Dealing with Difficult ASD-related Behavior: Critical Tips for Parents

"I need some advice on how to handle behavior problems in my child with ASD, such as how to use the right discipline, dealing with his obsessions, sibling issues, sleep problems, school-related problems, and acting-out behavior in public. Thanks!"

Disciplining kids displaying ASD-related behavior will often require an approach which is somewhat unique to that of "typical" kids. Finding the balance between understanding the needs of a youngster with ASD - and discipline which is age appropriate and situationally necessary - is achievable when applying some simple, yet effective strategies. These strategies can be implemented both at home and in more public settings.

General Behavior Problems—

Traditional discipline may fail to produce the desired results for kids with ASD level 1 ("high-functioning autism"), primarily because they are unable to appreciate the consequences of their actions. Consequently, punitive measures are apt to exacerbate the type of behavior the punishment is intended to reduce, while at the same time giving rise to distress in both the youngster and the mom or dad.

At all times, the emotional and physical well-being of your youngster should take priority. Often this will necessitate removing your youngster from a potentially distressing situation as soon as possible. Consider maintaining a diary of your youngster's behavior with a view to ascertaining patterns or triggers. Recurring behavior may be indicative of a youngster taking some satisfaction in receiving a desired response from peers, moms and dads, or teachers. 

 

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

 

For example, the youngster may come to understand that hurting another classmate will result in his being removed from class, notwithstanding the associated consequence to his peer. The solution may not be most effectively rooted in punishing the youngster for the behavior, or even attempting to explain the situation from the perspective of their injured peer, but by treating the root cause behind the motivation for the misbehavior (e.g., maybe the ASD youngster can be made more comfortable in class so that he will not want to leave).

One of the means to achieve this may be to focus on the positive. Praise for good behavior, and reinforcement by way of something like a Reward Book, can assist. The use of encouraging verbal cues delivered in a calm tone are likely to elicit more beneficial responses than the harsher verbal warnings that might be effective with "typical" kids. If necessary, when giving directions to stop a type of misbehavior, these should be framed as positives rather than negatives (e.g., rather than telling a youngster to stop hitting his brother with the ruler, the youngster should be directed to put the ruler down).

Obsessive or Fixated Behavior—

Almost all kids go through periods of development where they become engrossed in one subject matter or another, but kids with ASD often display obsessive and repetitive characteristics, which can have significant implications for behavior. For example, if an ASD youngster becomes fixated on reading a particular story each night, she may become distressed if this regime is not adhered to, or if the story is interrupted. Again, the use of a behavior diary can assist in identifying fixations for your youngster. 

 

 ==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

 

Once a fixation is identified, it is important to set appropriate boundaries for your youngster. Providing a structure within which your youngster can explore the obsession can assist in then keeping the obsession within reasonable limits, without the associated angst which might otherwise arise through such limitations (e.g., tell your youngster that she may watch her favorite cartoon for half an hour after dinner, and make time for that in her routine).

It is appropriate to utilize the obsession to motivate and reward your youngster for good behavior. Always ensure any reward associated with positive behavior is granted immediately to assist the youngster recognizing the nexus between the two.

A particularly useful technique to try to develop social reciprocity is to have your youngster talk for five minutes about a particularly favored topic after he has listened to you talk about an unrelated topic. This serves to help your youngster understand that not everyone shares his enthusiasm for his subject matter.

Bridging the Gap between ASD and Discipline and Other Siblings—

For siblings without autism, the differential - and what at times no doubt appears to be preferential - treatment received by an ASD sibling can give rise to feelings of confusion and frustration. Often, they will fail to understand why their brother or sister apparently seems free to behave as they please without the normal constraints placed on them.

It is important to explain to siblings of ASD kids and encourage open discussion about the disorder itself. Encouragement should extend to the things siblings can do to assist the ASD youngster, and this should be positively reinforced through acknowledgement when it occurs.

Sleep Difficulties—

ASD kids are known for experiencing sleep problems. Kids with the disorder may have lesser sleep requirements, and as such are more likely to become anxious about sleeping, or may find they become anxious when waking during the night or early in the morning.

Combat your youngster's anxiety by making her bedroom a place of safety and comfort. Remove or store items which might be prone to injure your youngster if she decides to wander at night. Include in the behavioral diary a record of your youngster's sleep patterns. It may assist your youngster if you keep a list of her routine (e.g., dinner, bath time, story and bed time) in order to provide structure. Include an image or symbol of her waking in the morning to provide assurance as to what will happen. Social stories have proven to be a particularly successful tactic in decreasing a youngster's anxiety by providing clear instructions on how part of her day is likely to play out.

At School—

Another autistic characteristic is that kids will often experience difficulty during parts of the school day which lack structure. If left to their own devices their difficulties with social interaction and self-management can result in anxiety. The use of a buddy system can assist in providing direction, as can the creation of a timetable for recess and lunch times. These should be raised with teachers and implemented with their assistance.

Explain the concept of free time to your youngster, or consider providing a separate purpose or goal for your youngster during such time (e.g., reading a book, helping to set up paint and brushes for the afternoon tasks, etc.).

In Public—

Kids on the spectrum can become overwhelmed to the point of distress by even a short visit in public. The result is that many moms and dads with ASD kids simply seek to avoid (as much as possible) situations where their youngster is exposed to the public. While expedient, it may not offer the best long-term solution to your youngster, and there are strategies to assist with outings.

Consider providing your youngster with an iPod, or have the radio on in the car to block out other sounds and stimuli. Prepare a social story or list explaining to the youngster a trip to the shops, doctor, etc. Be sure to include on the list your return home. Consider giving your youngster a task to complete during the trip, or having him assist you. At all times, maintaining consistency is a key concern. It pays to ensure that others involved in your youngster's care are familiar with your strategies and techniques and are able to apply them.

Lastly, don't hesitate to seek support networks for parents with ASD kids, and take advantage of the wealth of knowledge those who have dealt with the disorder before you have developed. The assistance you can gain from these and other resources can assist you in developing important strategies to deal with problems in a manner most beneficial to your youngster.

 

Resources for parents of children and teens on the autism spectrum:
 

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

==> Launching Adult Children with Autism Spectrum Disorder: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social-Skills and Emotion-Management to Children with Autism Spectrum Disorder

==> Parenting Children and Teens with High-Functioning Autism: Parents' Comprehensive Handbook

==> Unraveling the Mystery Behind High-Functioning Autism: Audio Book

==> Crucial Research-Based Parenting Strategies for Children and Teens with High-Functioning Autism

==> Videos for Parents of Children and Teens with ASD

 

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The Silent Bullying of Students with Autism Spectrum Disorder

“My ASD son (high functioning) continues to be bullied at school, but nobody there seems to take it seriously. His teach said that ‘he seems to start the arguments by annoying some of the other students.’ O.K. Fine. Maybe this is true, but that doesn’t justify bullying. How can I get the school to take this seriously?”

Under Section 504 of the Rehabilitation Act of 1973, disability harassment is against the law in all schools, school districts, and colleges and universities that receive public funds. “Special needs” kids who are bullied or harassed have legal rights to grievance procedures and due process on the local level. They can also file complaints with the Office of Civil Rights.

