk about sexuality, rather than making a few comments about it when the issue is hot, right after an incident, when everybody feels quite emotional about what just has happened. Ask direct questions about what your youngster knows about sex. Ask about his desires and worries. Tell him what you think should be his first step. After inquiring and talking about the normal behavior, set realistic but firm limits about inappropriate behavior. Seeing your level of comfort around the issue, your youngster will get the message that it is OK to have sexual feelings and it is OK to talk about them. Getting this message alone will bring the tension around sexuality a few notches down. If this approach fails, please do not be shy about asking for help.

Other moms and dads with adolescent kids would be a good starting point. Your youngster’s school may also be able to help. Finally, you may inquire about professional help which should provide an individualized sexuality assessment and sex education based on individual needs, while utilizing behavioral modification techniques to discourage inappropriate sexual behavior and promote appropriate sexual behavior.


==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

Aspergers Children and Pica

Question

I'm curious about messy eating and chewing on stuff ...pencils, toys, paper, wood ...you name it, he'll put it in his mouth.

Answer

Eating non-food items is referred to as pica. These items may include, but are not limited to dirt, paint chips, coffee grounds, hair, paper, sand, and cigarettes. For a true diagnosis of pica, the child should be craving and eating these things for at least a month.

Although common in infants and toddlers, most children outgrow pica by the time they are about three years old. Pica is also more common with other disorders, such as autism, and other developmental disabilities. 10 to 20% of children may suffer from pica at some point during childhood. Pica is also common during pregnancy.

Though, the specific cause of pica is unknown, there are a lot of theories prevalent trying to explain its cause. Most commonly it is suspected that emotional disturbance and deficiencies of iron or zinc may lead to this condition (However, it is controversial whether iron deficiency leads to pica or pica leads to iron deficiency).

The treatment for pica is first and foremost a secure and stable family structure. Your Aspergers child will have to be taught about edible and non- edible food substances. Your doctor may prescribe iron supplements and de-worming agents. If your child is suspected to have been exposed to a contaminated substance like lead, lead screening may be required.

If your Aspergers child is growing and developing normally, then pica is more likely a habit than an obsessive-compulsive disorder.

The Aspergers Comprehensive Handbook

Rebellious Aspergers Teenagers

"Why does my Aspergers teen reject everything I say? Why is he so argumentative and defiant?"

These are some of the many questions you, as a parent of a rebellious Aspergers (high-functioning autistic) teen, might be asking yourself right now.

The teenage years can be a very rough time for both the teen and the parent – especially when you consider the challenges that are part of the Aspergers condition.

Why do Aspergers teens rebel?

It's normal for any teenager to show a little bit of rebellion now and again. However, teenage rebellion that is constant, interferes with normal daily functioning, and is destructive calls for much more attention. Aspergers teens rebel for a variety of reasons:
  • Peer pressure - Some forms of rebellion can begin with pressure from peers to join in various destructive behaviors.
  • Independence - These years are a constant struggle between dependence and independence. Rebellious adolescents want to have total independence and prove to you that they can do things themselves. At the same time, they are overwhelmed and still desire parental protection.
  • Hormonal changes - As adolescents bodies are changing, hormone fluctuations can bring about all sorts of mood changes.
  • Discovering their identities - Adolescents are at a point in their lives when they are trying to figure out who they are as a person, their likes/dislikes and what they will be doing for the rest of their lives. They use this time to test and try out many identities until they find one they are most comfortable with.

In what forms do adolescents rebel?

How your Aspergers teen chooses to rebel depends on his own individual feelings and problems. Some forms may include:
  • Argumentative - quick to anger, overly defenseless
  • Change in appearance/interests - trying out new clothing styles, hairstyles, tastes in music
  • Rejection of rules/curfews
  • Running away from home
  • School problems - cutting classes, missing school, drop in grades
  • Spending more time with friends away from family members
  • Substance abuse - experimenting with alcohol and illicit drugs

How can you prevent teenage rebellion?

Preventing all forms of rebellion can be a difficult chore as some of this behavior is a normal process of growing up. Keeping the dangerous forms under control is necessary though in order to avoid further problems from developing. If your Aspergers teen is showing harmful rebellious behavior, further treatment with a mental health professional should be sought. Rebellion could be due to another underlying problem. 

