Although these documents were prepared specifically for use during an IEP process, they will be useful to moms and dads and professionals who seek a better understanding of kids with Aspergers (high functioning autism).
Sample Letter to IEP Committee from Parents—
[Date]
IEP Committee
[name of school]
[address]
Re: IEP of [name of Aspergers student]
Dear Members of the IEP Committee:
I am writing this letter to set forth the concerns/issues that we, as [name of Aspergers student] parents, would like addressed in [name of Aspergers student] annual "individualized education program" or IEP.
[Continue with some background information: the following paragraph is a sample]
[name of Aspergers student] has been in a self-contained classroom for the majority of his course work since he entered middle school ([name of Aspergers student] was also in a self-contained classroom for four years of elementary school; for further information, please see the document, attached hereto, I submitted as an Addendum to the two page document entitled "Information from Moms and dads"). His teacher in that self-contained classroom is [name of teacher] and the instructional aide in the classroom is [name of aide]. Both [name of teacher] and [name of aide] have been very willing to educate themselves on autism and its ramifications in the school setting and have made many adaptations to allow [name of Aspergers student] to succeed in school. However, [name of teacher] will be leaving [name of school] to accept a teaching position at another middle school in the [name of school district]. The fact that she will be unavailable as [name of Aspergers student] teacher in a self-contained classroom next year, coupled with the fact that [he/she] has a difficult time adjusting to change, and the fact that we are planning for his last year in middle school, we, as his moms and dads believe [name of Aspergers student] should be mainstreamed in the 96-97 school year as provided under statutory law.
The Individuals with Disabilities Act ("IDEA") provides that states receiving funding under the act must ensure that kids with disabilities are educated in the regular classroom with nondisabled kids "to the maximum extent appropriate." 20 U.S.C. Section 1412(5)(B); see also, Oberti v. Bd. of Education, 995 F.2d 1204, 1206 (1993). Federal courts have construed IDEA's mainstreaming requirements to prohibit schools from placing kids with disabilities outside of the regular classroom if educating the youngster in the regular classroom, with supplementary aids and support services, can be achieved satisfactorily. See e.g., Oberti, 995 F.2d at 1207; Greer v. Rome City School Dist., 950 F.2d 688 (11th Cir. 1991), opinion withdrawn on other points of law, 956 F.2d 1025, reinstated in part 967 F.2d 470; Daniel RR v. State Bd. of Educ., 874 F.2d 1036, 1048 (5th Cir. 1989). "The Act [IDEA] requires states to provide supplementary aids and services and to modify the regular education program when they mainstream handicapped kids." Daniel RR at 1048. The Fifth Circuit goes on to state that if the school makes no effort to take such accommodating steps, the inquiry ends, because the school is in violation of the Act's express mandate to supplement and modify regular education. Id. "If the state is providing supplementary aids and services and is modifying its regular education program, we must examine whether its efforts are sufficient. The Act does not permit states to make mere tokens gestures to accommodate handicapped Aspergers students; its requirements for modifying and supplementing regular education is broad." Id. Indeed, the United States Court of Appeals for the 11th Circuit states that "the school district must consider the whole range of supplemental aids and services, including resource rooms and itinerant instruction, for which it is obligated under the Act and the regulations promulgated hereunder to make provision." Greer, 950 F.2d at 696. "We emphasize here that the school district's consideration of whether education in the regular classroom may be achieved satisfactorily with supplemental aids and services must occur prior to and during the development of the IEP." Id.