Nevertheless, in spite of all these laws and policies, the National Education Association estimates that every 7 minutes of every school day, a youngster is a victim of bullying, and 85% of the time there is no intervention by other children or grown-ups. Your youngster's school may have anti-bullying policies that do not help much on a practical level.

Kids in special education are the most frequent victims of bullies. Kids with ASD, or High-Functioning Autism (HFA), are inevitably victims of bullying. One expert puts the percentage at 100%. The reason is that HFA kids fit the profile of a typical victim (i.e., a "loner" who appears different from other kids). Like hungry wolves that attack a limping sheep that can't keep up with the herd, the boy or girl with clumsy body language and poor social skills appears vulnerable and ripe for bullying. What's worse is the youngster often suffers in silence and does not tell his mother or father about the torment.

Luke Jackson, a thirteen-year-old boy with ASD explained it like this: “Autistic kids don't realize which things they are supposed to go home and tell. ‘What have you done at school today?’ wouldn't automatically bring about the answer, ‘I have been bullied’ unless that subject was specifically brought up."

If your autistic youngster appears under extreme stress, if he is missing school because of headaches and stomachaches, if he has physical injuries and torn clothing, he may be a victim of bullying. If your youngster is stealing money from you, he may be using it to pay off a bully.

Once you determine that your youngster is a victim of bullying, you have to be careful not to make the situation worse. Writing in his book “Freaks, Geeks and Aspergers,” Luke describes what happened after his mom spoke up to his tormentors: “The bullies left me alone for sometime after that. But no amount of threatening by my brother, by the educators, fear of expulsion, pleasant reasoning, absolutely nothing made any difference and they never left me alone. In the end they were physically pushing me around and punching me and it was about the worst time of my entire life.”

Luke endured not only physical beatings, but also name-calling, teasing, tripping so his lunch tray fell all over, having his books destroyed and chairs pulled out from underneath him. He ended up changing schools.

One major problem that Luke's mother and other moms and dads of HFA kids face is that a school may have an anti-bullying policy, yet the staff looks the other way when it happens. Some school administrators are simply more tolerant of bullying than others. Some schools, including Columbine, tolerate a "pecking order" in which athletes and popular children have special privileges and develop a sense of entitlement that leads to a "bullying atmosphere." 

 

In such a school, if moms and dads report bullying, the principal may advise them to enroll their youngster in karate or otherwise teach him to stand up for himself. The underlying attitude is that it is the victim's fault. One principal told a mother of an autistic boy, "Your son is a little different and it bothers other kids, so he brings this on himself because of who he is." Also in such a school, educators and coaches may bully the “different” youngster too.

Another problem in approaching educators and school administrators is that an HFA youngster does not have the social savvy to tell his side of the story effectively. Bullies typically lack empathy and real feeling, but many are good at crying on cue and playing the victim. Often the autistic student gets expelled, and the bully receives no punishment unless the autistic student has an effective witness.

In a survey by York University, only 23% of children agreed with this statement: “educators usually - or almost always - intervene when bullies attack.” However, 71% of the educators in the survey agreed. Part of the problem is that educators do not witness most bullying, because it usually happens off campus (which also means the school may not be legally liable for it). AS HFA kids are most vulnerable when they walk alone to and from school. The other most likely times bullying occurs is during unstructured times (e.g., lunch hour, recess, passing between classes). Bullying peaks in junior high school.

There are things you can do to protect your youngster. It is a good idea to demand an anti-bullying clause in your youngster's Individual Education Plan (IEP). This is a proactive way of having solutions in place and holding the administration to its word in the event your youngster is bullied anytime throughout the year. If your school does not have an anti-bullying program, try to work through the PTO to get one in place. Some schools have a “bullying coordinator” (usually a volunteer) who monitors the lunchroom, restrooms, corridors and playgrounds, and makes sure there is consistent intervention.

If your youngster is a victim of bullying, don't approach the mom or dad of the bully – or the bully himself. According to the research, parents of bullies are often abusive people themselves. Talk to your youngster's teacher and principal in private. Ask for an adult aide to accompany your youngster at all times, if necessary. If the bullying does not stop, you can involve the police or file grievances through your local Office of Civil Rights. If your youngster is in danger, you can home-school him until the situation is under control or transfer him to a private school. If you have to file a lawsuit against the school and the mom and dad of the bully, find a lawyer whose expertise is in special education law.

P.S. Warning to parents: According to statistics, it is very likely that YOUR child with ASD HAS BEEN or IS BEING bullied. Why don’t you know about it? Because your child won’t tell you! Why won't he tell you? Because he thinks it's a normal, everyday activity that some peers engage in. So, you need to investigate this now – BEFORE your child has been tormented for weeks or months or years! If after your investigation, you discover there has been no bullying against your child, then thank God for it.

Resources for parents of children and teens on the autism spectrum:
 

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

==> Launching Adult Children with Autism Spectrum Disorder: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social-Skills and Emotion-Management to Children with Autism Spectrum Disorder

==> Parenting Children and Teens with High-Functioning Autism: Parents' Comprehensive Handbook

==> Unraveling the Mystery Behind High-Functioning Autism: Audio Book

==> Crucial Research-Based Parenting Strategies for Children and Teens with High-Functioning Autism

==> Videos for Parents of Children and Teens with ASD

 

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 COMMENTS:

o    Anonymous said… angry to hear on 2 levels. A.) Bullies are just slime of the earth. They are so distructive to kids, sometimes lifelong with their cruel words/actions. B.) The teacher is so cruel & ignorant to dismiss the bullying so callously! Go to the guidance office & request an IEP meeting. Seek a psychologist who specializes in autism and/or ASD. They will often attend your IEP meeting with you as a child advocate. Once you have an IEP you have more pull to get him removed from that class & to help him learn how to act in class. My daughter's school was great but some teachers not so much. My daughter used to disrupt class with excessive hand raising & calling out in class. Her teacher understood & would talk to her & remind her to wait her turn. She worked it in as an iep practice item. Don't stand for this, your are your son's only advocate. This helped my daughter tremendously! She is now in college. She struggles but she gets by due to confidence built in high school because of their support. You need them on your side and IEP is the start to that. I really wish you all luck
o    Anonymous said… Bullies should be stopped!
o    Anonymous said… Get an IEP, and then slam the school with it.
o    Anonymous said… Good luck! I did all if that too when my son was bullied. The teacher blamed him. The school refused to accommodate, help, or test him. I was treated poorly after my complaints. It took years to get the diagnosis, then they only did a 504 plan at an completely different school; I had to pull my son out of the first school. By then the damage was done. That was 3 years ago and my son STILL talks about that kid!
o    Anonymous said… Him starting the arguments is part of his condition which probably comes down to socializing skills. Bullying on the other hand is ILLEGAL, demand that they deal with the situation or you will through legal support.
o    Anonymous said… I just started home schooling my daughter! It has been so much less stressful.
o    Anonymous said… people need to be educated- i really had no clue about this condition until i watched the show parenthood. i have much respect for all you and shame on people did not give you that
o    Anonymous said… School was a huge challenge before our son got private care. I was looked down upon by teachers and staff, as they blamed his behaviors on my parenting. They do not understand the disorder and discipline the child for things beyond their control.
o    Anonymous said… Sounds so similar, we had that issue and were told our son was starting it, but what was happening was yes he would go and hit a child, to get put on the deck for the whole of lunchtime as no-one annoys you in time out. We were told our son would never be able to be in playground without supervision. We changed schools to one that has zero tolerance for bullying and our son is in the playground without supervision and doesn't hit anymore, he is happy and wanting to go to school, stomach up sets are no longer and it was affecting him mentally and physically. Top me if 1 school can have a zero tolerance why can't others.
o    Anonymous said… This makes me sick! I would go to the Board!! If that didnt work, I would get a Lawyer!!
o    Anonymous said… TOTALLY agree. I was going to say same thing when I read your post. School has a LEGAL obligation to accomodate a child with special needs. Sadly, you might have to pull that card and threaten them with a human rights complaint.
o    Anonymous said… We had to move schools. But it was well worth it
o    Anonymous said… Yes go to the board!!!! I did and if they put her on homebound....
o    Anonymous said… You’ll be lucky most schools dont want to know x