As moms and dads, the following methods can be helpful in keeping rebellion at a minimum:
  1. Don't be too harsh with criticism - Adolescents like to experiment with their individuality to discover who they are. As long as it is not harmful, let them try out new things. Give your opinion, but don't criticize.
  2. Keep an open relationship with your teen - Let them know that they can always come to you with their problems, under any circumstances. If your rebellious teenager feels the need to be alone, give them some space to work out their problems by themselves first.
  3. Punishments should be fair - Set reasonable consequences for broken rules as unfair punishments can create further rebellion.
  4. Set up some reasonable house rules - If your rules are to strict, your rebellious adolescent might feel the need to break them. Give your adolescents some say in home of these rules and curfews so that they feel some ownership over them.
  5. Try not to argue with your rebellious adolescent - Yelling and arguing with your rebellious adolescent about your differences only sets a bad example of how to deal with problems. Try to approach the matter at hand in a calm fashion. If that cannot be done, give yourself some space for a while and talk about it at a later time once tempers diminish.

==> Help for Parents of Teens with Asperger's and HFA

Adult Aspergers Children Who Move Back Home – or Never Leave

Older Aspergers (high functioning autistic) kids (19-years-old and up) are moving back home – or have never left! Why is this? 

Between a troubled economy, crushing student loan debt, and social skills deficits that are part of the Aspergers condition, grown Aspergers kids are moving home at ever-increasing rates – or they have never left!

It's hardly surprising that a mixture of emotions (e.g., anger, anxiety, and possibly joy) flows when junior moves back home. If you're still trying to decide if this step is right for you, the "Are You Ready for a Refilled Nest?" quiz may help (located at the bottom of this article). But if you've already taken the plunge, it may be helpful to understand where the boomerang trend and its accompanying emotions are coming from, and the issues most likely to arise.

House Rules—

Moms and dads love their children. They want the best for them. When they see their children clearly making mistakes and bad choices, they immediately want to intervene. The key is to remember that they are grown-ups now and they have the right to make the choices they make as well as face the consequences, good or bad, of those choices. This is when all those years of teaching them should be kicking in. We all learn through our mistakes, and we all continue to make mistakes as grown-ups. Our adult Aspergers kids have the right to live as a mistake-making / consequence-facing human, just as we do.

When House Rules are established, they need to remain focused on the Household. The following is a general list of common areas to address:

• Chores— How will they be divided? Obviously the adult kids need to be responsible for the cleaning of their own private areas, but what about shared living areas? What is the timeline for doing the chores in the common areas? How will the laundry facility be shared?

• Company— If the entrance to their private living areas is not private, you have every right to set hours for entertaining. Other areas to address would be those house rules other members of the household must follow such as no one of the opposite gender in the bedroom, no company in the house after midnight, etc. House rules apply to all in the household.

• Conditions of Residence— These would be rules as to why they are being allowed to move in and what will cause an eviction. Some moms and dads have a general rule that any youngster living with them must be attending school full-time, working, or serving in the armed forces, as there will be no 'free ride'. If the youngster is in school full-time they live in the home rent-free. The other circumstances require the payment of rent, usually based upon their ability to pay.

• Household Influence— If you have a rule against no alcohol, no drugs, and no r-rated movies, for example, in your home; you have the right to extend that rule to the adult kids. Anything you believe to be harmful to the environment of your home or harmful by way of example or risk to the underage kids is eligible for rule setting in this category. These items must be carefully addressed so they do not become matters of running the adult child's life, or about what they do outside of the home. These rules need to stay strictly focused on the home environment.

• Rent— Does this amount cover just shelter, or are food and utilities covered as well? If food is not covered in the amount, will they buy their own groceries, or contribute groceries to the household? When is the rent due, and what is the late payment policy? Will a deposit be required? Will said deposit be returned in part or full? If so, under what circumstances?

• Their Kids and Pets— Keeping them under control and also living according to house rules. You have the right to have your privacy and your belongings respected. You have the right to expect them to parent their own kids and care for their own pets. This area can become an area of contention when moms and dads desiring to be helpful begin to interfere in the parenting style and routines of their adult kids. This is a huge no-no. They are grown-ups and those are their kids. Unless your grandkids are in imminent danger, you have no right to interfere.