After reviewing federal law construing IDEA, I also believe the school district is required to notify moms and dads (1) that mainstreaming of Aspergers students with disabilities is required under IDEA, if such mainstreaming can be accomplished by modifying the regular education program and by providing supplementary aids and services, and (2) what supplementary aids and services and modifications it is required to provide under law. See, Greer, 950 F.2d at 698. [continue with your situation, outline any problems you have had with the school's failure to meet the law; what follows is an example] I have never received such notification from the school. However, this letter is not about placing blame on the school for its failures in the past. This letter is meant to address the future and insure that all mainstreaming issues are adequately addressed. I am attaching several documents I would like the ARD Committee to complete and to include as part of [name of Aspergers student] IEP. The first document, which is 10 pages long, is intended to:
- identify [name of Aspergers student] strengths and interests
- identify environmental challenges faced by a student with autism spectrum disorder that may lower an autistic' student's ability to function competently
- identify possible sensory challenges and risk factors faced by an autistic student
- identify potential social skills that may present a problem in an educational setting
- identify those behaviors that may be a personal challenge for a student with autism spectrum disorder
These forms were taken from the "Technical Assistance Manual on Autism for Kentucky Schools."
The second document I would like the committee to consider is entitled, "Specially Designed Instructions for Educators: IEP Modifications/Adaptations/Support Checklist." Again, I obtained the basic format for this document from the "Technical Assistance Manual on Autism for Kentucky Schools". However, this form has been revised to more accurately describe the modifications and adaptations necessary for a youngster who is on the higher functioning end of the autism spectrum. The changes are based on professional writings, most particularly the recent article by Karen Williams and a paper entitled "Tips for Teaching High Functioning People with Autism" by Susan Moreno and Carol O'Neal, both of which are attached hereto. The third is proposed goals for [name of Aspergers student] for the next IEP period.
In addition to the above, we request the following for the 1996-97 school year:
[nos. 1 through 6 are examples]
- That [name of Aspergers student] be mainstreamed into regular classes for every eighth grade class except math
- That a circle of friends be established in [name of Aspergers student] [name of class] in conjunction and cooperation with the instructor of that course
- That all of [name of Aspergers student] instructors be given a copy of the goals, modifications, special considerations, etc. prepared as part of this IEP
- That both the instructional aide and [name of Aspergers student] educators in the regular classroom be allowed to consult as necessary with the special education teacher and the District's autism specialist
- That education on autism be provided by the school district to the instructional aide as well as all regular instructors who teach [name of Aspergers student]
- That the school provide [name of Aspergers student] with a one-on-one aide to assist him as necessary in the integrated classes
Thank you for considering our concerns and comments. We look forward to working with the school district to integrate [name of Aspergers student] into regular classes and make the transition to high school easier and more understandable for [name of Aspergers student]
Sincerely,
[your name and address]
Attachments
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This is a checklist form designed for moms and dads to provide to teachers and other educators to help them understand the strengths and challenges faced by a youngster with an autism spectrum disorder. It includes sections on environmental challenges, sensory challenges, behaviors, and social skills.
Behaviors That May Be Personal Challenges for a Student with an Autism Spectrum Disorder—
Qualitative Impairments in Social Interaction:
• ____engaging in stereotypical question asking as interaction pattern
• ____impaired imitation - not engaging in simple games of childhood
• ____inability to respond to social cues
• ____inability to understand how someone else might feel
• ____inappropriate giggling or laughing
• ____inappropriate use of eye contact, avoidance or extended staring
• ____inappropriately intrusive in social situations
• ____lack of socially directed smiles when young
• ____little sense of other people's boundaries
• ____mimicking actions from TV, but not in reciprocal manner
• ____not accepting cuddling, hugging, touching unless self initiated
