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ASD and "Problems with Balance"

Question

My [high functioning autistic] child has great difficulty with balance – is this a normal trait or something else?

Answer

Both ASD (high-functioning autism) and Sensory Integration Dysfunction often go hand in hand. It is common to hear that a child with the disorder also has difficulty with balance and other gross motor skills, fine motor skills, and unusual tolerance (or intolerance) to sounds, lights, smells, and touch. 
 
 These complaints cause as much of a problem for children with ASD as the actual language, communication, and social weaknesses that are a direct result of Autism Spectrum Disorder.

There are therapies that address the symptoms of autism and sensory issues. However, there are activities you can do at home with your child that will help develop sensory integration. There are separate sensory systems that create a person’s sensory profile. Here is a list of these sensory areas:
 
  • Fine motor skills are necessary for grasping, writing, tying shoes, and working buttons and zippers. These skills include all physical skills related to the strength and control of the small muscles of the body.
  • Gross motor skills are necessary for walking, kicking, jumping, and coordination. These skills include all physical skills related to the strength and control of the large muscle groups of the body.
  • Proprioception is the ability to properly use the big muscles and joints of the body.
  • Tactile is the ability to properly interpret touch.
  • Vestibular is the ability to balance, body movement, and knowing where your body is in relation to space. Closely related, but not exactly sensory systems, these skill areas are often incorporated during occupational/sensory therapies.

When working with children on tne autism spectrum and sensory issues, keep in mind that many physical play activities can be adapted to your home therapy program. Sensory therapy should look like play and it should be fun. Here are some activities you can try, along with the sensory systems each activity will benefit:

Proprioceptive—

• Encourage pushing or pulling heavy weight, such as a basket of books or toys.
• Have the child jump into a foam pit or onto a padded mat.
• Have the child jump on a trampoline.

Vestibular—

• Have the child walk on a balance beam
• Push the child on a swing.

Tactile—

• Have a finger painting session.
• Mash and roll out Play-Doh.
• Play catch by tossing a textured, weighted ball.
• Use mud, pudding, or shaving cream to play in with hands and feet.

There are many books and videos that can help you develop a home play therapy plan for your child with ASD and sensory issues. One such guide is the video entitled, “Learn to Move, Move to Learn, Dinosaurs” by Jenny Clark Brack. This video is a theme-based lesson geared towards young children.

 
Resources for parents of children and teens on the autism spectrum:
 
 
 
 COMMENTS:

•    Anonymous said... my 9yo runs kinda like a thunderbird and falls over quite a bit,but he learnt to ride a bike without trainers at 3 and he now races motocross.he's not brilliant but he is obsessed with it and never gives up.as for getting lost he panics if we go for a ride or drive through the forrest,even if we drive into the city we have to show him the route on a map before we go .
•    Anonymous said... my 10 yr old has trouble with balance. He runs too fast for his feet and falls alot. He does have some of the limbs flailing around but he doesn't seem to care and neither do I. As long as he is having fun thats all that matters. We are both aware that he will not be joing any professional sport teams and we are ok with that. He just runs for fun. He has not gotten the bike down yet .
•    Anonymous said... My son is 14 and rides a bike with training wheels. Seems to be hard to keep balance as well. He is clumsy and trips over his feet at times. He seems to lack the natural response to put your hands out to catch yourself when going to fall or trip.
•    Jane … Yes yes and yes...my son is like a limp noodle half of the time (and a spinning top the other half) and every day at least falls, trips, knocks something over or drops something at least once! They are klutzes, but there are medical reasons. Mine just had a behavior problem from frustration with a balancing task in gym but once I explained this, now he's going to put in a specialized gym class and getting a physical therapy eval as well! Ask about these at school, they're his right legally.

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Is there any method I can use during the meltdowns...?

Question

I have three teenagers on the autism spectrum and my spouse does also. Needless to say, our home is stressful at least once a day---usually more---every day. The conflict upsets our preschooler and leaves me in the middle to maintain peace and order. It is challenging to keep them from misreading, reacting to, and feeding off of each others' moods/verbalizations. Is there any method I can use during the meltdowns, especially if I come in when it's already angry and chaotic? I've tried getting them to separate and cool off, but they seem locked into engaging with each other. And, if I leave the room or the house I often end up with holes punched in walls, broken items, etc.