Running Their Own Life—

It is difficult to see someone you love make choices that you know will have a bad outcome, or which you do not personally agree with. As moms and dads of adult Aspergers kids, you must first and foremost respect their rights as grown-ups.

Whether they live under your roof or not, you have no right to insist upon setting rules which interfere in their right to choose for themselves what to do with their own life. Some examples of Running-Their-Life Rules are as follows:

• How they dress or style their hair
• How they parent their own kids
• Places they may go
• Their diet and exercise program or lack thereof
• What line of work or field of study they may be involved in
• Where they may attend church or if they attend church or not
• Where they may work or go to school
• Whether they get piercings and tattoos
• Who they may associate with outside of your home.

Exceptions—

In some cases, there is true and imminent danger involved to the safety and welfare of your adult youngster, their kids, your own underage kids, or yourself. In these cases, you have every right and responsibility to act. A few examples would be as follows:

• Alcohol and Drug abuse. If their life or the life of another is at risk by all means intervene. This is where programs such as Al-Anon can help you understand the dynamics and what you can and should do. You may have to become acquainted with the principles of Tough Love and actually hold an Intervention to help your adult youngster.

• Clear animal abuse or neglect as outlined by your state or local government. Your opinion that something is neglectful or abusive must be substantiated by state or local law before you have the right to intervene because it may well be just your opinion.

• Clear child abuse or neglect as outlined by your state government. Your opinion that something is neglectful or abusive must be substantiated by state law before you have the right to intervene because it may well be just your opinion.

The best way to teach our kids is through the example that we set. They learn far more from what we do than what we say, and they do watch what we do very closely. If we expect them to live a certain way, we must be consistently and without hypocrisy living that way ourselves. Then, if we set a good example, they may choose to adopt our philosophy and way of life for themselves. They also may choose to go their own way. The point is that it is their life and their choice, and that must always be respected.

Preparing a Lease—

Writing down the terms of a room and board arrangement eliminated all sorts of problems. My grandson learned that he would be now responsible for his own food and laundry, and that the six hours of weekly yard work were not negotiable since he was receiving a value of $500 a month in free rent & utilities. Other terms included "quiet hours" from 11pm to 7am and no overnight guests. By addressing these issues in a businesslike manner, there was no question of who was responsible for what, and how the rent would be dealt with. It solved the problem for us and is an excellent example of why a lease should be drawn up with our adult kids when they find themselves living back at home for a while.

What should be covered in the lease? From our experience, we learned that it was helpful to address these issues in our lease agreement:

• How will the chores be managed? This is one of the problems where resentment can build up in a hurry, if not addressed before an adult youngster moves back home. While moms and dads are more than happy to help their children out if financially possible, this doesn't mean the youngster gets a free pass from household chores. Yes, chores. With an extra person in the house, there are extra dishes, extra laundry, and extra stuff lying around that needs to be picked up. Asking for your youngster to help out with assigned tasks is not unreasonable and should be addressed in the lease so there is no misunderstanding.

• How will the groceries be managed? Feeding an extra mouth can also cost money, especially if that mouth belongs to an adult male with hollow legs. How we solved the problem with our grandson was to install a 6 cubit foot refrigerator freezer in his basement kitchenette. He bought his own food and left the stuff in our frig alone. With an extra adult in the house, a grocery bill can increase by 50%. Setting guidelines for how the cost of groceries will be handled should also be part of the lease.

• Who will pay the extra utility costs? Having an adult youngster living at home costs money. There's the added cost of hot water for that extra shower and extra laundry, plus the high speed DSL, cable television, or an extra phone. Extra water also means a higher sewer bill. If you can't afford the extra cost of utilities, who pays the additional cost should be part of the lease.

• Will there be rent? Our adult kids often move back home because they are trying to recover financially, and aren't in a position to pay rent or utilities. If you aren't charging your adult kids rent to help with expenses, then it is not unreasonable to ask for work in lieu of payment. Yard work, painting the house, or "whole house" cleaning on weekly bass is one way to work off the rent without having to pay cash.

If you were managing a rental property, you might have rules of occupancy which might include no illegal activities, no loud parties, no unauthorized roommate or pets, no smoking, or other activities that you find objectionable. Just because your boarder is your youngster, he doesn't get to carry on in a way that jeopardizes the quality of your life. And, just because he IS your youngster doesn't mean you have the right to invade his privacy and snoop around his room. Writing down the house rules in a lease takes out the guesswork of out what is permitted and what isn't.