• ____poor use of non-verbal gestures
• ____trouble with back and forth social interactions
• ____trouble with competition, i.e., winning, losing, being first
• ____wanting and needing to be left alone at times
Restricted Repetitive & Stereotyped Patterns of Behavior, Interests & Activities:
• ____defensive to touch that isn't self initiated
• ____difficulty waiting
• ____difficulty with unstructured time
• ____excessive fearfulness of some harmless objects or situations
• ____exploring environment through licking, smelling, touching
• ____fascination with movement (spinning wheels, fans, door & drawers)
• ____history of eating problems
• ____history of sleeping problems
• ____impaired response to temperature or pain
• ____insistence on routines, resisting change
• ____lack of fear of real danger
• ____lining up and/or ordering objects
• ____negative reaction to change in environment
• ____pacing or running back and forth, round and round
• ____perfectionist, problems with correction or "mistake"
• ____repeatedly watching videos or video segments
• ____staring at patterns, lights, or shiny surfaces
• ____strong attachment to inanimate objects (strings, bottles)
• ____very sensitive to sounds (may have acted as if deaf as baby)
Qualitative Impairments in Communication:
• ____difficulty understanding abstract concepts
• ____difficulty when verbalizations are too fast
• ____difficulty with concepts that are time bound or lack concreteness
• ____difficulty with long sentences
• ____echoing what is said directly, later, or in a slightly changed way
• ____low spontaneously initiated communication
• ____problems answering questions
• ____problems getting the order of words in sentences correct
• ____problems responding to directions
• ____problems understanding jokes
• ____problems understanding multiple meaning of words
• ____problems understanding sarcasm, idioms, and figurative speech
• ____problems using speed, tone, volume appropriately
• ____problems with pronouns
• ____problems with reciprocal conversations
Learning Characteristics:
• ____ability to manipulate items better than paper-pencil abilities
• ____delayed response time
• ____good visual skills
• ____hyperactivity
• ____impulsivity
• ____needs help to problem solve
• ____over and under generalization of learning
• ____problems organizing
• ____sequential learner
• ____short attention span to some activities and not to others
• ____uneven profile of skills
• ____well developed long term memory
Observable Problem Behaviors:
• ____aggression - biting, hitting, kicking, pinching
• ____eating problems
• ____low motivation
• ____non-compliance and refusal to move, to do things
• ____screaming, yelling
• ____self-injurious behaviors - biting, hitting, pinching, banging parts of body
• ____sleeping problems
• ____temper tantrums
• ____toileting problems
Possible Motor Problems:
• ____balance
• ____clumsiness
• ____initiation - can't seem to be started in motor acts
• ____motor fatigue - tired easily
• ____motor planning - can't seem to make body do what it needs to do
• ____perceptual motor, spacing, sequencing, printing, writing
• ____stiffness
• ____strength
Some Environmental Challenges that Lower a Student's Ability to Function Competently
Internal-
• ____being hungry
• ____being sick
• ____being tired
• ____being touched
• ____making a mistake
• ____not being understood
• ____not having adequate skills for job
• ____not having choices
• ____not having enough information
• ____not understanding
Major Changes-
• ____activity location changes
• ____alterations at school, work, home, community
• ____anticipating an event or activity
• ____cancellation of an event or activity
• ____family member or friend is late or not coming
• ____friend or buddy absent
• ____having to wait too long
• ____small schedule changes
• ____staff or teacher absent
• ____time changes
Environmental Confusion-
• ____being off the pace of others
• ____crowds
• ____losing things of value
• ____noise
• ____not having enough space
• ____surrounded by competing visual stimuli
• ____surrounded by too much movement
Relationships-
• ____being corrected
• ____being denied
• ____being ignored
• ____being interrupted
• ____being late
• ____being left out
• ____being scolded
• ____being teased
• ____fear of losing people who are valuable
Possible Sensory Challenges: Risk Factors
Sound/Auditory-
• ____confused about direction of sounds
• ____distracted by certain sounds
• ____fears some noises
• ____has been diagnosed with hearing problem at some time
• ____likes sounds that are constant and mask outside sounds
• ____making self-induced noises
• ____reacts to unexpected sounds
Sight/Vision-
• ____arranges environment in certain ways and can tell if out of order
• ____avoids eye contact
• ____becomes excited when confronted with a variety of visual stimuli
• ____closely examines objects or hands
• ____enjoys patterns
• ____enjoys watching moving things/bright objects