Answer

The parent’s behavior can influence a meltdown’s duration, so always check your response first:
  1. Calm down
  2. Quiet down
  3. Slow down
  4. Prioritize safety
  5. Re-establish self-control in your son/daughter, then deal with the issue

1. Take 3 slow, deep breaths, and rather than dreading the meltdown that’s about to take place, assure yourself that you’ve survived meltdowns 100 times before and will do so this time too.

2. Keep your speaking voice quiet and your tone neutrally pleasant. Don’t speak unnecessarily. Less is best. Don’t be “baited” into an argument. Often ASD (high-functioning autistic) kids seem to “want” to fight. They know how to “push your buttons,” so don’t be side-tracked from the meltdown issue. 
 

3. Slow down. A meltdown often occurs at the most inconvenient time (e.g., rushing out the door to school). The extra pressure the fear of being late creates adds to the stress of the situation. ASD kids respond to "referred mood" and will pick up on your stress. This stress is then added to their own. So forget the clock and focus on the situation. 
 
Make sure the significant people in your life know your priorities here. Let your boss know that your youngster has meltdowns that have the capacity to bring life to a standstill, and you may be late. Let your youngster's teacher know that if he or she is late due to a meltdown -- it’s unavoidable, and he or she shouldn’t be reprimanded for it.

4. Prioritize safety when your child is having a meltdown. Understand that he can be extremely impulsive and irrational at this time. Don’t presume that the safety rules he knows will be utilized while he is "melting down." Just because your youngster knows not to go near the street when he is calm doesn’t mean he won’t run straight into 4 lanes of traffic when he is having a meltdown. 
 
 
If your child starts melting down when you’re driving in the car, pull over and stop. If he tends to “flee” when melting down, don’t chase him. This just adds more danger to the situation. Tail him at a safe distance, and maintain visual contact.

5. When your youngster is calm and has regained self-control, she will often be exhausted. Keep that in mind as you work through the meltdown issue. Reinforce to your youngster the appropriate way to express her needs and requests.

Remember that all behavior is a form of communication, so try to work out the message your son or daughter is trying to convey with his or her meltdown, rather than responding and reacting to the behavior displayed.

Note: A meltdown is not the same as a tantrum. Tantrums are caused by kids not getting their own way and then "acting out" in order to try and get what they want. A meltdown is often triggered by sensory overload (e.g., hypersensitivity to noise, light, heat, etc.). This leaves them feeling irritable, agitated, and stressed. 
 

Resources for parents of children and teens on the autism spectrum:
 
 
 
More articles for parents of children and teens on the autism spectrum:
 
Social rejection has devastating effects in many areas of functioning. Because the ASD child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

Click here to read the full article…

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Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's or HFA child is totally out-of-control. When it ends, both you and your child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

Click here for the full article...

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Although Aspergers [high-functioning autism] is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager on the spectrum are more difficult than they would be with an average teen. Complicated by defiant behavior, the teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

Click here to read the full article…

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Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with ASD face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

Click here to read the full article…

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Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

Click here to read the full article...

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Become an expert in helping your child cope with his or her “out-of-control” emotions, inability to make and keep friends, stress, anger, thinking errors, and resistance to change.

Click here for the full article...
 
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A child with High-Functioning Autism (HFA) can have difficulty in school because, since he fits in so well, many adults may miss the fact that he has a diagnosis. When these children display symptoms of their disorder, they may be seen as defiant or disruptive.

Click here for the full article...
 
 
Comments:

Anonymous said...Thanks Mark -I have actually joined because I have a 12 year old nephew who has Asperger's and he is so full of anger. I really feel that alot of it is caused by his Dad (my brother) and his Mum not handling the situation very well. They talk about punishing him and he has to realise that he cannot behave the way he does when he swears at them and tells them that he hates them etc. I feel that alot of this would be helped if he had plently of exercise. He is a very active boy and loves the outdoors but they are always busy and he seems to spend most of his time inside. He is on the school bus at 7.30 a.m. and doesn't get home until 5 p.m. He is then inside, although he lives in the country. He desperately wants a small pond or water trough for his birthday and they won't let him, no explanation, just that they don't want one, which has really made him angry as he has no real reason why. If I am honest they frustrate the hell out of me and I'm 43!!! I don't know how they will react to your CD's but I can only try. I feel like I am watching an animal being cruely treated and it kills me. Unfortunately the Mum is jealous that he behaves more when he is with me and my husband but that is only because we are outdoors people and he loves it, but she stops him from seeing us. Anyway, watch this space!!! Thanks - Angie

Anonymous said...One of the difficult things, though, is although the meltdown is not JUST about getting his way (i.e., a simple tantrum), it is often precipitated by a parent saying no to something, or other frustration of his desires. The fuel may be all the other stresses and frustrations, but the match is a parent not allowing something he wants, or requesting he do something he doesn't want to do. So from our viewpoint, it often *feels* like a tantrum and direct challenge to our authority, although our son will (when he's calmed down) insist that it was not.
 