While a lease isn't necessary for every situation, sitting down and discussing ground rules is an important issue that moms and dads should insist on when an adult youngster is wanting to move back home temporarily. By discussing expenses in a businesslike manner, deciding how the work will be divided, and writing it all down, a family can avoid hard feelings and misunderstandings that can lead to damaging a family relationship.

Sample Rental Contract—

When your grown-up child moves back home, it’s best to draw up a contract to outline expectations and financial agreements. Some families draw up formal paperwork, others use a rental contract simply as a guideline for discussion. Here’s a sample rental contract to get you started:

1. Cooking, laundry and chores: (Name) will mow the lawn on Saturday, grocery shop on Sunday using the family shopping list, and cook dinner on Mondays and Wednesdays. He is responsible for the purchase, laundering and maintenance of his own clothing and any personal items.

2. Guests and quiet hours: Household quiet hours run from midnight to 6 a.m., unless otherwise arranged. No overnight guests without prior arrangement.

3. Rent: Beginning with his second monthly paycheck, (name) will pay $200 (or whatever amount) a month to cover rent and food. 

4. Set a time limit and a goal: This agreement runs from June 15, when (name) moves home, until (date), when he will have saved enough money to get an apartment of his own, i.e., first and last month’s rent and a security deposit. 

5. Utilities: Beginning with his second monthly paycheck, (name) will pay 25% of the utilities, including water, gas, electrical and cable.

Quiz: Are You Ready for a Refilled Nest?

Depending on distance and family dynamics, a grown child's move back home can be a major undertaking. If you're pondering whether you're ready to refill that empty nest, this quiz may help. And if the answer is "no," consider that there may be other, less drastic ways to help your youngster get back on his feet.
  1. Are the chances of his finding satisfying full- or part-time work in your town better than where he is now?
  2. Do you have a good, supportive relationship with your youngster? 
  3. Does he visit frequently and without any particular problems?
  4. Does he need to get his feet back on the ground after a devastating life event - a bad break-up, divorce or medical crisis?
  5. Does he still have close friends in your area? Depression and loneliness are, unfortunately, common problems for the Aspergers adult. His support network needs to encompass more than his wonderful parents.
  6. Does your youngster have specific plans - he wants to buy a house, pay off debts, go to grad school or find a job - that would be made possible by a dramatic, temporary change in his living situation?
  7. Does your youngster respect your privacy and your needs? 
  8. Can he be relied on to follow mutually agreed upon rules?
  9. Is your home and bank account large enough to accommodate your returning youngster?
If you answered "yes" to all - or nearly all - of these questions, welcoming home a returning, grown youngster may be a great solution for your family, particularly if you talk frankly and openly about concerns, lay ground rules ahead of time and keep the channels of communication open.

A "no" answer to any of these questions is a red flag - not insurmountable, but definitely worth exploring alternative ways to help your youngster deal with his challenges, short of moving in with you.

Conclusion—

It's necessary to set standards. This means spelling out clearly what is acceptable behavior and enforcing the consequences of inappropriate behavior. Don't be afraid to lay down rules. Moms and dads don't have to accept intolerable behavior. Make sure the youngster knows there are boundaries that can't be crossed. You are not curtailing the youngster's rights. Remember, you have rights, too.

And what about money? The key is to communicate about it. To avoid money quarrels, discuss openly who pays for what. Don't be shy about insisting that a youngster who's working contributes to the household expenses.

If the conflicts persist in spite of your efforts, most cities have family counseling services that can help moms and dads and kids work out the problems.

No matter what brought the youngster home, there comes a time when the "visit" must come to a close. It was, after all, only temporary. Be especially sensitive to when the youngster has stayed long enough. Realize why the child is at home in the first place. If moms and dads begin to feel exploited, or feel that the children are getting too comfortable, it may be time to force them to get on with acting like grown-ups.

==> Launching Adult Children With HFA and Aspergers: How To Promote Self-Reliance

Preventing Temper Tantrums in Children with Asperger's Syndrome

Kids with Aspergers (high functioning autism) have difficulty in communication, a wish for everything to stay the same, and sticking to their favorite routines. They can get very angry and upset if something unexpected happens or when they do not understand what they are told or what is expected from them.