• ____has been diagnosed with a visual problem
• ____has difficulty tracking
• ____has trouble with stairs, heights
• ____is distracted by some or too much visual stimuli
• ____is sensitive to light
• ____likes TV, VCR
• ____makes decisions about food, clothing, objects by sight
• ____upset by things looking different
Smell/Olfactory-
• ____sensitive to smells
• ____explores environment by smelling
• ____ignores strong odors
• ____reacts strongly to some smells
• ____smells objects, food, people
Touch/Tactile-
• ____appears to have depth perception problems
• ____becomes irritated if bumped or touched by peers
• ____dislikes having hair, face, or mouth touched
• ____dislikes the feel of certain clothing
• ____doesn't like showers
• ____explores environment by touching
• ____has to know someone is going to touch ahead of time
• ____initiates hugs, cuddling
• ____is defensive about being touched
• ____is sensitive to certain clothing
• ____likes to play in water
• ____mouths objects or clothing
• ____over or under dresses for temperature
• ____prefers deep touching rather than soft
• ____refuses to touch certain things
• ____refuses to walk on certain surfaces
• ____upset by sticky, gooey hands
Taste-
• ____dislikes certain foods/textures
• ____explores environment by tasting
• ____has an eating problem
• ____tastes non-edibles
• ____will only eat a small variety of foods
Movement/Vestibular-
• ____appears clumsy, bumping into things
• ____arches back when held or moved
• ____avoids balancing activities
• ____climbs a lot and doesn't fall
• ____likes rocking, swinging, spinning
• ____moves parts of body a great deal
• ____seems fearful in space
• ____spins or whirls self around
• ____walks on toes
Perceptual/Perceptual Motor-
• ____difficulty with body in space
• ____distracted by door, cupboards being open, holes, or motion
• ____has difficulty with time perception
• ____has trouble with paper/pencil activities
• ____problems organizing materials and moving them appropriately
• ____problems with use of some tools
• ____relies on knowing location of furniture
Social Skills That May be Personal Challenges
Personal Management/Self Control-
• ____accepting correction
• ____accepting that mistakes can be fixed
• ____being prepared and organized for activities and lessons
• ____being quiet when required
• ____changing activities
• ____finishing work
• ____taking care of personal and school belongings
• ____talking when spoken to, especially if asked a question
• ____turning in assignments on time
• ____waiting
• ____working independently without bothering others
Reciprocal Interactions-
• ____asking for a favor
• ____asking for feedback, recruit praise
• ____asking for help, seek comfort
• ____asking someone to play or do an activity
• ____caring when someone is hurt or sick, not laughing
• ____complimenting
• ____gaining joint attention (point, look, talk)
• ____getting attention in specific way, raising hand, waiting
• ____greeting
• ____imitating
• ____initiating social interactions
• ____inviting others to join
• ____letting someone know that you are hurt or sick
• ____negotiating
• ____offering help, comfort
• ____playing
• ____sharing
• ____sitting and participating in group
• ____social chat
• ____taking turns
Reciprocating Social Interactions Appropriately-
• ____accepting help
• ____accepting that some things aren't possible
• ____answering questions
• ____commenting on a topic
• ____giving a reliable yes/no
• ____giving eye contact appropriately
• ____listening
• ____making a choice
• ____responding to teasing
• ____sharing other's enjoyment
Manner of Interaction-
• ____being considerate
• ____being honest
• ____being kind
• ____being polite
• ____keep a specified distance from a person
• ____looking at person talking appropriately
• ____not being a tattler
• ____not hitting, kicking, saying bad words
• ____not walking away while someone is talking
Learning Situation Specific Behaviors-
• ____at a sports event
• ____in a store
• ____in church, school, home
• ____what and where are private
• ____with authority figures
• ____with peers, no adults
• ____with strangers
Abstract Social Concepts-
• ____being good
• ____caring
• ____doing one's best
• ____fairness
• ____friendship
• ____humor
• ____kindness
• ____lying
• ____politeness
• ____timing
Group Behaviors-
• ____come when called to group
• ____stay in certain places
• ____participate with group
• ____follow group rules:
1. get out
2. pick up, clean up, straighten up
3. put away
4. talk one at a time
5. voting - majority rules
6. walk, stand still, stay to right
7. winning and losing
Questions to Ask About INCREASING MOTIVATION
When these questions are answered, remember to address and analyze the Aspergers student's entire day and week across all environments to assure these motivational strategies are addressed systematically.
• Are attempts towards goals and objectives reinforced?