•    Anonymous said...  "Provocative victim". Go and look it up please and then quote it to the school. I went through this with my son all through primary school. Withdraw him and tell the
LEA why you are withdrawing him. I wish I had. Serious good luck. Incidentally secondary schools are better x
•    Anonymous said... Asperger kids perceive things differently so a kid with a snarky comment may have one kid give a snarky comment back and it rolls off their back..an asperger child takes it offensively because he can't understand rude words and then laughter as an "Imi kidding" they take it as rude comment you are laughing at me....I think the many years my son was "bullied" was because he didn't perceive it as joling around but more they are picking on me...and we as his parents supported that because we at home do not joke around by putting the other person down or calling each other names but if you have aspergers you follow the rules and takes things literallly, all.the.time...whereas my younger son can take the joke and give back the rude insults laugh it off and carry on...my older son with aspergers cannot....AND because he sees that funny joking insulting humor gets laughs he tries to be "funny" but he is then just really rude because he doent get the social aspect of the kidding around...the rules are not finite and aspergers kids didnt get the memo....so frustrating.
•    Anonymous said... Go to the superintendent if you have to. If he's been diagnosed by a dr the school can't fight that. My son was bullied so badly we are now homeschooling.
•    Anonymous said... He does NOT start arguments by 'annoying' ppl. He is a person with a disability and students r responding with hatred to that disability. Students might find behaviours associated with his disability annoying, but that is not the child with the disability's fault or problem. Shame on that teacher for not recognizing this and for blaming the victim of bullying.
•    Anonymous said... I just was asked to sign a petition for an anti bullying law. Your example is why I think this law is such a bad idea. The child with autism that is being bullied is being blamed for starting it by annoying others. This will come back badly for children with Autism that it is supposedly designed to protect. Think this stuff all the way through before jumping on board and signing a petition for anti bullying laws. It could have a very bad outcome for our children.
•    Anonymous said... I put my child in scouts for one and started to forge friendships. We taught lessons on inclusion through the badges earned. Problem to watch for is stacking all the special needs children in one troop. Once parents learn your good at this, everyone wants your troop and then soon the typical peers don't want to be in a troop with that many special needs children. My child's scouting friends began to stick up for my child. That was the beginning to change.
•    Anonymous said... It's so hard for them, especially when they are young. My son is five and most times, he doesn't know when someone isn't being nice to him. And he also doesn't realize when he is being rude or antagonistic. We go over the scenarios daily and consistently. He is improving, but it is something he has to practice and learn, like reading or math. It isn't innate, like most of us take for granted.
•    Anonymous said... My 11 year old boy has struggled with this issue since first grade (he is in sixth now). Not only have there always been the bullying kids (mostly other boys), there have been bullying adults who must interact him. It has only been this year that we've been convinced of an Aspergers diagnosis (not professional, although he does see a school psychologist at this point). We came from a high tech area in California and moved to a much more rural, mountainous area where education is not a big priority for a lot of kids. He is not challenged academically here at this current school. Some teachers and other administration didn't understand him, he has struggled socially (wanting friends, but never fitting in). His head is in technology, but he thrives in all subjects. He is athletic, but not interested in playing sports. He teaches himself anything he wants to learn. He is an amazing kid, however because of the constant bullying, we see a change in him. More depression, lower self-esteem, etc. Through the advice of the psychologist (who does NOT work for the school though she does work AT the school), she has recommended a different school setting. One where he will have more peers. So we have decided on taking him out of school after the holidays and we'll homeschool him through the end of this school year. After that, we'll be sending him to a charter school in a town nearby which is a college prep middle through high school. I have the belief that with more kids who "get" him, he'll end up having a positive middle school experience. We are fortunate that we can do this for him, whereas I realize a lot of folks cannot take the time to homeschool and on top of that, it's not easy. I had read the attached article a few months ago and decided to email it to his primary teachers (he has two). One teacher is so ridged, that without a IEP, she doesn't do much to change her teaching style with him. The other teacher understands him and stands up for him when he lets them know he is being bullied, taunted or teased. Schools NEED to be educated on kids that have different learning techniques and all other adults need to understand Aspergers and all spectrum kids for this to ever get better.
•    Anonymous said... My son has the same issue - his way of interacting makes others uncomfortable at times. The school has fought his Asperger's diagnosis for years choosing instead to classify him as "Emotionally Impaired". For me, the best I can do is attempt to help my son understand social situations. People are not going to change for him, so he needs to adjust his way of interacting based on others (not fair, but nothing is in life). His school social worker is finally understanding and starting to include him in with a group of kids who only work on social interaction and that has helped a little. If you happen to know the other kids, its great to be able to talk to them to be able to explain that your son isn't trying to be annoying and what they may be able to do to adjust their behavior to help him. If not, it's all on helping your son understand and adjust.
•    Anonymous said... My son is the exact same ! As I see it some kids r brought up not to except anything that's a bit different . I tell my son if people were all the same it would be a boring place!
•    Anonymous said... My son was blamed for his own bullying in pp, he came home bawling every day and ended the year saying he wished he was dead - he was six. Teachers should be better trained, I think the bullying also comes from the teachers which makes the kids think it's okay.
•    Anonymous said... Putting it blunty,the little bastards who make these poor kids life a living hell,usually have 1 or maybe 2 big bastard bullies at home learning them there greedy bombastic bullying ways.If they had been brought up in a loving family and taught right and decency not just take what you can and humiliate anybody round you,they wouldnt behave like it,to these poor defenceless littluns and if i caught a kid of mine bullying like that id drowned the little bleeder.xx
•    Anonymous said... Read the book "look me in the eye" it gave me some insight into the situation, the teachers said he was "bossy" but the book says they think differently about how the game should be played and are trying to teach the other children "the right way" good luck everyone, it's tough! We home schooled and he has gone from F's to A's and B's and is getting the achievement award, a very big difference to last years ending. His teacher is lovely (although we didn't start off on the right foot) and he has a few friends, although he still gets bullied. Stick with it, do what you have to and things can turn around, we are their only voice and we love them and see them for the special people that they are
•    Anonymous said... This is my biggest fear about sending my young son to school next year...he has a huge heart and sees everyone as a potential friend, but his approach catches other kids off-guard and they often don't understand. Parents need to teach their kids to love other people...simple.
•    Anonymous said... We all walk to the beat of different drums.It's so hard to stand by and watch your child get bullied. Everyone...not just parents need to take a stand. Bullying is NOT OK.
•    Anonymous said... We are going through the same as our son has just gone to secondary school and is really struggling.kids are not being kind and he just doesn't understand the way other kids can play fight and say mean things and it be a joke so he says things he hears and is being chased and threatened and is bewildered why!!
 