Anonymous said...What has worked for us during a meltdown is telling him that he is not allowed to punch the walls or break anything. We make him go to a certain room in the house until he calms down. We take turns supervising him so he doesn't hurt himself and so wee each get a break. We let him hit only pillows on the couch but am trying to get him to stop that. It is best not to talk to him during these meltdowns, anything we say makes it worse and it usually is over within an hour. We have his favorite TV show on during the meltdowns which helps him get his mind off whatever was bothering him.
 
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ASD and ADD

My soon to be 12 year old has ADHD. But now we are suspecting ASD. We wonder if it could be one or the other - or both. Is this possible? How can we tell the difference? He and I butt heads because he will not stay on task for chores unless I stand over him, and even then can't seem to get it together. He gets angry if asked/told he needs to do chores. And no, none of them are that hard, and he will admit that after a long painful, drawn out affair. 
 
==> Click here for the answer...


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Grandparents Raising Asperger's Grandchildren

Question

Are there many other grandparents like me helping to raise kids with Aspergers? And what qualities do you think we bring to this task?

Answer

There are many grandparents, aunts, uncles and other family members who are involved in helping to raise kids with Aspergers (high-functioning autism). The degree to which relatives are involved in the care of the kids can vary greatly, but grandparents often have a special place in kid’s hearts.

Grandparents bring a unique set of skills to the raising of their grandkids. Many grandparents have the ability to spend a great deal of time with their grandkids because they are retired or have cut back on their work schedule. This gift of time is typically accompanied by patience. Parents are often harried, rushing from here to there to get things accomplished according to the schedule. Grandparents often don’t have those pressures. This gift of time and patience can be especially important to a youngster with Aspergers. Grandparents can often ease the chaos of transition periods for a youngster with Aspergers. Grandparents are often more patient when explaining something or encouraging a youngster to try a new experience.

Grandparents often have reached a place in their lives where they care less about what other people’s perceptions of them are. This can be a special gift when raising a youngster with Aspergers. Grandparents tend to be more accepting and less embarrassed by public outbursts or tantrums, or even behaviors that might strike others as odd.

Grandparents often have more time to try to develop new and different ways to relate to a youngster with Aspergers. They are often less discouraged when a strategy meets with failure and tend to look at the big picture, rather than the small detail.

Grandparents can be a gift not only to the kids with Aspergers but also to their moms and dads. They can function as trusted caregivers for their kids, as well as being a sounding board for concerns or fears or frustrations the parents may have. Sometimes, simply being there for the parents and offering support can be very important.

The Aspergers Comprehensive Handbook
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13 year old Aspie daughter had her day in court...

Hello Mr. Hutten,

I would like to share with you and you can feel free to share with others something wonderful that happened to our family yesterday. 

After almost a year and half of being bullied, harassed and assaulted on the school bus, our 13 year old Aspie daughter had her day in court with the perpetrator (another 13 year old bully). My daughter was terrified to testify, but I assured her that her family was there to protect her. We also were blessed to have a witnessed to one of the horrific beatings that my daughter endured come forward. She was terrified as well. 

The States Atty's office in Upper Marlboro, Maryland brought forth the case. It was a long process, without any assistance from the school system. Anyway, to make a long story short, the bully was found guilty on all three charges of second degree assault. The judge remanded her into custody on the spot. She was taken away in handcuffs. There was high drama in the courtroom. It had been such a long and lonely process, I did not know what to expect, but imagine my daughter witnessing the detention and handcuffing of her tormentor in front of her...it was amazing. 

While it is not a joyous occasion to see a 13 year old child in handcuffs, I am blinded by the many, many long months of harassment and assaults that my child suffered and continues to suffer. This is a partial victory for my daughter Amina. Please include this in your newsletter for others to see. The Justice System can and does work. Thanks, Kim.

My Aspergers Child
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