• Are environmental and instructional cues utilized instead of relying on constant adult verbal and physical cues?
• Are experiences shared rather than constantly instructed?
• Are familiar, acquired activities kept in the program as new ones are added?
• Are likes, interests, and strengths; questions minimized?
• Are naturally occurring reinforcers used?
• Are reciprocal social interactions reinforced and shared rather than corrected?
• Are student preferences used and attempts made to update these and use reinforcers that the Aspergers student REALLY likes?
• Are the activities useful and meaningful for the Aspergers student?
• Are the options for choice expanded through meaningful experiences and successes?
• Are the reinforcing stimuli varied, are there choices of reinforcers, and is the schedule of reinforcement varied?
• Are there cooperative experiences?
• Are typical social reinforcers (smile, pat, praise)really motivating?
• Is choice making encouraged, invited, accepted and taught?
• Is feedback provided immediately so the connection between the reinforcer and event is clear?
• Is information given so person understands; questioning developed & utilized?
• Is intrinsic motivation utilized?
• Is natural initiation encouraged and invited?
• Is reciprocal communications encouraged and is there ample opportunity?
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This is a checklist form designed for moms and dads to provide to teachers and other educators. It incorporates "teaching tips" and modifications/adaptations often necessary to enable a youngster with an autism spectrum disorder to thrive and succeed in the school setting.
Specially Designed Instructions for Educators: IEP Modification/Adaptations/Support Checklist—
SPECIALLY DESIGNED INSTRUCTIONS FOR EDUCATORS: IEP MODIFICATION/ADAPTATIONS/SUPPORT CHECKLIST
FOR____________________________
DATE___________________
GRADE__________________
Communicating to the Aspergers student-
• Avoid idioms, double meanings, and sarcasm____
• Avoid using vague terms like later, maybe, "why did you do that?"____
• Be concrete and specific____
• If necessary for understanding, break tasks down into smaller steps____
• Provide accurate, prior information about change____
• Provide accurate, prior information about expectations____
• Slow down the pace____
• Specifically engage attention visually, verbally, or physically____
• Use gestures, modeling, and demonstrations with verbalization____
Encouraging Communication with the Aspergers student-
• Encourage input and choice when possible____
• Model correct format without correction____
• Pause, listen, and wait____
• Respond positively to attempts____
• Watch and listen to attempts to respond____
Social Supports-
• Build in time to watch, encourage watching and physical proximity____
• Create cooperative learning situations where _______can share his/her proficiencies____
• Establish a "buddy system" in each class____
• Focus on social process rather than end product____
• Practice on specific skills through natural activities with a few peers____
• Practice on specific skills through natural activities with one peer____
• Praise classmates when they treat _________with compassion____
• Protect the youngster from bullying and teasing____
• Structured activities with set interaction patterns and roles____
• Specific teaching, rehearsal, practicing, and modeling in natural settings of the following skills:
1. accepting answers of others____
2. accepting success of others____
3. complimenting____
4. Concentrate on changing unacceptable behaviors and ignore those that are simply "odd"____
5. following ideas of others____
6. greeting____
7. Individualize social stories giving specific situations emphasizing descriptions and perspectives____
8. inviting____
9. joining others____
10. joking and teasing____
11. negotiating____
12. responding____
13. repairing breakdowns____
14. Shared interests using interests and strengths____
15. taking the lead____
16. Teacher or school personnel advocate who will problem-solve and facilitate____
17. turn-taking____
18. waiting____
Environment and Routine-
• Allow modifications as needed to deal with sensitivity to touch issues, such as immersing hand in gooey liquid____
• Avoid surprises, prepare__________________thoroughly and in advance for special activities, altered schedules, or other changes, regardless of how minimal____
• Minimize transitions____
• Offer consistent daily routine____
• Provide a predictable and safe environment____
• Provide personal space in resource or other room for relaxation____
• Reduce distractions and sensory overloads____ noise____vision____smell____
• Talk________________through stressful situations or remove him/her from the stressful situation____