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How to Use An Effective Reward System for Kids on the Autism Spectrum

 “I have a ten-year-old boy with ASD who is high functioning. We are consistent with making him aware of what is socially unacceptable and why. It seems to go in one ear and out the other though. For instance, at meal time we always tell him to eat with his mouth closed. He will do as we say for 20 seconds and then he’s right back to chewing with his mouth open. We have sent him to eat in the other room, or we take away dessert if he continues after the fourth prompt. We have had no success for the past 2 years! Do you have any ideas or do you think that it’s something he can’t help?”

This can be a “Catch-22” situation because, even though you want your son’s behavior to change in a positive manner, it might become more resistant or rigid if he is confronted or forced to behave in a manner that he finds disagreeable. This can become a long-term power struggle that can lead to your frustration and his feelings of failure.

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

In this case, giving your son rewards might have better results than imposing punishment. One possible solution would be “fun money” for your son. You can make or purchase “fun” (fake) money for your son to use when he behaves in a socially acceptable manner. The money can be spent for privileges, such as time spent with a video game, or other activities he enjoys. 

 If your son behaves in an unacceptable manner, you can impose a financial penalty, and your son has to give a portion of the money back to you. However, if he has to give too much back, he might never earn the reward, so reserve the “fines” for very serious transgressions of the rules.

An effective economic-reward system is based on consistency in enforcing it and keeping the list of rewards/penalties attainable and short. Start this system with just one goal to earn reward and increase the goals as he gets a feel for how it works. Try using one standard-size piece of paper and list the rewards on the left-hand side and the penalties on the right-hand side. 

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

Your son will be able to comprehend this list without it overwhelming him. This way, when he is rewarded or punished, he will know that there are limits being set and he has a degree of control over how much he will receive or forfeit. Your son will feel a sense of empowerment with this system, and it will allow him to make choices; he will learn from both.

A structured reward system works well with children on the spectrum because they do extremely well with structure, consistency, and clarity. When there is no structure, the autistic child feels that chaos is controlling his life. A reward system maintains structure for your son, and it eliminates chaos from his life.

Structure, consistency, and clarity will give your son a sense of mastery over his environment. Whether you incorporate the solution proposed above or one that you obtain elsewhere, you will be integrating predictability into your son’s life, and this leads to his being able to rely upon you as being supportive and fair in his upbringing. 

==> Crucial Research-Based Parenting Strategies for Children and Teens with High-Functioning Autism

Children without ASD and within your son’s age range are coping with the beginning of adolescence. Children like your son are coping with the same thing, except they find that they have to deal with the ASD diagnosis in addition to everything else.

You need to make sure that the consistency that we stress here is maintained for your son’s benefit. Do not let your feelings and emotions take precedence because of the stress that accompanies any child-discipline procedure. Stay calm and let him choose to earn reward or pay fines. 

Also, be willing and available to discuss discipline with your son; it’s important regardless of any diagnosis that your son has. Above all, be truthful and sincere; your son will know that you love him and care about his well being.

 

Resources for parents of children and teens on the autism spectrum:
 

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

==> Launching Adult Children with Autism Spectrum Disorder: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social-Skills and Emotion-Management to Children with Autism Spectrum Disorder

==> Parenting Children and Teens with High-Functioning Autism: Parents' Comprehensive Handbook

==> Unraveling the Mystery Behind High-Functioning Autism: Audio Book

==> Crucial Research-Based Parenting Strategies for Children and Teens with High-Functioning Autism

==> Videos for Parents of Children and Teens with ASD

 

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PARENTS' COMMENTS:

•    Anonymous said... adjust expectations.
•    Anonymous said... Definitely the "make it a concrete rule" idea - usually very effective. As my son reached adolescence I have been able to say, "Other people will notice this behavior and that might make you feel uncomfortable. How should I tell you to stop without upsetting you?" - He's become much more self-conscious as a teen and that usually works.
•    Anonymous said... I always say it has to be engraved on his commandments before it is His gospel or rules, convincing is the hard part because the rigidity of thought. Being the enforcer helps and a small amount of medicine gives us just enough of an opening to get through. We have a level chart also with Xs and stars that is very effective.
•    Anonymous said... I could have written this post. ..LOL... much luck to us all!
•    Anonymous said... I dont think he is trying to agitate you it may be simply his way of stimming. The fact that most Aspie children are very literal and with a mouthful of food & mouth closed perhaps he think he will not be able to breath unless his mouth is open, my son has trouble breathing through nose. I wouldn't worry to much about eating with his mouth open.I would just focus on a pleasant family time of sharing your days events & actually eating the food you prepare. Most of us Aspie Parents seem to be hard on ourselves to correct our children to be the way others want them to be, can other people just learn that everyone is Human and just learn to embrace our differences, that makes us individuals.
•    Anonymous said... I like the "make her the enforcer" idea. She's militant about no elbows on the table so maybe she'll be that way about not talking with her mouth full.
•    Anonymous said... I use a good/bad behaviour chart, things like manners get a smiley, rude or anger get a sad face. At the end of the week if he has more smileys than sad hr gets a treat, within reason of his choice. I make him complete the chart to re enforce his understanding and he adds them up also.
•    Anonymous said... Its nice to know this is happening in other houses also. Meals used to be so stressful in our home and we used so many different approaches with little results. What's helped the most is focusing less on the behaviors and being more calm ourselves, and adjusting our expectations.
•    Anonymous said... make it visual
•    Anonymous said... My twelve year old eats a lot with his hands, doesn't notice or care when he has food on his face, sits in funny positions ... Etc. etc. I might try to make him an enforcer. He is very motivated by earning points...thanks for the idea
•    Anonymous said... Ours is talking with her mouth full.
•    Anonymous said... Please don't make him eat in a different room. That only pronounces the alienation they feel on a daily basis. I have to tell my 12 yr old everything every single day, several times. Some things eventually stick, others do not. It gets annoying for us yes, but it is a part of them and the way their brains work. I also have a spitter when he doesn't like the texture or taste of something. I made him clean it up until he finally broke the nasty habit because that made him grossed out too. When we have people over he usually hides out until the coast is clear, and we go out I am very careful that his glass of water sits by itself so he doesn't accidently pick up and take a gulp of someone's soda and only order food that I know he likes. My life has gotten much more predictable and I am still able to have him in social situations by taking a few precautions.
•    Anonymous said... Sounds exactly like our son. And believe me, it ALL goes in one ear out the other, not just at meal time. Any one has some good ideas we'd love to see them too.
•    Anonymous said... They don't do it on purpose. Adjust expectations. Use gentle reminders now and then but don't get mad at them when they don't stop. I struggle with these sort of things everyday with my almost 10 yr old boy!
•    Anonymous said... This is same in our house too and meal times are stressful my son ( ADHD+autism)eats very loudly and open mouth you can't sit next to him also he giggle as a lot and using time for googling and messing with sister I am getting late to everywhere oh never mind what will I cook too very fussy eater only eat same food made my own visual reward chart it is hard I can't ignore itx
•    Anonymous said... Ugh sounds like my 8 year old. And also the yelling in people's faces when we are out. Sometimes I would like to put a "I have Aspergers" Tshirt on him so people have more patience with him.
•    Anonymous said... We have made index cards with pictures on them what is right at the dinner table and what is not. We have him review the cards before the meal. I have lamented them and punched holes and put a ring through them. I actually have many social story card rings we keep at the house, just like he has at school. If you google social stories.
•    Anonymous said... Write them down and put them up on the wall. If the rules are concrete and visible, then they are REAL.
•    Anonymous said... Yes, any ideas would be helpful! My son chews with his mouth open, and spits out things if he doesn't like the taste/texture etc. But, he just spits it out-not on his plate-or a napkin it just comes flying out. Its really gross! Not to fun when guests are over or if we are chancing to eat out:)