Their frustration levels are much higher and even the slightest thing can set them off. To outsiders their sometimes violent tantrums seem to be without a cause. As a grandparent of a boy with Aspergers, I know from experience there is always a reason for him to express his frustration in such a way.

Typically, rages in Aspergers kids occur when the youngster has experienced a maximum sensory overload and can no longer interpret the environment stimuli occurring around them. The rages and outbursts may occur because of miscommunication between your youngster and another youngster, or when your youngster is simply not able to interpret the communication occurring in their environment.

In most kids with Aspergers, rages occur because of frustration in their ability to interpret and communicate effectively, and in combination with the sensory overload of the activities around them. If you feel that your youngster is experiencing rages, temper tantrums, and outbursts due to environment stimulation complications, it is important to place your youngster in an environment where you can, to some extent, control what happens in the environment. Progressively, over time you can increase the exposure that your youngster experiences in their environment as a way to slowly teach your youngster how to manage and respond to the stimuli without experiencing feelings of rage.

When your youngster lives with Aspergers and has feelings of rage, it is important to understand some of the early warning signs that a temper tantrum is about to occur. In kids with Aspergers, biting of the lower lip or chewing on their play things is quite common when feeling distressed. In addition, your youngster may begin to pick at their hands or fingers and show signs that they want to rock in a chair. Some Aspergers kids, when feeling frustrated, may begin pacing, or even bolt out of a room as a way to alleviate the frustration they feel when too much stimulation is present.

All of these early warning signs are important to signify that a rage is about to occur, and when you see these warning signs in your Aspergers youngster not only should you defuse the situation, but also look around the environment to determine what could possibly be causing the rage to occur. By learning by experience, you can teach your youngster how to more effectively manage their rage and feelings of frustration so as to create a more peaceful, tantrum-free, environment in which to live.

Causes of tantrums—

Kids with Asperger have more trouble communication so are unable to express their frustration in a more acceptable way. Their anxiety level is much higher and they are known for their extreme reactions. It can be as simple as being touched unexpectedly or a stranger bumping into them and they feel it was done on purpose.

Another problem for those with Asperger can be sensory overload. Some kids with Asperger, have great difficulty with their senses such as the feel of their clothes, tags inside their clothes or the taste or texture of certain foods in their mouth. These uncomfortable senses make them feel uneasy and lead to built up stress. Anger tantrums can be a seen as a stress release.

What NOT to do—

One thing I learned over the years is this: never give in when they are throwing an anger tantrum. For example, if your youngster asks for a cookie and has an anger tantrum because you said "no," you will reward him for this behavior if you give him the cookie anyway. This way they are rewarded for their unacceptable behavior - and guess what - they will do it again and again and again because it pays off! I know it’s hard to stay calm, but shouting back will not work. Hitting you youngster will not work either. Realize it is the only way they can get rid of their frustration.

What you can do—

Isolated your youngster or walk away from the scene yourself if you feel unable to control your own feelings. Be direct and tell them they are on time out so they can calm down until they are able to talk about it. Find out the reason why your youngster has an anger tantrum so you both can learn to avoid it in the future. Trying to distract or redirect your youngster might help when they are still young. Holding your youngster firmly and not allowing him or her to escape can work sometimes. It is called holding therapy and it can have a calming effect when deep pressure is put on the body.

What worked for me and my grandson was to put our hands against each other and let him try to push me as far away from him as possible. It would put pressure and strain on his arms and legs and help him to vent his frustrations. Don’t let him push your body or get physical, just pushing through the hands will calm him down. I never gave my kids the idea they should be ashamed for their feelings of frustration or anger. It’s okay to be angry but it’s not okay to hit or hurt somebody because of it. Being angry is not something they are able to control, but they do have a choice what they do with their anger. Try to talk about it to them, create an open communication with your youngster. Support him or her in any way you possibly can.

Just never give in to their expressed wishes while they are angry, or they will learn being angry and throwing anger tantrums will pay off and give them what they wanted in the first place.


==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

Understanding Theory of Mind Deficits in Autistic Children: Misbehavior or Misunderstanding?

The concept of "theory of mind" refers to the ability to understand that others have their own beliefs, desires, and intentions, w...