Presentation of Material-
• Presented visually____
1. calendars/maps/charts/diagrams____
2. computers____
3. demonstration____
4. objects____
5. pictured and written____
6. pictured____
7. video____
8. written____
• Consistent use of expectations____
• Divide instruction into small, sequential steps____
• Peer tutoring____
• Provide needed prompts and cues____
• Provide repeated opportunities to practice____
• Use established routines____
Assessment and Assignments-
• Allow extra time____
• Alter activity____
• Apply learning to real situations____
• Highlight text____
• Learn format ahead of time through rehearsal____
• Modify difficulty____
• Modify questions format____
• Provide choice of activity____
• Provide visual cues as a way of teaching how to summarize/write____
• Shorten____
Self Management/Behavior-
• Analyze the purpose of behavior from student perspective____
• Avoid pressure to "be good" or other abstract expectations____
• Avoid punitive measures that lower self esteem, increase anxiety, and are not understood (e.g., taking away set routines, free time, exercise, sending home, lecturing or yelling at)___
• Encourage choices and decision making where appropriate____
• Incorporate strengths and interests into daily plan____
• Individualized contract____
• Provide reinforcement that is individualized, immediate and concrete
• Teach use of timer or other visual cues____
• Translate purpose into skills to be taught____
• Avoid disciplinary actions for behaviors that are part of the disorder, i.e.:____
1. anxious____
2. avoidance of eye contact____
3. lack of "respect" for others____
4. perseverating on topic of interest____
5. repeating words or phrases____
6. slow response time____
7. talking to self____
8. upset by change____
9. upset in crowds or with noise____
Homework-
• Individualized____
• More help____
• More time____
• No more than one hour per evening____
• Shortened____
Staying on Task-
• Break assignments down into small units____
• Provide frequent teacher feedback and redirection____
• Provide time in resource or special education room for completion of homework and class work____
• Sit_________next to buddy so buddy can remind_________to return to task or listen to lesson____
• If necessary, lessen homework expectations____
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This document is an example of some IEP Goals.
Proposed IEP Goals—
The following sample document is a list of goals for an IEP period.
GOALS FOR INDIVIDUALIZED EDUCATION PLAN (IEP)
FOR_____________________________
DATE____________
GRADE___________
A: To Improve Communication and Socialization
1. Accept the success of peers without making negative comments.
2. Ask for help from teachers or aides when needed.
3. Attempt to learn the interests of peers.
4. Be positive in communicating with teachers and peers.
5. Be respectful of peer's opinions.
6. Compliment peers when appropriate.
7. Establish and maintain eye contact when speaking to teachers and peers.
8. Initiate discussions with peers.
9. Respond appropriately to peers in social situations.
10. Share expertise and special interests with peers.
B: To Succeed in the Regular Classroom
1. Be positive as you approach your work and new tasks.
2. Establish method by which ________________can organize and keep organized.
3. Establish method by which ______________can help himself/herself control anxiety.
4. Notify the teacher/aide if you are distracted by sensory input.
5. Notify the teacher/aide if you do not understand the material.
6. Notify the teacher/aide if you find yourself becoming overly agitated or anxious and your own efforts to control the anxiety have not been successful.
7. Participate appropriately in class.
8. Stay focused on the instruction in the classroom.
9. Understand that, though teachers and aides will attempt to let you know of potential changes in schedule, etc., there will be times when such notice cannot be given. Work on accepting change without becoming emotionally unraveled.
COMMENTS:
• Anonymous said… 504s are legal Documents overseen by the office of civil rights and easier to get than IEPs. My son needs both but the school Refuses because they ignore anything but test scores and grades that would lose them money.
• Anonymous said… Anyone encountering resistance like this should hire an advocate to work as their voice in these meetings. I wish I had done it far sooner than I did. An advocate speaks the language, knows the laws and will keep your child's needs always at the top of everything else. It's money you won't regret spending because of the aggravation it will save you from.
• Anonymous said… Do NOT back down to the school! You are his voice.