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Discipline Problems in Kids and Teens with ASD Level 1

Question

Our son has autism but it would appear to be a mild condition as he has developed very well and does not exhibit extreme symptoms of the syndrome. However my wife and I have become exasperated of late in trying to teach our child about inappropriate or naughty behaviour. He does not respond to sanctions or punishments and even when he does and the reason for a sanction is explained he does not seem to learn from the sanction so that the behaviour is often repeated again and again and the threat of the same or similar sanction has no effect. Can you make any suggestions? Sanctions include being sent to his room, removal of favourite toys or treats and although he responds/accepts the actual punishment he will not learn the lesson which we are trying to teach him. 

Answer

Disciplining kids displaying behavior consistent with ASD level 1 (high-functioning autism) will often require an approach which is somewhat unique compared to that of other kids. Finding the balance between understanding the needs of a youngster with ASD and discipline which is age appropriate and situationally necessary is achievable when applying some simple but effective strategies. These strategies can be implemented both at home and in more public settings.

General Behavior Problems

Traditional discipline may fail to produce the desired results for kids with ASD, primarily because they are unable to appreciate the consequences of their actions. Consequently, punitive measures are apt to exacerbate the type of behavior the punishment is intended to reduce, whilst at the same time giving rise to distress in both the youngster and parent.

At all times the emotional and physical well-being of your youngster should take priority. Often this will necessitate removing your youngster from a potentially distressing situation as soon as possible. Consider maintaining a diary of your youngster's behavior with a view to ascertaining patterns or triggers. Recurring behavior may be indicative of a youngster taking some satisfaction in receiving a desired response from peers, parents or teachers.

 

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

For example, a youngster with ASD may come to understand that hurting another youngster in class will result in his being removed from class, notwithstanding the associated consequence to his peer. The solution may not be most effectively rooted in punishing the youngster for the behavior, or even attempting to explain the situation from the perspective of their injured peer, but by treating the root cause behind the motivation for the misbehavior...for example, can the youngster be made more comfortable in class so that they will not want to leave it?

One of the means to achieve this may be to focus on the positive. Praise for good behavior, and reinforcement by way of something like a Reward Book, can assist. The use of encouraging verbal cues delivered in a calm tone are likely to elicit more beneficial responses than the harsher verbal warnings which might be effective on kids who are not displaying some sort of autistic characteristic. If necessary, when giving directions to cease a type of misbehavior, these should also be couched as positives rather than negatives. For example, rather than telling a youngster to stop hitting his brother with the ruler, the youngster should be directed to put the ruler down.

Obsessive or Fixated Behavior

Almost all kids go through periods of development where they become engrossed in one subject matter or another, but kids with ASD often display obsessive and repetitive characteristics, which can have significant implications for behavior.

For example, if an ASD youngster becomes fixated upon reading a particular story each night, they may become distressed if this regime is not adhered to, or if the story is interrupted. Again, the use of a behavior diary can assist in identifying fixations for your youngster. Once a fixation is identified, it is important to set appropriate boundaries for your youngster. Providing a structure within which your youngster can explore the obsession can assist in then keeping the obsession within reasonable limits, without the associated angst which might otherwise arise through such limitations. For example, tell your youngster that they may watch their favorite cartoon for half an hour after dinner, and make clear time for that in their routine.

It is appropriate to utilize the obsession to motivate and reward your youngster for good behavior. Always ensure any reward associated with positive behavior is granted immediately to assist the youngster recognizing the nexus between the two.

A particularly useful technique to try to develop social reciprocity is to have your youngster talk for five minutes about a particularly favored topic after they have listened to you talk about an unrelated topic. This serves to help your youngster understand that not everyone shares their enthusiasm for their subject matter.

Bridging the Gap between ASD and Discipline and Other Siblings

For siblings without autism, the differential and what at times no doubt appears to be preferential treatment received by an ASD sibling can give rise to feelings of confusion and frustration. Often they will fail to understand why their brother or sister apparently seems free to behave as they please without the normal constraints placed upon them.

It is important to explain to siblings or peers of ASD kids and encourage open discussion about the disorder itself. Encouragement should extend to the things siblings can do to assist the autistic youngster, and this should be positively reinforced through acknowledgement when it occurs.

Sleep Difficulties
 

Kids on the spectrum are renowned for experiencing sleep problems. They may have lesser sleep requirements, and as such are more likely to become anxious about sleeping, or may find they become anxious when waking during the night or early in the morning.

 

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

Combat your youngster's anxiety by making their bedrooms a place of safety and comfort. Remove or store items which might be prone to injure your youngster if they decide to wander at night. Include in the behavioral diary a record of your youngster's sleep patterns. It may assist your youngster if you keep a list of their routine, including dinner, bath time, story and bed, in order to provide structure. Include an image or symbol of them waking in the morning to provide assurance as to what will happen. Social stories have proven to be a particularly successful tactic in decreasing a youngster's anxiety by providing clear instructions on how part of their day is likely to play out.

At School

Another autistic characteristic is that kids will often experience difficulty during parts of the school day which lack structure. If left to their own devices their difficulties with social interaction and self-management can result in anxiety. The use of a buddy system can assist in providing direction, as can the creation of a timetable for recess and lunch times. These should be raised with class teachers and implemented with their assistance.

Explain the concept of free time to your youngster, or consider providing a separate purpose or goal for your youngster during such time, such as reading a book, or helping to set up paint and brushes for the afternoon tasks.

In Public

Kids with ASD can become overwhelmed to the point of distress by even a short sourjourn in public. The result is that many parents with ASD simply seek to avoid as much as possible situations where their youngster is exposed to the public. Whilst expedient, it may not offer the best long term solution to your youngster, and there are strategies to assist with outings.

Consider providing your youngster with an ipad, or have the radio on in the car to block out other sounds and stimuli. Prepare a social story or list explaining to the youngster a trip to the shops, or doctor. Be sure to include on the list your return home. Consider giving your youngster a task to complete during the trip, or having them assist you. At all times, maintaining consistency when dealing with ASD and discipline is key. It pays to ensure that others involved in your youngster's care are familiar with your strategies and techniques, such as those outlined above, and are able to apply them.

 

==> Crucial Research-Based Parenting Strategies for Children and Teens with High-Functioning Autism

Most importantly, don't hesitate to seek support networks for parents with ASD, and take advantage of the wealth of knowledge those who have dealt with the disorder before you have developed. The assistance you can gain from these and other resources can assist you in developing important strategies to deal with problems with ASD in a manner most beneficial to your youngster.

Additional Points to Consider

An autistic youngster may throw tantrum or behave aggressively when he is disappointed or frustrated as other kids do. But he is not doing it intentionally, because as an Autistic youngster, he is unable to understand that other people have thoughts and feelings. He doesn't know that other people hurt when he hit them. He may learn this as he gets older, but it may take sometimes. So how do parents of ASD kids tell them to not hit other people? How can they handle their misbehavior?

Discipline is about teaching your youngster good and appropriate behavior. Discipline is about helping them to become independent and responsible people. Regardless of whether your youngster is special need or not, you still need to discipline him with the consideration of his special needs. In particular, you need to keep in mind his unusual perception of pain. Therefore, hitting them or any physical punishment is a big no-no. The hitting will not teach that their behavior is unacceptable. In contrast, it may encourage them that hitting others is an acceptable behavior. It may even encourage self-injurious behavior. In fact many experts strongly agree to not use physical punishment on autistic kids and advised them to find alternative methods of discipline method.

The best method is through positive discipline, where you focus on his acceptable behavior and provide rewards so that your youngster would be encouraged to repeat the behavior. To do that, first you need to establish ground rules. The ground rules must states specifically of what is consider as an acceptable behavior and what is not. You must catch and reward them when they are well-behaved and following the rules. A reward need not necessarily be a physical or expensive reward. It can be genuine praise or word of encouragement. Most importantly, the reward must be clear and specific. The youngster should be able to know exactly the behavior that earned the reward. Rather than saying "Good job," say "Thank you for cleaning up your room."

Some Autistic youngsters are not able to generalize information. They are usually not able to apply what they learn in one learning context to another learning context. For example, he may learn that hitting his friend at school is not acceptable, but he may not necessarily understand that he cannot hit his sister at home. That is, once the situation changes, it will be a totally a new learning experience for him. Be consistent and provide many repetitions in disciplining them. If there is punishment, make sure that the punishment is always the same for the bad behavior. A consistent environment and many repetitions will help your Autistic youngster to learn and remember the differences between right and wrong.

Disciplining an Autistic youngster is not easy, but with your loving care and understanding of him will make the task much easier to fulfill. I feel by accommodating his special needs and the loved he feel, he takes discipline a lot better. Be persistent and enjoy every small success. He may not be the captain of a football team, but he is taking small steps to become an independent and responsible person.

Resources for parents of children and teens on the autism spectrum:
 

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

==> Launching Adult Children with Autism Spectrum Disorder: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social-Skills and Emotion-Management to Children with Autism Spectrum Disorder

==> Parenting Children and Teens with High-Functioning Autism: Parents' Comprehensive Handbook

==> Unraveling the Mystery Behind High-Functioning Autism: Audio Book

==> Crucial Research-Based Parenting Strategies for Children and Teens with High-Functioning Autism

==> Videos for Parents of Children and Teens with ASD

 

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Raising Children and Teens on the Autism Spectrum: Dealing with Parental Stress

Of course, not all moms and dads of children with ASD level 1, or high functioning autism (HFA), are under stress, but many are. 

 

As one mother states, “You learn to live with a significant amount of stress and you throw yourself into your everyday job as a parent when you have a youngster with an Autism Spectrum Disorder. If you work outside the home, you work even harder - and you don't think much about taking care of yourself.”

Some moms and dads worry that they could have done something to prevent their youngster's problems. They also agonize over whether they could do more now. Some stress is to be expected. As long as you're sleeping and eating well, enjoying much of your day-to-day life, and finding support where you need it, your stress is probably not too overwhelming.

Are you too stressed? Ask yourself these questions:

• Are symptoms of stress impeding your functioning?
• Are you finding it hard to get through the day's activities?
• Are you having a hard time eating, sleeping, or getting up in the morning?

If you're exhausted and overwhelmed on a regular basis, you're more susceptible to physical and mental disorders. You may need time and help to recharge your batteries and find coping mechanisms. And it's important to take action now for the future. After all, when you're the mother or father of a "special needs" youngster, you're in it for the long term.

An experienced professional can help give you concrete ideas for finding time and space for yourself. He/she can also work with you to develop specific coping strategies. Changes in attitude can make a big difference, and there are many ways to work on your own feelings. It may also be helpful to have an appropriate time and place to let out pent-up frustration that's so often a part of coping with a youngster with an Autism Spectrum Disorder.

It's important to find a psychologist, psychiatrist, or social worker who has specific experience in working with families affected by autism spectrum disorder. To find such a person, get in touch with local support groups and ask for advice. Check out online databases. Ask your family doctor for suggestions, too. Some states offer a service called "mobile therapy." This program brings therapists into your home to work with you and your whole family.

The main thing parents with an HFA youngster need to know is that they are not alone. There is help out there! Even if you are a single mom raising kids alone, there is help. It's up to the parent, however, to realize that it's not a sign of failure as a parent to need and accept help in caring for your child.

Discipline for a child on the autism spectrum is often very different than the way you would discipline a neurotypical child. So a parent is often left feeling helpless and not knowing what to do, and feeling they have nowhere to turn in getting a break from parenting. In fact, a lot of moms and dads actually feel guilty for even wanting a break, let alone taking one. 

 

The idea of a few hours away from their youngster makes them feel as though they are failing him or her as a parent. For some reason, some parents feel that to parent their youngster, that means being around them and caring for them 24/7 without any outside help.

Moms and dads need to take a break! Hire a competent babysitter, even a nurse if needed, get family to help, ask a friend for help! The point is this: get out of the house alone or with your spouse for a few hours and enjoy yourself. You can’t change any of the issues your youngster may have, but you can get a break. You can get out a few hours a week alone to unwind and you can get help to allow you to get that much needed break.

There are no easy answers on how to raise a son or daughter on the spectrum. Every child is different, as is every parent in their parenting methods. But the stress level is invariably there. Handling the stress is necessary in order to provide good care not only for your youngster, but for yourself and the rest of the family as well.

Many parents go through a difficult time when their youngster is first diagnosed. But after a year or two, most do learn to cope, enjoy their youngster's achievements and their own lives, and have fun.

These "special needs" children are special indeed – and we love our children very much. But we as moms and dads need to be able to unwind and relieve the stress so that we are better able to parent. Never feel guilty for needing to ask for help!

Bottom line: If you're not the person you normally are, then that's a reason to get help, or at least consider that possibility.

 

Resources for parents of children and teens on the autism spectrum:
 

==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

==> Launching Adult Children with Autism Spectrum Disorder: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social-Skills and Emotion-Management to Children with Autism Spectrum Disorder

==> Parenting Children and Teens with High-Functioning Autism: Parents' Comprehensive Handbook

==> Unraveling the Mystery Behind High-Functioning Autism: Audio Book

==> Crucial Research-Based Parenting Strategies for Children and Teens with High-Functioning Autism

==> Videos for Parents of Children and Teens with ASD

 

----------

ASD: Tantrums, Rage, and Meltdowns - What Parents Need to Know

Question

My eldest boy J___ who is now 5-years-old was diagnosed with ASD (level 1) last July. We did 6 months of intense therapy with a child psychologist and a speech therapist before we moved over to Ghana. J___ has settled in well. He has adjusted to school very well and the teachers who are also expats from England are also dealing with him extremely well.