• Anonymous said… Find an advocate who knows the laws regarding IDEA ... individual with disabilities education Act .... or a lawyer .... but keep up with this fight ..dont let them step on your kids rights ... the schools seem to do this a lot ..its sad
• Anonymous said… From what I understand, in my state anyway, is that the school will do psychological testing & decide if & what the IEP should be. If they decide he doesn't need one, & you disagree w/their decision, you can take your child to have the testing done wherever you want & the school is responsible for payment of that evaluation. They don't get to deny the diagnosis you already have, tho. Remember...you are the boss. They work for you & your son. Not the other way around! Good luck!
• Anonymous said… I found out that some of the educators evaluating the IEP is clueless about Asperger's. I found out the counselor has zero experience in psychology. She was formerly a teacher and principle. She could not relate. She only read about the disorder and attended a conference. No experience working with these children at all. Based on test scores, they don't take it seriously. My son state test scores are in the top 10%, yet he can not stand loud noises, crowds of people, has repetitive behaviors, lack social skill, limited emotions, and more. These child have to be monitored. Yet, they will expect normal behaviors and organizational skills. Been doing this for 14 years. You may have to schedule a meeting with the Board of Education in your city.
• Anonymous said… I have been through the same experience!!! The teachers are not the doctor and do NOT have the education OR degrees to diagnose or undiagnose
• Anonymous said… idea 2004 says that academic and functional skills must be considered. The purpose is a) To ensure that all children with disabilities have available to them a free appropriate public education that emphasizes special education and related services designed to meet their unique needs and prepare them for further education, employment, and independent living; So children with Aspergers Or High functioning Austim need sensory help, OT and social skills all of which fall under IDEA. To deny a 504 to a child with a qualifying disability is discrimination and be reported to the office of civil rights which oversees educational discrimination. If your school system can not site the reason for the denial of the IEP/504 and show it to you, then keep Pushing.
• Anonymous said… It's a fight and shouldn't have to be. I don't understand why they can't adhere to or implement what is in the IEP. I went to the school the week before the start of my sons first day of second grade, to make sure everyone was on the same page. I ended up chewing the principal out on the first day. My son's behavioral specialist was there that day and called to tell me they had nothing in place for him and he melted down. The principal had no idea I knew this when I called and she tried to play it off as nothing happened. I immediately called for another IEP meeting. They don't like you to have more than 1 a year, but it's your right to request them. my next step is a lawyer. This school even violated HIPPA , put another child's info in my child's IEP. I could go on.... Good luck to you on this journey.
• Anonymous said… I've never heard of not accepting a diagnosis after the childs been officially assessed, how ridiculous of them. Best thing I ever did was use a company called Advanced Behavioral Services. It was covered under my insurance and the woman that helped my son was able to come to the school and speak on his behalf and I never felt alone in this and I was always supported. I'm sure if you google you can find similar help in your area, find an advocate you don't have to do this alone.
• Anonymous said… My son has Aspergers and I started by taking his official diagnosis documentation and scheduled and MDT meeting. When you walk in with official paperwork with a diagnosis from a psychologist who specializes in this area, they start to listen. Then you can move towards the IEP and hold the school accountable. Find out who is the special education coordinator in the school and speak directly with them if possible. There should be someone besides a counselor.
• Anonymous said… Simple statement to school, "Your job is not to give the diagnosis. Your job is to accommodate it."
• Anonymous said… stay strong and know that this will be a constant battle.
• Anonymous said… The middle school rejected my son's diagnosis too. They did their own evaluation of him when I requested an IEP and claim he "showed no signs." I had him diagnosed by a private psychiatrist and they still won't accept it. They claim that because my son has no intellectual problems there is no problem,but his social skills are abysmal. UGH,the school drives me insane!
• Anonymous said… You are 100% right about test scores. They look at test scores not the details or characteristics of Asperger's.
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• Anonymous said… 504s are legal Documents overseen by the office of civil rights and easier to get than IEPs. My son needs both but the school Refuses because they ignore anything but test scores and grades that would lose them money.
• Anonymous said… Anyone encountering resistance like this should hire an advocate to work as their voice in these meetings. I wish I had done it far sooner than I did. An advocate speaks the language, knows the laws and will keep your child's needs always at the top of everything else. It's money you won't regret spending because of the aggravation it will save you from.