My current issue is his anger. At the moment if the situations are not done exactly his way he has a meltdown. Symptoms are: Extreme ear piercing screaming, intense crying, to falling down on the floor saying he is going to die. I have tried to tell him to breathe but his meltdown is so intense that his body just can't listen to words. I then have asked him to go to his room to calm down. He sometimes (very rarely) throws things across the room, but does not physically hurt anyone. As I have two younger boys (ages 1 and 3) I still need to be aware of their safety. I then managed to put J___ in his room with the help of a nanny. He throws all blankets off the bed (which doesn't bother me) and then hides under them. Today I waited 10 minutes then went upstairs to talk to him, but he then started again with the extreme crying and screaming at me. It took him over an hour to calm down fully. The situation arose as the nanny and I were helping him to make muffins and the nanny put a spoonful of the mixture into the muffin tin.

I am requesting your help on ways to calm him down in a manner that is acceptable. He is getting too old to be put in the "thinking corner/naughty corner" and I am a petite person so I'm not going to physically put him there. I am finding his resistance at the moment is a lot with me and his father.

I have structures in place by visual laminated pictures of how the morning is run and the structure before bed. This works fine, but like I said when things aren't done exactly his way, he can have an outburst in a flash. Please give me some strategies on how I can better manage these meltdowns.

FYI - he was diagnosed on the border on the CARS model. I have found a qualified speech therapist who is from England which we go to once a week (but as it is summer break we don't go back to August) to assist with his pragmatic language.

Answer

Problems related to stress and anxiety are common in kids with ASD (high-functioning autism). In fact, this combination has been shown to be one of the most frequently observed comorbid symptoms in these children. They are often triggered by or result directly from environmental stressors, such as:

• a sense of loss of control
• an inherent emotional vulnerability
• difficulty in predicting outcomes
• having to face challenging social situations with inadequate social awareness
• misperception of social events
• rigidity in moral judgment that results from a concrete sense of social justice violations.
• social problem-solving skills
• social understanding

The stress experienced by kids with ASD may manifest as withdrawal, reliance on obsessions related to circumscribed interests or unhelpful rumination of thoughts, inattention, and hyperactivity, although it may also trigger aggressive or oppositional defiant behavior, often captured by therapists as tantrums, rage, and “meltdowns”.

 

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

Educators, therapists, and moms/dads often report that kids on the spectrum exhibit a sudden onset of aggressive or oppositional behavior. This escalating sequence is similar to what has been described in children on the spectrum, and seems to follow a three-stage cycle as described below. Although non-autistic kids may recognize and react to the potential for behavioral outbursts early in the cycle, many kids and teenagers with the disorder often endure the entire cycle, unaware that they are under stress (i.e., they do not perceive themselves as having problems of conduct, aggression, hyperactivity, withdrawal, etc.).

Because of the combination of innate stress and anxiety and the difficulty of kids with ASD to understand how they feel, it is important that those who work and live with them understand the cycle of tantrums, rage, and meltdowns, and the interventions that can be used to promote self-calming, self-management, and self-awareness as a means of preventing or decreasing the severity of behavior problems.

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The Cycle of Meltdowns

Meltdowns typically occur in three stages that can be of variable length. These stages are (1) the “acting-in” stage, (2) the “acting-out” stage, and (3) the recuperation stage.

The “Acting-In” Stage

The “acting-in” stage is the initial stage of a tantrum, rage, or meltdown. During this stage, kids and teenagers on the autism spectrum exhibit specific behavior changes that may not seem to be related directly to a meltdown. The behaviors may seem minor. That is, children with ASD may clear their throats, lower their voices, tense their muscles, tap their foot, grimace, or otherwise indicate general discontent. Furthermore, somatic complaints also may occur during the “acting-in” stage. Kids also may engage in behaviors that are more obvious, including emotionally or physically withdrawing, or verbally or physically affecting someone else. For example, the youngster may challenge the classroom structure or authority by attempting to engage in a power struggle.

During this stage, it is imperative that a mother/father or educator intervene without becoming part of a struggle. The following interventions can be effective in stopping the cycle of tantrums, rage, and meltdowns – and they are invaluable in that they can help the youngster regain control with minimal adult support:

1. Intervention #1 involves displaying a chart or visual schedule of expectations and events, which can provide security to kids and teenagers with ASD who typically need predictability. This technique also can be used as advance preparation for a change in routine. Informing kids of schedule changes can prevent anxiety and reduce the likelihood of tantrums, rage, and meltdowns (e.g., the youngster who is signaling frustration by tapping his foot may be directed to his schedule to make him aware that after he completes two more problems he gets to work on a topic of special interest with a peer). While running errands, moms and dads can use support from routine by alerting the youngster in the “acting-in” stage that their next stop will be at a store the youngster enjoys.

2. Intervention #2 involves helping the youngster to focus on something other than the task or activity that seems to be upsetting. One type of redirection that often works well when the source of the behavior is a lack of understanding is telling the youngster that he can “cartoon” the situation to figure out what to do. Sometimes cartooning can be postponed briefly. At other times, the youngster may need to cartoon immediately.

3. Intervention #3 involves making the autistic child’s school environment as stress-free as possible by providing him/her with a “home-base.”. A home-base is a place in the school where the child can “escape.” The home-base should be quiet with few visual or activity distractions, and activities should be selected carefully to ensure that they are calming rather than alerting. In school, resource rooms or counselors' offices can serve as a home-base. The structure of the room supersedes its location. At home, the home-base may be the youngster's room or an isolated area in the house. Regardless of its location, however, it is essential that the home-base is viewed as a positive environment. Home-base is not “timeout” or an escape from classroom tasks or chores. The youngster takes class work to home-base, and at home, chores are completed after a brief respite in the home-base. Home-base may be used at times other than during the “acting-in” stage (e.g., at the beginning of the day, a home base can serve to preview the day's schedule, introduce changes in the typical routine, and ensure that the youngster's materials are organized or prime for specific subjects). At other times, home-base can be used to help the youngster gain control after a meltdown.

4. Intervention #4 involves paying attention to cues from the child. When the youngster with begins to exhibit a precursor behavior (e.g., throat clearing, pacing), the educator uses a nonverbal signal to let the youngster know that she is aware of the situation (e.g., the educator can place herself in a position where eye contact with the youngster can be achieved, or an agreed-upon “secret” signal, such as tapping on a desk, may be used to alert the youngster that he is under stress). A “signal” may be followed by a stress relief strategy (e.g., squeezing a stress ball). In the home or community, moms and dads may develop a signal (i.e., a slight hand movement) that the mother/father uses with their youngster is in the “acting-in” stage. 

 

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

5. Intervention #5 involves removing a youngster, in a non-punitive fashion, from the environment in which he is experiencing difficulty. At school, the youngster may be sent on an errand. At home, the youngster may be asked to retrieve an object for a mother/father. During this time the youngster has an opportunity to regain a sense of calm. When he returns, the problem has typically diminished in magnitude and the grown-up is on hand for support, if needed.

6. Intervention #6 is a strategy where the educator moves near the youngster who is engaged in the target behavior. Moms/dads and teachers move near the autistic youngster. Often something as simple as standing next to the youngster is calming. This can easily be accomplished without interrupting an ongoing activity (e.g., the educator who circulates through the classroom during a lesson).

7. Intervention #7 is a technique in which the mother/father or educator merely walks with the youngster without talking. Silence on the part of the grown-up is important, because a youngster with ASD in the “acting-in” stage will likely react emotionally to any adult statement, misinterpreting it or rephrasing it beyond recognition. On this walk the youngster can say whatever he wishes without fear of discipline or reprimand. In the meantime, the grown-up should be calm, show as little reaction as possible, and never be confrontational.

8. Intervention #8 is a technique that is effective when the youngster is in the midst of the “acting-in” stage because of a difficult task, and the mother/father or educator thinks that the youngster can complete the activity with support. The mother/father or educator offers a brief acknowledgement that supports the verbalizations of the youngster and helps him complete his task. For instance, when working on a math problem the youngster begins to say, “This is too hard.” Knowing the youngster can complete the problem, the educator refocuses the youngster's attention by saying, “Yes, the problem is difficult. Let's start with number one.” This brief direction and support may prevent the youngster from moving past the “acting-in” stage.

When selecting an intervention during the “acting-in” stage, it is important to know the youngster, as the wrong technique can escalate rather than deescalate a behavior problem. Further, although interventions at this stage do not require extensive time, it is advisable that grown-ups understand the events that precipitate the target behaviors so that they can (1) be ready to intervene early, or (2) teach kids and teenagers strategies to maintain behavior control during these times. Interventions at this stage are merely calming. They do not teach kids to recognize their own frustration or provide a means of handling it. Techniques to accomplish these goals are discussed later.

The “Acting-Out” Stage

If behavior is not diffused during the “acting-in” stage, the youngster or adolescent may move to the “acting-out” stage. At this point, the youngster is dis-inhibited and acts impulsively, emotionally, and sometimes explosively. These behaviors may be externalized (i.e., screaming, biting, hitting, kicking, destroying property, or self-injury) or internalized (i.e., withdrawal). Meltdowns are not purposeful, and once the “acting-out” stage begins, most often it must run its course.

During this stage, emphasis should be placed on youngster, peer, and adult safety, and protection of school, home, or personal property. The best way to cope with a tantrum, rage, or meltdown is to get the youngster to home base. As mentioned, this room is not viewed as a reward or disciplinary room, but is seen as a place where the youngster can regain self-control.

Of importance here is helping the individual with ASD regain control and preserve dignity. To that end, grown-ups should have developed plans for (1) obtaining assistance from educators, such as a crisis educator or principal, (2) removing other kids from the area, or (3) providing therapeutic restraint, if necessary. 

The Recuperation Stage

Following a meltdown, the youngster has contrite feelings and often cannot fully remember what occurred during the “acting-out” stage. Some may become sullen, withdraw, or deny that inappropriate behavior occurred; others are so physically exhausted that they need to sleep.

It is imperative that interventions are implemented at a time when the youngster can accept them and in a manner the youngster can understand and accept. Otherwise, the intervention may simply resume the cycle in a more accelerated pattern, leading more quickly to the “acting-out” stage. During the recuperation stage, kids often are not ready to learn. Thus, it is important that grown-ups work with them to help them once again become a part of the routine. This is often best accomplished by directing the youth to a highly motivating task that can be easily accomplished, such as activity related to a special interest.

Preventing Tantrums, Rage, and Meltdowns

Kids and teenagers with autism spectrum disorder generally do not want to engage in meltdowns. Rather, the “acting-out” cycle is the only way they know of expressing stress, coping with problems, and a host of other emotions to which they see no other solution. Most want to learn methods to manage their behavior, including calming themselves in the face of problems and increasing self-awareness of their emotions. The best intervention for tantrums, rage, and meltdowns is prevention. Prevention occurs best as a multifaceted approach consisting of instruction in (1) strategies that increase social understanding and problem solving, (2) techniques that facilitate self-understanding, and (3) methods of self-calming.

 

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

Increasing Social Understanding and Problem Solving

Enhancement of social understanding includes providing direct assistance. Although instructional strategies are beneficial, it is almost impossible to teach all the social skills that are needed in day-to-day life. Instead, these skills often are taught in an interpretive manner after the youngster has engaged in an unsuccessful or otherwise problematic encounter. Interpretation skills are used in recognition that, no matter how well developed the skills of a person with ASD, situations will arise that he or she does not understand. As a result, someone in the person's environment must serve as a social management interpreter.

The following interpretative strategies can help turn seemingly random actions into meaningful interactions for young people on the spectrum:

1. Analyzing a social skills problem is a good interpretative strategy. Following a social error, the youngster who committed the error works with an adult to (1) identify the error, (2) determine who was harmed by the error, (3) decide how to correct the error, and (4) develop a plan to prevent the error from occurring again. A social skills analysis is not “punishment.” Rather, it is a supportive and constructive problem-solving strategy. The analyzing process is particularly effective in enabling the youngster to see the cause/effect relationship between her social behavior and the reactions of others in her environment. The success of the strategy lies in its structure of practice, immediate feedback, and positive reinforcement. Every grown-up with whom the youngster with ASD has regular contact, such as moms and dads, educators, and therapists, should know how to do social skills analysis fostering skill acquisition and generalization. Originally designed to be verbally based, the strategy has been modified to include a visual format to enhance child learning.

2. Visual symbols such as “cartooning” have been found to enhance the processing abilities of persons in the autism spectrum, to enhance their understanding of the environment, and to reduce tantrums, rage, and meltdowns. One type of visual support is cartooning. Used as a generic term, this technique has been implemented by speech and language pathologists for many years to enhance understanding in their clients. Cartoon figures play an integral role in several intervention techniques: pragmaticism, mind-reading, and comic strip conversations. Cartooning techniques, such as comic strip conversations, allow the youngster to analyze and understand the range of messages and meanings that are a natural part of conversation and play. Many kids with ASD are confused and upset by teasing or sarcasm. The speech and thought bubble as well as choice of colors can illustrate the hidden messages.

Conclusion—

Although many kids and teenagers on the spectrum exhibit anxiety that may lead to challenging behaviors, stress and subsequent behaviors should be viewed as an integral part of the disorder. As such, it is important to understand the cycle of behaviors to prevent seemingly minor events from escalating. Although understanding the cycle of tantrums, rage, and meltdowns is important, behavior changes will not occur unless the function of the behavior is understood and the youngster is provided instruction and support in using (1) strategies that increase social understanding and problem solving, (2) techniques that facilitate self-understanding, and (3) methods of self-calming.

Children experiencing stress may react by having a tantrum, rage, or meltdown. Behaviors do not occur in isolation or randomly; they are associated most often with a reason or cause. The youngster who engages in an inappropriate behavior is attempting to communicate. Before selecting an intervention to be used during the “acting-out” cycle or to prevent the cycle from occurring, it is important to understand the function or role the target behavior plays.

More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book

==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

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