• Anonymous said… Do NOT back down to the school! You are his voice.
• Anonymous said… Find an advocate who knows the laws regarding IDEA ... individual with disabilities education Act .... or a lawyer .... but keep up with this fight ..dont let them step on your kids rights ... the schools seem to do this a lot ..its sad
• Anonymous said… From what I understand, in my state anyway, is that the school will do psychological testing & decide if & what the IEP should be. If they decide he doesn't need one, & you disagree w/their decision, you can take your child to have the testing done wherever you want & the school is responsible for payment of that evaluation. They don't get to deny the diagnosis you already have, tho. Remember...you are the boss. They work for you & your son. Not the other way around! Good luck!
• Anonymous said… I found out that some of the educators evaluating the IEP is clueless about Asperger's. I found out the counselor has zero experience in psychology. She was formerly a teacher and principle. She could not relate. She only read about the disorder and attended a conference. No experience working with these children at all. Based on test scores, they don't take it seriously. My son state test scores are in the top 10%, yet he can not stand loud noises, crowds of people, has repetitive behaviors, lack social skill, limited emotions, and more. These child have to be monitored. Yet, they will expect normal behaviors and organizational skills. Been doing this for 14 years. You may have to schedule a meeting with the Board of Education in your city.
• Anonymous said… I have been through the same experience!!! The teachers are not the doctor and do NOT have the education OR degrees to diagnose or undiagnose
• Anonymous said… idea 2004 says that academic and functional skills must be considered. The purpose is a) To ensure that all children with disabilities have available to them a free appropriate public education that emphasizes special education and related services designed to meet their unique needs and prepare them for further education, employment, and independent living; So children with Aspergers Or High functioning Austim need sensory help, OT and social skills all of which fall under IDEA. To deny a 504 to a child with a qualifying disability is discrimination and be reported to the office of civil rights which oversees educational discrimination. If your school system can not site the reason for the denial of the IEP/504 and show it to you, then keep Pushing.
• Anonymous said… It's a fight and shouldn't have to be. I don't understand why they can't adhere to or implement what is in the IEP. I went to the school the week before the start of my sons first day of second grade, to make sure everyone was on the same page. I ended up chewing the principal out on the first day. My son's behavioral specialist was there that day and called to tell me they had nothing in place for him and he melted down. The principal had no idea I knew this when I called and she tried to play it off as nothing happened. I immediately called for another IEP meeting. They don't like you to have more than 1 a year, but it's your right to request them. my next step is a lawyer. This school even violated HIPPA , put another child's info in my child's IEP. I could go on.... Good luck to you on this journey.
• Anonymous said… I've never heard of not accepting a diagnosis after the childs been officially assessed, how ridiculous of them. Best thing I ever did was use a company called Advanced Behavioral Services. It was covered under my insurance and the woman that helped my son was able to come to the school and speak on his behalf and I never felt alone in this and I was always supported. I'm sure if you google you can find similar help in your area, find an advocate you don't have to do this alone.
• Anonymous said… My son has Aspergers and I started by taking his official diagnosis documentation and scheduled and MDT meeting. When you walk in with official paperwork with a diagnosis from a psychologist who specializes in this area, they start to listen. Then you can move towards the IEP and hold the school accountable. Find out who is the special education coordinator in the school and speak directly with them if possible. There should be someone besides a counselor.
• Anonymous said… Simple statement to school, "Your job is not to give the diagnosis. Your job is to accommodate it."
• Anonymous said… stay strong and know that this will be a constant battle.
• Anonymous said… The middle school rejected my son's diagnosis too. They did their own evaluation of him when I requested an IEP and claim he "showed no signs." I had him diagnosed by a private psychiatrist and they still won't accept it. They claim that because my son has no intellectual problems there is no problem,but his social skills are abysmal. UGH,the school drives me insane!
• Anonymous said… You are 100% right about test scores. They look at test scores not the details or characteristics of Asperger's.
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